LIVING WITH DEMENTIA EP. 18 | WRONG DIAGNOSIS TURNED OUR WORLD UPSIDE DOWN

[@ACharmingAbode]

Watch part 2 with more detail and be sure to subscribe to the new channel. Here's the link to the new video! kzbin.info/www/bejne/hJrLfGidbN2rbsk

[@stinejohansen8342]

Congratulations with your new channel 🥳🥳🥳

[@Eszmae]

@ACharmingAbode when Jason talks about the "third eye" I felt I had to tell you to look into Kundalini.

[@nancyvold1470]

You both amaze me. Jason is so well spoken, and I do realize he has memory loss, but when he speaks it is so evident how intelligent he truly is. The plane flew over and he immediately knew what type it was. God bless you both. Leslie, you are such an inspiration and your love for your husband is evident in every word you speak.

[@ACharmingAbode]

Oh yes! That's 30 years in the military for ya!

[@patgrant8881]

I love Jason’s sense of humor!

[@jDl51015]

Were you guys ever stationed at Scott Air Force Base...Illinois??? We live very near there!

[@kimderoos2168]

Leslie I am a nurse working with dementia residents in a nursing home for over 30 plus yrs. When a person with dementia goes off namenda or aricept they rapidly plummet. The cognition that they were maintaining and functioning with goes down hill when taken off the meds. I pray for Jason , you and your kids.

[@kathywhite1921]

My heart is heavy for you… living with any kind of dementia is so difficult. My father in law had Lewy body dementia and he became very violent, which was the complete opposite of his true nature. Be glad it’s not LBD!! It was incredibly hard on my husband to see his dad like this!! Leslie, you are really an Angel to be taking care of Jason yourself!! Please don’t listen to ANYONE that is negative towards you!! They are not walking in your shoes. You are incredible!! To be able to take care of Jason, to film content for your for KZbin channel to come up with ideas for decorating, doing DIYs and taking care of your home in the process. There is NOTHING wrong with ANYTHING you do… please don’t let anyone steal your joy!! I just don’t understand how some people can verbally hurt someone who is just trying to deal with this terrible disease affecting her husband. And dealing with health issues herself!! Some people 😮just can’t be happy no matter what. You are soooo encouraging and loving to Jason. Your channel is really interesting and I enjoy everything you do!! I love your recipes, your organizing ideas, your decorating style, your devotion to Jason, your creativity, your attitude, your Christ like spirit and especially your smile through it all!! PLEASE believe that you make a difference in this world!! You inspire, inspire, inspire!! I pray that God gives you the strength to get through each day and I pray for Jason too!! May God bless you and keep you safe in his loving arms!! 😊

[@tinahengen3168]

I took care of my mom for 8 years she had PICKS. The long goodbye and the stress and loneliness, is just so cruel and heartbreaking! My thoughts and prayers are with you both!

[@elainethomas2071]

Thank you both so much for being so open to help others. My father passed away 8/12/2021 , when he was alive he was diagnosed with normal pressure hydrocephalus , this continued for about 6 years, then they suspected Parkinson’s , which was ruled out after medication didn’t help at all. Three months before his passing he was admitted to hospital and the consultant thought that he had motor neurones disease, which was extremely alarming for myself and my five sisters. My dad was a very loving man and we made the difficult decision that after his death we would donate his brain both for a diagnosis and to help others. Of course we would have discussed this with dad had all this come up earlier but by this stage dad although he knew who we were , his communication and understanding and movement was bordering on non existent. Our main concern was for dad to feel loved and to spend as much time as possible with him . Everything was put in place and all I hoped was that we had made the right decision . Four weeks later dad passed away peacefully , he was out of pain and free from his restrictions . The process was handled so professionally and dad was transferred to kings college hospital in London for the donation . Four months later I received a telephone call from the professor in charge who told me dad did not have motor neurones disease , he had Lewy bodies . Which surprised us all , being a family of nurses and professional carers. In fact apart from putting our minds at rest regarding the motor neurones , there was much change in our thinking, until the professor explained how my dad would go on for over ten years helping with research to many types of dementia and neurological conditions , both in the uk and around the world . We were thanked many times and made to feel dads donation could possibly be part of research that may help to find a cure. Something we know dad would have told us how proud he was of us making this difficult decision . My dads only sibling also has dementia, and being a scientist himself ( now retired) , my cousins have made the same decision for donation as we did for dad. The professor told us how invaluable it will be to have two siblings who have both donated their brain and spinal cord tissue to hopefully help others in the future . My heart goes out to you both , you are an amazing couple and I love watching your positive videos. Bless you both and continue to smile as you do . Xxx

[@marm2371]

That is amazing!! Thank you for donating to this very worthy cause. I wish more people would donate.

[@cremebrulee4759]

Thank you for making that critical donation. Your father's legacy will live on by helping others.

[@suewinston-elliott2674]

The world needs more funding for Dementia Research.

[@tessab.2065]

I absolutely love Jason's sense of humor! 🙏🏻

[@lineprestkvrn9014]

I am so sorry for Jason experiencing this decline. It's heartbreakingly honest and I can only imagine the grief and loss he feels. As his partner and caregiver this must be so immensly sad and hard. I hope You both have a good summer with many happy moments. ❤️🇧🇻

[@lianeabeyta4515]

I think with all the changes you are going through,,, all the moods, the forgetfulness... as a subscriber, it does my heart good to still see Jason... his sense of humor, his personality , his spirit still shines bright! I just subscribed to your dementia channel to follow the journey. Bless you both!

[@kathy3817]

I can’t believe this! My husband was diagnosed with Early Onset 6 years ago. He recently was told he has Lewy Body! This is just a horrible disease and so many unknowns. I feel for you Leslie. Hang in their friend❤️💜

[@sammyrichardson7305]

All I can say is my father-in-law was diagnosed with Lewy body and then after 5 years the diagnosis was taken away and we were told he had some form of dementia( probably Alzheimer’s) we have now been given back the diagnosis of Lewy body after 3 years. Confusion and shocked and slightly worried it will be changed again.

[@dianefuchs5700]

I like that he still has his sense of humor.

[@MichelleH_]

Happy Fathers day Jason!! And to all the great dads out there! ❤

[@lisaferrin]

Jason has a great sense of humor! "Holding back" lol! It was cool 😎 that he knew what plane flew overhead! Ty for your military service Jason. We are with you on this journey!

[@cremebrulee4759]

I think your channel showed up in my feed because I have been watching Dan Salinger's channel showing the challenges of caring for his father. I hope you read this because I want to tell you that I know you were a wonderful nurse. I have been in the hospital enough to know how you would interact with patients. Of course, you were in the NICU, which is a different atmosphere, but you had to deal with parents, family members, and your fellow employees. I just know that you were a ray of sunshine in everyone's life. Jason is so incredibly lucky to be in such capable and caring hands.

[@terrythomas7035]

Even with his dementia you can see he is trying to make Leslie laugh

[@kiwi4707]

Jason, sometimes I do the same thing reading recipes. You’re still as intelligent as ever, no matter what! Wish you the best 👍🙏❤️

[@MikeJones-dq9jl]

I've been following Jason's Alzheimer diagnosis because my love has suffered some seven years, I thought we were close to overcoming when I got some validation about a new non evasive treatment called TMS or MeRT. They are able to see and adjust to help the patient presumably a longer more normal life. Unfortunately for my Martha her poa refused the procedure and now hospice. Please let me know what you think, her neurologist at OSU said he believed it would be a game changer. God bless you both.

[@cremebrulee4759]

I'm so sorry this treatment was refused. You had hope, and then had that hope crushed. I did TMS for depression, and it helped some but not enough for me to do a third round of treatment sessions because for me it was rather painful. I don't think a lot of patients find it as painful as I did once they got used to it. After that, there was a medication that really helped, but the level of treatment I require would cost me $3,000 a month, which does not fit into my budget. So, I understand how disappointing it is to know there is a treatment that would help, but you can't receive it Best of luck to both of you.

[@deborahjean7576]

Happy Father's Day and many prayers to the entire family!

[@k.mcdonald1960]

I understand why this was so hard because you felt like you were raising awareness for Lewy Body Dementia specifically. You two are great, and I love that you share your experience. As someone who has also had about six misdiagnoses and currently living in the uncertainty of knowing what exactly is causing my neuro symptoms, I can understand and empathize. It is so hard.

[@kuttfam0191]

My dad was diagnosed with Lewy Body Dementia. Two years later it was changed to Parkinson’s Disease. The doctor was quite blunt with us. He told us that if if daddy had LBD he would have already been dead. Daddy lived many years after that. We lost him in January this year. We were so blessed.

[@adaleewalkos4799]

I love Jason's sense of humor. You are both such amazing people. I can't imagine the struggle and heart break of care giving for your rock, best friend, protector as those roles now reverse. I admire you both Hugs, love and prayers for you two as well as your family. Another dynamic that has changed so much as well.

[@virginiamesko6369]

It would be so easy to just give up and say you will do it, but I commend you, Leslie, for patiently allowing Jason to do what he has to so he still feels capable of contributing to your lives. That's so important.

[@lilysgram5886]

I have to believe the fact that he DOESN’T have Leweys Body Dementia is great news. Doesn’t that mean that while he still has a form of dementia he will not have the physical ALS type of muscle deterioration that goes with Lewey’s??

[@jandoherty5299]

Jason, we love you. My heart breaks for all that you’re going through.

[@thejrc561]

Thank you so much for going through your journey with us. My husband has Alzheimer’s, so I really look forward to your posts. Namenda was our lifeline. It stopped the anger, depression, it increased his focus, memory and I could reason with him!! E are one of the few that it helped dramatically. The memory has declined dramatically this year but the rest is good!

[@sylviawebster5045]

what a lovely man

[@SherriNDallasTX]

Another great example of how the medical information we're given cannot be trusted! So heartbreaking.

[@cynthiawhipple9]

I read your email about reconsidering this channel. I am one who can relate to the subject of this channel. My loved one was initially diagnosed with LBD, then a second opinion said it was "too early to tell". Another person, on a LBD FB page, posted her feelings of frustration in that the autopsy of her husband, who was diagnosed with LBD, did NOT show any of that. The frustrations of dealing with this disease are immense. Your last video of living with the loneliness hit home - the most powerful and meaningful video so far for me. I can understand how difficult this is for both you and Jason, and it was clear that during that last video that Jason wasn't wanting to participate. Do what is best for you both. Please know, that you have been helping others who are going through this same thing. God bless you both as you continue on this journey! May God bless everyone who is touched by this with their loved ones or in their life.

[@annemariepratt4480]

Love Jason humor . Very very heart breaking what they have put you through. Where do the right answers come from . Stay strong .

[@debrahayes5802]

Thank you both for being so open as you go through this journey together.

[@teijaflink2226]

I like dark humour specially when I'm struggling I found Jasons joke about wanting to do autopsy now so funny.

[@stinejohansen8342]

Haha 😂😂😂

[@edithwanner1849]

My heart goes out to you both so much.🥰🥰Leslie you truly are a gem !! You are so positive and glowing in the midst of this difficult season ! God’s grace is truly evident!! 🙏🙏🕊🕊

[@msbeaverhausen7226]

You are both so generous to share the happy and sad portions of your life together. You have no idea how inspiring you are to your viewers who have gone through this, are going through it now and to viewers who want to be informed and prepared should dementia become part of their lives in the future. You show that even with a not so positive outcome, you can still live with positivity and light in the moment. I will hold you both, as well as your family, in my prayers.

[@mollieanne]

My mom always talked about the feeling in her frontal part of her brain and would point to her forehead. This was before we knew what was happening, and she would say, "It feels strange here" and motion her forehead. I would ask does it feel like a headache or sensation, but she would say that she could not explain the feeling, and that it was just this weird feeling. My mom was not diagnosed with LBD and they only discovered it was this after her death and autopsy though. In all honesty the only way to know is with an autopsy. I did fine out through my experience with my mom is that most people with dementia are either misdiagnosed or just thrown under a label called undetermined dementia or even vascular dementia and it used to be everyone was just told that the person had Alzheimer's. I wish the medical field would be more considerate how this puts so much stress on the people caring for their loved one and also for the patient. Sometimes I felt like they just did not seem to care about the emotional side of this diagnoses or misdiagnoses.

[@teijaflink2226]

There are so many things like brain injury and genetic disorders that can lead to dementia too (even in children), dementia is more a symptom of a disorders in the brain honestly rather than a diagnose. I really hope that in the future they will become better att diagnosing different types of dementia and too so people can get the medicines that works with their diagnose.

[@mollieanne]

@@teijaflink2226 the brain becomes diseased and then tries to repair the parts that are effected. The plaques are from the brain trying to "fix" the brain that is hurt and that also is what causes the dementia. It is so extremely complicated.

[@barbarapagels4675]

As a Caregiver And RN myself...I would feel Ecstatic 🎉 to hear its NOT Lewy Body! Wow! 🙌💜🥰

[@fernemcallister6774]

He is still hysterical. God bless you both.

[@charlottesilver9346]

Love watching you and Jason. What an amazing man he is to let us follow his journey. Leslie, you are a wonderful caregiver, but please take care of yourself. Keeping you guys in my prayers.

[@mazinheatwole1907]

Jason's humor; what a blessing 😂

[@amycornfield]

Thank you so much for sharing honestly In number 19! My husband has had advanced parkinsense since He was 29 and has had dimensia for quite a while Now. we are also Christians and met when I was 15! We've been married 34 years this summer. In the meantime, we've had to raise our kids in the midst of this and are considering some type of ministry to families with young onset. you are inspiring me and encouraging me to share so that others might be encouraged. God bless!

[@Melaniexb1]

I do too read step number 1 serval times

[@gailtester8749]

You guys are incredible. My husband is in stage 5 parkinson's and has also been diagnosed with lbd. His falls, difficult with speech, disturbed rem and rigidity were big factors in his diagnosis which don't seem to factor into Jason's problems. Well, don't know about his rem sleep... but the falls and hallucinations are huge with my dh. Blessings to you both! You handle this with such grace! Admirable!

[@doloresg6]

Hi from Pomona California. I absolutely enjoy your candor, honesty and love of faith. It never dawned on me that you two remind me of dearest of friends who I spent Father’s Day with yesterday but now I know why I wish the best for your family with positive thoughts as you go on this journey. You have helped me as I’ve been my much older sister’s caregiver with her own bought of health issues. Giving perspective of patience. Helping myself when talking to my sister and/or her medical team. Including pharmacist to get her on the right medications. God Bless you for sharing, caring and your love of the Lord💙💙💙 Virtual hugs, Dolores😊

[@Clynn57]

Volunteering for the autopsy, now...🤣🤣🤣 So cute how’s he’s still so humorous. God bless you both.

[@robinduke3184]

I know you both deal with it because you have no choice, and I’m sure you have many horrible moments that you don’t share, but I have to say, y’all amaze me. You are just great people to share this part of your lives. I bet it will help so many people. You could just do the decorating videos, but you decided to help others going through what you are going through. 💛

[@karens346]

Prayers for you Leslie and Jason.

[@sawdust2556]

You two are adorable together. I’m sorry things got more confusing with a changed diagnosis. I hope you’re able to slow the memory lock. Love you both!❤🙏🏼

[@k-leeatwell-stoltz6464]

I have the same issue. My 22 year old son has what we call "autism". We have gone through many diagnosis during his life. They thought fragile x, severe ADHD, Auditory processing disorder, and autism. Given the day of testing you will get a different diagnosis. The one we know for sure is the Auditory processing disorder. It looks so similar to autism that it could be its that and not autism or both. It's not fragile x . We did the blood test to confirm. He has symptoms of ADHD but didn't respond well to medication. So I feel you deeply. It doesn't change what is for us or our guy. We keep doing what we need to do to help him be successful in life. The struggle is real. Blessings from Colorado.

[@LindaKayHolevas]

My thoughts & prayers are with you. My 8 year old grandson is on the autism spectrum & also has ADHD. I am his main caregiver (aside from his dad, my son) & we have had gone through it with getting him the proper diagnosis. I also take care of a young man (who is also 22) with Fragile X syndrome who also has autism. I know his family has been through a rough time also. Anyway, It can be a difficult road to manage at times for sure. I am sending you & your family love & light. ❤✨

[@lindascreativecards]

My father had Alzheimer's and was on Namenda...he told me that he was remembering things he didn't want to remember...he was in the Korean war as a medic that drove a rail-bus to the front lines to pick up the wounded, and also to deliver POW's to the front.

[@plantsbythemoon9049]

Oh my goodness, that would be rough. So sorry that happened to him.

[@olgabombard6277]

Jason you are so funny! I love your scene of humor!

[@ellenh9381]

I’m so happy to hear Jason joking around again, it’s a nice part of his personality. ❤ Bless you both.

[@susangilbert7596]

Thank you both for sharing your journey. To Jason love your sense of humor. Sometimes it’s all we got to help us through the tough times. Thank you for your service to our country sir🇺🇸

[@lindakaye1549]

Im so sorry for whats happening with jason… ive been following A Charming Abode for several years now and have watched Jasons decline… my husband has had dementia as well, and on a steady decline, and passed last week… he is in a better place, and with Jesus… Im so sad for all he experienced in this journey… God be with you two on your journey… love you guys!❤

[@ACharmingAbode]

I’m so sorry to hear about your husband. Sending prayers for comfort during this difficult time. 🙏🏼❤️

[@stevenwilson1762]

My mom had dementia. I feel you have a blessingthat you can talk to Jason about what is going on and he has his sense of humor. Seems like my mom went from bad to worse in no time. I am not on Instagram and maybe you have covered how your health is going. You have alot on your plate. Mrs.Steve

[@Melodie007]

You both are so helpful and real. Thank you so much❤

[@erinwoempner1228]

We never know what the Lord’s plans are. Prayers are coming for the Lord’s will to be done for you to to love one another it’s just so amazing to watch to people who didn’t walk out on each other who worked together it’s just uplifting and it reminds me how precious life is.

[@annedegn1015]

Bless you both so much! With all you deal with and still have a laugh, joke or chuckle is awesome! Also to share your experiences and get this information out there is incredible! God Bless You🙏🏻🙏🏻🙏🏻

[@southerngrits920]

I wish you would put date in the title going forward. Ep18 6-23. That way ppl can better know later years the history of this journey. My daddy needed me as a caregiver for 3 yrs before his death. When I ask his doctor what was his diagnosis he said there was no drugs to change it or that a label would matter. I labeled it as dementia from a nurse doing the test moving him from hospital to rehab for non weight barring broken leg. My journey with Daddy dementia ended St Patrick day 2020. Daddy was 92 yrs legally blind deaf and on a walker. Now I am seeing early signs with my mother 97.

[@ACharmingAbode]

The date is in the description box, but going forward the dementia videos will only be on the dementia channel. One a week on Sundays. Wow 97! What an amazing long life! How beautiful!

[@rosaliecampbell2781]

My Husbands, neurologist diagnosed him with Lewy body dementia, he was on hospice for two years with Parkinson’s/dementia. Others… Including nurses and doctors didn’t think it was Lewey body. A friend of mine. Husband did have Parkinson’s and Lewy body and he only lasted five months After his diagnosis. She explained it that it is a plaque that attacks the brain. maybe this is a good thing that your husband’s lifespan might be increased. I have enjoyed watching your podcast, which has been very uplifting and positive. I pray for you! My husband passed away in February, because he broke his hip. He would probably still be alive had he not had a fall. Thinking of you and best wishes that changes in medicine will be helpful.🙏

[@heynedajoon]

His sense of humor is intact!

[@micheleoconnell8749]

I am trained n Namenda and I will tell you Namenda slows the decline. If Jason starts taking Namenda again he could experience a bump of improvement and it’s worth a try.

[@susieconner710]

Jason does amazing to me. He hasn’t lost his sense of humor at all. I know you’re videoing his good days, however for you to keep him focused is awesome 💗💗💗 God bless you both!

[@angelinalanzillotti2773]

I love you 2. I understand the challenges you 2 tend to daily, but Jason is just amazing how he conveys what is going on in him. His world is not like the majority anymore, but the spirit in him is awesome. Thank you, two, for being you two and sharing your world with use. So many are attending to such simular daily dealings and to have you 2 share helps a great deal. Modern Medicine is still stuck in the Stone Age. Real people talking real helps a lot.

[@fishfinder6427]

We all feel for you Leslie. Tough being a caregiver. I am just going thru your videos. God bless you girl!

[@christiner5579]

We went through the same ordeal with my dad. He passed 4 years ago. Thank you for talking about this disease with openiness and transparency. It helps Jason sees humor in it all.❤

[@nicoleheatherington4365]

Hey Idon't have dimentua and I have to review the directions multiply times too

[@sherrykahn2474]

You guys are great to make people aware of the challenges of dementia and exactly what it entales. So sorry you beautiful people have to go through this journey..😊🌹🦋🌼❤

[@mrsh2167]

Thanks for the post, It is rarely possible to be sure what kind of dementia a patient has, and there are quite a few.

[@sherriwalters6095]

Happy Father’s Day, Jason…I see what a wonderful Dad, Grandfather and Husband that you are!!!♥️ I can only try to imagine what you’re going through. I know it must be beyond frustrating to not know what Jason’s “correct diagnosis”, but I wonder if there’s any relief in knowing that it’s not LBD? When I first started to watch your channel with the announcement of Jason’s illness, I did wonder if his brain injury had caused him to have CTE. My partner lost his wife to the inherited form of Creutzfeldt-Jacob disease at the age of 46. She lived about 18 months once she started showing symptoms. He took care of her by himself and it was very difficult, but they loved each other like You & Jason…so he never considered leaving her, but they had no family to help. I listened to part 2 first by accident. Thank you for sharing your steadfast faith, love and openness with us. There are things that my partner has difficulty talking about in what he went through, and I understand that you’re not talking about CJD…but it does help me to learn about what dementia is like to deal with and what he went through. God bless you both and your family…praying for you! 🙏💙

[@GenXersJustWalkItOff]

Jason is HILARIOUS! You guys are amazing; thank you for sharing.💕

[@annegreenwood3624]

it’s so difficult when things change or the illness throws a wrench into the mix plus it sucks sorry things aren’t going well my father is also declining sleeping more and doing things over and over he doesn’t even go outside thanks for sharing your journey it is good Jason still has his sense of humour makes me smile

[@susanwalker7447]

Wonderful that your husband still has a sense of humor. I pray that God will slow the progression of this disease.❤ 🙏

[@saltandpepper9389]

My mom had a frontotemporal dementia, she was hardly 50 when we noticed the first symptoms. It’s totally different from other dementias and really difficult to diagnose, until you can see the changes in the scan. And there’s no medication for it either, neither cure. 50 % of the cases are hereditary, so I’m scared to death (I’ll turn 45). She lived with the disease for almost 20 years and I can say honestly it’s the most horrible illness I’ve ever seen. These more rare dementias should be discussed more, so that people would recognition the early symptoms better. Sending you lots of love, hang in there and enjoy each day you’ve got together ❤

[@laurajeffcoat4731]

Oh you guys 🤯 I'm so sorry. But like you said you have to roll with the punches. Will definitely be going to the other channel to watch. Happy Father's Day to Jason 🤗💞💕💓

[@debbieblair3329]

He still has his sense of humor! That’s great!

[@BNYC18]

Jason has not lost his sense of humour! Love how you guys deal with this. We went through dementia with my grandma and it was extremely sad but we sure had some laughs and you have too. Ty for sharing your journey and lives.

[@sherrymacaroni5916]

Thankyou guys!!! Love, prayers and respect to you both.

[@rachelkmac]

Lewy Body, with the shuffling gate/falling brings with it another whole set of issues that maybe you won’t have to deal with. My husband & I cared for his dad during his years with Lewy Body dementia and I would describe being a full time caregiver as carrying a backpack where pebbles keep getting added so you don’t realize how heavy it’s getting. More weight is added so gradually that you just get used to that amount of weight and you just keep going. My heart goes out to you both!

[@deboraholiver3716]

healing is on it's way!!! He does have something very different. I am an internet surf nut. I hope all the best. My dog is barking. i love you two.

[@MissMimi55]

Happy Father's Day Jason!!

[@carvertmmy]

I am going through this right now with my husband. Last year through mri he was diagnosed vascular dementia, then in May of this year it was FtD with Parkinsonism, a pet scan this month showed findings consistent with Alzheimer’s, but he is progressing too fat for it to be Alzheimer’s or even FTD. Neurologist referred us to hospice because of the rate of progression and talked to me about the possibility of this being creutzfeldt-Jakob disease which causes a rapidly progressive dementia and life expectancy is 1 year. Neurologist feels he won’t live past 6 months. I was frustrated and angry at first after the pet scan. Which is not helpful or productive. We are not consenting to any more testing and are focusing on his comfort and giving as much quality of life as possible. We have a 12 year old son. Hospice starts tomorrow in hime and we will keep him home unless it becomes too much for our son to handle. My husband sleeps more hours than he is awake now and is falling down a lot.

[@tammylewis6296]

I don't know what to say because my heart aches for you both. My son has autism and it's not easy at times. But God gets you through. He always shows up! I'll continue to pray for you both. You're both such amazing people and we all care--lots! 🙏🤗💕

[@judymooney2993]

Jason seems to be doing so very well. He is very articulate and should not feel badly about having to re-read recipes - we all do. Funny guy so we know he always had a great sense of humor. Always the best wished for going forward.

[@shopgirl_ny152]

I'm happy to see Jason smiling and joking n this video. He had it rough the last few videos. I hope the new drug regimen works better for him. God bless you both.

[@dianewristen]

I AM ON MY WAY OVER TO THE OTHER CHANNEL. THANK YOU

[@Baylee]

🎉HAPPY 4th OF JULY🎉 JASON & LESLIE Just a note to make you aware that both of you are in my thoughts and my prayers today, as we Celebrate our Nation's Independence on this 4th of July. Thank you, Jason, for your service to our Country, and God Bless you! I'm a "loyal friend" you've never met, but one who cares, and is on this journey with you from Tennessee. Praying for you today. Hope you're enjoying this Holiday with your family and each other! 🎉❤🎉❤🎉❤🎉❤🎉❤🎉❤🎉

[@plantsbythemoon9049]

Jason, I'm glad the doctor didn't take you up on your offer 😉! We love you both. Thank you for the update. Subscribed to both channels. Thank you Leslie for all of your time invested to share both your decorating talents and caregiver skills.

[@mhelen7360]

This was such an interesting video, Leslie, and I look forward to watching part 2. As usual, you and Jason are such an inspiration, and in spite of the difficult subject matter, it's always a joy to hear you share.

[@francesthompson1324]

I am curious if Jason is on any supplements that help with nerve damage. There are so many that could help. Blessed be. Many happy days together.

[@lorrainechandler398]

John 14:27 KJV A go to verse for me when I cared for my mom. Her dementia was bad, she had severe horrible psychotic episodes. It was hard to stay focused on her when she wouldn't know me and ask my husband where is that woman? I had to push any of my pain aside. Always tried to take it to the Lord later when I had a little time to myself. Also when she was herself and would ask me why she was in my house and where was her apt?, I would tell her the whole story and she would want to walk around the outside of the house thinking that would make the LBD go away. So we walked her around the house for two years of the 2.5 she was with us, sometimes two or three times a day. We learned fairly early not to ask her more than one simple question at a time, sometimes she answered but usually not, we didn't ask again. asking questions made it worse, conversations made it worse, her headaches and frustrations would surge. She quit reading, watching tv, and making beaded earrings with me which she loved to do, she was like Jason with the recipes. She sat there one day holding the beads for about fifteen minutes struggling and finally said through tears I don't know what to do. I gently took them from her and said don't worry I will make them. She was so relieved and that was the last time for making earrings she never mentioned it again and neither did I. She started not being able to make her coffee pods, or use the remote or find things, dress herself and she started forgetting where to put the (used) t.p. how to use the toilet etc. It got really bad really quick after that. The last four months with LBD seems like the person just steps off a cliff and plummets through step seven. But it is the hardest with the most personal care the most decline, the most bad falls, getting the hospital bed, bath care help coming in, palliative care and going through all of the end phases so rapidly that you can hardly breathe. My mom went from 160 pds, to 80 at the end, and lost all interest food in the last 6 months with the last four weeks just being given jello and pudding and she would only eat a few bites. You absolutely can't reason with them as it makes it worse. We talked when she wanted to but mostly she was happy and laughed a lot watching a small tank of cherry shrimp we set up for her. We would bring her coffee and she was always very grateful for it, but she would set it down most of the time and forget it, we never bothered her about, I just removed the mug and tried again later. It was best if we gently directed and did the personal care and bed times as she liked. She also slept a lot, we never commented on her long hours we just ended up living very quiet lives with her, acting and accepting that what she did was her new normal, as that was what worked best. She loved to listen to a CD her brother made of old time gospel songs. We played it over and over again. Did I say we played that thing over and over again! Sometimes we had fun with her when she was having a good day. She might ask where was I born? and I would fib to her and say an island in the pacific and she would think a minute and then say., I was not!!! and then we would all laugh. She had a great sense of humor. Family and friends would call to talk with her but one day she quit taking the calls because she said she couldn't get the words to come out. Too embarrassed. It was hard to explain to family that she said she didn't want to talk to them, but they tried and eventually the phone conversations were all one sided and they started to understand. When she did talk it didn't make sense. Her brother and his wife came by one day to visit and I think to see for themselves, That was a very painful two hours for them mostly and mother but I understood he had to check on his little sister for himself. They never stopped by again but he would call and check on her frequently. By the grace and mercy of The Holy Trinity and the living word we made it to the light at the end of the tunnel in August of last year. My mother had tripped over a curb going into a store 12 years earlier and had hit her head horribly on the curb and was rushed to emergency. When she was released I noticed she walked funny, kinda on her tip toes in a weird gait and I knew it was bad. They said it was what had probably caused her LBD. God told us right after he took her home early one morning, that she was home, happy and smiling. We celebrated that day and have every day since..😇 God bless

[@joannpergakis4183]

My heart goes out to you both Live each each as best you both can Hugs and prayers 🙏 ❤️

[@fralinsandfriends]

That must be frustrating. There's a lot of types of dementia that aren't able to be diagnosed unless there's an autopsy. That had to shake you up pretty good. 😃😃👋👋💖💖

[@Munichismybaby]

Happy Father's Day Jason! You are hilarious!

[@karentucker1304]

God bless you both!! Thank you for sharing your journey. I'm headed over to subscribe to your new channel as well.

[@bjvrelax127]

I think its wonderful that you both take the time to share your story despite all you are going through each week. I am sure it will help so many others. I am sure you have looked into all avenues to help or resolve both your medical problems. I hear a lot about functional medicine and how they look at the whole body and not just treat the symptoms and was wondering if you can speak to that if it has in one of your videos. Praying for you both.

[@IMOO1896]

So many statements Jason has made, are descriptions of me, he said his thoughts “float away so fast” is definitely a phrase I know all to well.

[@wanderertimetogo348]

It is very hard to get medicines right, but I’ve been learning more natural methods and somemethods makes me feeling better. I’m trying to get back to the earth.

[@sdeaglefeather]

Can’t find the new videos. “Living with Dementia” brings me back to this video. Can you put a link in the description? Thanks

[@ACharmingAbode]

Hi the link works correctly! It says part 2 on the new channel! Thank you! kzbin.info/www/bejne/hJrLfGidbN2rbsk

[@Leasahayrs]

I guess I dont understand why it matters what kind? I'm not being nasty, I'm curious. Trying to understand what my mom and grandpa went through.