LIVING WITH DEMENTIA EP. 21 | MEDICATION MANAGEMENT AND DIVERSION TACTICS

[@susanrnbc]

As a nurse who spent a lot of my career working with people who have dementia, I want to thank you both for being so honest and real about how you BOTH are living with dementia as the caregiver and the “patient”. Your videos are surely reaching people who need to hear what you have to say.

[@VancouverIslandHippieChick]

Amen

[@jenniestacy1466]

Praying for you both.

[@debbyschweighardt5810]

Thank you for sharing your life journey with us. I wish we could make things easier for both of you. Sending you virtual hugs from New Jersey!

[@debbiebeattie3200]

I Love the humor in your way of handling Jason. I have one with Parkinson's, and I think Dementia. We are still testing

[@WhispersFromTheDark]

Amen!

[@theflamboyantgrandma1890]

Needs to be said again!!: SISTER DON'T ALLOW THE TROLLS FREE RENT IN YOUR HEAD MUCH LESS YOUR HEART. What you're doing here is compassionate kind and loving...I appreciate you and Jason SOO much for sharing your journey with us!! ❤

[@NinasHere4U]

Amen, 💯

[@catherinepalun972]

I totally agree! Blessings to you for helping us……..🙏❤️🇦🇺

[@linz716]

I agree and I'm sure your comment/support has meant a lot to Leslie and Jason. Sending them love from the UK.

[@pattypugh3502]

Thank you so much

[@sunshinegal4294]

Well said. 🎯❣️

[@cmkirn]

I am so sorry if you’re getting hate messages. You are doing an INCREDIBLE service. Love you both so much 💗💗💗💗💗

[@lindachandler5980]

i didn't see any hate messages on the last video.

[@helenpeddycord2241]

@@lindachandler5980- Most likely they were deleted. Thankfully

[@sarahelizabeth299]

I’m so sorry you’re dealing with trolls. Thank you so much for sharing your journey.

[@pamgaither4744]

Hey...they need not watch if they are mean..block em!!

[@sweetsmiles1001]

I really feel bad for you that you have to go through it. My grandpa had dementia and I always wondered how caregivers do it. When my husband was alive, he was not financially savvy at all and he didn’t even have dementia! You’re doing a great job!

[@bonniehodgson8776]

As a caregiver for people with dementia, let me tell you, you’re doing a fabulous job!❤

[@lisafarnsworth3887]

Thank you for these separate dementia videos on a separate channel. My husband has brain damage and we go through so much of what you are dealing with. The $$ thing is real!! My husband wanted to buy a $400 thousand submarine so that we could live on! The mood swings are EXHAUSTING!! May God continue to give us strength!

[@jeangraceNpeace6767]

Leslie, I'm one of your subscribers who is not caring for anyone with dementia. I'm here to learn from you and Jason in case my future includes caring for, or ministering to (I'm a newly ordained lay Chaplain), families who have loved ones with dementia. Thank you so much for sharing your and Jason's journey with us. These insights are like a pebble that's thrown in a pond... they will go out far and wide but you may never know what shore they land on. God bless you both and thank you for being so vulnerable. I'm sure you're helping more people than you know! ❤

[@lindathompson9334]

My husband had dementia and passed from it two years ago. We were together from high school and were married 52 years. A resource that helped me was Teepa Snow's videos. She was a great help in my learning those little tactics that make things go a little easier. Jason is lucky you are an experienced nurse and that you are so patient. God bless you both.

[@kittys6237]

I will look up those video's Thank You. My husband has had Lewy Body Dementia with the starting of Parkinson's. We just celebrated 56 years of marriage. I have a girl come in a couple times a week to exercise, and watch him so I can go to the store. Each person is different. But his continuous falling scars me. Thanks again.

[@sunshinegal4294]

❤

[@Abc-1973]

I have been diagnosed with dementia myself so let me tell you what an awesome loving couple you are.❤️ I don’t drive anymore and I turned everything financial to my daughter. I don’t even keep my debit or credit card because I know I will get to the point 😢where I can’t make good choices. Your channel helps me.

[@annmariebrittan6159]

Wow! you are a rare gem.

[@LynetteA68]

I’m so very sorry🥲

[@pamelaabettis7225]

I love that although Jason’s moods are at times hostile, his love & protectiveness for his precious wife shows through.

[@dianaray1470]

Are we watching the same video?

[@bdlimea7018]

​@dianaray1470 You don't think Jason's love and protectivness shows through in the video?

[@susanjoyce8053]

Leslie, I’m a retired nurse and I was a caregiver for my husband… being a caregiver turns it all upside down. God is good, he does prepare us for what we’re going to need. You have people out here rooting for you.

[@Barbara-fy8cs]

As a retired RN I have full understanding of what it is like; I have not experienced dementia on a personal level. I watch because I love how you present dementia Homelife with Jason. It's real and hard. SHAME on those who criticize anything you say and do. I respect you very much.

[@lindaparra6002]

Amen Barbara! We love Leslie and Jason❤️❤️

[@misssunshine2234]

They are both role models for everybody who cares or must live with this terrible disease.❤

[@cazgalbraith8110]

Leslie, you put on such a good face for the camera but I can feel the internal struggle you have and the constant feeling of wanting to have a breakdown if you only had a second to yourself to do it. You are such a strong person - you don't want to have to be, I'm sure, but yet, here you are. And you are helping more people than you know. Thank you for being you. And don't forget to go in a corner sometimes and cry it out. ❤

[@LynetteA68]

I feel her pain! It breaks my heart!!💔🥲I wish I could give her a big hug! She’s the kindest sweetest person & it is just SO unfair that she & Jason are going through this pure HELL of a disease!! I pray to God they find a cure soon!! Until then I pray for every caretaker who’s living through watching their partner or family member go through such a horrible disease!! 🙏🏼

[@judybryant3880]

I once posted a comment that it was hard to watch your videos and I meant because I had been through it and I knew it was only going to get worse because I had been there with my husband. I felt like you took it the wrong way. It was because my heart breaks for you and Jason. When I was going through it, I searched for someone like you going through what I was. I probably didn't handle my situation as well as you. I tried, but it was very hard to not take it personally. I did have to learn not to raise my voice or say he had lied because he would really get angry. When I slipped, I'd turn it around by saying I know you didn't do it but someone did and he was ok even though no one else had been around. As you say, I see similarities but a lot of difference too. As far as stages, I think they tend to overlap. I would see a stage 7 thing going on at times but the doctors may be saying stage 5. I think overall the caregiver of a loved one especially a husband suffers more than the patient as they aren't able to see it how we do. My pet peeve was people who said he seems great, is he getting better. I'd hear later and it would get back to me that they didn't see anything wrong with my husband. God bless you, Leslie, Jason and your family.

[@holdonC]

In episode 19 Loneliness it was the first time I saw her play the lion tamer. Taming the lion is exhausting mental gymnastics. It was clear by how relaxed and freely she spoke while alone.

[@savedbygrace3686]

I’m so thankful to have found your channel. I don’t feel so alone anymore. It’s so easy for others to say “well, just do this or that” when they have no experience walking the journey with a loved one who has dementia. I find it’s not even about finding a way to balance everything because it changes so frequently. Medication change is a nightmare for sure. My husband was diagnosed with Parkinson’s in 2016 and dementia last spring. Our whole lives changed overnight it seems but so thankful that we serve a God who doesn’t change. He is by our side through every single second. Yes, this disease is such a cruel disease but God has shown us so much about who He is through this journey and for that, I will forever be thankful. Sending prayers up for you as a caregiver because it is so very hard. Sending prayers up for the medication changes to level out. The mood changes seem to be the hardest for me because it’s not who my husband is and when he realizes that he has said or done something that hurt me (he never intends to hurt my feelings), it breaks his heart. 40 yrs of marriage and still feeling blessed to have him by my side. He still tries to take care of me. Hang in there and know that you’ve got followers who do understand and pray for y’all.

[@VancouverIslandHippieChick]

🙏

[@sharonn7488]

Agree!

[@lauriegenovese3936]

I like your comment. My husband was diagnosed with atypical PD in 2014, then atypical dementia in 2018. It was really hard when his blood pressure went extremely low and he would fall. Thankfully he never broke a bone or needed stitches, but it was difficult to tell him to sit or he would fall. He couldn’t remember. He went home to our Lord in 2021. I miss him so.

[@geraldineross5168]

Saved by Grace, Thank you for your reply when reading what you are going through with your husbands Dementia I feel we are living the same life. My husband is suffering stage 4/5 Alzheimer’s Dementia and he is not the same man I married 56 years ago he has turned into a narcissistic mean person. I am his caregiver and find his attitude towards me is that I am telling him what to do and he gets extremely angry. Life is not what it used to be and I miss my husband of so many years ago. Please stay strong and I will also.😢

[@savedbygrace3686]

@@lauriegenovese3936 I’m so very sorry for your loss. I know you miss him so very much. PD and dementia are such cruel diseases and they steal so much from the lives who are effected by it. Praying God gives you a peace that surpasses all understanding as you travel this road. God reminds me on a daily basis that He is big enough and will go before us and will be right beside us in the fire.

[@kandydewey1286]

Hi Leslie. I never really comment but after watching this today I felt I should. I don't want you to feel alone. I was my grandmothers caregiver. She too had dementia. It was a huge struggle. All of her kids kept telling me to put her in a home especially after she got physical, but I couldn't do that to her. Everyone else gave up on her so I couldn't. When I took her license from her she actually called the police on me. We went through a lot. When you talk about money. Wow let me tell you I pray for you. It got to the point grandma was writing bad checks. Thankfully she never went on the computer. The medications they had her on were junk. Her mood never got better but it wasn't always bad. She never forgot her routine. Wake up, watch Bozo then at 10 she'd watch the price is right then her soap operas when she wasn't sleeping. Several times she'd fall asleep sitting up in her chair. I think the hardest thing was not taking things personal. Like when she'd yell at me for not making the right food or taking too long with laundry or she would just get frustrated out of the blue and would swear and call me names tell me she wishes we weren't related. That she never loved me. She hated that she had to take care of me when mom and dad separated. I knew that wasn't her, but having those words come from her mouth was heartbreaking. I learned not to cry in front of her because that made matters worse. There was a lot. Never ending stories. She used to constantly order out. She would forget and sometimes order lunch 3 times then get upset with me because she didn't do that. When I finally took her checkbook I seen real sadness in her eyes. Like she knew something was wrong and she was scared. Anyways I'll continue to leave a comment and remind you that you're not alone. Always remember God listens so give it to him. Some days you feel like shouting grab a pillow. Go sit on the porch in the evening and just talk to God. Let it all out. Go through the whole day with him ask him to comfort your heart and help Jason as he continues on this path laid before him. I'll continue to pray for you both. Sending love and hugs your way. God bless you both. 😌

[@beccalee8174]

I am listening to prepare myself in the event that I will be faced with caring for a loved one with dementia. This is extremely educational. Please know that you are providing a great service for those of us who haven’t experienced living with someone with dementia. Thank you!

[@sherriwalters6095]

It saddens me to know that people are being unkind…You are helping so many and you are both lovely!!! Jason looks like he’s lost a little weight in his face. He’s adorably funny…I enjoy seeing this! 🙏🌹

[@catherinerose1607]

Being bullied as an adult can sometimes be just as hurtful as a child being bullied. I agree that they are both just delightful😊.

[@raydavis6979]

I’m a hospice chaplain - deal with dementia all the time. You do you - don’t worry what others (including “experts” like me) think!

[@joannstreet9802]

Oh Leslie, I so feel for you. My mother in the " throws of dementia" wrote some huge checks to charities, and at one point wrote a check for thousands to Publishers Clearing House arguing that it gave her a better chance to win. Subsequently, she began refusing to leave the house because Publishers Clearing House was coming with cameras to give her the check. The hardest part was when she began not recognizing family members, feeling like she was always amongst strangers. Be good to yourself Leslie. I commit to pray

[@bethkelly9206]

Oh this brings back some memories of my mom! God Bless her in heaven now. I was calling PCH over and over begging them to stop sending her stuff. Finally I lied and said she had passed away.

[@jojoFranklin]

This is the hardest journey. Your grace, kindness, humor and love shine through although I know the reality of life is terribly difficult. Love and strength to you both.

[@kiwi4707]

It’s so great that Jason is aware of so many things occurring with his mood swings, outlook, etc… On the downside is the fact that he’s aware of the changes happening and can’t do anything about it. Jason’s intelligence shines through and is definitely a plus! Prayers are with you both always, stay strong. 🙏🙏🙏🙏❤️❤️❤️❤️

[@AA-qe2kx]

So I don’t have a family member with dementia but I am a nurse who worked in a dementia unit and I do have some understanding. You’re an amazing woman and are doing a great job!

[@patriciabaldwin4680]

I have Parkinson’s Disease and I am terrified I will develop Lewy Bodies Dementia. I am caretaker to my husband and I am so grateful you and Jason are sharing this journey. Love and prayers!♥🙏🏻♥

[@sharlenehenry8632]

Walking on eggshells is so my life. 👍. So many things is nice to know that I’m not alone. It’s hard. No one knows unless they have walked in our shoes. You are my lifeline. Thank you for that. ❤️

[@carlathoms1626]

Thank you for your Chanel. My husband was diagnosed with dementia 5 years ago at age 57. So much of what you say is my life. It is a hard way to live but I fill honored to take care of my husband.

[@nukejets]

Yes, I have dementia and possibly LBD. I certainly feel the ups and downs of the disease. I enjoy hearing your stories. I think Jason and I would have been big buds! Blessings to you both.

[@KimberlieOtt]

Praying for you!!! Don't let others steal your sweet smile with their meanness! They have no idea what it's like to walk in your shoes. Blessings to you and Jason.

[@jackieadamski4753]

My father was diagnosed last spring with mild dementia. In June of 2022 he got COVID and spent two weeks in the hospital and two months in a nursing home rehabbing. I believe the COVID really ramped up his dementia. He went from mild to advanced in just a matter of months. I moved into his home and was his caregiver for ten months. Man what a roller coaster ride! Happy, mad, cussing me out just for being in the same room with him. For a few months after he got home he had some good moments of long term memories so I learned lots about my dad that I didn’t know before. It was good times and bad times. My dad passed on May 16th at home with his family by his side just as he wanted. Being his caregiver was the hardest thing I’ve ever done but I can honestly say I would do it all again. I will always cherish that time with my dad. I will add that from the time he got COVID until the day he passed he had no idea who I was. He referred to me as the woman that took care of him. That was the hardest part for me. I will definitely be praying for you and Jason. God Bless You both❤

[@user-sz5wv8tm9c]

😊

[@misssunshine2234]

Jackie,that was a heartbreaking story about your dad.❤Big hug from Germany 🫶🏼

[@tracyriordan7011]

I am so sorry about your dad. Jackie. How old was your dad?

[@cindisartors117]

My Mother was my Dad's caregiver when he was diagnosed. She gave and gave til her body began to give out on her. I was working and could only help on weekends and it was not enough help. Every situation is different and you are the only one who can decide what is best for you. I see you using humor and smiles. May God bless you and please ask for help when you are at wits end. My Dad was different towards me so thankfully my Mother could leave to clear her mind or even lie down or do something for herself at times I was there. You both are in my prayers!!

[@mtnjhutch]

I think it advanced dementia in a lot of seniors

[@NinasHere4U]

I think you are doing great with these videos, my Uncle was a big-time show off in his dementia, and my aunt was always being questioned by people who thought he wasn't bad off, I know you are telling the truth and I'm sure it's really harder than you're even telling us. God bless you, sweet Leslie, and I've prayed just now for Jason and his meds. Love you both!

[@helensmith3917]

Watching your videos, I realised my husband displayed the same symptoms as Jason. My husband also suffered a traumatic brain injury while deployed with the air force. He was officially diagnosed in December 2022 with advanced dementia, and we were told to make every day count.

[@joyful_tanya]

I did too. My husband has had several TBIs from motorcycle crashes, work incidents (diesel truck mechanic), plus a history of substance abuse. He was a teenager in the late '60s and early '70s. My husband had an MRI and they said "everything is normal". But proper diagnosis only happens post mortem. I'm a retired nurse and I took care of a lot of different dementia patients. I see a LOT of similarities. It's been progressive over the last 20 years. It's very difficult now at 69 years old. He says exactly the opposite of what he means. He mixes everything up if I try to talk to him seriously about anything. For instance if I said "I love it when you ___" he will hear "I hate it when you ____". I can't get any medical professionals on board because he "show times" for the doctors. Therefore the doctors think I have "Munchausen by proxy" or something. I'm really sorry for the definitive diagnosis of your husband. Hugs and prayers. 🙏🏻🫂

[@reconstructingleslie4597]

I think my husband has this as well

[@pattyd8480]

Please check out the Institute of Neurological Recovery to see if they can help your husband. They treat people who have suffered TBA's.

[@tracyriordan7011]

​@@joyful_tanyaI am seeing the same thing with my husband also had several bad accidents on his motorcycle and was a teen in the late 60's and 70's, 70's more. He is only 63, but he has already started to lose lots of memory and doesn't remember things like where to go sces he has always known. It is very scary! I have not taken him to see a brain doctor or neurologist yet! ) :

[@joyful_tanya]

@@tracyriordan7011 we can't get a referral to a neurologist because my husband's PCP "didn't see anything" on the MRI. Which means absolutely nothing but Medicare and Medicaid will not allow him and get it paid for. So I guess we wait until the postmortem. No one will listen to us.

[@marycornelison532]

I so appreciate your videos. We have been married for 32 years and my husband was diagnosed with dementia 3 years ago. He is fading quickly and the changes in him are not my husband. He is still very concerned about my safety. You have helped me so much by being honest. My Lord is also my go to in order to stay sane. I love my husband so much, as others do and I don't feel alone knowing other ladies are going thru the same thing. Thank you for being there for us.

[@terrybouck5192]

Be strong Leslie, you do such a great caring job.

[@maggiegreene6857]

Leslie I’ve been watching your videos even before the time you shared about Jason’s diagnosis. I feel bad I haven’t said anything until now how much you’ve been such an encouragement and inspiration. You’re so courageous to post your journey on KZbin. My husband also has dementia (Alzheimers). It is not an easy journey. You are a sister in Christ, I will be praying for you & Jason. Warm hugs all the way from Australia.

[@tinacollins2055]

Leslie, you have major health issues. This must impact how you feel and are able to cope with Jason. Please take some time for yourself. I worry as much about you and I do about Jason. Well, actually I worry more about you. There will come a day when Jason has passed and I don't want you to have ruined your health. 💕💕

[@susangardener6761]

My brother-in-law has LBD and my sister is on a roller coaster every day. No 2 days are the same. He is convinced that they are homeless and will be kicked out of their house at any time. Medications help but don't resolve the issues. You have my prayers as you navigate through the difficulties! Keep up the good work!

[@ziggy_bandicoot]

I went through what you are going through for almost 15 years. Husband had a brain injury and then dementia. Yes you have to be creative, and patient, and flexible. There are a host of negative feelings that you also go through, every day. It's ok NOT to be strong, Leslie. When it's your long time love, it makes it extra hard. Hugs ❤

[@kathybolj7527]

❤ I am going through this now

[@annbonini2840]

My husband was diagnosed with early onset Alzheimer’s at 54. He is 55 now. Smartest guy I know. Of course we are crushed. But it want you to know how much you have helped me. I’ve tried support groups but honestly no one understands how this feels. Everyone is a lot older so it’s very different. Thank you for doing this I feel less alone.

[@roxiepearson8686]

Hello @annbonini2840 my husband was diagnosed at 54 also. We live in leeds Al. Where are you from?

[@Edithlane]

We think you are a gem, Jason. With a sweet, loving wife. 😚

[@janicemillican9754]

I don't comment often, however I always watch and like each video. Keep up the good work, you're doing great. Taking care of a loved one with an awful disease is draining and madening at the same time, not to mention that your heart is grieved to dispair. I had to help my 18yo son out of this world, he had Hodgkin's Lymphoma. I recently cared for my husband who went to be with the Lord. He had heart disease that started to affect his mental abilities due to lack of blood flow.😢 I felt so sad and helpless at the same time. With that said, you are doing great, even if you are not feeling it. Much love and prayers from Texas ❤

[@Cecilia-fc3sg]

Oh Leslie and Jason. Sharing your journey is so very helpful to so many of us. Thank you seems so inadequate to say but THANK YOU. I'm praying for you!

[@wendyc.6416]

I’m a psychologist and work with dementia patients so I’m very familiar with what you’re having to deal with these days. Just wanted to say that I see you. Sending you prayers and much support ❤

[@lmkays]

My comment is THANK YOU both for sharing your journey. It’s so helpful and you are both so kind to do this. Thank you so very much ♥️

[@emmasgrandma1]

Please don't feel you have to be perfect or do it all alone.Let people know of your needs too.Allow yourself time for you and time to cry ❤

[@karenmontgomery9465]

We just joined the "club". Waiting for our first visit with neurologist. Your videos have put me ahead of the game so to speak. We have decided to stay in the now and walk this out day to day. Thank you so much for your vidoes.

[@annmariebrittan6159]

I suspect that the percentage of those of us who are in a similar situation as Leslie is greater than what shows. We just don't have the time or opportunity to chime in. My husband (who has parkinson's and is developing dementia)and I are 72 years old. We have been dealing with this rollercoaster for at least 10 years. I can relate to most of what you share with us. I too am a retired RN and am honored to have had years and years of experience dealing with dementia, death and dying. As educated and experienced as I am it is an impossible task to handle the weird, painful existence I face with the grace and patience I wish I could. The pain, shock and insecurity of living 24 hours a day while losing my partner and security is beyond understanding. I appreciate this channel and will understand when it is no longer possible for Leslie to share with us. Many, many thanks.

[@raynaneises1814]

Lifting you guys up in prayer as you journey through this season of life. There is nothing easy about what you are walking through. Jesus is faithful, take care of you and keep laughing! Blessings

[@Susan-qp7pk]

Leslie, I also am so sorry people are being ugly. You are doing an AMAZING job!! Prayers going up for you both!!❤

[@d.d.mac.3773]

Leslie, I am constantly in awe of the way your always rise to the challenge of whatever is thrown your way. You are a true hero and I hope you know that. I have lived in and cared for dying family members and I know the stress and strain. I'm ashamed to admit I could have used more of your aplomb in those days. Even if many people on here are not living with someone with dementia, you show us an example of love and service to others that we can all learn from. All the best to the two of you.

[@cindidavis4219]

Hi Leslie! I have never commented on here before, but I want you to know how much I enjoy watching your videos, and even though I am not going through this at the moment with anyone, I have been through it in the past with my mom and my father-in-law. So much of what you talk about brings back so many memories. Please don’t let the haters get you down, there are so many of us out here who love you and appreciate what you are doing. We pray for you and hope that you might find answers. Even though a lot of your viewers aren’t going through this themselves, I’m sure everyone knows someone who is. And if nothing else will give us information to use, if we ever find ourselves in this situation. I hope you will keep making your videos on here, and on A Charming Abode I enjoy both channels! ❤

[@dianaelliott3654]

We lost our mother to dementia last July. It is so hard. My heart is with both of you. Jason is a very strong person.

[@Rose-hs5sd]

You have been an inspiration to me. My husband passed 8 months ago but I see so many similarities between Jason and him that it blows me away. Keep on doing what you are doing, it is a blessing for us caregivers. Sending hugs and prayers.

[@kathymiller9462]

It's like being in a Sci-Fi movie for me. I relate to everything u r saying. U help me so much. Just knowing everything I've gone through and continue to go through is exactly what you are teaching us with your videos, knowing I'm not alone. If ur videos help just one of us to keep our sanity one day at a time means you are so important. Thank you.

[@conniekreider6414]

Being understood by others is a huge gift of compassion and empathy! Please don’t let the loud noise of judgmentalism drown out the quiet voicescheering you on💕

[@MustangSally7259]

LOVE you two!❤❤👍 Handling it as well as you can!

[@dianneduvarney2684]

I can’t think of any other way to say, “I am here and I’m listening.”

[@sharonstevenson2777]

In really feel for you and Jason. It is an incredibly hard journey. I had my mom with me for a couple of years trying ,my very hardest to care for her. She has stage 7 dementia now and I had no choice but to put her in a long term care centre in a locked dementia care unit. Even after all this time, I am still amazed at how her moods change so quickly. Day to day and sometimes hour to hour. Prayers to you Leslie. 🙏❤️

[@LIVINGWITHDEMENTIAPODCAST]

Oh yes, hour by hour! Sending you hugs! 🩷

[@gowestproperty2405]

My 84 y/o father has an already difficult narcissistic personality and is now in the mid stage of dementia…his lovely wife is suffering his wrath and I worry about her a lot. She’s navigating similarly as you, but she’s elderly and a little batty too. Your loving kindness and good humor with Jason is wonderful to watch and it does look like you have a history of much fun and love together. I watch your channel because you and Jason seem both realistic and loving and I think you help me help my family when I would otherwise not know what the heck to say or do. Thank you both.

[@needanacct]

I'm not your target audience as my partner does not have dementia and I'm not a caregiver, however, I have learned a ton from you guys. While I can see it's a challenge for you both, the importance of having Jason help articulate from his perspective/perception how things are going, along with it's impact on you as his partner/caregiver, as a couple and as a family is immeasurable and cannot be understated. These video's will be viewed in perpetuity and there is going to be more who go searching for information and someone that they can relate too as they navigate the rough waters of Dementia and they will find a resource that is rich in information on this channel. Anyone reading this, I implore you to donate via the video paypal in the description to help these videos continue, and be kind.

[@melindaboyd3120]

You are a complete angel! I absolutely sensed in this video that times are becoming more difficult and isolating for you! I cannot imagine how difficult this is for you! You are such a kind loving person. I will continue to pray for you as you navigate your way through this difficult journey. I know the Lord understands and is saddened by all of this. He absolutely feels your pain every single day. I will stand in the gap for you with prayer especially during those times when you feel the most weary. No advice here…. Just prayers from Texas to heaven on your behalf . ❤❤❤❤❤❤

[@chrisr.1803]

My father-in-law suffered with Alzheimer’s so yes, I can definitely relate! You are doing a fabulous job! One of the first ways my mother-in-law suspected something was going on was the purchases of especially kitchen gadgets they had never had or needed before. Totally out of character for him. But your support groups will be the most help to you! One thing she did for her own mental health was take him to ‘day care’ on a regular basis…maybe 3 times a week. It helped her so much!

[@gemini4life851]

Leslie, I'm living it with you. My husband was diagnosed about 5 years ago. However he more than likely had it 3-4 years before he was diagnosed. I've never commented here before but you mentioned more than 50% of people that follow your channel aren’t living it. Chalk me up on the “living with it” side. Like you, I miss my evenings with my husband too. I also relate to walking on eggshell. And yes, it’s a demanding job but his well-being is my number 1 priority. As Jason is yours. So we do what we have to do. I'm wondering if you've noticed spurts of decline? My DH has noticeably gone downhill since April. No meds have changed. His brother was here over the weekend and noticed a the change as well. Makes me sad. I miss the guy I married. Keep doing what you’re doing. You have no idea how much it helps viewers like me.

[@kathleengorman5665]

I AM SORRY FOR BOTH YOU AND LESLIE BUT I DON' T THINK EITHER OF YOU KNOW HOW IT IS TO HAVE YOUR DAYS SO NUMBERED AND HAVE TO DEAL WITH YOUR OWN REALITY OF HOW. THINGS CHANGED SO RAPIDLY. I WAS DIAGNOSED MUCH LATER THAN Jason, and I can't find much to laugh and joke about yet. Hope I will grow more understanding with time.

[@gemini4life851]

@@kathleengorman5665 Kathleen, I'm sorry you have been diagnosed with this. I hope you have a good support system to help you navigate your future. I pray you find some joy in your journey.

[@user-ix1sf9wm8k]

Hugs and prayers for you both. I totally understand the ups and downs of Dementia. I had to watch my fathers terrible journey and then my mother-in-law had dementia as well. We were very active in caring for them and respecting them as people in a shell. Leslie, you are a very caring wife who is dealing the very best you know. Jason’s, humor is enabling him to ride through this journey that he can not do anything about. This, I do know sweet Leslie, you are doing all things through Christ which is strengthening you.

[@sofievilhelmssonlindvall5110]

I want you to know that your videos mean so very much to me. My husband got diagnosed with Alzheimers 2 years ago, then 54 years old. I do for real understand your situation! It's easy to feel alone in this especially at this age. So thank you Leslie and Jason for doing these videos 🩷

[@cathythomas298]

Yes, thank you Jason and Leslie

[@gussmom9585]

My mother had dementia and I never knew one day to the next what would happen. The emotional roller-coaster was so hard. Thankfully my sister and I worked together to give her the best living circumstances we could. I will be praying for you!

[@Cardiac-Blue]

My husband passed from Frontotemperal Dementia. I watch videos of him and I love watching us laugh and have fun. He loved being center of attention and everyone loved him. It was hard and my heart breaks for you. It was a constant roller coaster and I had to take his keys from him and our debit card. I felt like I was like the mom to a son, he stayed upset with me. The only difference I see is my husband wasn’t voice full to me but a couple of times, but he would do things to get me back. Like refuse to wear an adult diaper or pull it off and through it on the floor. I cleaned so many times from that I thought I would loose my mind. He was such a different person that I knew, it was so hard for me to comprehend. Your a wonderful caregiver and wife. Like you said no one knows how hard it is to watch your own husband change before your eyes. Please be kind in the comments followers, you never know when it may hit your family.

[@marlenebeck1739]

Praying for grace and strength for you Leslie.

[@kathyhartsell4383]

Good evening Leslie! My heart goes out to you. Please remember God is with both of you. God will never leave you nor forsake you. Praying for you and Jason! 🙏🏻💕

[@pbickley1]

We went through the money issues and scams with my mother. We didn’t know how bad it was till we really dug into her finances. Sadly, we lost her a month ago.

[@cathythomas298]

Sorry for your loss 🙏❤️🙏

[@melmbrown61]

Oh Leslie! I could have written your last half of this video myself! Only I did work in a swing bed unit in our small rural hospital. Almost all those little people had some sort of dementia. I worked there for my entire 23 years until I retired to be a full time caregiver for my husband of 43 years. It's really difficult for me to take advice from those who honestly don't have a clue about what I'm going through. To lose what we're supposed to be our "golden years" of retirement. Our time to rediscover each other without our kids. I really have forgotten how we used to be before this stupid dementia came creeping into his brain. Sorry for rambling on. You, Jason and your family are always in my prayers.❤🙏

[@cathythomas298]

I feel your pain. My husband had a HA, plus a stroke 2 years ago. He is stage 4-5. Starting with the nasties.

[@flxmkr]

What is a swing bed unit? That sounds dangerous and weird…but if it calms them down, I’m not one to judge.

[@wrennknits6048]

🙏❤️🙏🙏❤️

[@melmbrown61]

@@cathythomas298 ❤️🙏❤️

[@melmbrown61]

@@flxmkr It's just a term for a facility that has long term care but it's in a hospital so if the person gets sick or has a procedure they can be treated there and may not even have to change rooms.

[@crazylady61]

You guys are a sheer joy...your honesty and openness about this awful illness is very inspiring and thought provoking, and your fun and laughter never fails to make me smile. Just love you both. xx

[@kaitlinmeadows6273]

Thank you for being so clear and direct about the real issues that these videos don’t show. People just don’t realize the anger, the fixations, the battles, the repeating, the dramatic mood shifts. People only see the charming, “show-timing” Jason in these videos and do not see the exhausting worry and isolation of this disease in the life of the primary care-taker. Please try to show more of the “real” moments of frustration, anxiety, and frustration so people really begin to “get” how how quickly the charming spouse can become the raging, petulant child-people need to see that to understand how scary a roller coaster ride it is. Bravo to you for sharing the journey with us!❤

[@TraditionsByTheSeasons]

Praying the medication helps and everything levels out. You are so strong, and we all love you. ❤ 🙏🏻

[@cathywigand1000]

Leslie I am in the same situation as you. My husband was diagnosed with FTD dementia 2 1/2 yrs ago. Jason and my husband are very much alike. It is not easy and you don’t get a course or pamphlet on how to handle this. Everyday is different. Been married 48 yrs and can’t believe this is the way our lives are like now. You are saying exactly what I am going through. Thank goodness for you and Jason on this channel. You are amazing!!!

[@cynthiabolton4931]

My husband was diagnosed with FTD 3.5 years ago! Never dreamed this would be my life!😊

[@dabailey1000]

You both have such courage to share this difficult journey. Sending you both hugs. ❤

[@Jen195152]

I have gone through this x2 with my parents!! Both had LewyBody and I can tell you I have walked your path almost identically!! The behaviors are on point!! I watch because I feel there is always more to learn and I want to be able to help anyone going through this!! And at times, I have been able to help others with advice and support. Keep going!! We love you and I certainly pray for you both nightly!! ❤️❤️🙏🏼🙏🏼

[@rhondadavis1483]

Kandy such wise words that obv come from your experience. I’m so sorry you went through that, but as you said, God listens so well and helps us all in so many ways. God bless honey, you were obedient by taking good care of your grandma. ❤️

[@sonyagraske376]

You make me smile ❤ and definitely think of you both often and ask God to give you what you need to handle this time in your and Jasons life 🙏❤ THAT SILVER UTUBE PLAQUE SURE IS PRETTY AND SHINY. ❤

[@kittycatmommy2364]

Thank you Leslie for opening up and sharing with us my heart goes out to you. I was my mom's caregiver until we had to put her into a locked Memory Care Facility she was very angry and a lot of what you say has helped me understand how she treated me. When my beloved husband developed lung cancer with an inoperable tumor pushing into his esophagus and preventing food Passage I had to step away from being mom's caregiver and told my sister she had to take over with Mom and I think she then finally understood what I was going through. I was my husband's caregiver through many ups and downs and he passed almost five years ago but I wanted to say to you taking care of my mom with dementia I understand the dementia part...and taking care of my husband and watching what he went through and how it changed our lives I understand the husband-wife relationship of an illness. And I know it's so hard on you because someone you worked alongside with as a partner in life so many years and depended on and looked to for support is not the same person anymore so I think it's hard for people to understand who are not going through this and I also think that when it happens to a husband it's so much different then another loved one like a parent. A husband is a totally different connection and my heart does go out to you. And I do think that being in the dementia unit and working with patients was a help to you knowing how to navigate this now with Jason. Please take care you're in my thoughts and prayers both of you.. sending love hugs and blessings❤❤❤...Linda

[@pamd4068]

We are dealing with this with my mom. She has dementia. It's getting pretty bad. I can relate to what you're saying on so many levels. I'm sorry.. It is so hard to deal with. She thinks we're trying to take all her fun away, we are currently dealing with scammers, it's so sad how they try to attach themselves to the elderly with dementia.

[@marjonkremer6850]

I saw my mom going through this for so long with my dad. It's hard and nobody knows how hard it is but you. Not even your children. Thank you for sharing. Try to keep looking upon Him Who has our lifes in His hands. He'll hold you safe!

[@terrinelson6812]

God bless you! My husband had Alzheimer’s and I understand and can relate to a lot of what you are experiencing. Prayers for you Jason and your children 🙏🏻❤️🙏🏻

[@robinbraun8278]

So glad you decided to continue :) I think Jason deserves a loving title: "Captain Chaos!" Sending this with love. I am right there with you sister. I am part of the group that is here for education. My husband has LBD. Thanks for being real ❤

[@karenmartin1894]

My husband has LBD as well. I keep forgetting that Jason’s skin biopsies didn’t show the protein clumps that signal LBD. I hope you have adequate support from family and friends for your journey. Dementia of any type makes for a lonely, “weird” marriage. Ehug.

[@robinbraun8278]

@@karenmartin1894 I agree. We have minimal support at this time. It's like a weird bubble for sure.

[@jonimarques6313]

You are doing amazing Leslie for your family and educating others through your channel.

[@Wilma644]

I thought I would comment for the first time (from the UK) as you mentioned your audience aren’t generally caregivers but my husband was diagnosed with FTD last September at the age of 61 and I found your channel whilst looking for support. I so look forward to your posts to see how you are both coping. I completely understand how you feel, my husband struggles to communicate and I feel alone having to make all the decisions and future planning of our lives. It’s a hard road to travel but you’re doing a great service to us carers so keep going 💕

[@tmom5728]

As you were speaking about your prior experience with dementia, I was thinking...."look at God!". He prepared you for this moment of your life. Absolutely praying for you!! Stay blessed my friend....

[@LIVINGWITHDEMENTIAPODCAST]

God is good 🥰❤️ Even if I didn’t enjoy it, he was preparing me. Thank you!!!

[@tmom5728]

@@LIVINGWITHDEMENTIAPODCAST I don't normally comment but hearing that you were receiving mean responses, I need to be a light and let you know you have supporters and God is absolutely with you guys....even when its hard.

[@4estdweller4ever]

I think more people understand what you’re going through than you know. You can feel compassion for others even if you don’t exactly experience what they do. Maybe Jason showtimes bc it’s the only little sliver of himself that he can feel that feels good. I imagine being the caregiver feels a bit like being battered. Also emotional starvation. And yes, the real Jason would be horrified if he knew all the ways he makes life hard for you. I wish the only people you hear from would provide nothing but kindness, support and understanding to you. You deserve it. PS: I know I could never be as strong as you. You are amazing!

[@brendanyhus5973]

Both of my parents had dementia. Watching them was the most painful thing I’ve ever experienced. You are a very strong and loving person. The fact that you want to share this journey to help others speaks volumes about you and Jason. My thoughts are with you. I understand how difficult your days are.

[@Shiryone]

My husband had a stroke 4 years ago at age 62. It has affected his short-term memory. He gets very frustrated with his limitations and I am the brunt of his frustrations. He is also getting rude to total strangers which is mortifying to me, and I apologize to them right in front of him,. But at least people can see his physical limitations, whereas with your husband they can't see his illness. You are looking so pretty. Just take one day at a time. "Therefore do not worry about tomorrow, for tomorrow will worry about itself. Sufficient to the day is its own trouble." You are doing great. Praying for your strength and continued faith.

[@sandybevill2240]

My prayers are with you and Jason. You're training definitely shines thru, you are doing a great job..

[@carolannid2390]

I think you do a great job juggling all the challenges that come with being a dementia caregiver while being a partner. Those that have never been in that role or similar roles may be more judgemental than those of us that have been in this situation. So sorry if you've been getting hate comments! Thank you to both of you for being so vulnerable and sharing this difficult journey with us. ❤

[@willowgirl2635]

My loved one started hoarding money and hiding it. I once went to the Linen press and pulled down a sheet and was rained on by $26,000 in loose notes. I then had to convince them. It was going back in the bank. I can appreciate the difficulty you are going through and applaud you both for sharing and educating people.

[@cynthiafisher9907]

At least they put it all in one place, so it was easier to find!

[@claireklein9398]

My MWFTD hid almost exactly that amount......and we haven't been able to find it. Three years of looking for it. Maybe one of these days it will rain down on us! :D So glad you found it!

[@nancyevans1278]

I can't begin to tell you how much I admire you for having a KZbin channel at all, let alone for such a difficult situation. I would be so hurt by the terrible/mean/hurtful comments, and I'm so proud of you for doing this to share this difficult journey with others who don't have this platform and need to know that they are not alone and that others are going through this as well. It's really fun to see Jason joking around, but his struggle and your's are so very real and difficult. Sending prayers and love your way!

[@maxwell2149]

You take one day at a time and ride the roller coaster of dementia. I’m still trying to deal with the guilt of his siblings not wanting to understand the extent of his Lewy Body. Of the parts of the disease they didn’t see. My prayers are with you & Jason. There are more of us who understand then there are of the ones who see the show-timing. 🙏🏼❤️

[@denyssnodgrass8761]

I am so thankful for you! If not for you, I would think I was crazy. Your honesty and vulnerability have helped me, Leslie, and I'm so grateful! I'm watching and learning and praying for you! I watch you and I think, oh, my gosh, that's what my husband is doing, too. Thank you, Leslie!

[@amygrogan1668]

Leslie I am so thankful to have stumbled across your channel about a month ago. Both channels actually. I'm sorry I haven't commented I'm caregiver to my Mom and I'm just so burnt out and broken right now but I appreciate you sharing all the raw stuff. You are so strong...I know you probably have good and bad days and it sucks I'm sure but I don't feel so alone after watching what you are going through. Sending prayers to you, Jason and your family🙏

[@Judy-wv4mx]

Please don't stop this channel. I dealt with dementia too - but now he's in a nursing home. I'm much older and I couldn't take care of him properly. It's so hard - especially the mood swings. Sending prayers for you and Jason.

[@reneeharris1634]

I appreciate your transparency. Being a caregiver for my mom, I look forward to your updates. They make me feel not so alone. You and Jason are always in my prayers. Take care of yourself and know that you are a hero to others.

[@ritacollins2635]

Jason, you have a brilliant sense of humour, yr quick, and witty, GO JASON!!

[@patcurtis1242]

My husband has been on this journey for 5 years or so. But, until recently he was able to mask it. Now it is becoming a challenge…from spending money to disagreeing on what we had discussed two hours ago. I am finding that it is easier to let things that are not harmful to just slide. Things that are necessary to be addressed, we tackle in baby bites. I am also a retired nurse and that has helped me and it will continue to help. But, it is still difficult. Hang in there. That’s what we are trying to do. God bless you both.❤

[@joanrimes1936]

I'm a member of your KZbin audience that has a family member with dementia. My sister is 62 and at about stage 6. The vulnerability and candor you display about the incredible difficulty of living with a family member with dementia resonates with me. You say something, like not wanting people to think your loved one is weird, and I burst into tears because I have had that exact same thought and feeling. You're not alone and your program shows me I'm not alone either. As far as judgement, you'll get none from me. This is a very sad, hard path to walk and we're learning as we go and doing the best we can. God bless you❤

[@kaymyers1882]

Having had family and friends in this situation, I commend you on your laughter!

[@gaillangford280]

I give you a lot of credit for sticking by your husband. I have no idea what you are going thru but I know that God has a plan for you and Jason. So keep your faith and the Lord will take care of you both. Have a great day!!!