Living with limb girdle muscular dystrophy: Cerys

  Рет қаралды 2,390

Muscular Dystrophy UK

Muscular Dystrophy UK

7 ай бұрын

In September Cerys shared her unique and inspirational story, living with limb girdle muscular dystrophy in her twenties.
Now she's back to answer your questions!
#limbgirdlemusculardystrophy #musculardystrophyuk #musclewastingconditions #LgmdAwareness #lgmdawareness #musclesmatter

Пікірлер: 5
@DragonRiderElf
@DragonRiderElf 6 ай бұрын
thank you for making this! I am 15 and we recently discovered I have LGMD due to genetics (I’ve had it for a while but we didn’t know until it started affecting my hips as well). I genuinely appreciate you making this video!
@Speakmymind08
@Speakmymind08 7 ай бұрын
Hello Karen my name is Danny, I’m a 43 year old with lgmd I have 3 kids 2 boys and 1 girl Brad Shane and Zoe. I live with lgmg for a long time since I was born but I have to say you are a great person doing this.
@michaelhodson3055
@michaelhodson3055 4 ай бұрын
Hi 👋 how long did it take for you to get a diagnosis on what you had? I had a muscle biopsy done last January and I'm still waiting for the results but I think I could have LGMD
@Speakmymind08
@Speakmymind08 7 ай бұрын
Please remember no one is perfect I use this method for my whole life
@deepakaswal2000
@deepakaswal2000 Ай бұрын
do you need graphic designer
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