Living with multiple sclerosis: facing unpredictability head on

[@LeoMumford]

It was great fun doing this video and putting MS into perspective!

[@lanyacarson3102]

I have recently been diagnosed with ms, i really didn’t have much insight into what I’m in for. It is so helpful having real people telling their experiences so you don’t feel like you are going mad or making things up.

[@judyarndt4051]

I have MS & a favorite saying I like so very very much which I found really helps me cope with my MS is, I HAVE MS BUT MS DOESN'T HAVE ME. I thought I'd share that with you cause it sounds like that's how you try to live your life with your MS. You and your partner are both so very inspirational I wish you both all the best.

[@piamessing4730]

Thank you for this. I've tried and tried for YEARS, to explain the planning thing, but people don't hear. In general, people don't hear me. Today I got walked away from, again, because someone got peed off, because I couldn't concentrate but I didn't want to be pushed aside. I'm nearly always, made to feel bad, for things I cannot control. So this video helped me feel, not so different and not a thorn in people's side. I'll never understand, how people, in my own home, can take umbridge or take my symptoms, as a personal affront and be offended!?!?! But anyway, thank you, so much. ( p.s. I miss Brighton, very much. I live in Colorado now. Haven't seen the beautiful sea, in more than twenty years).

[@mavkuhn]

Hello Pia, it's as if you have written the words from my own head - absolutely my experience with family... they get offended at my symptoms and take it as a personal slight. But you know that says more about them than about us. Sending hugs from the borders of Wales! 🙂

[@glenng]

You guys are such an inspiration. You are both such brave and loving souls and I can see that you were meant for each other. I recently met a young lady who was crippled with MS. Her husband simply told me that she had a condition. It made me realise how lucky and blessed I am.

[@glenng]

Saw something truly heart breaking recently that I couldn't get out of my head. While working on the door, there was a girl sitting behind me, aged only about 30. She was out with her young husband and friends. Every time she needed to get up to go to the loo, two of her friends had to literally carry her, linking arms at each side and walking very slowly. I found out later that she had Multiple Sclerosis. What was worse is that it was easy for anyone to jump to conclusions and assume she had too much to drink. I felt utterly helpless, which is a such a horrible feeling. It also made me more aware of my own selfishness and how blessed I was. After finishing at the gym the following day, I called into a local RC church to say a few words. Surprisingly, there were other people there, as it's always empty at that time and I'm the only one there. It sounded like mass was being said, although I never go, so wasn't aware of it. One of the speakers at the alter was a young boy, who gave a reading, offering prayers for the disabled.....

[@donaldbasalo5872]

My wife also has ms.. 5 yrs now. Shes brave ang fighting..

[@ashwinprabaharan2659]

Thats great to here bro, tell her shes doing great for me

[@fifun8479]

How is she now.could she walk

[@stxr2893]

@@fifun8479 hopefully. I'm having a few signs of ms in my arms, hand and wrists after a blood test and that's my worst damn nightmare. I'm only 16. As I write this there's like an electric shock in my thumb but I Don wanna accept it cos I'm terrified of needles

[@quickandeasymeals-o9e]

2 amazing souls..💙

[@franciscolealgonzalez1333]

Amazing beautiful souls!

[@Tns85]

Awesome video.

[@jairoortega6413]

to anyone that has it uh im going through something but idk if its ms what are the symptoms

[@centralperk7062]

Visual disturbance( nystagmus,diplopia) Dysartria ( voice change) Bowel and bladder incontinence Parents Lack of balance

[@samchoudhry1208]

Thankyou!! Please could I share this content on my IG as I am advocating MS?

[@roche]

Hi Sam, thank you for your interest in our content! Please feel free to share our videos, thank you for advocating for this cause! Kind regards, Your Roche KZbin team

[@Okie343]

@@roche Have you ever had a methylmalonic acid blood test? Many people are misdiagnosed with MS when they really have a low B12 tissue level. A normal B12 blood test won't show you the tissue level, you need a methylmalonic acid test. The M acid will always be elevated when the tissue B12 is low. When this acid becomes elevated it dissolves the myelin sheaths from the nerves. It also blocks enzymes in the urea cycle that convert ammonia to urea. This causes ammonia levels to rise and cause a whole other set of problems. Anyway good luck and God Bless.

[@Huntress_Hannah]

She’s got 10 years on him 😶

[@jonlamontagne]

We are snowflakes hun remember that and never forget!!!!

[@Moonman24]

Who else clicked on the video because the guy is hot?