Living With Parkinson's Meetup: June 2023 - Fear & Shame Part 2

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During this session, panelists discussed shame and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us.
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Time Stamps:
0:00 - Introduction
9:06 - Start of discussion about shame
14:22 - Feeling a loss of relavancce
21:25 - Shame when I was diagnosed
32:00 - Shame around impulse control
42:07 - Side-effects of medications and shame
48:35 - Importance of community to overcome shame
57:40 - Conclusion

[@jrrosania486]

Heather is so wonderful

[@irenemanning182]

Hi my name is Irene and I enjoy listening to everyone’s story. I love dogs we had one for 17 years, because of my age my husband doesn’t thing it is good thing, the dog would out live me and it’s not fair to the pet.

[@GETTINGPARKINSONs]

This is a video everybody should see. It explains the essence of what it’s like to have Parkinson’s. You put into words exactly what I am experiencing. I want to been trying to write a book about but it’s too hard to put into words. I could watch this 10 times. It’s really awesome.

[@kaystokes977]

27:30

[@kaystokes977]

I have a lot of people(friends)that are uncomfortable around me.

[@angelakindon9839]

I love you guys!

[@clausdnk5163]

I love you all! Thank you for your advices

[@kennethbuscher6667]

Thank you all honestly it help 🙏 😊

[@sharonmaplethorpe9168]

Well said Robyn - totally agree👍

[@sharonmaplethorpe9168]

Likewise- thanks to all you guys, you help me so much with your honesty and openess❤❤ x

[@davisphinneyfdn]

So glad!

[@kendrapatterson4629]

Thank you! I needed to hear this 💛🌈

[@clmims100]

I really miss walking freely without aid or help from others. I get frustrated holding a fork. I get tired of people turning their eyes away.

[@kendrapatterson4629]

Thank you Mel ❤️ this panel saved especially during the pandemic

[@lili1740]

I was diagnosed last July, I started to watch/listen this meet up since last September, it gave me so much encouragements to face my fears. Thank you very much!

[@davisphinneyfdn]

You are so welcome

[@kaystokes977]

How do you become one of you? I love the closeness y'all have. I feel i have nobody to communicate with.😊

[@davisphinneyfdn]

Know you're not alone! Please consider reaching out to one of our amazing Davis Phinney Foundation Ambassadors. davisphinneyfoundation.org/connect/ambassadors/ They are eager to talk with you.

[@irenemanning182]

Irene, forgot to tell you I m in Red Deer Albert Canada

[@sharonmaplethorpe9168]

Oh no - is Mel leaving DPF? She is great at mediating and directing these webinars

[@davisphinneyfdn]

Thank you, Sharon. I appreciate your kind words so much! I am leaving, but I hope to remain connected. See you in July!

[@rosanegurgel6665]

Helloooo

[@clmims100]

I have a genetic defect preventing me eating sugar in any form, my craving for carbs drives my blood sugar way up and I know that my doctor condemns me. It is like a slow suicide.

[@sharonmaplethorpe9168]

Not making light of a serious topic but I love the Shed comment 😂😂😂

[@jrrosania486]

How does a person become an ambassador?

[@davisphinneyfdn]

For more information about all aspects of the ambassador program contact [e-mail]. Note that not all members of this panel are ambassadors. We develop the panelist group based on a variety of factors.

[@erichouck9487]

I don't feel any shame but I do have quite a bit of fear. Like Davis I am a cyclist and ultra runner. I was diagnosed 11/21 but knowing the symptoms I believe I may have had it for close to 10 years. I am scared to death that what, and how long, my body will fail bad enough that I will not be able to compete. I also don't want to become a burden on my children.

[@christineallred9130]

Heather have you had dbs

[@davisphinneyfdn]

Yes. She has had DBS. She shares a lot about her experiences in these two interviews: kzbin.infoYrAAo8FCr48 kzbin.infoEDh6tV8wlHA