Long COVID & Post-Viral Syndromes ECHO: When Exercise Doesn't Help

[@simonduckworth5941]

This is brilliant and should be a MUST WATCH for GPs and anyone working in a Long Covid clinic. Thankyou so much👏👏👏

[@beeholtzclaw7935]

Thank you for a detailed presentation, wish we had this just 5 years ago! Our lack of information and 0 help from doctors caused our son to be severely bedridden, it is a life changing event for my husband and I to be full time caregivers for our son, it has taken 2 1/2 years just for him to be able to stand and walk to the bathroom, he is improving slowly . I would encourage patients to follow these steps and have all family and friends watch this video!

[@mdvern9753]

I have experienced this for years. No one seemed to understand this phenomenon. Thanks you for describing it so well.

[@booksinbed]

I have POTS and possibly ME/CFS and am trying to figure it out, and I really appreciated this presentation, especially the case studies. Thank you for uploading!

[@kristak6244]

This is an excellent presentation. Great for everyone who has anyone dealing with these health challenges in their life.

[@noelynebredrup9364]

All the patient examples had POTS. Is this applicable to patients that do not have that comorbidity along with ME or LC including obvious PEM?

[@AJansenNL]

Please say 'post-infectious', not 'post-viral'. Viruses aren't the only pathogens that can trigger this.

[@cindyhaigh154]

Yes. I recovered from SevereME CFS. 1st from mycotoxin poisoning that almost killed me and 2nd from covid when I had colitis too. NAD patches. LDN. Oxaloacetete all helped. Lots of salt and hydrogen water too. Many other treatments too. God bless you in treating this miserable illness

[@apple369]

Only two minutes in and already the ableist language is present. "PEM is a frequent symptom that patients complain of". Yeah, we're not complaining, we're reporting our symptoms.

[@booksinbed]

It's unfortunate that's totally normal word usage amongst medical professionals. (even such thoughtful and patient-focused professionals as these!) Two other common phrases that always stick out to me are compliant/noncompliant and "patient denies x". I read a brief article recently discussing changing some of this language titled "Presenting complaint: use of language that disempowers patients".

[@apple369]

@@booksinbed thank you for your response. That word was in such sharp contrast to the rest of the presentation and I'm glad I stuck around. Many of us navigate an absurd amount of stigma and it's all the more isolating coming from health professionals. I can see you understand and also give this some thought.

[@lukaskidd4621]

@@booksinbed THE entire medical field is based on gaslighting.

[@RamsesJ777X]

Only two minutes in and you two are already getting offended, lol. Complain is to express unhappiness, dissatisfaction or worries. Nobody is happy, satisfied and not worried about PEM. Stop looking for an excuse to offend yourself and find something better to do with you time instead of complaining.... LOOOOL

[@KittenCasserole]

Agreed 👏🏻

[@ttrihe10]

I had Post-Viral/CFS - I did a 40hr fast - CFS gone - was life changing for me - felt reborn had normal energy again - I recommended it to anyone to try, as it was recommended to me to try who had the same

[@cindyhaigh154]

I did mostly 3 day fasts and weekly 24 to help.