Long COVID: Where's the Cure?!

[@Mallory-Malkovich]

Something about getting older that I wish I'd been warned about is that you won't always get back to 100% after an injury or illness. When I was a kid I'd get sick or break a bone, but after recovery I'd be good as new. Now when I hurt myself I still get better, but sometimes not all the way. There's a kind of cumulative battle damage over the decades - sure my knee still works, but not as well as it did when I was 25 - and that has me hoping that one day I can trade this body in for a newer model.

[@TraceDominguez]

Yeaaahhhhhh I know that feeling

[@dr.froghopper6711]

As a young man I thought I had to prove myself so I volunteered for missions that I shouldn’t have. I wasn’t a SEAL but most of the people I worked with were Navy SEALs. I did things to my body that hurt me and 45 years later I feel every little bit of those injuries.

[@moniqueengleman873]

Trust me kiddo.... It only gets worse.

[@PierreDybman]

I think that really depends on how well you recover, your level of immunity, genes, food choices etc. And I’m saying that age 66, after cancer surgery and 6 months of chemo that ended 6 years ago. There is no need to settle for less than before, you need to restore your level of activity (i played squash even during chemo, as i was more or less functional one week out of two), review and change if necessary your food choices (i went to low-carb after a few trials and errors, significantly reducing bread, pasta and hidden sugar), even walking more is a good activity both for the body and the brain. Get regular blood tests and check your progress, but don’t consider that you can never restore your previous level, or even improve on it. There are many supplements that can restore mitochondrial functions and other important metrics of your health.

[@BenjaminCronce]

You set the bar too high as a child. Now that I'm entering the 4th decade and finally starting to take care of myself, I feel better than ever. My teens don't have anything on me now. Except being able to fall asleep whenever/where-ever.

[@lellymills]

Thanks for this video. I'm in England, I've had M.E. for 40 years now. Doctors are still not taught about it in medical school and patients continue to be abused by doctors, they are disbelieved and told they're not trying hard enough. I wish they could have seen us before we became ill. No one chooses to live like this. Its not living, it's a living death. And so far it's been totally ignored.

[@cjboyo]

I’m so sorry. ME is horribly under researched and I’m hoping to eventually do my PhD research on it

[@stevesherman1743]

Ignored just like use of anti-virals were. Ignored like Vax side-effects.

[@CBEACH]

Have you tried the ArtemiC Combo? kzbin.info/www/bejne/eanMk4ZmorWFhZY

[@reeceb1259]

​​@@stevesherman1743 Unfortunately true 😔 How many lives and livelihoods could have been saved if pharmaceutical companies and the doctors on their payroll within highly developed nations hadn't done everything in their power to fight against the use of the least profitable and most effective COVID prophylactics and treatments available to us?

[@walksthroughlife900]

​@@reeceb1259 sorry, what are these treatments you are talking about?

[@wakingcharade]

Dianna's circle are some of the only people I see stepping up to talk about this and do it well. Your video makes it very clear how many people are suffering with these things and so few people are out here showing the world what it actually is and looks like. I really appreciate that. I hope one day we can hear it from Dianna herself, but all of you taking it on yourselves to be her voice and the voice of so many without platforms or energy is really important. Thank you for believing and taking a stand.

[@CazaDeYork]

That's because Dianna is vaxxed, and has probably the worst diet imaginable for a human being.

[@superspermfish]

@@CazaDeYork stop trying to judge peoples life on the internet to fit your narrative you freak touch grass

[@evonne315]

Having support is KEY. We all need to circle eachother. Theres not nearly enough support for many of us.

[@mmybickers]

Those of us who have had ME/CFS for decades are SO HEARTENED that this circle (and ol' Hank Green) are actually talking about this!

[@Ed19601]

@@sparklesparklesparkle6318 did you notice the pandemic just 'went away' no more 'new even more virulent' mutations every week. Seems it went away the moment the Ukraine Russia conflict started

[@smitajky]

40 years ago I got Glandular Fever. It came to Australia via the US teachers. I had been extremely fit but when I caught glandular fever things went backwards in weeks. It took ten years to recover. And yes I contemplated suicide many times. Initially the doc couldn't find any functional white blood cells so he told me to take my tent to the river and avoid people at all costs. But that was only the beginning. From being extremely fit I found I couldn't walk even 60 metres without stopping and sitting and puffing for some minutes. On Friday I would get home from work, have a bite to eat, then go to sleep. I wouldn't wake up for more than a day. Typically I would wake up about midday Sunday. After several years I had recovered enough to do some exercise. But I paid a price. Each day after exercise I would sleep a LOT longer than the day before. It was horrible. The doc suggested that it would take five years but it took a lot longer to be back to "normal". 12 years after the infection I walked through Nepal to Everest base camp in mid winter. Which was a demonstration that I had finally come out the other side and could start to regain fitness. Now that I am in my seventies I am back to being fit. I can ride my bike at speed for 50 to 100 km each day. Then come in with sufficient energy to spend a few hours digging weeds on my farm. Then take my dog for a run for a couple of km. But in my thirties as a result of that glandular fever forget it. I was a mess. So I am terribly scared of long covid. I may not live long enough to ever be good again.

[@LaurelBaum-x6x]

Keep the faith❤

[@ixchelkali]

Thank you for sharing your story. It's always good to be reminded that some people do recover.

[@Awesomes007]

12 years! I’m 4.5 years in and about one half recovered. You and your story give me hope. Thank you.

[@amalajohansson5254]

Thank you so much! This gave me hope that I’ll be able to run and play music again❤️

[@Venoxium]

5:49 I feel that hardcore. My Mom has fibromyalgia, another disease doctors say "doesn't exist" and is "all in your head". She's practically bed ridden and here in the state of GA we went to court to show that there was a 0% possibility of her working and she had FIVE different doctors sign off and 2 testify and they STILL denied her disability because fibromyalgia is "something the doctors tell you you have when they can't find the real reason".

[@sharrpshooter1]

That sounds like its time to appeal upwards, they didnt even deny shes disabled in their deny which they have to prove

[@rosalindr4975]

Hope she reapplies. Took me a few tries to get approved for disability. I got sick after a booster shot in 2001.

[@lawman3966]

​@@sharrpshooter1I agree that it's time to appeal. I have CFS and was denied on my first try. I had a roommate sign a witness statement detailing symptoms that were visible to him and submitted it along with a request for reconsideration (which occurs prior to an Appeal). Luckily, my SSDI was approved at that stage, thereby sparing me the appeals process. The process is tedious, but persistence should pay off eventually.

[@helxis]

Psychosomatic diseases are a thing. The symptoms are real, but there is no underlying real disease. Psychical diseases have real, physical markers to diagnose them. The body is complex, but not that complex. The brain, on the other hand.. still effectively a black box of mystery. Therapy is the only path to curing psychosomatic illness. We don't have a medicine that can cause someone to believe that their illness is in their head and that they are capable of overcoming it. Thus far, only they can do that, themselves.

[@Nostradamus_Order33]

@@rosalindr4975 2001?

[@chewu]

I know someone who got ME after a flu infection in the 90s. To this day they are still affected with no support or understanding from Doctors.

[@artchick07]

I got ME after several pneumonia infections during 2013. I'm doing much better, but I can't do more than just work. I crash everyday after work. I miss doing things.

[@TraceDominguez]

I’m so sorry for both of you 💙 I hope there’s more information soon!

[@chewu]

@@TraceDominguez Thanks! When news started coming out about Long Covid we both thought the symptoms sounded the same. It gave a bit of hope that doctors would see the same pattern in ME patients. It's like you said, they are noticing but still a long way off being accepted fully. Great you're raising awareness!

[@rockyetsx70]

Yep, everyone was focused on Y2K in 1999, I got a flu at Christmas in 1999 and it never went away. ME/CFS roller coaster ever since. 😐

[@angela8187]

Dr. Raymond Perrin, M.D. - A Proven Neurolymphatic ME/CFS Recovery Method kzbin.info/www/bejne/mnXVe5SgnJeNf6s

[@JamesOKeefe-US]

Thank you for this! Excellent info as always! My wife has Fibromyalgia and so many doctors simply treated her as if she was crazy. She still is poorly treated. "Believe the patients" is one of the more powerful things you said. Thank you for doing this.

[@TraceDominguez]

I hope your wife is believed! I believe her!

[@JamesOKeefe-US]

@@TraceDominguez thank you Trace!!! ❤️❤️❤️

[@gardeninginthedesert]

My mum had this. They were doing all sorts of trials at the time and she had a lot! The ones that brought the most relief was acupuncture but it didn't cure it. The trials ended after a couple of years and she was still no better. After five years it just went away on its own. Such a strange condition but there is hope that it can just go.

[@autisticautumn7379]

I have fibromyalgia and now have long covid .It took me 25 years to be diagnosed with fibro.

[@JamesOKeefe-US]

@@autisticautumn7379 I'm so sorry Autumn 😪 I hope you are getting help now!!

[@MsJennyTheEmu]

I'm 3 years into having long covid. It's devastating the effect it has had on my life.

[@AbleMable]

same. and I am slowly getting worse.

[@nyxbellatrix011]

Long COVID or vaccine damage?

[@mikeyoung9810]

*hug* I hope you are well one day.

[@bobbys4327]

@@nyxbellatrix011 that is exactly what I was thinking. Maybe someone will eventually come clean about the so called vaccine and it's damage with not really any benefit to people who have taken it. I am a veteran and was in the VA ER last year for other issues and the nurse that I had says he and most of his coworkers have had covid 2-3 times. All have had every vaccine, boosters and whatnot, wear a mandatory mask and they still have gotten covid more than once. Obviously the CDC rewording what is a vaccine didn't keep these people from contacting it multiple times.

[@syler48]

kzbin.info/www/bejne/ipq6m5-bhKmhaq8

[@winterx2348]

I'm 3 years into CFS. This condition takes everything from you, and the worst part is nobody knows because nobody can see you. Sometimes I wonder if I'm still human or if I'm actually dead. Doctors don't seem to care either way.

[@DiaboloSnipEz]

ive had long covid for about 2 years now. A couple of things.... Look up Dr. Jack Kruse but I would also heavely recomend medicinal mushrooms, I use cordyceps, lions mane and reishi. NAC helped a lot as well as quercitin. These things enabled me to actually lift some weights which if done in a specific way will cause the epicenetic expression to slowly revert to normal, at least in my case of long covid. Sad to hear this from you, Ill be happy to elaborate

[@Mansfield2375]

@@DiaboloSnipEzhi, thx for the info. I’m a 16 month long covid sufferer here with fatigue, gut issues, hypoglycaemia which didn’t exist before and chest pains. I’m currently on quercetin and vitamin D3, zinc, magnesium statin for excess lipid issues post covid. Tried NAC but didn’t solve my problem. Please advise whether you take all three medicinal mushrooms that you mentioned in combination or separately and how many times a day and whether in the morning or evening. I had no comorbidities before covid. Thanks.

[@mostlyghostey]

As someone with ME/CFS I appreciate that you are spreading awareness about the illness. For years I’ve had doctors who don’t understand my struggles because the are unfamiliar with ME/CFS. Hopefully the medical community will begin to do more research and find a cure rather than just having medications to treat symptoms.

[@KristinaApplegate]

FMT is the treatment. google.

[@mostlyghostey]

@@KristinaApplegate Thank you for your message! After googling and reading several journals and blog posts it appears that the efficacy of FMT in ME/CFS patients is mixed and is not currently recommended as a treatment. (Though it may help if you suffer from IBS with ME/CFS. I used to, but found another treatment that worked for me called Linzess. It's a pill that is supposed to treat symptoms of IBS but it made mine go away for some reason.)

[@nathanaelcard]

My partner had/has long covid, but has made a lot of progress. We think her progress is attributed to the restrictive, anti-inflammatory AIP diet she's stuck to long term (with some carefully chosen re-introductions). 3 years ago, she couldn't walk 50ft without being exhausted. Yesterday she completed nursing school.

[@cherylcarlson3315]

Tell her congratulations from me. Also as RN of 39 yrs before disabled, be zealous of your health. I have been pushed to work exhausted, sick, with short time off from surgery and guilted into huge patient loads where got hurt by having to lift heavy weights. Never stop reading, know the labor laws in your state, never stop caring about patients. Good luck

[@808darwin]

Was it Brooke Goldner's protocol?

[@FlagCutie]

That's crazy. Tell her congratulations!

[@Fizzypopization]

Spontaneous recovery is possible she probably just got better on her own it probably had nothing to do with the diet.

[@ZairaBandy]

@@Fizzypopization everything has to do with diet. some things are really not good for anyone but they sell it in a walmart. food is our fuel. of course is going to matter what you eat.

[@emilyjanet455]

The thing that absolutely breaks my heart every time is when I see people commenting, get well soon! Or, I hope you feel better soon! Or worse when the person themselves says hopefully I will be back to my normal self in no time. I don't deal with any chronic illnesses, but I am good friends with several people who do, and it's heartbreaking to watch the General Public be confronted with the reality of chronic illness for the first time. There's no getting better, there's just management. There's the hope that the good days will exceed the bad days, but the bad days are not going to stop. There is no back to normal.

[@TraceDominguez]

There is no “back to normal” is the toughest part for people to understand. The narrative from movies and tv has normalized that feeling, but there is no narrative in real life.

[@lovelymalrin8455]

I feel this 😅

[@zeideerskine3462]

I wish I could encourage them to get sunlight exposure, drink cherry tea, have about five pieces of real licorice candy (Pontefract cakes or Haribo Salinos), and at least one small bowl of kimchi. Most people would find that too complicated or unpalatable but this really works largely by restoring your microbiome.

[@unimogdave]

Another hideous man made disease. Hold those accountable for the weaponization of the spike protein or give it up.

[@danielled8665]

​@@zeideerskine3462 I wish I could get people like you to realize that there is no magic cure and these people have tried everything. You suggest this, everyone and their uncle has a different set of obscure suggestions. It really isn't helpful. My father has stopped telling people he has Fibromyalgia and just says he's retired because he got so sick and tired of all the backseat medical professionals.

[@horizonblack]

I have the exact same symptoms, from the same strain of Covid. Thank you for bringing up mental fatigue. I can no longer read a paragraph without wanting to fall asleep

[@CBEACH]

Have you tried the ArtemiC Combo? kzbin.info/www/bejne/eanMk4ZmorWFhZY

[@americanarborcare]

Reading a paragraph makes you so tired you want to sleep? Commenting on KZbin videos must be high on your priority list

[@CazaDeYork]

Did you get the vax?

[@helxis]

Yes you can.

[@blacky_Ninja]

@@CazaDeYork Irrelevant? They already got long covid, vaccines won‘t help with that

[@HopefulMere]

Thank you for making this video. I've been dealing with ME/CFS for about 8 years now. I've had to give up so many things I used to love doing, simply because I am so exhausted and in so much pain all the time. It took me a long time to accept that this was my life now. I still mourn the person I was before I developed ME/CFS. I hope that one day there will be more research done on this illness. Thank you again for talking about this.

[@SarahGoldennope]

I was hit with a double whammy of sorts. I had shingles twice last year in the spring and then caught covid in the fall, and it did me in. I spent so long trying to protect myself from it and it still happened. It's hard trying to explain to my family and friends how PEM works and how I can totally do the thing they want me to join in on. But that's because they don't see me in bed needing to be fed by my husband for days afterwards. Nobody wants to see their friends sick, it's traumatic and everybody feels helpless. I get it. If you have a friend with mecfs or long covid, ask what you can do as a friend to be there for them. Offer to fold laundry. (My arm strength is zero now and if I hold them above my chest ill eventually faint) bring a movie and snacks over and explain that you don't have to talk you can just be there for them. Everybody is different. listen to your friends. Ask how you can help. Don't give advice unless they ask for it. Just listen.

[@CazaDeYork]

Did you get the vax?

[@batubop651]

I’m very sorry to hear of your situation. I’ve been living with ME/CFS for 30 years, it took way too many years (even decades) to be checked for the autonomic dysfunction/dysautonomia/ orthostatic intolerance/POTS/hypotension umbrella discussed in this video. I only mention this because once I received this diagnosis, it was explained to me that this is what causes holding my arms up leading to fainting. This is at least one of the comorbidities that does have some treatments available that can alleviate the symptoms a little and improve my capacity. Trying to make a bed with all the lifting up of sheets and covers though … forget it! But at least I faint on the bed ;) I researched my local POTS/DYSAUTONOMIA online groups to seek advice on the most respected cardiologists working in this field in my area, I have no doubt this saved me a great deal of money, time and energy. He was able to diagnose me quickly and start me on treatments immediately. I wish you luck and all the best on your journey ahead, I hope you find a way back to good health.

[@batubop651]

@@safeeffective385 bit confused, is your comment directed at me?

[@DiaboloSnipEz]

@@batubop651 you might want too research a guy called Dr. Jack Kruse. The guy likes sunlight more than you could imagine. If you dont already know him that is.

[@ursaltydog]

I'm so glad you addressed this. After infection from the original strain, I've had multi-organ affects. I can sleep for hours... and still be tired. I have to really force myself to get up and do something, and more times often than not, take a 4-hour nap.. only to feel disgusted with myself and my body.

[@TraceDominguez]

i'm so sorry :((((

[@seaofcronos675]

Were you vaxxed with the mRNA injection?

[@ursaltydog]

@@seaofcronos675 Not when I caught covid. Then as vaccinations came out, I seriously considered both arguments, and decided to get "vaxxed" against stupidity.

[@darrenvail8726]

@@ursaltydog did you get shots for corona virus also?

[@ursaltydog]

@@darrenvail8726 Yes, Darren. After nearly dying with the original covid-19. Once the vaccines became available. I've caught it since then, but not as badly, thank goodness.

[@LaineyBug2020]

Let's throw Fibromyalgia in there too. I developed it after I had extensive back surgery in 2008, by 2016 I could no longer work. I'm only now starting to be able to minimally manage pain symptoms, but the fatigue is truly debilitating and traumatic for not only me, but the people who care for me. I've lost so many relationships simply because I can't maintain them.

[@suyetarose]

@@KA-in6sx My sister has Fibromyalgia and I have ME/CFS. We compare symptoms all the time and yeah that's pretty much the difference. For her the pain is worse, for me the fatigue is worse and I really wish someone would get rid of the cicadas. She doesn't have that particular symptom, my tinnitus is constant and can get pretty loud. Luckily she's already been through the gauntlet here and made sure I had the name of her rheumatologist 😊

[@AGB_2000]

Toss Hashimoto's Thyroiditis into that same boat. I enjoy the wonders of feeling like I ran a marathon for several days if I just do a modest amount of physical work past my daily limit which seems to vary like the weather lol. Basically, 5 hours movement/10k steps practically guarantee a 3 day bout of muscle aches and other issues.

[@vornamenachname1069]

You can throw in many diseases. Dementia, alzheimer's, schizophrenia, various thyroid conditions, bi-polar disorder, parkinson's disease, MS, ALS, rheumatoid arthritis are all diseases with a considerable amount of overlapping symptoms and all of them have been hugely neglected by the medical community or the research is biased towards outdated theories. They all can be triggered by infections if immuno-genetic subceptibility/vulnerability is present. And there have been accounts of people who got cured or cured themselves following unorthodox therapies. (mostly doing genetic testing and then trying to fix the genetic problem via supplementation or drugs) Or by eliminating potential immunologic triggers (gut microbes, latent infections, reactivated infections).

[@joy3631]

I have this. It's ruined so much of my life. It took 7 years to get diagnosed because doctors didn't believe me. I've been basically homeless ( a friend in a different state took me in) I work in the food industry so it's tough work. I don't have a choice. It's nuts

[@AmyDentata]

I've had debilitating chronic fatigue and mobility problems ever since getting a series of really bad flu infections back in the 1980s. It's nice that now these things are being researched more intensely and taken more seriously. I've been kicked out of so many doctors offices, being treated like a faker or like I'm just trying to get drugs. I've seen some recent, very preliminary work that hypothesizes that both long covid and chronic fatigue might have symptoms caused by chronic acid-base imbalance, making blood more acidic, which could explain why we're stuck with constant, intense muscle aches like we've been running a marathon. If doctors find effective treatments for long covid, it will help *a lot more people* with chronic fatigue as well, from previous epidemics.

[@TraceDominguez]

Thanks for sharing. I’m sorry this has happened to you for so long

[@nyoodmono4681]

Did you take flue vaccines, like influenza?

[@brobinson8614]

Same, since 1989. I severely worsened 8 years ago after a flu shot went wrong. I was working full time prior to that, over a week I deteriorated to severe and mostly bedridden and or housebound. I’m lucky I can still write and read, but I can’t do much more than 20 to 30 minutes at the time without having an hour break in between. but the worst part is the fever like symptoms. Influenza like symptoms and hangover like symptoms altogether.

[@bigjoegamer]

@@nyoodmono4681 I'm not the one you're talking to, but allow me to comment. I've had MECFS for 14 years and have never had a vaccine of any kind. How do I know it's MECFS? I know because my symptoms match the symptoms that most MECFS sufferers have, including post exertional malaise.

[@GRANDEDAME1]

Thank you! As someone who has had long covid since 2020, we need healthy allies to advocate for us. Thank you for this great, informative video, and for helping our cause. 🙏💚🙏

[@Thunderdkfox]

I really hope that Dianna will get better. i miss her videos. And even if she will not be able to make videos (i hope she will eventually) i wish her well. To all others who have long covid. i wish you well too.

[@GibsonGH]

Thanks for making this video, Trace. I've been a fan of Diana for years and it's been heartbreaking watching what has happened to her. I hope science has a solution for long covid soon.

[@TraceDominguez]

I hope so tooo

[@jn9850]

❤

[@CBEACH]

Havent you tried the ArtemiC Combo? kzbin.info/www/bejne/eanMk4ZmorWFhZY

[@Hoigwai]

I wish I had something better to say about this but all I can think of is how sad I am for people who have had the person they were taken away and left with a broken shell of a body.

[@TraceDominguez]

I hear you brother

[@awhatsname]

Thank you for raising awareness about this. It is maddening watching people totally disregard it.

[@TraceDominguez]

Thanks for watching it

[@calestaiezu214]

I've been having issues after having Covid nearly two years ago. I still have issues with being very fatigued. Some days are better than others, but it can hit me out of nowhere and all of a sudden I'm struggling just to function throughout the day. Thank you so much for covering this. Sometimes just doing BASIC things makes me so freaking tired. I could sleep for days and still feel like I didn't get enough rest. I also developed an issue with my heart that I didn't have before Covid. It's frustrating to get people to understand how it feels and I get so frustrated when I get called lazy. I would love to be able to do the things I used to be able to do.

[@seanprosser5420]

Thank you. I have been dealing with long covid for 13 months now, with no reduction in symptoms. A member of my care team recommended this video to me during a session today and it explains things better than I have been able to so I am directing everyone I know to watch it to explain what I and millions of others are dealing with. I've been 8 months with no income now because my medical insurance doesn't believe anything is wrong with me, and the stress of trying to deal with it is exhausting, so thank you.

[@The_Green_Man_OAP]

B12+B2, etc...

[@seanprosser5420]

@@The_Green_Man_OAP Believe me, I am taking all of the supplements and superfoods that my treatment team have recommended, and so much more, I won't say it's not helping, but it's not a cure either.

[@yewtubedislikebutton3056]

long vaccine = LonG COviD

[@annettewilford7568]

Terrible

[@annettewilford7568]

​@@The_Green_Man_OAPno quick fix

[@natara658]

I developed a type of dysautonomia called POTs (postural orthostatic tachycardia syndrome) after a mono infection some years ago. Watching more and more people get long COVID, the only hopeful thing to think was that maybe there will finally be more research on this issue. Thank you for this video.

[@autohmae]

I've seen people claim that it's getting many times more attention than in the past. I hope this is true.

[@Schplibb]

Yeah, I have POTS as well. I really hope that this gets more attention from doctors and researchers to figure out what the can do to treat it. I can never get answers// help and I really hope that changes in the coming months or years.

[@Faesharlyn]

If you have pots that was activated you might even have EDS, which is very commonly accompanied by pots.. are you bendy, flexible or "double jointed" too?

[@Schplibb]

@@Faesharlyn I dont have EDS thank god, at least i've been told i dont.

[@Faesharlyn]

@dyln I was told I didn't for about five years, one doc told me "thats not even a real disorder" ... then I got genetic testing an whaddya know... yup. I do, and the genetics specialist told me so as he was drawing my blood for the test. He said "I believe you're in pain and we can help you"... life changing. I still have EDS, of course, and I still have pain, but now I can manage it and know that I'm not imagining things. Compression leggings help POTS symptoms so much, even just calf sleeves can make a difference. Be well!

[@nicolettem8024]

Thank you so much for this video, Trace. Would you consider a long term commitment to mecfs/LC advocacy? I've had ME for 17 years (if not longer). This community desperately needs able-bodied (and charismatic ☺) advocates. 🤗

[@jaceie9548]

I was sent this by a family member, I've had chronic pain for an extremely long time I'm going to be a freshman in high school and if I have this I'm now confused on how I'm going to get through but I do appreciate how dedicated you are to getting answers. Thank you for just caring in the first place 😊

[@ketmateo]

I had a mild case of COVID in April 2020, felt out of breath for a few weeks and a bit of gastrointestinal issues that didn't go away. Over the next few months my GI issues got worse, I felt exhausted all the time and things have got worse since. 3 years later, I am still suffering from severe GI issues (including blood) with no known reason (after multiple tests), exhaustion (a couple of hours exersion, even just mental and not physical, will leave me wiped out for days), severe pins and needles and numbness in my arms and legs, confusion (including not being able to think of simple words), autoimmune hepatitis, kidney issues, pancreas has given up producing digestive enzymes, almost zero vit D, folic acid and B12 levels in my blood tests, sleep issues, anxiety, panic attacks and generalised pain. As the last 3 years have gone on, I have been told multiple times that my symptoms were unrelated to C19, until more was known about it's effects and they're then recognised as symptoms of long COVID. I have finally been diagnosed with post-covid syndrome, and, as strange as it sounds, just having a diagnosis is a relief. Just as every positive test result was a relief as it gave me something to prove that there was something wrong with me. I am unable to work, I have given up my company, my life is so limited now, but mentally I feel fortunate, I might only have one 'good' day a week, but it feels so good and I make the most of it and try to appreciate everything life has to give for that day. I feel devastated for Dianna and everyone else that has it even worse than me. I am so glad that people are talking about this, it makes me feel slightly less alone.

[@ckshowalter]

I really REALLY appreciate this video. It’s well done, and as someone with long COVID…yeah this means a lot. Thank you.

[@TraceDominguez]

thanks Clara! I hope you're doing well

[@olympiawa]

This is so frustrating because it took decades for doctors to even start believing patients (it was pointed out that this is unclear, I’m referring to ME/CFS). Then you see someone you care about go through something like this and all you can do is think, WTF took the doctors so long? If they started researching ME/CFS decades ago, maybe we could have a treatment by now. I hope Dianna gets better soon.

[@alanjm1234]

Decades? Covid 19 is called covid 19 because it first appeared in 2019.

[@olympiawa]

@@alanjm1234 I’m referring to ME/CFS. This is a condition that appears to occur due to an infection. This condition was documented long ago but doctors thought that it wasn’t real and that people were putting it on. That or there was something else wrong with them. I believe it was only in 2018 that it was seen as a real disorder. ME/CFS resembles long COVID and may be the same disorder but I’m not sure obviously. If doctors had been researching ME/CFS, there might be a treatment for it and that treatment might be efficacious for long COVID.

[@suyetarose]

The WHO declared ME/CFS to be a neurological disease in the 1960's but I went to a neurologist soon after my diagnosis in 2018 and he had no clue why I was there and asked if my psychiatrist referred me. I told him his database was just a tad out of date and maybe he should read up. There are people who have been housebound and bedbound for multiple decades with no relief. If you walk into my house, you can definitely tell I rely on my kids (17 and older) to clean. I really don't understand why they can't tell the difference between clinical depression as a cause and depression as a symptom. Just ask what they would do if they were cured tomorrow. ME/CFS people like me and Long Covid (Though I'm still convinced it's the same thing) suffers have a laundry list of things in our heads that we wish we could do. It's frustrating indeed.

[@rklauco]

I only had fatigue 2-3 weeks after Covid. Can't imagine how it must be for Diana and all the other people around the world with the same problem. I hope there will be some relieve soon.

[@M.Mae.M]

As someone who has suffered from long Covid fatigue for almost two years the only solution I found was to build up slowly. Do enough each day to tax the system but don't ever do it. I have really had to push myself to get through this. Thankfully I am almost in the clear. This is my experience and I understand each experience seems to be different but this might help someone.

[@babie.desk-]

I never got fever as a child, and when I became an adult then a mom, I started getting sick but only sometimes. Since I got COVID last Sept 2022, I am sick almost always. I’m like super tired all the time, no matter how much sleep or rest I get. :( Tests are always inconclusive.

[@gordonwerner]

Trace, while I am fortunate to not have long COVID, I am now the proud owner of two immune system disorders - both relatively rare - Neuro Myelitis Optica Spectrum Disorder (NMOSD) and Sjögrens Syndrome. I am very lucky that there is Satralizumab, an extremely expensive immunosuppressant, that prevents my immune system from dissolving my optic nerves, but I’ll have to take this medication every month for the rest of my life. I cannot travel, I cannot go out to public places, I have to double mask whenever I leave my apartment and live in a constant state of extreme stress. Seeing folks suffering even worse than myself, I can only hope that all of the attention being brought will help fund the necessary research for a treatment, if not a cure, sooner than later. Thank you for helping bring attention to this for both those like Diana, and especially those suffering without a voice.

[@ponzuZ146]

I'm Japanese and I just found your comment. I am suffering from long, and MDA5 dermatomyositis by COVID. Now the Japanese think COVID is over, many people in Japan are taking off their masks. Some people treat me badly because I wear KN95s. Is it the same in the UK?

[@zimsuk]

As a person with brain damage from a stroke i know PEM, and it took me years to learn how to pace myself. It is very hard for your brain to re-learn what you can and can't do. Like i know what my energy levels are and how much i can cope with, but still sometimes my brain will say 'you used to be able to do this much, so just do it now' and i will Pay the price the following days. So big hug to those affected, you will someday learn to cope ❤️

[@nyoodmono4681]

Vaccine damage?

[@TerranigmaQuintet]

@@nyoodmono4681 Or in your case, brain damage

[@nyoodmono4681]

@@TerranigmaQuintet Why? my brain is fine. Do you know anything about 'Long Covid'?

[@nyoodmono4681]

@@KA-in6sx Why? I want to find out, because Long Covid is a vague term that matches well with the adverse events of the vaccines. I mean all the excess mortality and rise in strokes, myocarditis, thrombosis and misscariages have a reason and it is sad that people put it on 'long covid'.

[@ricknoah9184]

I had Wuhan COVID in Mar 2020. The ER I went to treated me for COPD as COVID wasn't even a thing yet. The one thing that puzzled them was a 103 degrees F temp when I arrived. Not really a COPD symptom. Got a long nebulizer treatment and was sent home with a TON of equipment and a new nebulizer. Nice of them. Blood work showed a virus, for sure. But they assumed I had a light bout of flu. The nebulizer worked well. Also, the fever broke that night and didn't return. By the end of April, I did notice a marked decrease in energy. Then I seemed OK for a few years. By 2022, I really knew I had issues. I got sick again, flu symptoms, and lost 22 pounds in 2 weeks -- seemed like it was mostly sweated off. Got tested, not COVID. Noticed that I was always weak and had a short "active" cycle before I had to lie down for a while. Very erratic sleep, typically just 2-3 hours at a time. Little appetite. Constant headache, been 4 months now. Ringing in ears. Night sweats. Oh.. am 133 pounds, 5 ft 7, and 75 years old. Pretty lean. Often my entire body aches, espec. knees and ankles and L3/L4 area. And, yes, really serious brain fog. I can't remember my freaking dogs name !! Glad he responds to "hey you, dog". Doubtful if it's ALL aging. Mom lived to 97 and was still walking every day. Good genes. I have an appointment at the VA Hosp soon. Wish me well... I may have to explain Long COVID to them....

[@MBGK777]

I’m so sorry to hear this is happening to you and I really hope the doctors listen to you and can help you in someway. I have FND and it has been an unbelievable struggle to even figure out what was going on with me. I’ve seen every specialist out there and finally after 20+ years a neurological doctor apparently diagnosed me with FND about a year ago, but didn’t tell me and I only found out about my diagnosis a few months ago from my primary doctor and the first thing she said after telling me I have FND, is that what I’m experiencing is real and she said I really want to stress that this is real because so many doctors don’t think FND is a real thing. I couldn’t believe what I was hearing. I’m still really struggling everyday and I can’t understand how a doctor could diagnose someone with something but not actually tell the patient. So stay strong and don’t stop advocating for yourself. I really hope you get the care you deserve and some answers 💜💜💜

[@ZoeFPV]

I'm glad more information on this is becoming known. There are a lot of people silently suffering with this, and have had a difficult time getting ANY help from medical professionals... and as someone with other medical issues, has made it an absolute nightmare to deal with. Like.... it's been soul crushing to go through, and even more soul crushing to see so many others go through it without support.

[@Kaalokalawaia]

One of my friends who has long-covid had an MRI done of her brain. It showed holes in her frontal lobe from covid. She was literally bedridden like Dianna. If you are still suffering from long covid make sure your doctors order an MRI for you. It might help identify if you had brain damage.

[@byugrad1024]

I'm afraid "long Covid" has existed for longer than many people think. I got terribly sick with a viral infection of some kind a decade ago. These symptoms that are being described by the generation approximately 10 to 15 years younger than me who are going through this are exactly, and I mean EXACTLY what I experienced for years after becoming ill, obviously not with COVID back then. I did not want to move. I did not want to get out of bed. My head felt like it was in a vise all the time, and could not think, be productive as an electrical engineer at my job, or help to raise my children. I decided that I just wasn't going to let it get the best of me, and I powered through it. I continue to power through it every day, because that is in reality the only thing left I can do. Some days are good, some are just awful. But there was definitely damage done from that viral infection, in much the same way that COVID has impacted many others I'd imagine. My father told me he went through a similar thing in his 40's. Sometimes getting older is just that. You'll never be the same, but you can get through it. Best of luck to her, however I suggest that at some point she make attempts to start doing the same, otherwise depression and other highly degenerative diseases will likely set in for which recovery seems less and less likely. The world is sometimes a cruel place, I know. But I'm not holding out any hope that doctors will ever find a cure for this. Actual damage was done. Repairing that damage takes an enormous amount of physical strength, stamina and determination. But it can be done. I'm proof of that.

[@sistahsunshine]

Thank you for this comment and sharing your experience. The more people share the better we all understand. ❤🙏🏼

[@jefflittle8913]

This was touched on in the video.

[@eev14]

Same, I had mono nearly 20 years ago and developed an auto-immune disease and chronic fatigue as a result of it.. I'm 30 years old now and it's never gotten better, I'm still sick, i'm still tired constantly and battling an endless list of symptoms and I've never been able to hold a job because of it. On the one hand it's good that there is some more awareness but I don't want people to forget that many people have been suffering with this for years and years as the result of other viral infections.

[@meowmiaumiauw]

My mom had the same thing caused by Lyme disease albeit after COVID-19 existed. Our doctors said DO NOT do this, because it will make it take longer to heal. You're supposed to basically be as lazy as possible for as long as possible to improve your odds of recovery, and pushing it will make it last longer.

[@OneCatShortOfCrazy]

This! I felt my blood boil when he started the video by saying this is something new, when it's well known and well established that people have had these kinds of reaction from viral infections for a long time. It's not new, the name we are calling it and the virus that we are focused on is new, but this kind of reaction after a viral infection is NOT new. What is new is that a lot more focus has been put on it and actual reasearch is going into it on a much larger scale, you might even get a doctor to take you seriously about it if it happens because of covid.

[@MDBenson]

Thank you so much for making this. I saw some of the first videos about Dianna and my heart sank. I feel so much sympathy for her and Kyle. I was bedridden for 3 months as a child with ME/CFS and talking it over years later with my parents they were terrified, my Doctor had no idea what was wrong, no-one had any answers. I think I pulled through it pretty fast because I was young and my body overcame the worst of it but it never really left me. I am very lucky that, in spite of a serious relapse in 2011, I have been able to work and live around my condition, but I definitely suffer from PEM and brain fog, constant pain (mostly low level to moderate but occasionally acute), exhaustion, bouts of depression... I have been patiently waiting for 30+ years for medical science to do more research on this and open up this box of mysteries. Hopefully Long COVID focuses more attention on this and starts to shed more light on chronic illnesses as a whole. There are millions world wide who need better treatment.

[@willow8783]

Thank you for making this. I'm one of those who caught COVID in early 2020 and still have horrible long COVID- not quite bedridden but disabled by it. I'm actually in the RECOVER study you mentioned in the video and am excited to see what comes from it.

[@victoriap4335]

I was sick for yrs w Fibromyalgia before I was diagnosed (by a sharp Reumatoligis). Most doctors, including my own husband, thought it was psychosematic ('All in your head').Your advise was great! I would add, keep seeing different MD's until u find one like mine.😅

[@TraceDominguez]

glad you're being heard!

[@graetelgerdtssullivan7209]

Thank you for doing this video. I have had long Covid for 8 months and I have never been so sick in my life. I have been able to enroll at the UCLA long Covid clinic. They are so over the country.

[@TraceDominguez]

I’m glad you could enroll!

[@graetelgerdtssullivan7209]

I wish long Covid clinic could be available to everyone of us silently suffering with this AWFUL disease!!!

[@ansamgroshong]

thank you for making the video (from an MECFS patient who's been sick for 29 years). one thing i want to clarify about PEM. it's not just exhaustion. it's the worsening of disease- so a patient experiences reduction of function (physical and or mental), worse fatigue (and sometimes feel new fatigue sensation), worsening of other symptoms, and maybe onset of new symptoms (pain, orthostatic intolerance, sensitivity to light, sound, etc), sore throat, sinus pain, headache, muscle weakness, etc. the triggers for PEM could be anything that uses energy , or anything that's a stress. physical activity, mental activity (depends on how much concentration is needed), untreated or under-treated pain, sleep deprivation, severe emotions (even positive) in some people could also trigger PEM. the severity and duration of PEM depends on the patient's threshold for PEM and how much they exerted themselves, and for how long. it could take days to weeks to recover, or even years. and it the worsening could also be permanent. notice also the PEM could be delayed (when i push myself I first feel more energy, but later get a crash. if I keep pushing on myself, or if I don't allow myself to rest and don't get enough sleep, then this higher energy continues for a while - maybe weeks or a few months, but then I hit a big crash. I've had a few of these kind of delayed big crashes, and everyone one of them made me permanently worse, like putting me in another worse level of disability). (please don't ever pressure or force any patient into doing too much. you could be causing them permanent disability. even if you see the patient responding to your pressure and becoming more active. this will hit them later). another thing re MECFS, there has been many studies (despite the tiny funding, and some were funded by private donations), but there is also so much prejudice that doctors not only are unaware of it but also don't even want to look or read.

[@Arrowed_Sparrow]

Unfortunately I'm one of the unlucky to have long COVID. It went from not being able to concentrate or focus properly, to not being able to lift slightly heavy objects or take a walk around the block, and at it's worst I couldn't even brush my hair without my arm just giving out. I wouldn't wish this on anyone. Its driving my nuts, I'm 30 frickin years old and my grandma has more of an active life than me.

[@00muinamir]

Thank you for making this. I've had fibromyalgia for over a decade, so I know just how frustrating doctors can be about nebulous chronic pain and fatigue. The US's medical system is just... so not ready for the wave of chronic illness COVID has created. TBH, I worry a little about whether society will become more accepting and compassionate towards people with chronic conditions like Long COVID or whether it will turn angry and resentful towards all the people who will need care. So it gives me hope to see folks outside chronic illness circles promoting awareness and research.

[@janeblogs324]

If there's no medical test, there's no treatment, so there's no profit

[@StonesOfThePast]

Im a year into my Long Covid diagnoses and it has DESTROYED the life I used to know! I empathize entirely with anyone else struggling with it, words truly can’t do justice to describe how it feels.

[@illbeyourstumbleine]

I was diagnosed with ME/CFS/Fibromyalgia after I was in the hospital for weeks with bacterial meningitis. That was 12 years ago. I’m a bit better but still disabled. Thank you for this video. ❤

[@YourRunnerDadSinceYouAsked]

As someone with ME/CFS, PEM is the worst. I can do something today, won't feel the crash for 2 days, then might have symptoms of that crash for up to or over 3 weeks.

[@TraceDominguez]

I’m sorry this is happening to you

[@damianjones6546]

I hope and pray everyone suffering with long COVID can find a cure that works for them. Ive come across plenty of people who have recovered from it.

[@ChristopherWoods]

Really good video. I know people similarly affected by Long COVID and I can't understand how so many people are now so blasé about COVID. A collective, selfish wilful forgetfulness... As you say, just because someone might have had no lasting symptoms the first one, two, even three times they caught COVID, does not mean that they won't possibly be wiped out by the virus given a future mutation. Or that even if they don't have it so bad, and aren't immediately symptomatic, they can still pass it on to someone who becomes significantly ill and gets Long COVID, as happened to my partner at work. I also remember a couple of friends at school, one of whom who had ME so severe she had to be carried between lessons for several weeks before she finally was allowed to stay home sick. ME/CFS and Long COVID research seems similar to research into endometriosis - as it doesn't affect the majority of people with the power to investigate, raise funds and conduct research, or in some cases doesn't affect doctors who then don't take their patients seriously, so it remains underfunded and underscrutinised. This is one of a few important videos on this topic which I hope makes people think again about this condition. Thanks for making it. Like others I'm continuing to keep everything crossed for Dianna and everyone who has ME/CFS and Long COVID. Hopefully we can lay the smackdown on these debilitating illnesses reasonably soon. P.S. - subtitles towards the end should say "fire on all cylinders", not "fight on all cylinders". 🙂

[@davidhundt6093]

Great job Trace! Very enlightening. I feel some of my friends may be suffering from long COVID.

[@TraceDominguez]

it's possible!! They may not even know

[@AM-ek5rm]

It is so refreshing to see videos like this where you can see people coming together to help others in need. Who knows when something could happen to us and we would want to be helped as well or at least know that others care. Great work with this video👏👏

[@lisa-mariemertineit295]

Thanks so much for the update : Diana and family are in my prayers for a speedy recovery

[@eyemastervideo]

It's weird that we develop feelings for someone we only see in KZbin, but we do. I'm sad she has long covid and I think we really wish her to recover and get well as soon as possible. Please get better!

[@richardhulton8894]

Thank you so much for this video, which is an accurate description of long covid and its challenges. My partner has long covid and is on disability, it is devastating.

[@Amandadiana22]

I have mecfs it’s not fun. Thank you for making this video. ❤ My short term memory is majorly affected as well as the flare ups and extreme exhaustion. I feel for Diana. I really hope she feels better, she’s the reason I went back to college at 36 for physics.

[@tsepash]

As a Long Covid sufferer, I would like to thank you for this video. Getting awareness out there is a major part of finding potential treatments. One thing that is rarely touched on is the financial strain LC can cause. There is simply very little (if any) help available financially. I filed for social security (remember this is money that I have paid into the system, not a hand out) but was denied because, according to them, Long Covid only limits a persons ability to work in dusty environments....Let that sink in. I am currently back to work, making less than half of what I used to make. I have to call off weeks at a time because I overworked myself a few days before. Before all this, I was preparing to buy a house. That is no longer an option. This is my reality and I don't even have LC as bad as some, such as Dianna, do. I just cannot even imagine the hell they are in, knowing how awful my own little slice is. I just hope, somehow, we can ALL get the help we need. Tell Dianna that she has many people that respect the hell out of her and just pray that she can defeat this!!

[@LittleDergon]

I have had symptoms of CFS since I was in college but only got diagnosed after I lost my job from burnout and became almost catatonic for 4 months. That was 5 years ago and while I am no longer catatonic, I am still severely fatigued and struggle to be active (as in out of bed, not resting) for more than 3 hours at a time. Research into Long COVID has helped hugely but there is such a big gap between it and other conditions that affect similar numbers of people. The craziest thing is that no one knows what caused my fatigue. Long COVID has a clear trigger event but I never had that. I just slowly became less and less able to do things and pushing through made it worse. I appreciate every video and article that spreads awareness for people like myself and Diana. The more it is talked about, the more funding it is given, the more help people can get.

[@It-b-Blair]

This is important information! Thanks for helping to bring awareness to this. I can’t believe so many still believe it’s a conspiracy …

[@TraceDominguez]

They're here, in the comments *gestures wildly around*

[@danielled8665]

​​@@TraceDominguez I know! I keep seeing them going after people saying they have it with a million "have you just tried X" or "Oh but maybe it was caused by the vaccine that didn't exist yet when you got it!? HmmmmmmmmmmmMMMMMM??" Infuriating.

[@woutervanr]

My mom spend years figuring out that she had MS here in the Netherlands. She now has medication that slows it down and it has been working for years luckily. Still often tired though.

[@TraceDominguez]

💙

[@supraguardian]

I got the original strain of covid, March 2020. After the intial sickness left, i got long covid. One week before getting covid, I got 3rd place in a 2 day strongman event. After long covid set in, just a walk would put in bed for 4 days. My symptoms of fatigue, brain fog, rash, etc all cleared up after the first dose of pfizer vaccine. I had the intial 3 days of horrible sypmtoms from vaccine, then on and off for another 7 days. Then on the 10th day, quite suddenly, I felt my energy, alertness return. Like someone had turned up the dimmer switch. My rash was gone. I didnt trust it, waited 4 days, then went to gym. No fatigue, no mind fog. Why? IDK. BUT THANK GOD! I was back to normal.

[@supraguardian]

13 months of hell. Thats how long my long covid was

[@rishabhgautam9]

been 3 years for me , not vaxxed as doc didn't recommend it but u got well with it ??

[@calmlittlebuddy3721]

Thank you so much for this video. I have Long COVID from my initial infection in March 2020. You are bringing awareness and attention to this terrible syndrome which may be affecting more than 30% of people infected with the SARS-COV-2 virus. I feel for Dianna. Seeing her suffer the early stages of Long COVID brought back the memories of going through it before they even knew it existed. For 2 years I never knew what the day would allow me to handle. Dianna is still in the very early stages where almost nothing is easy and some things are down right impossible. But it does get better for most people. Some very gradually. Some find a magic bullet that clears up most of the worst symptoms. Unfortunately, what works for one person doesn't always work for another person. The best thing we can all do to help is exactly what you have done, raise awareness! Again thanks!

[@tamatihoetawa2333]

I'm glad you're calling out the medical profession about hearing them out patients and validating them. The profession can only gain trust where the sense of pride and arrogance is set aside.

[@JavSusLar]

Love for Diana and for everybody out there suffering. I pray for you all.

[@eaterdrinker000]

Not to be insensitive, but I think a dram of Monster energy drink (lo-carb) should cure what ails her.

[@christafranken9170]

​@@eaterdrinker000 As someone who also has me/CFS: that is definitely insensitive and not at all helpful. This isn't some kind of breakthrough idea, what you are doing here is something we have to deal with all the time. People who do not have a clue who think they somehow came up with a brilliant idea none of the experts or patients have come up with despite years of study and experience. Drinking energy drinks isn't a new idea. It makes going over limits more likely, thus causing long term issues. Suggesting patients to just get their iron checked, just try this fad diet, just use this medication that isn't researched, just eat/drink this one thing, is demeaning and, unless you are an actual expert, never helpful. Please stop.

[@carrieullrich5059]

❤ Since I had covid in February of 2020, I've had fatigue problems. For the first 18 months, everything I ate or drank caused me to sleep six to eight hours fifteen minutes later. I could have 10 cups of coffee, first thing in the morning, with my norm y being zero cups... So no tolerance to caffeine... And I would still pass out into sleep 15 minutes after I finished drinking. I did get better for a little while, where I was awake more often, but I've developed other health problems since then and I'm back to needing a nap after eating or drinking anything. That being said, I sometimes feel better after I eat whatever silly food my body's been craving, so listen to the food cravings you get, since your body is just trying to fill the supply request for your healing work order. ❤

[@niels9bohr]

Thank you so much for making this video, Trace. It's been heartbreaking to see what Dianna's been going through. I was actually considering reaching out to see if you could put something out to help fundraise for her prior to you uploading this.

[@TraceDominguez]

hopefully this helps

[@Socratica]

Thank you for this important work, Trace. This is the heart of what it means to be a science communicator.

[@TraceDominguez]

Thank you my friend 💙

[@nina13579]

Thanks for addressing this. Ive had long covid for 1yr, 9mo but not nearly as severe as Diana. For me, I can function enough to function normally for a few hours as long as i don't try to exercise, but if i work a full day, i need at least half a day to recover. I tried going back to lifting weights at the gym and 10 min would knock me off my feet for a day and a half. It's a struggle to constantly manage my energy expenditure and to not be the fit person I was before. I used to be a competitive athlete but now I can hardly participate.

[@kari8187]

Been dealing with it since 2020, the only relief I get in a flare up, Benadryl and melatonin combo, once a day. It feels like I’m having an allergic reaction until I take the meds, it works too

[@MrJBA79]

I was pestered by an old high-school acquaintance to have a beer during the pandemic and I refused, so he ghosted me. But at that point I had been in my house for 3 years and wasn't prepared to risk my life for a couple of beers with someone I don't even like. I was very careful, still am. I've never had Covid the same way that I have never had the flu. I haven't even had the common cold in over 10 years.

[@kakhipudhi]

Thank you. Its real. I have some long covid symptoms, CFS and PEM leading to shortness of breath. Luckily, I am a retired science teacher and have lots of time to rest. I can not imagine trying to work or raise a family like this. Please continue to educate us.

[@tf7602]

Sad to see all the conspiracies and miracle cures in the comments. This was a really good overview on the condition and the lacking research on it though!

[@TraceDominguez]

thank you!

[@notmyname327]

"Ear, nose and throat, ha, overachievers" hahah This was really informative. I've been following Dianna's feed and it's really sad and scary. Glad to see you making this video

[@TraceDominguez]

Thanks Juan

[@eaterdrinker000]

Not to be insensitive, but I think a dram of Monster energy drink (lo-carb) should cure what ails her.

[@TraceDominguez]

@@eaterdrinker000 no. It won’t

[@jakubbaran6357]

I was dealing with long-COVID for whole year. Still dealing with asthma. Shit is serious.

[@TraceDominguez]

truth

[@Awesomes007]

I love Dianna and cry when I see her videos. I’m so thankful because she validated me in a very visible way. I fully support donating to her. One of the troubles is that most of us don’t have a Patreon. We’ve lost our bodies, minds, jobs, careers, friends, partners, and homes. It has taken me months to get the social security process started because I can’t move until late in the day. And, it will be years before that gets approved - if I’m lucky.

[@Prober61]

Thank you for the update. Though not happy news I know all her fans would like to hear SOMETHING once in a while. Please send her our love and support and a big "Get Well Soon" and keep us updated. We appreciate it.

[@ulalaFrugilega]

I have comparatively mild mecfs for more than 10 years, it significantly worsened after I got Covid (in spite of vaccination and being careful). I as hoping with the surge of new research I would finally be taken seriously, but instead, the many fellow sufferers have completely overwhelmed the medical system even here in Berlin, Germany, a very well organised "1st world" country...

[@christinahartnett2316]

There’s an organization called The FLCCC (Front Line COVID-19 Critical Care Alliance) that specializes in helping patients struggling with long covid and those who are vaccine injured. My sister had long covid and experienced many of the symptoms you described. The FLCCC protocols helped my sister feel better and now she’s almost back to 100%. It may be worth looking into to see if their protocols are a good fit for you. Best of luck to you!

[@ex8280]

lol, those are them conspiracy theorist doctors that recommended HCQ to their patients. Good luck with that! What a bunch of hacks.

[@theoremus]

Dr Mobeen has interviewed two doctors who specialize on long covid and other similar injuries, namely Dr Patterson and Dr Yogendra.

[@phxx3054]

I just saw this video! Thanks a lot for that! I have Long Covid that progressed to ME/CFS since March 2020 and I'm in a comparable stand like Diana a lot of the time and I miss my life in science and arts, my friends, my former brain... Thanks again for helping to create some momentum!

[@solarwinds9363]

I had long covid for 1.5 years. I couldn't walk to my mailbox or the end of the street, or walk up the stairs to my bedroom. I couldn't sleep laying down, I would shake all over my body... really strange stuff. Since then, I have been sleeping sitting up. I had the brainfog as well. It was difficult explaining why I couldn't go back to work when RTO started, it wasn't really like there was an easy way to diagnose it, some people didn't believe me. It also wasn't like I could train it bit by bit to walk further distances. I've just been looking at it by seeing how exhausted I was going to my bedroom and when the shaking stopped. One day, everything was good again. I still don't understand it one bit. Ofcourse, I still needed to get back into shape again... but I am so scared to get Covid again.

[@patrickryan7829]

One part of the puzzle is the damage slowing our hearts. Mine was too fast and is now in a healthy range which I feel guilty for.

[@PeterM8987]

Vaccine?

[@patrickryan7829]

​@@PeterM8987yes I'm vaccinated.

[@subspace666]

i recall seeing data that indicated long covid or some of them was a mitochondrial disorder you already had before covid but was made worse with covid. i recall exposition to near infrared light helps fix the disorder, sources of those is sunlight and camp fires or fireplace without glass. might be other causes for long covid but if you were almost always indoors before might want to give the sun a try.

[@leeartlee915]

I have long Covid and I’m literally getting no help. I’ve lost my job, I’ve defaulted on all my bills, and there’s no end in sight. It’s so F’ed up.

[@Merriwen]

I have long covid... the amount of sleep I need now is ridiculous! I'm constantly exhausted and my brain is like Swiss cheese.

[@emceeboogieboots1608]

Didn't realise you guys were familiar. I hope this video gets some wheels so more people become aware Onya Trace👍

[@TraceDominguez]

SciComm is a small community 💙

[@KyleGillming]

I'm curious to see the relation between long covid cases and the number of cases having been vaccinated

[@jilld907]

Thanks so much for caring about us long coviders! I'm coming up on my 1 year anniversary and a lot of my people are getting tired of me being tired, and seeming like they don't believe me anymore. It really helps to hear about what's going on with the research. Thanks!!

[@dmitrijsmironovs7513]

only took my brother the initial 2, he didnt even get the boosters...@TransSpewMan

[@Momtojoshcanpark]

I also have long Covid since being diagnosed with Covid on Dec 31, 2021. I'm slowly coming out of it now

[@guitarbuddha74]

It just makes me feel crazy that I'll see videos like this and almost everyone has moved on like there is nothing wrong. It really shocked me how quickly the whole country was kind like welp done with this.

[@TerranigmaQuintet]

Mass denial basically, most people cannot handle the idea of something this disrupting, and go on a path of complete denial, going as far as just pretending everything is ok, and atacking those who have LC and the people who believe its an issue. Just have to take a gander at comment section as to how vile some people can be regarding that.

[@jaynebailey]

Me too 3 years people who have never had the vac get over it in n a couple of weeks

[@cenciacencia7551]

Not true.. There are not vac with LC

[@stephenanderson1103]

Post-Dengue Syndrome refers to a cluster of symptoms that persist even after the acute phase of dengue fever has resolved. These symptoms may include extreme fatigue, muscle and joint pain, depression, and cognitive impairment. PDS can significantly impact an individual's quality of life.

[@petergates7962]

Got COVID Christmas eve the second time in 12 months and again dodged the bullet as you put it. That said still can't smell anything with very limited taste. All my love to Diana we are thinking of her from around the world 🇬🇧 my wife and I just keep smiling. Perhaps people could put their own national flag in their messages to show the places her style and personality has reached. 😁

[@PhunkBustA]

I really do hope Dianna gets better 🙏🏼

[@WillSmith-bf6lj]

Had post covid fatigue syndrome for nearly 2 years now, and the only thing that has helped me is breath work and meditation. Sounds weird but a lot of the symptoms are caused by your body staying in a fight or flight response from the illness and can’t switch off, so meditation and breath work is the only thing that has improved my condition at all. Mind body connection is way more important than I realised and is very real. Cheers for spreading awareness 💯

[@TraceDominguez]

Glad that works for you!

[@jimwells7778]

Who gets long covid most? Vaccinated or unvaccinated. I would like to see the data.

[@theosib]

I've has CFS since 1994 when I got EBV.

[@TraceDominguez]

I’m sorry this has been happening to you :(

[@1DwtEaUn]

I think EBV is severely understudied considering the different conditions that have correlation with an active infection, or latent EBV activation/partially active EBV protein transcription

[@Dan-uf2vh]

Try supplementing NAD+ boosters: NMN, NR, Niacin, B3/B6. I've had chronic fatigue and feel much better now.

[@PierreDybman]

Doing NMN for a bit over a year, after trying Niacin (didn’t do much apart from the flushes). It’s extremely powerful…if you buy a real pure product. Amazon finally stopped selling them, because ALL of them were fake. Check some videos on KZbin to find the few trustworthy producers.

[@dgsmith9969]

Vitd and B12 help me quite a bit.

[@multiversomental6893]

Thank you for talking about this. I have been fighting this madness for more than a year. It doesn’t seem that there will be a cure anytime soon, unfortunately. But thank you for putting the word out. Hopefully if a lot people talk about it, people push big pharma to do something faster.

[@Emma-fq9pv]

I’m 25, had LC for 3 years. I entered a very deep suicidal depression last year after realising that my life is already over. I’m now just existing, not living, and wondering how long to stick around since no cures are likely to come anytime soon.