Long-term Effects of Brain Injury

The road to successful recovery after a brain injury is never an easy journey and unfortunately, its not even a definitive one. There are many long-term effects of brain injury such as Parkinsons, Alzheimers, and short term amnesia that can affect your life, long after the initial brain injury. For more information on how you can help brain injury survivors, visit biak.us.

[@LouMontana-wc7nr]

I am two and a half years into my head injury. I was told It has healed. Why am I getting worse? Headaches are getting worse, memory is getting worse, and confusion is getting worse. I am dealing with extreme anger.

[@5jjt]

Are you being treated by, or at the VA?

[@maxfoster2377]

Email me if you need someone to talk to. [e-mail] I also have a TBI and am about as far out as you

[@chinookvalley]

Lou Please look for a Naturopathic Doctor. Supplements helped me far more in my recovery than any drug prescribed. See a Cognitive therapist, Speech therapist, and Vision therapist, all who specialize in treating those with TBI and PCS. I am 29 years post injury and everyday is a struggle. I am seeing an anxiety therapist currently. Don't let yourself be labeled a victim. We have been victimized and it is up to ourselves to fight the ongoing battle to heal. We will never be the same, but we can have quality of life - no matter what anyone else says or thinks. If you can make progress for yourself, become an advocate for those whom can't advocate for themselves. Make a difference in this world for exactly who you are! Few doctors or therapists understand a brain injury unless they have been thru it themselves. Believe in yourself.

[@graciegracie]

Please go back to your neurosurgeon. It may be a case of csf leak.

[@anniekate1914]

Don"t believe it is over I checked on Dr. Google and many articles I read such like Mayo Clinic and others such as .gov articles it can last the rest of your life. I got my first one 1969 I was 25 2nd one 1981 I was 37 today is Oct.29,2024 I am 80 yrs old and still have the affects. The neurologist I go to said it can be with you all your life

[@bradstell2146]

Coming up on five years for me. The toughest the five years of my life. However, if you are reading this and have recently sustained a TBI, don't give up hope and the hard work. And yes, it will be the hardest work you have ever experienced, especially if your injury is in the cerebellum and has affected your psycho-motor functionality. Push yourself as much as you can. In the beginning it will be almost unbearable. But, I promise you it will become less difficult. However, you must be as patient as determined. It will take a long time, especially in your mind. Remember, your mind is much different now. And don't try explaining to family and friends. There isn't much you can do to alleviate their misunderstanding and frustration except working hard and showing them your resilience. It is hell my friends, but with great family and friends you will slowly get better. Don't give up. This too shall pass. The best of luck and God speed from a survivor coming on five years December 24th.

[@debblackmore7460]

Bless spot on keep safe keep strong keep going giving up isn't a option keep positive sending luck love from headway Nottingham UK x

[@bradstell2146]

@@debblackmore7460 Hi Deb, My email address is [e-mail] if you would like to chat?

[@johnblanton9115]

I recently had 9th TBI. Gotta say. fences make good neighbors, outherwise they are bad. Too many mean people.

[@bradstell2146]

@@robbieferrari5723 Almost seven months. Four in a wheel chair. And, my bleed was in the cerebrum initially. And bled into the cerebellum. Physically, struggling with the tone or spasticity and lack of coordination and agility now. Very tough being an athlete prior to my TBI. :(

[@robbieferrari5723]

Did you have pvs

[@bengaughan227]

I must confess I absolutely deplore doctors I fell 4 stories through a barn shaft and I hurt my back in addition to the tbi to get a non narcotic medication that means I can walk work and function it's worse than crawling through glass to get the medication I need. I'm treated cold unsympathetic I'm treated like a junkie and it literally makes me want to I'm not going to say but I'm sure you get the point. I don't know what to do I meet people for the first time and they think I'm a weirdo that there is something wrong with me. I can't explain that I have a head injury that I didn't used to be like this and it hurts. It hurts worse than the injury itself I get rejected and I can't do anything about it. I can't remember girls names that I dated for months I have to write everything down or it's gone no matter how important it is. I want a doctor who understands that i am a person. I'm done I am a man and a person who is here in life and I want to be understood

[@Kylehudgins]

Exactly wow you put how TBI feels perfectly. It’s embarrassing to be stupid and weird and I’ve never experienced it before because I was intelligent

[@Chiefab22]

It’s been 20 years for me TBI and I’m still having trouble or mental health issues!

[@faisalbi1330]

Hi how you doing?

[@faisalbi1330]

Which problems you having please share

[@tylerw3023]

@@faisalbi1330 I’m only 5 years out from my TBI but after my TBI I faced a severe bout of depression for several of them. Luckily I have been able to build a good support system around me and made good friends so this isn’t as big of an issue as it was early on but both therapy and self help we’re definitely necessary for me to get back to a more normal mental state

[@faisalbi1330]

@@tylerw3023 thanks for reply

[@faisalbi1330]

@@tylerw3023 so therapies help make brain work normally?

[@spirithawk2418]

Im 3 years in head on collision survivor. Got screwed in personal i jury case . NC is draconian when asking for help. Dont accept TBI as a legit injury when seeking aid

[@Overtimewayne]

Wow what happened

[@Shsifi]

One year later and I’m hating life but live learning about it

[@danb4089]

Sound doesn't work 😮. Don't you listen your videos before posting ??

[@LouMontana-wc7nr]

Hey buddy, no one wants to talk to you when you have a brain injury. NOT JOKING.

[@debblackmore7460]

Spot on everything you say it's me lol it takes time to adjust to amazing really our brain works I have hypoxia never give up stay safe everyone stay strong sending love from headway Nottingham UK xx

[@dwightlangston5444]

You too. Live long and stay strong.

[@missesqueda207]

My head trauma was on left side and I have such a hard time to keep it together..people say your smart but I'm a mess and it's been since 1996.i have no job and I want to work what can I do?

[@Mar_Kat0]

Is there any scientific evidence that a brain injury could result in parkinsons or alzheimers in the future? I imagine it is very complicated to determine whether parkinsons came from genetics or if it resulted from the brain injury.

[@cliffroberts1774]

Boxing does

[@surpriseme7205]

My neurologist told me when I was 17 to expect early onset Alzheimer's or dementia

[@SpaceRanger187]

I just found out that I have tbi after years of going to the dr..Makes me nervous and my wife..i dont want to put her through all that

[@pyromaniacalmagpie3198]

I know it can increase the risk of early onset dementia, but I'm not sure about Alzheimer's.

[@velardecharlotte3844]

My husband got hurt on job, a 1,000lb Bram fell on his head which there was not fracture or bust open..he didn't have any signs of anything until 3 days later, then extreme headaches, light sensitivity, balance issues, ...this injury can result in blood clots or a aneurysm,....he had first MRI which showed he has a Arachnoid Cyst in brain which is pushing his brain over, his 2nd MRI showed he has a Putuitary Gland Tumor and hypothyroidism hypertension...he was only on pain meds, also magnesium oxide,...he refuses now to keep going to get a MRI or a CT scan....he doesn't do any follow ups with doctor, he got covid pneumonia and was one mask away from being put on the ventilator...these tumors have pushed on his chiasm which he now has tunnel vision...he has been declining in his cognitive and he has ran a few red lights, he has fallen asleep in his car when sitting there in the parking lot,..he also has sleep apnea, he has extreme fatigue, I can go on and on....he now has been on tik tok and buying all these natural herbs thinking he can cure himself, drinks all these herbs and teas and papaya and pineapples and soursop ..there is not real answers anywhere, I have read up on all his symptoms and his Tumor and Cysts..anyone have info?

[@metheiam5714]

Hi. I don't know if there's a long term cure for that, but fasting, ketogenic diet or supplemental ketones may help. I could also suggest Amy Berger's talks about Alzheimer's. Best of luck to you. Edit: i also watched a talk from Thomas Seyfried in which he makes claim, that cancer could be metabolically driven disease. I of course am just someone struggling with my own issues, and so can't claim to know anything substantial, but i've found dietary interventions offer perhaps the best help for me.

[@millardpureforlife]

I just recently went to trauma broke my back and I think I might’ve fractured my neck I have these headaches at the beginning when the headaches went away I could draw like hyper realism I don’t know what to do with this I have a gallery showing the first Friday in June all the galleries want me I never could draw before I’m 43 years old

[@Skatelifefool]

Very interesting

[@spirithawk2418]

Bravo Kentucky. Nothing this detsiled in NC to help us with TBI

[@ripgeorgesmith9021]

I suffered a brain injury at age 13 in NC I am now 30 and fucked up!! Can't even work smh!!

[@millardpureforlife]

To be honest I’m very very scared this is affected and change my life it’s been a watershed moment

[@bradstell2146]

What is PVS?

[@surpriseme7205]

...I can remember my neurologist at the children's hospital was so careful not to give me false hope as I was leaving ... I healed so quickly and unexpectedly I was on cloud nine.....thought I would get every thing back and heal 100 yeh was I kidding myself.....everything is fucked...and has been for so long I get no medical assistance haven't seen a therapist in over ten years....I'm afraid one day all my anxiety and depression will cause spontaneous combustion...I should have died with the girl I used to be....

[@debblackmore7460]

Bless keep going keep strong we cant be who we was but we can be better who we are we are survivors never giving up on us many will give us up but never yourself sending good luck keep going keep positive stay safe stay strong sending love from headway Nottingham UK xxx

[@surpriseme7205]

@@debblackmore7460 ❤️

[@cyndigooch1162]

Surpriseme ❤

[@danielagomez6633]

Don’t say that! We all survived for a reason! Life goes on and we have to keep pushing! It’s hard I know but no, you shouldn’t have died because you DIDNT.

[@millardpureforlife]

The light it’s everywhere my perspective is shifting I can see if I see it I can draw it I drew a glass of water and a clear glass just to see if I could and I did it in two hours my drawings are done in less than an hour when these are professors are saying it should’ve taken me 40 hours to do I don’t know what’s happening to me and I don’t know if it’s gonna either progress and if it does will the memory thing progress

[@maricamaas2326]

Kindly look into dangers - also to brain health - as result of taking in too little salt; especially alongside drinking too much water. This is very important specifically for the elderly, since having reduced capacity to hold on to salt. Yet all of us - even elite athletes - are in danger of developing electolyte imbalances - including life-threatening Hyponatremia. When it comes to healthy, natural, unprocessed fats: Our brain and nervous system mostly consist of fat, and a high fat diet is crucial for the brain and nervous system to develop and function properly. Additionally the human body - including the brain - is not as much cleaned with water, but mostly - similar to a machine - through healthy fats and oils. Important for example to lubricate the intestines - towards counteracting constipation, and to stimulate the production of detoxifying bile (which also enhances peristalsis); as well as to prevent fat soluble Vitamin ADEK deficiencies. Is it not high time we stop blaming Salt for the harm Sugar is doing? Altzheimers is now referrred to as T3Diabetes, and as Prof. Robert Lustig explains: High BP is in reality also caused by Sugar, not Salt. Interesting also to realise that the preferred fuel-source of the brain is not Glucose, but clean-burning fat - as Ketone bodies. To enhance brain health: Employ regular, self-healing intermittend (daily, as well as extended periods) of FASTING; thereby allowing enough time to detoxify from waste products; also by inducing Autophagy (the breakdown and elimination of old cells).

[@bobtaylor170]

THANK YOU!!! There was so much sense in what you wrote, especially about hyponatremia, which nearly killed me in 2013.

[@maricamaas2326]

@@bobtaylor170 Hope you recovered without long-term damage? Once read a testimony of a husband whose middle-aged wife was advised by her health coach to drink more water, and as result she also nearly died. Sadly, because of brain damage, afterwards she could not function anymore without being constantly supervised.

[@bobtaylor170]

@@maricamaas2326 , thank you. Yes, I'm fine, at least in terms of hyponatremia. I am grateful for your comment. You said what needed to be said, and extremely well.

[@maricamaas2326]

@@bobtaylor170 Maybe you'll be interested in Prof. Tim Noakes' book WATERLOGGED? He advises: DRINK TO THIRST. (They were pushing athletes to take in lots of fluids; until some of them died during performance.) As for myself - being older, and with suppressed metabolism: Drinking too much water, was causing urinary frequency/incontinence, because of suppression of anti-diuretic hormone. Was eventually able to rectify the condition by employing dry fasting and IBT (Inclined Bed Therapy), after undergoing the litigation-ridden sling-mesh operation; which only alleviated the condition for few months.

[@bobtaylor170]

@@maricamaas2326 , my case is more ambiguous. My hyponatremia may have been caused by Diovan, the antihypertensive, instead of SIADH, but it was very bad. I lived on Gatorade for several months. Years later, I learned from a pharmacist/nurse that tomato juice is a much better source of sodium than Gatorade. In any case, hyponatremia can be a monster. I hope your own condition remains stable.

[@danishmiller7500]

nope mostly even family attacks you and lost my ability to be a lawyer leaving my wife at only 900 a month and CA HBO pathetic but disabikty officer figured it out

[@millardpureforlife]

I used to care about doing a job to get paid to get stuff now all I care about and as soon as I get up in the morning is a drop I put my feet on the floor and go to my room and I draw and I draw and I draw till 3 o’clock in the morning sometimes until I fight most of the time when I’m not driving it’s because my wife is fighting with me because I do a drop but I see things differently I see light I don’t see the dark as the light

[@bradstell2146]

Almost seven months. Four months in a wheel chair.

[@kerimcabbar7159]

02:12 how can you tell they would not have aneurysm if they had not had brain injury :) didnt sound sensible scientifically:)

[@millardpureforlife]

The only negative thing to this savantism they call it is my short term memory I can’t remember what I have for breakfast or lunch at 3 o’clock in the afternoon my kids are worried that I’m gonna forget their names I’ve got five a son that’s about to be a Navy Seal and all I do is draw now I want a tile company and my wife is probably gonna leave me because all I care about is drawing what gets my dopamine going is the process of the draw I don’t know

[@lastonestanding9508]

🧠