Louis Liu MD, PhD, FRCPC | Gastrointestinal Manifestations in Patients with Ehlers Danlos Syndrome

[@barbarahenninger6642]

This is so much information and so well explained. If I had this condition I would consider myself very lucky to have this man for a physician.

[@DanielleRadicanin]

Too bad I wasn't the recipient of his "expertise". Four years of gaslighting and now I am basically bedbound due to dysautonomia, fibro, Hashimoto's and spinal issues. Thanks for nothing, Doc. Virtual appointments for two years. 🤬 Still better than attending useless appointments with his trainees or "nurse".

[@rozwhitezidez5896]

This was very well put together. Informative and interesting with a bit of positive humor to break the ice. He’s an awesome Doctor!! Thank you so much

[@theilcfoundation]

Glad that you found Dr. Liu's presentation informative.

[@patriciawalker769]

I have never heard anybody say, always feel like you have the flu.. I have felt like that my whole life, and I am 61 now. Just not in my life hearing about EDS, mast cells, histamine intolerance.. omg. I almost see light at the end of the tunnel! Thank you Lord!

[@melissafarrugia9531]

Thanks for this great presentation. I have a low lying caecum and I am extremely underweight, currently have my initial genetics appointment scheduled in May. The presentation has covered treatments and how they are advantageous for Ehlers Danlos patients who I am suspecting I am in that category. ❤

[@sarahcarlson6109]

Excellent information. Very thorough. Thank you

[@shannon0057]

disclosures!?!? was not even a full second on the screen! makes me Curious!

[@bearbait7405]

Thank you

[@sherryobar5750]

Very informative, thank you!

[@lzeng78]

6

[@theresageiger584]

Wth

[@theresageiger584]

What is he talking about

[@SpectrumOfChange]

He's talking about Ehlers-Danlos Syndrome, which is a rare genetic condition where many of the body's functions don't work properly. So naturally, there can be many health complications that come with Ehlers-Danlos, including symptoms in the digestive systems. This is a quite in-depth discussion on the topic. This lecture seems to have irritated you in some way, does something about him bother you?

[@kathydobbs9850]

When was the date of this video. On his learning objectives there's a date 2016. There's been a lot more learned with EDS and G.I. involvement since.

[@karlaskitties]

Sorry, it’s not that rare, it’s just shockingly underdiagnosed. Personally, for many many years, it was lists all in your head “ (hypochondriac!), then Fibro, then finally, as my daughter was diagnosed in London, I got my own diagnosis

[@DanielleRadicanin]

He was my gastroenterologist for a few years. He did nothing but scope. My GI symptoms worsened and as if this year, it seems my GI complaints are due to autonomic dysfunction. He never ordered further workups until I became too ill to attend testing. Definitely dysmotility and gastroparesis. Possible MCAS. So angry with this doctor who didn't even do digestive function tests instead of gaslighting me for about four years.

[@maryr7593]

​@@SpectrumOfChange This is not a rare disease...it is a rarely diagnosed disease because of dr inadequate education. It has been estimated that there are 1 in 100 ppl who have faulty connective tissues. Not just EDS but the ppl with Marfans and Hypermobile spectrum disorder (HSD).

[@theresageiger584]

This man makes no sense at all

[@audriannailski1811]

I’m guessing you don’t know what eds is or it’s complications

[@theresageiger584]

He makes no sense

[@audriannailski1811]

You don’t know about eds so it wouldn’t know

[@audriannailski1811]

You

[@karlaskitties]

What’s wrong with you? Certainly not EDS

[@liannemarie2504]

If you have a basic level of intelligence, you should be able to understand everything he says perfectly.

[@maryr7593]

​@@liannemarie2504 some ppl have a bias against the perceived nationality or perceived ethnic background of speaker.