Macular Dystrophy & Macular Degeneration Information

  Рет қаралды 27,471

Cleveland Clinic

Cleveland Clinic

Күн бұрын

Пікірлер: 54
@joeltitus9373
@joeltitus9373 2 ай бұрын
I was diagnosed with vitiliform dystrophy at the age of 14. Back then, I just noticed my vision was getting slightly blurry so I donned glasses. But now, at 16, I noticed that the center of my vision or focus point looked as if there was a bulge. If anyone has used Apples old photo booth app, it kinda looked like one of those filters... This was a blow for me cause that was my dominant eye and I cannot focus on anything with it now. It's sad to know there's no cure and I'm honestly terrified. I've taken my vision for granted this whole time...
@absolutearc2599
@absolutearc2599 Жыл бұрын
My 3 months old baby is diagnosed with macular dystrophy, its been tough few days for us after knowing there is no cure :(
@terezamichalcova3842
@terezamichalcova3842 4 жыл бұрын
Thank you for this video.Im 37 years old,I ve got myopia modica from childhood,my vision with glasses is perfect,whithout defects.Before few months my new eye doctor found changes on macula.I was on OCT,and around fovea are discreet defects pigments and atrofies.Perimetr was whithout defects.I was shocked,because my vision is absolut normal.Specialist told me,that is chance,that it could not be progressive and keep no worse my vision on the future.May I ask you what maximal I can do as prevent?It is too possible that this changes i ve got long time,but my previous doctor did not find it. Thank you for your answer. Tereza
@CherylMarie
@CherylMarie 6 жыл бұрын
I have Best disease (started affecting my vision at 15 or 16 and is noticeably affecting my life now because my vision is so poor). I just keep checking back every few years to see if a cure is available.
@satyamagrawal858
@satyamagrawal858 2 жыл бұрын
Same story here also my disease also started from 15 and now it is getting worse day by day
@CherylMarie
@CherylMarie 2 жыл бұрын
@@satyamagrawal858 I'm sorry :( I know how it is
@SJamalshah
@SJamalshah Жыл бұрын
​@@CherylMarieSame here now i'm 28 my vision is v poor😢lets prays together that there is a cure for this before we lose our vision completely and become blind
@gordonliu7453
@gordonliu7453 3 жыл бұрын
Hello sir, thank you for your information. Could I ask you a question, if I have cone rod dystrophy with macular dystrophy. I lost my both eyes central vision. If any other treatments, woukd possible to help my eyes sight? I would be very appreciated if you know about that.
@jennadean2844
@jennadean2844 10 жыл бұрын
I am 17 and was just diagnosed. My dad and my brother and sister have it as well. Its so rough to go through.
@davidlo168888
@davidlo168888 5 жыл бұрын
Please browse www.godforeye.com All glory belongs to God God bless your family
@satyamagrawal858
@satyamagrawal858 2 жыл бұрын
I am also going through the same
@jokeryt1325
@jokeryt1325 3 ай бұрын
Hello have you stell or not ?
@lilbaby3881
@lilbaby3881 5 жыл бұрын
My lil brother was diagnosed with it thay said he will go blinde me and my mom started crying 😢 he's only 10 im still crying dat scard me for life
@VivekDhiman
@VivekDhiman 2 жыл бұрын
I'm 37 years old in 2022. When I was 14, I started to see some web like formations in the side vision of my left eye. After some time it shifted to the center of my vision. Now wherever I see from my left eye, the center of my vision is diffused. My peripheral vision is alright, it's just the exact center. If I close my right eye and look at a person from 3-4 feet distance, his head will disappear (diffused in the surroundings). I keep checking online of there's a cure available, but sadly, there isn't. The vision of my right eye is perfect. I just want to know if there's a certain age for this to happen or can it happen at any age?
@clevelandclinic
@clevelandclinic 2 жыл бұрын
If you wish to make an appointment, call 866.320.4573 (24 hours/day, 7 days/week). Or you can make an appointment online at the link below. Please let us know if you have any questions. cle.clinic/2CzHDxB
@vishvdipmuneshwar3721
@vishvdipmuneshwar3721 6 жыл бұрын
Any hope ,remedy for macular destropy & stugunt disease today or in future?
@davidlo168888
@davidlo168888 5 жыл бұрын
Please browse www.godforeye.com All glory belongs to God God bless your family
@usamagondal1227
@usamagondal1227 7 жыл бұрын
My dad have Macular dystrophy and he see nothing ... is there any treatment of this disease?
@Nanashim
@Nanashim Жыл бұрын
Hey how is your dad doing.. Our family is going through the same ..
@186gravity
@186gravity 4 жыл бұрын
I was diagnosed with this on 21. And now, I'm 27, it is really progressing, and it's really sad. I am now tagged as person with disablity.
@faizkazi2789
@faizkazi2789 3 жыл бұрын
Very sorry to hear bro I just got diagnosed. I am 37 with a family with kids. Life is never easy. Thank God I have beautiful people with me to live.
@186gravity
@186gravity 3 жыл бұрын
@@faizkazi2789 totally agree. Having good people around is really awesome. They assist and guide us for a lot of paperwork and transactions. Good thing that there has been so many accessibility technologies that helped us to at least have a grasp on for visually challenging times.
@DisujaStha
@DisujaStha 6 жыл бұрын
I am suffering from macular dystrophy since 6 years hoe to treat it???
@vishvdipmuneshwar3721
@vishvdipmuneshwar3721 6 жыл бұрын
Prakash Jung Shrestha I also suffer from macular destropy. Any remedy for macular destropy find or any hope in future?
@amitsahu5096
@amitsahu5096 5 жыл бұрын
PLZ CALL 9826760629
@muneebtalib5841
@muneebtalib5841 5 жыл бұрын
My macula burn with lazer light Plz reply me what can i do for my Eyes plz
@MichaelReif-t7u
@MichaelReif-t7u 11 ай бұрын
Hello 🙂
@sairambysani6398
@sairambysani6398 5 жыл бұрын
Sir My name is sairam I am suffering from macular degenaration Can you say there is a treatment or not sir please
@sairambysani6398
@sairambysani6398 5 жыл бұрын
I am 18 years old sir please kindly say sir
@sujitkumar-wx6bk
@sujitkumar-wx6bk 4 жыл бұрын
Am 29 yeras old am suffering from macular degenaration Any tretement Pliz help me 🙏 Bohut presan hu mere life brbaad ho rhe hi Contect me 8340225994
@MP-pz2qq
@MP-pz2qq 5 жыл бұрын
Iam from India. I have cone dystrophy. Here also doctors are saying that there is no solution...
@vipinmishra8808
@vipinmishra8808 6 жыл бұрын
My child suffer MD if any Treatment so tell me where your hospital
@davidlo168888
@davidlo168888 5 жыл бұрын
Please browse www.godforeye.com All glory belongs to God God bless your family
@blessjohn813
@blessjohn813 5 жыл бұрын
@@davidlo168888 where we can buy the nano grade eye drops? Thank you..
@AsifKhan-yf7qx
@AsifKhan-yf7qx 4 жыл бұрын
@@davidlo168888 i hv used nano grade eye drops from thiwan but no change its fake
@davidlo168888
@davidlo168888 4 жыл бұрын
@@AsifKhan-yf7qx You never pay money for it.
@davidlo168888
@davidlo168888 4 жыл бұрын
@@AsifKhan-yf7qx You should work hard to make money so that you can buy nano-grade eye drops. If you act like begger and /or robber, no wonder, Allah punish you.
@clutcher7317
@clutcher7317 4 жыл бұрын
Hindi me video bnaiye please
@ipconfigearth102
@ipconfigearth102 12 жыл бұрын
very well... but last answer was not good.... just like u the one commented below. i also have this! age 19! :-( but the cruel world, knowing nothing about it as it does not affect them, makes me keep it a secret and struggle in class! being a student, it is hard that too in India where most colleges don't really care, just come n pass out... i just want to ask. why is this mutation? because of todays life style? or invisible radiation! RADIATION IS IT??
@bellicoismail3242
@bellicoismail3242 7 жыл бұрын
IPconfigEARTH hey replay me
@bellicoismail3242
@bellicoismail3242 7 жыл бұрын
IPconfigEARTH i want to know what do you have and which type it is so that we can discuss on it. I have the same too.
@a.a3728
@a.a3728 7 жыл бұрын
I also have this disease and currently living in germany , but even here doctors have no cure
@a.a3728
@a.a3728 7 жыл бұрын
Not even able to specify which type of. Macular dystrophy i have
@lhsenlawzi3385
@lhsenlawzi3385 5 жыл бұрын
@@a.a3728 evryone have this disease just stay a way from phone at night and sleep early
@Mirozenx
@Mirozenx 13 жыл бұрын
@vleon1012 i know right dude, realy don't know, but i'm not bothered it's been and always willb e the same
@akshaykoli4493
@akshaykoli4493 6 жыл бұрын
Hindi language please
@Mirozenx
@Mirozenx 13 жыл бұрын
@vleon1012 i have a rarer version which is 1 in 10,000,000 ):
@akshaykoli4493
@akshaykoli4493 6 жыл бұрын
Hindi please
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