Managing Complications for Spondylitis Patients

[@nancymiller584]

Thank you for such a thorough, easy to understand explanation of AS.

[@elenavazquez3496]

Thank you, I found your presentation informative and helpful.

[@clelinareleford3228]

Thank you , beautifully explained. Brief ,Direct , yet covering all major key elements to this disease . Your very informational !!!

[@eileenarmstrong5267]

What I've been complaining about these signs with my doctor for almost a year now and she has no idea what the everloving hell are they teaching in medical school

[@Mari12CO]

Thank you so much!! I’ve had AS for 40 years (took 10 agonizing years to get properly diagnosed). Finally- a great compilation that ties everything together. I had a great Rheumatologist who retired 😢, and he “got it”. I was on Enbrel for several years, and life was good, but Medicare won’t cover. Good to be starting Cimzia, but have hesitated due to Covid. Just thanks for helping me know I’m not bonkers. ❤

[@ahmetkara316]

Thank you for sharing doc

[@macaronimamadp4545]

Thank you 😊

[@evilcartmensolo7198]

I've watched many videos on A.S. and they are very informative but few ever talk about pain control. In order to be able to do the exercises you need to stay healthy you have to be able actually do them. So many drs that I've had just want you to exercise yet they don't realize that when can barely get out of bed it's nearly impossible to do these exercises. This is one disease that should allow pain meds as a treatment. I basically laid on bed for four years because of pain, but now I have a dr who listens to me and with percocet my pain is lessened plus the ibuprofen helps with inflammation. I really wish these organizations would put a voice to the CDC and help fight against the prejudice that we receive with our disease if we ask to get pain med help.

[@stuartcahill8111]

Thank you for truth of what you say..."barely get out of bed/do exercises"!! It's not real to them because "they" have no idea and biased. Lipservice or kickbacks...patient beware. Best wishes to you.

[@jacobozafrani7125]

very informative, clear and direct. Congratulations for your presentation. I am at an early stage but with your explanation now will be more motivated to be more active walking and exercises. Currently I have now and then, diclofenac. Best wishes :)

[@tjgrafiks]

i had burning and red eyes and peeling /itching skin for years some 12-15 years before the onset of joint/spine issues. i always thought it was due to sitting at a computer for 6-7 hrs a day and lack of sleep. this AS started a long time but i somehow managed to keep it at bay all that time. I think severe stress set it over the edge last august because it literally started as if a button was pressed

[@sourabhnandwana]

Is your hip joint is involved?

[@tjgrafiks]

@@sourabhnandwana no pain other than tightness now and then especially after I was active with sports. but during this not really any hip issues. mostly upper body and ankle and toes

[@josephdecesare4885]

My heart beats very irregular I was diagnosed a few months ago haven’t been able to start humria yet hopefully this week but I am nervous I will take a heart attack soon very painful in chest

[@jacobs5697]

Hey man, get a ultra sound done of your heart called a echocardiogram it will take images of your heart and find out what's wrong! I have had this disease for 4 years now and i get screened every 2 years. Good luck

[@njtsieling]

Thank you- very helpful.

[@gamaltaher9714]

Thanks

[@thaumatology]

@Gary Matney I hear ya. found out last Nov. that I likely have lung and aortic arch involvement, although it wasn't diagnosed as such. I'm also tired of hearing things characterized are rare. even A.S. itself is called rare, rare is a very contextually understood descriptor. very common to have the A.S. profile and check all the boxes but be dismissed by medical professionals who do not know much about it (yes, even rheumatologists) or misinterpret images/can't recognize enthesitis, easier to go with a horse (like fibromyalgia) than what they think is a zebra (A.S.). keep on keeping on.

[@olanrewajuabolore1223]

Good day I have been in this pain over 20years, I just know that am AS patient since the doctor tell me am an AS patient and give me drugs call NOVARTIS FLOTAC 75mg. Now the drugs have finished and my next appointment is FEBRUARY next year. When I feel the pain I laid on bed for Four hours after do some exercise. Please what drugs can use before see me doctor

[@tjgrafiks]

my symptoms get worse with exercise

[@stuartcahill8111]

BEWARE..only you know your body..you will be told to keep exercising and work through your pain. Hope you find basic comfort.