Marginal Zone Lymphoma Survivor: How I Got Diagnosed | Kimberly's Story (Video 1/3)

Kimberly shares her story of getting diagnosed with marginal zone lymphoma, a subtype of non-Hodgkin lymphoma, undergoing chemotherapy, and goes into detail about her egg retrieval and embryo freezing journey.
FULL STORY/TRANSCRIPT → www.thepatientstory.com/cance...
We break down her story in three videos:
1. How I Got Diagnosed
2. Going Through Treatment & Quality of Life Issues, Survivorship
3. My Fertility Journey
VIDEO 1 TIME CODES:
00:47 - Self-introduction
2:23 - 1st signs/symptoms
4:51- Bone marrow biopsy
8:23 - Getting the diagnosis
10:16 - Learning the cancer subtype, breaking the news to loved ones
11:48 - Getting a second opinion
13:33 - Processing the situation
15:11 - The treatment plan
16:00 - PET/CT scan (with contrast dye)

[@alohatvj]

Congratulations on your recovery and your son 😊❤. Thanks for sharing your story.

[@claudias.1863]

Congratulations on your recovery ❤️‍🩹 Thank you for sharing your experience and your journey to a healthier you. I was on fertility treatment until two weeks ago, that I got a diagnosis of Malt Lymphoma. Just waiting to lear more from CT scan . A biopsy from the eyelid was how I got diagnosed. Watching your post gives me hope. So happy for your baby 🎉❤🎉

[@charliesangha]

Great work Kim

[@animegail1530]

I really like being able to hear other stories especially with these types of cancer,not much I can find on other people stories dealing with these types,the type I was diagnosed with is called cutaneous marginal zone B cell lymphoma,and from what I was told they believe it was secondary from Lymes I was diagnosed with around same time,it still confuses me at times,lol, but loved hearing your story greatly appreciate 🙏🏼and I’m gonna check out the other videos too:)

[@ThePatientStory]

Gail, so glad this was helpful! Our goal is to eventually cover every possible cancer subtype. Working hard at it. Thank you for your kind words! -Stephanie

[@pauladailey530]

Gail, I too have Lyme disease since 2018 and have recently had a rash all over my body for months. Also Epstein Barr level is extremely high. From my research I am worried I have lymphoma. Any advice? Thanks!

[@animegail1530]

@@pauladailey530 thank you for your reply,the main thing that stuck with me through my experience was how important it was to have a biopsy, I had got these some what small lumps,some of them kept growing larger and main way I would find them was from them itching,my family doctor at the time thought they were lipomas and said it’s nothing to worry about,no testing or anything was done,when I seen they were getting larger I just went to ER and they did a referral to see a surgeon to due a biopsy,I ended up having several done and had to see other doctors as well before a definite answer, but they knew that it was some type of lymphoma,from what I know personally from how I take it is that it’s rare

[@animegail1530]

@@pauladailey530 sorry I accidentally posted before I was finished, lol,but I will definitely see if there’s some type way for you to get a biopsy, from how I take it that bloodwork don’t always give you all the answers, and that’s why it’s important for a biopsy, I would say, if you still have those rashes maybe to see if there’s a way they could biopsy them,I would ask the doctor to see if they can check and make sure,if I didn’t push for it I’m not sure where I would be now,I knew something was wrong but I would have never guessed lymphoma,i did research myself after diagnosis with Lymes and lymphoma once I found out,also when I was getting biopsies done, I also was seeing another Doctor who ended up testing for Lymes, and it was by coincidence they were found out at the same time,and it came back positive,Whats crazy is I was having problems for while and I was tested for Lymes several times and it was always negative until I had the lumps then it was positive,I wish you luck,hopefully there can be more research into this type of cancer especially and Lymes,I’ll be praying for you 🙏🏼and trust your gut if you feel something wrong is one of the biggest things I have learned in my experience with this as well,have a blessed day,if you have anymore questions let me know:)take care

[@claudias.1863]

Hi Gale, great comment. Hope you are doing better. Stay strong 💪 rooting for you here.

[@robinorrubyyesthatsme5094]

Your a very brave but happy girl Kimberly❤😊your so lucky enjoy your baby boy Who's probably a year old now❤blessings

[@frankjoseph4273]

My lymph glands and spleen shrunk after the monoclonal chemo yet a PET scan afterwards showed my bones (femur,pelvis ribs)) had lit up after treatment. The doc refrained from a biopsy as it would be quite invasive.

[@camillebambi6449]

Congrats on your baby boy!

[@louisarottenfuer5097]

Does Kimberly have Instagram so that I can follow her progress? I'm in a similar situation at the moment and you only find a few people with similar cancers. I found the video very interesting.

[@LorindaSmith-po1ts]

God bless you my friend. ❤😂

[@tammyslaughter9587]

It sounds like you’re describing a PET/CT since you’re talking about ingesting the contrast which is the CT part of the scan. Ordinarily when someone has what is described as a PET it consists of having a radioactive tracer or radionuclide injected IV without drinking a contrast.

[@jovitavillalpando2827]

I would never let them do a bone biopsy I’m too old

[@carmengarcia3722]

Did u cough

[@frankjoseph4273]

How are you doing now, Jun 2024 ?