Mark's Story of living with axial SpA (Act on axial SpA)

  Рет қаралды 1,363

National Axial Spondyloarthritis Society

National Axial Spondyloarthritis Society

Күн бұрын

Пікірлер: 7
@MissMoToYou
@MissMoToYou 8 ай бұрын
One morning before diagnosis, i went to get out of bed, but my legs were dead, fell straight on the floor. It took 13 years to diagnose me. 26 it started with me after the birth of my son. I've had nasty thoughts due to pain, but im so glad I didn't do anything stupid. Now im waiting for operations on my back and neck. Good luck to you all. it's an awful illness. 💜💜💜💜💜💜
@KevinTspirit
@KevinTspirit 3 жыл бұрын
Shuffle is real, I remember doing that for so long. It is really interesting how AS is seriously more than back pain. So glad I received my diagnosis so quickly 3 years ago. I cried watching this, just remembering how bad I was.
@awkwardartist7628
@awkwardartist7628 3 жыл бұрын
I’m in tears listening to this. I’m in that position now. Thanks for sharing.
@susanhawthorn4379
@susanhawthorn4379 3 жыл бұрын
The shuffle. Yup. Been there 😂😭😂😭 Thanks for this ❤️
@bluaurora8635
@bluaurora8635 Жыл бұрын
He’s so funny
@gemmagroves3825
@gemmagroves3825 7 ай бұрын
I've been in horrendous pain since 2012 ...2016 I found out hla b27 but sacrum had no inflammation...finally saw the rhumatologist last week mri again Thursday but don't see her for 3 months fo an answer. I cannot describe the hell as this guy is mentioning 😢...the pain like your dying and mental aspect coming from a very sporty life is terrible.
@gemmagroves3825
@gemmagroves3825 7 ай бұрын
So would have been waiting for a diagnosis is almost 13 years
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