My husband had hsv encephalitis in 2010. He was life flighted to Texas medical center as a stroke patient.He was misdiagnosed for days until he went on life support and mri revealed the encephalitis. He remained in facilities for 4 months.He was also an architect and had a design studio. He had a Masters from Rice University. That ended at the age of 52. He never returned to his profession. He is still with me but now has dementia. This disease literally took away the life he had. You are right people don’t know how to treat you. They all slowly fade away. You do need to be kind to yourself. Best of luck to you and thank you for sharing.
@ermiratozaj61312 ай бұрын
God Bless you 🙏🕊
@annali24416 ай бұрын
I had encephalitis 2 months ago. And so much of what you described is exactly what I'm going through now. No I'm not the same person anymore I'm sort of detached and lost. But watching this has given me hope and comfort to move forward knowing I'm not alone. All the very best to you Mathew thank you for posting.
@encephalitisinternational6 ай бұрын
Please do get in touch if you would like any support though your recent experience of encephalitis.
@RicardoGarcia-wo9xx2 жыл бұрын
Matthew, your post made me cry. I'm still in recovery from Encephalitis. I cried watching your vid because i can relate so much. November 2022 marks the 1 year mark but i can barely remember anything from this past year. I hate this disease. Thank you for sharing.
@tinakokkinos40492 жыл бұрын
Thank you for sharing your experience. You are a very well spoken man. Everything you said I can certainly relate to. It is so true it is a journey and our brains are amazing. I too feel that I have lost the old me but also happy with the new me and my same brain. All the best to you and your health.
@REmm-rf8fl6 ай бұрын
This really resonates. Thanks for this
@AUDSLPHIMANSHUKUMARSANJU7 ай бұрын
My mom is suffering from HSV encephalitis, she is in ICU from last 18 days. Please pray
@encephalitisinternational6 ай бұрын
Hi, if you would like any support with this please do get in touch via our website.
@OneEarthOneFamily19473 ай бұрын
Hows your mother?
@richeleortiz51812 жыл бұрын
I was hospitalized and diagnosed with HSV2 encephalitis in August. It took a team of 6 doctors to treat me. The first hospital I was taken to had no idea what was wrong with me and had never seen a case like mine. 2 months later I am back to work but I don't feel like the same person I was before I got sick. I have extreme fatigue and my mind feels dull. I have no desire to interact with other people anymore. Here in America encephalitis is rare and information on it is hard to find. Will I always feel like this or does it improve with time?
@encephalitisinternational2 жыл бұрын
Thank you for your comment and for sharing some of your experiences, Richele. We are so sorry to hear of your recent HSV2 encephalitis. You are not alone, we are here for you. Please don't hesitate to reach out to our friendly support team with any questions you have, at support@encephalitis.info. We also have a wealth of information about encephalitis, and free services to help you connect with others with similar experiences, on our website: www.encephalitis.info/
@roreetinkerbell689326 күн бұрын
@@encephalitisinternationalmay I reach out too please?
@johngearty18152 жыл бұрын
Thank you Matthew for sharing this very honest account . I have no doubt that it will be of help to someone else. An amazing story. John G in Ireland
@stayciiekel25642 ай бұрын
I have had encephalitis twice now. First time in 2022 and the last time was September 2023.. i was put in a coma for 2 werks and had to stay in hospital for a month .The last time was was admitted as nothing was stopping my seizures. I have absolutely no recollection of these hospital stays, my youngest sons birth notging from the last 4-5 years. I feel like i am always angry and i am never getting the answers i need. This situation has depressed me completely, its been just over a year and i dont leave my room much ,i feel like a failure all thr time, like my kids deserve so much more and rhat i am dumb. Some days i cant talk properly it ruins me, i hate it. And there is noone to talk to about this, qnd trust me ive tried to get into groups with people that have the same situation, but noone here has. Im just so tired. Regard Stacey.
@encephalitisinternational2 ай бұрын
Hi Stacey, I am so sorry to hear about your experience of encephalitis. We have a support line and email if you would like to get in touch support@encephalitis.info +44(0)1653 699599
@bushknobile Жыл бұрын
Thank you so much for sharing your story. You give me great hope for my husband who is four months in from AE diagnosis and treatments.
@judieldiaz45632 жыл бұрын
I can relate with you especially during the time you are recovering with encephalitis
@DaBabyDoll12 жыл бұрын
I’m sorry and I’m glad you’re ok
@KMx1082 жыл бұрын
Thank you so much for sharing your story ❤️
@christinasmith99522 жыл бұрын
Wonderful. I wish you had been able to say your drugs and tests they did. But you have given me hope.
@sharoncasey742 жыл бұрын
Thank you for sharing your experience.. my own symptoms were almost the same as yours.. glad you are doing well now
@charleslarahibbard35152 жыл бұрын
Thanks for sharing your experience. Resonates with me.
@heatherwanamaker80002 жыл бұрын
My heart goes out to you. I, too, have encephalitis. I have no headaches or strokes, but I did have balance issues-and still do on occasion. I was in a coma for some time and I still have short term memory loss.
@sandhyasingh85682 жыл бұрын
My son had same problem like you it’s very hard l can understand what you going through bless you my son
@hussaian1432 жыл бұрын
Good morning madam My kid facing problem with dengue encephalitis acute necrotising from last one year. Do you have any idea about how to treat this problem. I'm from Hyderabad
@hussaian1432 жыл бұрын
I hope your son ll recover as soon as possible.,👍
@fredaragusi43938 ай бұрын
Hi I just read this and we think i have Auto immune Encephelitis, got Bad EEG readings, migraines, fatique, memory issues im 62 and it took 55 years to think outside the migraine Box we ma could have found it earlier.what is the treatment? Thanks in advance.
@encephalitisinternational6 ай бұрын
Hi, please check our website for ways we may be able to support you. Diagnosis is very tricky. We have email and telephone support if you have any questions.
@roreetinkerbell689326 күн бұрын
I am going through difficulties in diagnosis. @@encephalitisinternational
@roreetinkerbell689326 күн бұрын
I got told mine was the menopause (I still have frequent periods)
@feveratemotive2 ай бұрын
My brother is suffering autoimmune encephalitis since three months he getting seizures since three months please help even after lot medication also no much improvement he still on bed no movement. Getting continue seizures.
@encephalitisinternational2 ай бұрын
Hi, I am so sorry to hear this. Please get in touch with our support line +44(0)1653 699599 or email support@encephalitis.info if we can help in any way.
@katemac53282 жыл бұрын
This is brilliant. You nailed it. Thank you
@jaden_with_a_y16012 жыл бұрын
I had a seizure on national encephalitis day I had no idea what I was about to go through but I’m better now
@louiegatchalian9314 Жыл бұрын
What anti seizure meds are you taking on a daily basis. Tnx
@encephalitisinternational6 күн бұрын
Hi there - we can't share medical information but if you need any advice - please do reach out to our team - support@encephalitis.info
@graemegeorgeharrison24682 жыл бұрын
Can you get tested for this condition?
@talltrees35826 күн бұрын
Blood and spinal fluid.
@encephalitisinternational6 күн бұрын
Do reach out to our support team if we can be of any help - support@encephalitis.info
@heatherwanamaker80002 жыл бұрын
I meant to add that I have auto-immune encephalitis
@encephalitisinternational6 күн бұрын
Do reach out to our support team if we can be of any help - support@encephalitis.info