Children's Miracle Network Hospitals' Champion child Emily Strand talks about living with cystic fibrosis. Her doctor, Dr. Accurso, shares his hope-filled outlook on CF research and Emily's champion spirit.
Пікірлер: 30
@qammararshad68913 жыл бұрын
God bless this sweet and cute baby. Amen
@manganights11 жыл бұрын
I have 3 sons with CF. My 15 year old had his pancreas removed recently and cells were transplanted to his liver which is making insulin. Over twenty hospitalizations for Pancreatitis took its toll. He is recovering well with a feeding tube for nine hours a day, down from thirteen hours. At six feet eight inches he was down to 135 pounds but is up to 160. Homebound for a year, he looks forward to return to school in the fall. Good luck and prayers Emily.
@cpchick818 жыл бұрын
I was 2lbs 6oz when I was born, 1 of twins in 1981. I had friends with CF at high school. Thanks for the video. Beautiful family. I am from England and my family moved from Sussex to Oxfordshire when I was 5 to get better care for me. I was born 11 weeks premature and have cerebral palsy and hydrocephalus. Bless you and your family. Go Emily¡
@jeromecabral74645 жыл бұрын
Praying for her
@thetoolbox11239412 жыл бұрын
@VirtualSuperSoldier Your niece is beautiful and she is a true champion. I imagine watching this is very hard for you as a family member. CF sounds like a terrifying disease (coming from a healthy 17-year-old with no family history of CF), but these kids are amazingly strong.
@mysterygirl2010111 жыл бұрын
my b/f had CF which he died from. we met 4 the 1st time when i was diagnosed with diabetes in a hospital in Ireland.I really liked this guy,i saw him every day & bought a red rose.He was too ill to hold my hand,but he was very thankful. i was not allowed in his room,as it was an isolation room. 1 morning.his room empty and i had asked the nurse what had happened to him & she told me he had been flown urgently to U.K. for a lung and heart transplant.I was devastated,but happy. 1 week l8r he died
@ellencalabrese28314 жыл бұрын
Beautiful little girl God bless her.😀
@ConcreteAngelx38 жыл бұрын
1:59 what a beautiful family! Their kids are gorgeous
@abbiestambaugh21588 жыл бұрын
My sister has this
@ConcreteAngelx38 жыл бұрын
Abbie Stambaugh I'm sorry :-( I hope she is doing okay
@michiminecraftdiaries66138 жыл бұрын
+Abbie Stambaugh My cousin that has a KZbin channel has Cystic Fibrosis. She is in the hospital and she has to go all they way to Texas just for a lung transplant and she is only 12
@VirtualSuperSoldier13 жыл бұрын
Uncle Chris says: God bless you Emmers, and your whole family.
@jacquelinesmith-jackson28155 жыл бұрын
I have hope for her future. Good Luck 🍀 Emily
@chrysageorgouli22975 жыл бұрын
I have cystic fibrosis and I had a double lung transplant in SickKids. By the way I am 13
@kehleyrkiki98099 жыл бұрын
I lose family because of CF I'm happy they are moving forwards with things now
@myinnersmurf9 жыл бұрын
Awwwwwww poor u :.(
@cpchick818 жыл бұрын
Good to see medical advances for this condition. I advocate for all disabilities.
@minnysuperstarcassie12 жыл бұрын
god bless you
@michiminecraftdiaries66138 жыл бұрын
Where is Miracle Children's hospital or whatever it is. That hospital is cool. It looks like a hotel.
@abbiestambaugh21588 жыл бұрын
Thanks
@lynsherlock26383 жыл бұрын
Wow beautiful 😍
@lorimulligan93188 жыл бұрын
I have cystic fibrosis how old are you is m 13 and I also have a feeding tube to and I do everything you do
@christiank.75053 жыл бұрын
I love how there's a gas phase that can make any type of fluid. If I heard correctly, hit me up, I'll find the link.
@Eva-nh5id10 жыл бұрын
Have it
@jacquelinesmith-jackson28156 жыл бұрын
People have even lost eye sight. 💜💙💜💙💜💙💜💙💜 💙💜💙💜💙💜💙💜💙 CF related diabetes is always possible..... I hope Emily does not get CF related diabetes.