Meet Histio Warrior Ethan

Meet Histio Warrior Ethan and his family in this video as they explain their journey through diagnosis, treatment, and finding support through the Histiocytosis Association.

[@lindyc.2552]

LCH and other Histiocytic diseases have just recently come to my attention. I am a few years older than "warrior Ethan" (in my 60's 😁). But, I am currently exhibiting many of the signs and symptoms of LCH (even though it is even more rare in adults, than in children). I go next week for an MRI of a spinal lesion. They also found lesions in my kidneys and spleen. I'm sure that LCH is not on my doctor's radar, but it is on mine. I will speak up and ask to get tested for it. My family has a history of cancer. I have a personal history of thyroid disease. (Both are risks for developing LCH). I feel painful lumps over the molar areas of my jaw and on my hip bone. While researching all my symptoms, I came across information on LCH. I would not be surprised one bit if I am diagnosed with it. But, my point is that I just recently became aware of LCH and similar diseases. Feeling really bad bone pain as I do, I can just begin to imagine what these young children go thru with these diseases. THEY ARE TRULY WARRIORS...not just enduring the disease, but enduring all the toxic treatments too!!!! My deepest heartfelt empathy and respect to these children and their families! These are very painful and complicated diseases. I wish each little Histiocyte "warrior" COURAGE, STRENGTH and LOVE!!!! BLESS EACH ONE OF THEM! 💕🥰💗

[@Histiocytosis]

Thank you for sharing this and we are with you during this difficult time. If you need anything at all, please do not hesitiate to reach out to us via phone or email. We can help connect you with physicians, provide information about clinical guidelines for LCH in adults, and will try answer your questions to the best of our ability. You are not alone!