Michael's Story (ADEM) - Acute Disseminated Encephalomyelitis

[@caseybankhead7902]

thank you for sharing this video. i suffered an ADEM attack october of last year. and i had a hard time explaining to people what i went through. michael's symptoms are so simular to mine it really helped me show people what i am going through. i hope i have as good of a recovery as he has. once again thank you.

[@doctorken2k]

Casey Bankhead I had it in 2015. Second time it’s multiple sclerosis.

[@sandralevineprod]

You are welcome. I hope you are doing well!

[@dmack8048]

Hi Casey. I got adem like 8 months ago. I was paralyzed from head to toe. Now my legs just font work Im Expected a 100 percent recovery. Did you have a full recovery??

[@dr.omaralfadli2884]

Thank you for sharing this vedeo.God bless you and your family Micheal.

[@starshiptrooper9979]

Heart breaking story and then wonderful what Michael is doing! A true Hero!!!

[@sandralevineprod]

Thank you!

[@Johanna040713]

Tough but beautiful journey. Thank God, he got better.

[@jokkeeeinlikaneskar]

Thank you for sharing

[@DiceMan46]

Hi Sandy and Michael, I'm 45 and two years post-ADEM. Thank you for sharing your story, it really has inspired me and given me strength. X

[@sandralevineprod]

+Gary Franklin So glad to hear, Gary! Keep moving forward...And best of luck.

[@sssddd3]

hi michael and family! i had ADEM at 3 years old, i'm almost 18 now! i don't remember much from the time but this video really helped me understand more of what once was, so thank you! so glad to know i'm not alone♥️ i still haven't healed properly i suppose, but i'm on my way there :) best wishes!

[@delilawoodruff1026]

my mom was diagnosed with Adem disease. She was released from the hospital into rehabilitation. She's unable to communicate or get out of bed.. This disease stoled my mom. My kids hearts are broken right now. I pray she makes a full recovery.

[@pianoman2276]

Way-to-go Michael! You are a true inspiration!

[@dwainbadua3823]

This is a very inspiring story for those who experience ADEM. Hope my 8-year old daughter can also recover from this harrowing disease. It's very unfortunate to her to experience such a rare disease at very young age. Hope people who suffer from this debilitating disease can be cured given the new medical technology nowadays available but divine intervention, prayers I know can change or even reverse the disease. Just always stay POSITIVE

[@theexternalnetwork3926]

I have experienced it

[@dwainbadua3823]

So did you recover from it...or still recovering. How old are you. Im very worried of my daughter's condition

[@طارقعزيز-ج7ف]

@@dwainbadua3823 كيف حالها الان ؟؟

[@oliviawalbom-dicay8231]

I had ADEM when i was 7 years old and I also got paralysed in my left size. It’s was a hard time and I got sick at the night of 1st January. I don’t remember a lot but I just got told that I’ve been told I’m 8 years free from ADEM

[@eduardsevan4217]

Thank you for sharing. I’ve got ADEM last February 2020 and I was hospitalized for a month,paralyzed from chest to down. But now everything is getting back to normal, I can walk now by my own. Hoping that my bladder and bowel will go back to normal soon🙏🏼🙏🏼

[@Theedgeofyourbed]

I got it 4 -5 months ago, I’m not walking currently. Anyway, how have you been since that happened? Are you walking?

[@eduardsevan4217]

@@Theedgeofyourbed I can able to walk now but that 100% it takes time to heal by itself,but it will coming back to normal again.Have you taken a physical therapy exercise? That’s really help me a lot to walk again.

[@Theedgeofyourbed]

@@eduardsevan4217 I just started physical therapy, It just has barely begun so I am still in the evaluation process. How was your condition like when you first started physical therapy? And I was reading that Adem can come back so I’m literally fearing that every day anyway, if it’s OK with you may I ask how old are you because people have told me that I’m very young so I can recover quickly or not quickly but faster than some

[@eduardsevan4217]

I’ve took almost 3 months of therapy. The relapse is very rare but everyone is different, I was 39 when I’ve got Adem. Are you aware of Adem group on Facebook?

[@Theedgeofyourbed]

@@eduardsevan4217 I’m not aware. That’s so awesome. How do I join? I don’t have Facebook

[@ariannakon3740]

I’m a survivor of adem. i’m only 12 years old right now and i survived i am so lucky thank you god bless

[@sandralevineprod]

Hello Arianna. I am so sorry to hear you are dealing with ADEM. That's very difficult. My husband was 47 when he got sick and the doctors considered him relatively "young" and thus they predicted a good recovery. I am very hopeful the same will apply for you! Good luck to you and your family.

[@deestevens-cdps2090]

My older brother had a very serious bout with ADEM. In the middle of the original crisis he had a stroke. He was in a coma for 5 months. He had to relearn everything. 19 years later he can barely speak or walk. He is completely disabled. He will be 77 in August.

[@gabbyfranks78]

What an amazing story ❤. I had this then later diagnosed with multiple sclerosis

[@aubreybellia9009]

Thank you for sharing my daughter was diagnosed in August with adem and almost passed away scariest time being a parent she’s only 20 months old now and has worked hard with pt, ot, feeding, and Speach therapy. It gives hope to see an outlook she’s only 5months out from her diagnosis

[@aubreybellia9009]

Wanted to add this experience has what helped me go and donate plasma twice a week to help those who go through adem and so many other health issue

[@talkingbybonnie]

ty i myself am a 47 year old ADEM survivor....cant speak properly but i keep moving forward....thank-you Sandy & micheal:D

[@sandralevineprod]

Hope your recovery is continuing on a good path!

[@tomfisher7512]

I have suffered from this disease twice, ages 4 and 8. My consultant Mr.Appleton was a god sent, I had no idea what could've happened to me...

[@lalahmonterona2527]

my sister is suffering same sick right now we hope she could recover like you mr. michael 💔

[@sandralevineprod]

Wishing the same.

[@sistersbrotv5384]

Hi, Thank you for sharing this. My brother had ADEM 7 months ago. His first symptom is urinary retention, then confusion. he was hospitalized then he developed paraplegia. He was incubated for a week. after 2 weeks in ICU, he went to rehab for 1 month. He is currently walking and running with no issues. His residual is urinary retention. Did Michael have urinary retention? If so, did he improve and how long? Thank you!

[@sandralevineprod]

Hi. Thanks for writing. Michael did not have that problem, so I"m sorry I can't help you. I hope your brother makes a full recovery!

[@carlafranks9997]

Watch this video often gives me hope I'm 1 yr after adem its not easy

[@ionelaileana8370]

Oh no!😢😢❤❤

[@BradJonesGoKarting]

I’m currently recovering from ADEM I’m just getting feeling back in my arms as I type this. It’s been a horrible 2 months

[@sandralevineprod]

Sorry to hear you are going through this. Good to hear feeling is coming back. My husband made an amazing recovery, but it took time. Every recovery is unique....Good luck to you.

[@BradJonesGoKarting]

Sandra Levine Productions Yeah, all the doctors I spoke to had never seen anyone with my condition. Which I thought was crazy at the time. I don’t know if your husband can relate but, sensing temperature is one of the hardest things I’m still dealing with, I genuinely can’t tell got from cold or what not 😬

[@sandralevineprod]

@@BradJonesGoKarting My husband's sense of temperature was a bit off when he came home from the hospital. It's back to normal now. That must be very annoying. All best...

[@theexternalnetwork3926]

I got adem when I was young and slipped into a coma for 4 weeks and a 6 month recovery period.

[@TheGeniuskevre]

thanks for sharing this... it really helped me a lot

[@sandralevineprod]

+genius kevre Wonderful! Thanks for the note.

[@sydneycook2423]

I have ADEM got diagnosed when I was 3. Luckily I was not affected this bad.

[@sandralevineprod]

Glad you are OK! My husband also is doing very well now.

[@hossam_nowiser]

Thank you for sharing your story. my 6 years old girl get Adem . You give me hope thx

[@sandralevineprod]

I am glad you found our story hopeful. Prayers for a full recovery for your daughter.

[@MaSa-qv7pi]

I developed ADEM in 2021. In recovery now

[@andreiabraz4059]

Eu tive síndrome de adem há 4 anos aqui no Brasil. Mas não consegui me recuperar totalmente, ficando com algumas sequelas. Os médicos não sabem o que fazer para que eu melhore.

[@BeachFairy83]

My best friend Roger is in the hospital and may most likely have this.. I really need to talk to people who have this so it can help me have hope and know that he will get better!

[@sandralevineprod]

I hope your friend is doing well, now that years have passed. There are brain injury support groups that can be helpful....

[@Christknight1991]

I had ADEM as a child. Has anyone been diagnosed with epilepsy after?

[@chelseahuff4733]

My mom had adem. 3 months to get the diagnosis right. 8 years later she has horrible horrible memory. Awful eye sight and can barley walk on her own. There's no way in hell she could drive again. It stole my mom from me. She was a Penn state university graduate for master gardener. She was also a corrections officer in a high security prison. So smart strong and independent. Makes me jealous to see that people do make full recovery. She sure as he'll didnt.

[@sandralevineprod]

I am so sorry to hear about your mom's ongoing struggles....Every recovery from this complex condition is unique. I hope you both have a lot of support. Improvement can continue even years later, though I understand it can be slow and frustrating.

[@CDNMusicLover]

I had ADEM at age 10 and went blind.

[@mazzcb2784]

How many months to have full recovered?

[@sandralevineprod]

I would liken the recovery to that of someone who has had a severe stroke. While every person's recovery is different, sadly often recovery takes years, and often there are lingering issues.

[@mazzcb2784]

@@sandralevineprod I was diagnosed with ADEM last May, now I can walk, but my feet and hands are numb, does your husband also experience it?

[@sandralevineprod]

@@mazzcb2784 He became paralyzed overnight on the left side the day ADEM came on. The left arm was the first thing to go numb and the last to come back. His coordination in that arm is still not perfect, but is much, much better. Physical exercise helps speed recovery for some. Again, every case is different.

[@CaptainGrimOpz]

If you or a loved one is dealing or dealt with ADEM please visit Ben's Friends Online Community

[@majiko4624]

Can adem converted to ms ?

[@emlucas5689]

I have ADEM too :((( it’s scary going through it

[@CaptainGrimOpz]

There is an online community called Ben's Friends Please come and ask your questions to the rest of the survivors.

[@soumyasuresh9778]

My daughter is suffering from ADEM this month

[@sandralevineprod]

I am so sorry to hear. I hope she has a good recovery!

[@B-Nana]

My son was diagnosed with ADEM November 2017

[@B-Nana]

How old is your daughter. My son was 5 at the time. Had received his MMR vaccine prior to developing ADEM

[@MrTravelerpk]

Did she made recovery

[@doctorken2k]

Had it in 2015. Second time multiple sclerosis.

[@sandralevineprod]

That's rough. So sorry to hear. I have heard risk of MS increases for those who have had ADEM.

[@doctorken2k]

Sandra Levine Productions thank you.

[@ariannakon3740]

i also had adem but i survived

[@sandralevineprod]

Hope you are doing well!

[@alivelupodichetti1885]

Diabetic patient found demyelination ADEM in bed since five months, any possibility to cure

[@sandralevineprod]

I can not give any medical advice....Time and various treatments helped my husband. I hope the patient has improved since you posted....