Mitochondrial Medicine 2021: What is Mitochondrial Disease

[@richieheetebrij8189]

Wow, everyone is asleep at the wheel all around the world. This is likely what is being misdiagnosed as chronic lyme, lupus, ms, cirs, fibromyalgia, and now “long covid”. So much to learn yet. This is pure gold and everyone is deaf.

[@beckyyu3726]

Excellent video explaining mito.

[@bookaufman9643]

I'm 56 years old and about 6 months ago I was diagnosed with KSS. I was told that I had a mitochondrial deletion rate of 50 percent. It's strange because it all started with extreme pain in my left foot and some weird blood tests. I had two biopsies and after the second one they were able to determine that I had this mitochondrial myopathy. The pain on my left side is getting worse and worse and I'm having trouble keeping my balance very well though it doesn't show a whole lot yet to most people. For the most part people just see that I'm limping. My syndrome is extremely rare and so I don't have a lot of people to exchange information with. It seems as if I'll probably die in the next few years of a heart attack or some other organ failure problem but right now my organs are working okay. My muscles have definitely been the problem so far and I've also had a huge problem with swallowing. I swallow are and saliva and foods and drinks improperly and end up choking all the time. There's no cure and it's just a slow deterioration. It's very hard to know how it's going to conclude but I'm doing okay in the moment.

[@jimmydelen2023]

I also have mitochondrial myopati and from my understanding that kind often stays as problem with skeletal muscle. You shouldnt worry about other organs. 🙏🏼

[@bookaufman9643]

@@jimmydelen2023 actually KSS is famous for its effect on all of your vital organs. Most people with this disorder will die of a heart attack but they will also go blind if they live long enough. I don't know where you got your information from but you can simply Google "KSS" or Kearns Sayre Syndrome and see that the prognosis is very very bad.

[@bookaufman9643]

@@jimmydelen2023 KSS affects the organs even more than it affects the skeletal muscle which it affects strongly as well. It will end in fatality though how that happens can be varied. Also how long that takes to happen can be varied as well.

[@stem_cell_nutrition]

Thank you for using the word CURE, a word practitioners have been banned from using by Big pharma

[@khadarvalishaik3211]

Hi I am from India. Is there any medicine for ligh syndrome ( mitochondrial desease). My two kids are suffering from this disease.

[@bookaufman9643]

I don't think KZbin is the place to try to find out whether your children's diseases could be cured. Please try and speak with a specialist close to where you live. I hope everything goes okay with you.

[@chinnarao2498]

Hello

[@mayuronce]

Hi iam from India and my sister aged 42yr is suffering from Mitochondrial sytopathi and treatment is taking at Bangalore NIMHANS(National Institute of Mental health and Neuro science ) but slowly in body notable to support to do day to day works also and fastly she feel stress and energy lose so place any treatment is there then plz help my sister to recover from this dieses... 🙏🏻

[@rameshbijjam8224]

Hi

[@mayuronce]

@@rameshbijjam8224 hi sir

[@karthiksankarasubramonian9414]

@@mayuronce hi how is your sister now am from Bangalore I have Mngie

[@mayuronce]

@@karthiksankarasubramonian9414 hi sir .... Still same situation dnt know what to do

[@heatherr1141]

I love he sound of gene therapy and cure! 😍