Month 10 update

  Рет қаралды 871

Fluffy Hippo

Fluffy Hippo

Күн бұрын

Month 10 updated and unraveling the truth

Пікірлер: 19
@luisfernando-mm3jt
@luisfernando-mm3jt 8 жыл бұрын
thanks
@nabsam2
@nabsam2 8 жыл бұрын
Hi Lana, glad to see an update :). I've watched your videos and I'm just wondering if you could compare, if they measured it in the hospital, your EDSS score pre-HSCT and post-HSCT. I'm going through with the procedure here in Sweden in the beginning of October, so I'm trying to stay as positive and realistic as possible as to what to expect after the treatment. Other than that, I truly wish you the best and hope that you recover more an more as time goes by!
@SvetlanaPiller
@SvetlanaPiller 8 жыл бұрын
Hi Sam, EDSS is one of the things that every facility looks at. Mine was 5.5 prior, I am at 2 right now. It is an amazing difference. Please, keep in mind that I am only a year in and things can change, I hope they will not but it could. Stay realistic and stopping the progression is the key, everything else is a cherry on top. I am very excited for you and best of luck!
@nabsam2
@nabsam2 8 жыл бұрын
Thank you so much for your fast reply, very much appreciated!
@SvetlanaPiller
@SvetlanaPiller 8 жыл бұрын
Thank you :) Are you on HSCT forums on FB? I also have a website with QA info that maybe helpful to you? lanapiller.com/archives/category/hsct-qa-videos Stay positive, enjoy the experience, this is one of the most amazing things you will ever ever do!
@luisfernando-mm3jt
@luisfernando-mm3jt 8 жыл бұрын
Hello Lana glad heard from you ...Why you quit working? Was it something with the recovering? thanks Luis
@SvetlanaPiller
@SvetlanaPiller 8 жыл бұрын
Too stressful
@luisfernando-mm3jt
@luisfernando-mm3jt 8 жыл бұрын
You not planing to work again?
@SvetlanaPiller
@SvetlanaPiller 8 жыл бұрын
Of course, that particular situation just wasn't good for my stress level.
@luisfernando-mm3jt
@luisfernando-mm3jt 8 жыл бұрын
Forever?
@SvetlanaPiller
@SvetlanaPiller 8 жыл бұрын
forever what?
@ivonna.tinkle
@ivonna.tinkle 8 жыл бұрын
Why would anybody be pissed at you? This is your reality.
@SvetlanaPiller
@SvetlanaPiller 8 жыл бұрын
what? who is pissed at me? I am sorry I do not understand...
@boozetique8388
@boozetique8388 8 жыл бұрын
You talking about how that Stem cell transplant is not a cure... People might be mad, but so what! 15:55
@SvetlanaPiller
@SvetlanaPiller 8 жыл бұрын
Cheers Boozetique I do not care if people are mad, honestly, it is not of my business. My purpose is to tell the truth and carry an honest message. :)
@mariomartinez3769
@mariomartinez3769 8 жыл бұрын
You have been an inspiration. strongformario.wordpress.com
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