MSF In-person Conference 2024 - Sunday

  Рет қаралды 111

Myhre Syndrome Foundation

Myhre Syndrome Foundation

Күн бұрын

Join us for the recording of the live stream of the first in-person Myhre Syndrome Foundation conference at the Children's Hospital of Philadelphia in July 2024.
You will find the presentations at the following times:
Family Panel: Education, Guardianship, Long-Term Planning
57.20 - Stella Hartono, MD, PhD - The Immune System
1 hr 32 - Joy Bress, PT & Kara Masse, PT - Empowering Movement: Physical Therapy Approaches
#myhresyndrome #smad4 #rarediseaseresearch #connectivetissue

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