Multiple Myeloma - Is It Now a Curable Disease?

[@veronicachristopher-fellow5866]

Praying for a mircle

[@ec-mp5ms]

NOPE NOPE NOPE burying more and more friends. and their families are left more and more broke. so are they coming up with more expensive treatments? yes! are they curing myeloma. NOPE

[@LeukemiaResearchFoundation]

There's a new Multiple Myeloma Update available on the LRF's channel here: kzbin.info/www/bejne/ony2aWSHjcSZia8 Thanks for viewing!

[@SupunNimantha]

My father suffered a lot for this fucking disease and died in 2012. It was the darkest time of my life. Hope at least now this can be cured

[@jackiejack2031]

Supun Nimantha I'm so sorry, I know the pain of someone you love going thru this horrible disease. I wish you well

[@SupunNimantha]

@Tammy Thanks a lot dear. Its being 6 years for this 10th. May my blessings stay with you. XD

[@marlonsajol1988]

My mom is suffering from MM now she backpain and respiratory pain also numbness on her arm what drug she we’ll take to less the pain and also she was worried what type of treatment she will do because she is afraid of chemotherapy is this treatment not successful

[@vietnamcrafts5645]

How is your Mom now? My Dad got velcade and the tumor on his head shrink now. He just go on treatment for a month now.

[@rebekagustafsson4143]

Your mom has to do chemotherapy is very good I had very bad mm I did four months chemotherapy with velcade Dexamethasone ,revlimid is very good it is little difficult but if she eats a lot of juice and fruits and good food she can be good soon she have to eat pineapple strawberry ,orange, and different juice and vegetables Now for me cancer is gone I am ready for stem cells transplant. I have collect my stem cells too, but I am little scare because I don’t have strong heart. I wish I find another way to avoid relapse.

[@simplybrown35]

Hey. How are you doing now?

[@rebekagustafsson4143]

@@simplybrown35 I am very good now I couldn’t do stem cell transplant because I don’t have strong heart now maybe I do if I get relapse I hope not. I am good I take only Revlimid 10 mg every day and no cancer . l take only Gabapentin 300 mg for pain once a day and maybe one or two times oxicodan 5mg every month when I have very very bad pain it isn’t often , but I can eat a lot vegetable and fruits and lite cheese and bread and a cup of tea in the morning for breakfast and lite lamb meat with rice with salad and other vegetables for lunch afternoon I eat a lot of berries I buy frozen berry and I have a lot in my freezer .no. Alcohol no any cake and sweet things. no sugar only honey and dates.

[@simplybrown35]

rebeka gustafsson That is good news. I pray you stay well.

[@bobi5276]

Please ... anyone knows if this deseas is genetic , my husband just diagnosed with MM . And we have a 2 months daughter ... the father of my husband has died at young age of bone cancer but at that time medicine was not advanced and i think maybe is the same problem . Is there any chance that my girl might inherit this deseas ... what do i need to know and do ??? Please someone tell me

[@LeukemiaResearchFoundation]

This is a question you should ask your doctor. We recently hosted the 14th Annual Treatment Options for Blood Cancer Patients Conference and multiple myeloma was one of the topics. You can see video from that presentation here: kzbin.info/www/bejne/e5aoeYOfe8R5hZo We hope this will provide useful information for you and your doctor.

[@LeukemiaResearchFoundation]

Try this video on multiple myeloma from the 2017 Treatment Options for Blood Cancer Patients Conference. kzbin.info/www/bejne/ony2aWSHjcSZia8

[@KO-im6sm]

No its not

[@selley2005a]

As a MM patient, the presentation by Dr Patel was very informative. Offended it is very difficult to source current information on treatments and new approved drugs. More information from the Conference would be appreciated.

[@sudhirsheth8950]

Hello, Mr Patel I have cmml leukemia and is it curable ? Any medicine name u have that can help me ! Or what else to do ?

[@mrbb33]

This is 3 years old and outdated

[@nasirshabbir6270]

Plz tell me what is Myeloproliferative neoplasm It is curable? My mom is suffering frme this

[@marantzcd1]

I have myeloma,sick of hearing it is curable.Can live a long life with problem,but dont tell lies.

[@muhammadibrahim3273]

Jeffrey Gale dear can u plzz tell me how long to diagnose and what ur condition now cuz of my father has a same problem...?

[@scuddrunner1]

@@muhammadibrahim3273 Call the Mayo Clinic in Rochester Minnesota and set up an appointment to meet with the doctors. You fly into Minneapolis / St Paul airport, it's a 90-minute drive to Rochester, there is a shuttle if you like. They will take care of your father better than anybody. I was stage 4 given 2 years to live where I live, the Mayo gave me another 30 years. Good luck!

[@daydreamersllc3819]

Mike M -My brother was just diagnosed at 38. We are in complete shock. Any information would be wonderful. [e-mail]

[@scuddrunner1]

@@daydreamersllc3819 This is what I did. Like I said I was stage 4 when I went in for my treatment. 4 years later it's like it never happened. I do get tired sooner but I work everyday as a carpenter. Because of insurance issues now you may not be able to go to the Mayo. Just make sure your doctor follows this procedure. Where do you live? I live in Tacoma WA. myelomabeacon.org/news/2018/11/21/rvd-vrd-induction-plus-transplantation-responses-survival/

[@daydreamersllc3819]

@ Mike M . We live in Louisiana. North Louisiana. And the best so far I have heard about is MD Anderson in Houston Tx. Yes insurance is probably going to be an issue. It’s kinda like a dead end every way we turn. And he’s been going to the E.R and Doctor for the past year. So we know he’s probably had it at least that long. They have removed 3 tumors and 3 vertebrae’s. They have done two biopsy’s and bone marrow test. They want to start Chemo next week but I just don’t think these doctors know this particular cancer well enough to fight it.

[@LeukemiaResearchFoundation]

This topic has been updated again. Find our 2020 presentation here: kzbin.info/www/bejne/jqLXaKeNn5yNa7s

[@rosacamacho9449]

This is Rosa Maria Camacho Solis thank you for saving my life

[@rosacamacho9449]

We're all ok because of you and all of us were all fine healthy happy 😊 your help

[@rosacamacho9449]

I get a check now learn teaching in people in need

[@rosacamacho9449]

Goddf I remember youu

[@rosacamacho9449]

I learn thru alloff you

[@rosacamacho9449]

Your the best I learn with some one have bipolar sweet 🧁

[@Howiesgirl]

Just once I'd like to see a video that discusses transplant for MDS patients. It gets ignored even though so many people, including myself, have it. I'd like to see how MDS patients fare with transplant. I still watch transplant videos involving myeloma & leukemia, but I would love to see someone somewhere do an MDS specific transplant video.

[@LeukemiaResearchFoundation]

Thanks for your comment. You can ask this question directly to Dr. Khan from University of Illinois Hospital and Health Sciences System at our next Virtual Education program on October 14. Click here for details and to sign up for free! allbloodcancers.org/treatment-options/

[@bradleymonroe6443]

How could it be curable.

[@brent4770]

eventually immunotheropy. Programming your immune system to kill the cancer.

[@JLU-wm8ir]

So it's only curable if you do chemo right. I chose nothing what will be my life span maybe 3 to 5 years if I'm lucky. Or maybe less.also I have ZERO HEALTH INSURANCE.

[@paulaubert1909]

stop being so negative speak life okay be positive and pray much 🙏

[@JLU-wm8ir]

@@paulaubert1909 FIRST OF ALL IT MY LIFE ILL DO WHAT THE HELL I WANT .. SO YOUR OPINION DONT MATTER !

[@paulaubert1909]

@@JLU-wm8ir True words God bless 🙌

[@rosacamacho9449]

Thank you sooo much

[@rosacamacho9449]

God thank you

[@marygarcia6033]

my mom is suffering from this no help I just found out I have the same dealing with pain my mom and I have sesteic lupus ☹😕

[@LeukemiaResearchFoundation]

The information in this video from our most recent Treatment Options for Blood Cancer Patients Conference may provide some information for you to discuss with your doctor. View the video here: kzbin.info/www/bejne/pWPdqIujgLGAsLM

[@brent4770]

MD Anderson has some really good trials going on with immunotheropy. I have smoldering Myeloma and it took about 1/4 of it away.

[@surenderjaiswal3809]

@@brent4770 can now mgus and smoldering myeloma can be prevented to myeloma?

[@brent4770]

@@surenderjaiswal3809 No. You do clinical trials to slow it down. There are high risk and low risk. Some people don't get MM for many years. When I found out about it I already had smoldering and 3 years later I'm still only getting checked once every 3 months. Eventually as of right now you will still end up with MM someday.

[@Questinia1]

@@brent4770 When you said immunotherapy took 1/4 of it away, was it M protein, plasma cells or light chains that were decreased? Where or who is MD Anderson?

[@fireteamomega2343]

So are they cloned ipsc from the patients ?

[@debprasadmandal7803]

Whatever may be ....its not curable at last stage and the initial stage can't be identified for a healthy person like my mom, who passed away at the age of 53 only after diagnosed for a month and half in one of the most trusted medical. So sad .

[@DIGITAL7Media]

So sorry.

[@Empath_Doll]

I'm so sorry 😥

[@deezan1045]

@@living2day617 hi do u have facebook? Can i ask about chemo,

[@marionbassett7472]

Hjn

[@lyndagutierrez3856]

lol because although its not funny at all i have to keep smiling or else id cry!

[@duffyhearrell3066]

I've just been diagnosed myeloma LLP

[@ayishazoya4158]

is tht curable after 75

[@LeukemiaResearchFoundation]

I'm afraid we at the Leukemia Research Foundation can't answer that question for you. That information is best discussed between you and your doctor. We do have the multiple myeloma video from our most recent Treatment Options for Blood Cancer Patients Conference that may help with the discussion. View it here: kzbin.info/www/bejne/pWPdqIujgLGAsLM

[@madraven07]

Which is worse, Multiple Myeloma or MS PowerPoint?

[@rebekagustafsson4143]

Both

[@foxfur8327]

Everyone is afraid of chemo!

[@recyclednew]

I’m not afraid of chemo. I know that it would kill me! And I’m not afraid of dying but I’m not looking for a fast exit either! There’s a lot of genetic differences and other health concerns. We are not clones! There’s not a single simple answer that is right for everyone! Do you know where chemo even came from? Research it! It’s quite disturbing! I will never agree to that! Do what you want with your body but keep those toxins away from me!

[@ItsThatO.G.Brother]

This man never ever get to the point! Most British people are truly boring. Whenever they try to explain things. They all talk in riddles. Just meaningless babble!

[@pammir631]

Most ??? How rude.