Multiple Sclerosis at 24: Early Signs and Symptoms

[@latinabeeotch417]

My grandpa has MS. He was diagnosed around 23 years old. He will be 84 in May. He had a bad fall in April of 2022 and it was exacerbated by the MS. He had emergency surgery to relieve spinal stenosis in his neck and he’s been recovering well. He walks with a walker but can stand long enough to make himself a meal and he does his PT and exercises everyday. He’s had this blasted disease for 60 years and he’s still trucking along. He’s so strong and so are you!! ❤

[@mavs2497]

Thank you

[@Handles1468]

Just wondering if your grandpa did anything special with his diet.

[@BoysAreSmellyo]

Thank you for saying this ❤

[@scores718]

Yes but an old yr ol with ms for 60 years RARE. Read the statistics not anecdotes

[@latinabeeotch417]

@@scores718 completely missing the point of my comment.

[@missdoglover1644]

I’ve had MS since 2010 and I still don’t understand it. The problem is that MS messes with your mind and the symptoms are so confusing. Imagine having to try to explain something to a doctor which you don’t even understand yourself. Wishing you all the best ❤️

[@lorilongfoot4475]

I have so many symptoms, including the lesions on my brain. My neurologist told me if you were 20 years old I'd tell you right now you have MS, but since you're in your 50's I don't think you have it. My mom and dad had it, my mom wasn't as bad as my mom. I'm tired of doctors not wanting to hear what I have to say, they don't know my body but I do

[@tinakautzman2269]

My neurologist told me they expect to see one lesion per decade so my lesions are normal and my symptoms are psychosomatic..I’m 51 but started having symptoms a few years ago

[@helganemaric4190]

I’m 54, I have so many symptoms and like you I’m going undiagnosed! I believe I been having symptoms since I was 27 but no one listen… I believe that MS has no age the only difference is that some of us happened to land on the right hands and some of the unlucky ones don’t the problem is that NO DIAGNOSIS leaves us unprotected unable to be covered by the disability act, my doctor is a f**ing pice of 💩 that has done nothing for me gets paid $500 every time she sees while I fight to get anything to get diagnosed before I loose my ability to even walk

[@dannamorgan8698]

Very true we all know more about our bodies. I have symptoms to

[@johnnelson874]

@@helganemaric4190 You can get another Dr if you are not pleased with the one you have now. Be your own advocate. Stay strong and do not give up.

[@marysherman3102]

My mom was diagnosed in her 70's her neurologist said She had symptoms but to old she did series of tests come to find out she did have MS my mother thought back when she was in college she had symptoms of ms but thought she was all the activities she was doing going to school she had remitting and relapsing ms.she was a School teacher she taught P.E. and health when she retired the system raised it's ugly head.

[@savannao26]

I’ve been having brain fog, memory loss, and nerve pain that feels like I’m being shocked constantly, plus muscle twitching for at least a year. This summer was the worst I’ve had it, since I started hiking this year. I had an MRI on Friday and just received the results that I have few, mild lesions typical of MS. It makes me feel a little better to hear someone else say “well, I didn’t think much of it at the time”. Vague symptoms are so hard to recognize. Thank you for the video ❤

[@aprilmeowmeow]

I hope you're doing well.

[@Jkkopi]

Can I ask how old you are and how it was diagnosed?

[@Vyeralx]

@@Jkkopi brain mri

[@GoldenDelicious78]

I’m 44 and was diagnosed one month ago. I had to wait 6 months between the first mri, where the doctor said “strong suspicion” of ms due to visible lesions in my brain. After that I had to do a lumbar puncture plus a more precise mri to be fully diagnosed. So Between December and the second mri in April, I got 2 new lesions in my brain. That made me so sad, that the diagnosis couldn’t be made faster, due to cues in the health care system. I got my first treatment of Rituximab one week ago. One year ago I was diagnosed with Bell’s palsy, as the the numbness in half of my face developed into paralysis of the muscles. A numbness in my face that first occurred in 2010, where even my gums got numb. I am so sad that I didn’t know I’ve had ms all these years. Maybe it debuted even earlier than 2010, but I don’t know. The doctor said I have more than 40 lesions in my brain. I am sad because I lost some cognitive functions, and have been tortured with fatigue, anxiety and feeling low for so many years. Something that I’ve been hiding and been so ashamed of. Feeling lazy and boring, with no energy to socialize. I didn’t know there was a reason for it. I’ve been so fatigued that I didn’t even have the motivation to find myself a partner or making myself a family. I have been struggling with doing my job, thinking I’m worthless and incompetent as I was experiencing difficulties such as focus and concentration. I blamed myself and was thinking I’m not trying hard enough and should get a grip on myself. I did work harder but that made me even feel more fatigued.

[@chcehh]

I hear you, and I hope you feel better

[@GoldenDelicious78]

@@chcehhi have recently gotten back to work after almost a year on sick leave. I don’t work full time yet, and I’ve temporarily gotten other tasks that are much easier and less stressful. That feels so much better but I still feel I have limited capacity. I don’t know much about the future as my employee will expect more from me soon but I try to stay positive. I realized that I can’t go on like before with that pressure I put on myself, trying to accomplish things that I actually didn’t have the capacity for.

[@sj9410]

I relate so much to this, especially not having the energy for socializing or finding a partner, no kids. I just don't have it in me as I have to put all my energy into working.

[@lorijohn3993]

I was diagnosed in 2009 at 41. I started having symptoms after my mother’s death, but during my divorce i went partially paralyzed. I regained my strength after years. Stress is the biggest trigger.

[@tominnc315]

I completely agree that alot of MS is triggered by fear worry anxiety & trauma

[@Burnmaster10]

I got diagnosed with MS a couple years ago. I went in to the hospital due to a seizure. Which was good as they had an MRI and spinal tap done on me. I got PPMS which was like a punch in the gut as I was an on the road 3D Artist trainer. Cognitive ability is suddenly gone. i now just laugh about it rather than being frustrated. Find purpose in other things even if the new me takes longer, still get there.

[@robertcarter6887]

Beautiful young lady, keep up a positive attitude. My brother had MS for 30 yrs. Diagnosed by waking up blind in one eye… many prayers for you.

[@maddygvanlifer435]

I just watched this video. It is 6/22/2024. My daughter just turned 49 and she got diagnosed with MS. She is a single mom of a 14 year old whom.she home schools now because driving to and from school has been difficult for her. I will forward her your video. It's been a scary road for the last 5 or so months. Thank you for sharing. I will try to find a more recent one of your journey. God bless you.

[@tonyraymond4200]

Two things: 1. Glad you were diagnosed and got that mystery solved, and can get the treatment you need to live a fulfilling life 2. I can see that the personality of the happy, bubbly little girl I used to supervise still totally exists in this professional young woman.

[@sarahkate717]

Thank you, Tony :)

[@adammelek78productions]

​@@sarahkate717I have MS.

[@SoniaKudalsky]

Thank you for sharing your experience with MS. I have had MS for over 20 years now. You are incredibly positive and funny! Take care of yourself, they have great DMTs and resources now. You can still lead a fulfilling life with this illness! ❤

[@chumpess]

Im also a Sarah, and I was also diagnose with MS in 2020! L’hermittes sign was one of my first symptoms, and I thought I must have pinched a nerve in my neck. Then when I lost sensation in my right leg, my chin, and half my tongue (I know, weird right) I was super convinced it was a disc issue because I’ve had a bulging disc in my lumber spine before. I thought this time it was in my cervical spine so I asked my doctor to refer me to a physio…they did some tests and told me I didn’t need a physio, I needed a neurologist. I thought it was overkill, and I grumpily went to the neurologist a few weeks later. Long story short, over 20 lesions in the brain, and 3 on the spinal cord. It’s 2023 now and I’ve only just come to terms with it. Fun fact, it was a root canal that triggered the relapse that got me diagnosed. The neurologist said the killing off of the nerve in the tooth basically pissed off the brain, and voila - symptoms galore. It was almost a relief to find out, at first they said it could be an aneurysm…and my dad died from a ruptured brain aneurysm, so when they said MS, it was a better option. I knew then that even though life would never be the same, I’m still here, and I can still see my kids grow. Anyway, it was interesting listening to your story. Good luck on your journey. We may have to work a bit harder to get things done than the average person, but we’re still strong, capable women. x

[@livingwithms]

🙏🏻🧡

[@Truerealism747]

It was the metal.in the root canal.that triggered it just lost my mum.to severe ms I have fybromyalgia but having another mri

[@michaeldavis4627]

Thank you, that was good I'm just starting to learn about my own MS journey

[@erinbean7185]

I'm so sorry that you had to go through this alone. I have a neurology appointment in a couple of weeks, this was very helpful, thank you. You are such a sweet and positive person.

[@sarahkate717]

Wishing you the absolute best, Erin! :)

[@mishaalzk6033]

I died when you said " i had.. not 1.. not 2 ..3 neurologists in my hospital bed" 😂😂😂😂 love your energy and also the US emergency system seems much better then Canadas we wait hours hours in ER unless we literally bleeding to death or have trouble breathing Hate it ! Sometimes i wish id rather pay the private healthcare free and be seen TIMELY and doctors available to see and diagnose!!!

[@sj9410]

Lol no we wait many hours here in the ER too

[@janena722]

I needed this, as I write from my hospital bed on steroids, 3 days after my diagnosis. Thank you.

[@keoshasingleton5792]

I go next week and scared

[@AngelicaHernandez-uc3sz]

Got diagnosed last week,

[@jacquelineglitter4328]

My son lost his vision in one eye. He also had headaches and a stiff neck. The eye doctor kept giving him eye test to soak the insurance. A couple of years after that he went numb from his waist down so they gave him a MRI and found lessions in the back of his eye, brain and neck. He had another MRI a year later and he's progressive now because he had new lessions in just 1 year. Sorry you have this horrible disease and I hope things get better.

[@Laura-ph9yv]

I don't know if you'll see this, but was his loss of vision temporary. I have sporadic loss of vision in one eye for years now... my doctor brushed it off as migraines even though I have no other migraine symptoms. I saw an opthamologist and she seemed shocked, and said that is not typical at all of ocular migraines, but my doctor just brushed me off again when I mentioned it. I have many other symptoms of MS that have gotten progressively worse, but even the neurologist I saw acted like I was just anxious and wouldn't do an MRI

[@ABc-nu6jb]

💔💔💔💔

[@fatimarehman3031]

Hey girl it needs a lot of courage to smile on such changes taking place in the body ..I just love your bravery and smile.I have MS since 6 years.Stay blessed and keep shining 🌟 bright.

[@sararinckel]

I can relate. I also was able to diagnose myself with MS when I researched my vibrating sensations online. L'hermittes Sign coupled with some other things made me 100% sure that I had it. I dealt with multiple symptoms over a couple years and incorrect diagnoses before diagnosing myself. You are not alone!

[@hazemgiballi]

Did the L’hermittes sign ever go away? Have someone close to me that just had them and was diagnosed with MS last week at the age of 26

[@sararinckel]

@@hazemgiballi Yes. It went away after I recovered from my relapse with steroids.

[@livingwithms]

Where all here with you 🙏🏻🧡

I have internal tremors and internal vibrations

[@EllaBella-76]

mine was the same when he said (Be sure your Dr contacts you by Friday 😵‍💫I thought he was not in reality it’s 2024 I already have a TBI I have lost both my parents and this last year has been flipping stressful I kept telling the Dr that I thought I had dementia?I have been told so far compressed or Pinched nerve at the root in my neck I was getting numbness that’s causing me no sleep I keep waking up or just sudden dizziness like it’s easier to see out of one eye than both so besides already having a TBI I was not expecting to be told I have loss of white or grey matter ?As long as they don’t tell me it’s dementia I can cope people keep saying “Don’t worry I am sure it’s fine “This is not family my brother has been really good one of the most stupid things anyone can say is “Don’t worry it will be fine ,that automatically sends me into lala lane “As I said to my ffriend would you be feeling relaxed I am at random getting numbness this has been going on since Sept /October I started to get extreme exhaustion from really really small tasks more than confused chaos anyone any clues how to deal with the neck and the numbness it’s like pins and needles and ants crawling over me making me scratch at random all over hopefully I have a clear picture when Monday shows up and my own GP is able to explain what’s wrong

[@dianeamaral8151]

I've had MS for twenty years now I try to use a walker and on bad days I use my wheelchair every one diagnosed with Ms it's a tough dease but you have to stick with it take your medication do the physical therapy exercise and never give up stay positive ❤

[@mareklutz]

Thanks for sharing. My wife was diagnosed some 9 months ago and we’re dealing with it now. Best of luck with living life to the fullest ❤

[@Mem2daunt]

Thanks for sharing your story. I was just diagnosed with MS after losing vision in my left eye and having to go through lots of tests and MRIs. I’ve been on steroid injections for the past 5 days and have definitely seen improvement but am still in shock and processing the news of this diagnoses. While I hate that other people are dealing with this, It’s comforting to know I’m not alone. I wish you all the best and thanks again for sharing! I have lots of research and learning to do….

[@MinnyMann]

How are you doing now? It’s pretty scary at the beginning

[@jjgame8170]

Hi I’ve been diagnosed with MS last month on July 6th 2023. I also has blurred vision in my left eye and of course a lot of other symptoms.

[@MinnyMann]

@@jjgame8170 sorry to hear that. I’ve had optic neuritis. It’s not fun. Remember you are going to have more good days than bad. Try and look into what lifestyle changes might help you keep your health. You can handle it!!💪🏻

[@livingwithms]

🙏🏻🧡

[@Mem2daunt]

@@MinnyMannhi there. I’m actually doing really well! In January 2022 I started Rituximab infusions 2x/yr and that really seems to be keeping relapses away. I do have a few things that come and go (nerve stuff mainly) and whenever I am over-heated, too tired or stressed my left eye which I originally had issues with goes blurry but it goes away after a a few hours. But overall I can’t complain! I hope you are doing well!

[@anikosebesteny845]

Wow, you are so incredibly sweet and brave. I wish you all the best, quick recovery.

[@EvenSoItIsWell]

“A collection of lesions” - you lucky girl; not! Thanks for sharing it took a long time for me to get diagnosed too but I am doing really well now. No new lesions or relapses in 4 years.

[@sarahkate717]

That’s wonderful news! We are in this together :)

[@AP-vn7fm]

How did you achieve that? I'm newly diagnosed and scared

[@EmoryStudy]

Omg I love your personality😮 If MS has a silver lining, it would be getting know someone like you exists. 😅 Subbed❤

[@animaltalk1515]

Just wanted to share that the "chin to chest vibration" u felt when laying down, which is called "Llermitte's syndrome" can also be caused by a lack of Vitamin B12 and other neurological problems.I had never heard of that, but just researched it.Thank you so much for making this video and for sharing your symptoms and personal story!! By doing this, you help so many people who are sitting there, alone, afraid and undiagnosed! I'm going to be 56 years old in 4 days and have lived with all kinds of chronic pain and weird stuff going on in my body since I was a teenager🤦🏼‍♂️. I've never been diagnosed with MS, but do have Fibromyalgia and (I think) a form of Ehlers-Danlos Hyper mobility syndrome which causes chronic pain in my muscles and soft tissues and weakness and instability of my joints all over my body.. including my spine🤦🏼‍♂️ I often have weird neurological stuff going on, too..

[@estiemunro]

Hi Sarah, I was also diagnosed in 2020, just as we went into lockdown at the end of March. Scary times, indeed. Do you know how relieved I was when I got the diagnosis!? I was so glad that I wasn't crazy or just overly sensitive about strange symptoms. I was also glad I wasn't taking unnecessary resources away from people who had Covid. I relate to your story so much and I too found a lot of my strange symptoms funny. Still do. It's lovely to meet you in this way.

[@livingwithms]

🙏🏻🧡

[@arthgupta4655]

Can u pls tell me what strange symptoms you had because recently i went to a spine doctor because i was having back pain and neck pain, but he said its a normal gym pain and gave me indocap 75mg for relaxation. Immediately after having it, i was in the phase of derealisation, my brain was feeling completely weird, i was feeling everything unreal. I stopped taking that medicine. Two months have passed and still i am facing the same my brain is completely feeling weird. I am feeling like lost and i have no interest in anything.

[@ChrisCFNDjourney]

Love the way you're so smiley and laugh about it all. You show strength and positivity in such a tough time in your life! Inspiring! Going through similar symptoms myself and some tests myself. Keep strong and smiling!

[@griscontreras6487]

❤❤h

[@Bayyarea88]

Appreciate the video. I just got diagnosed with MS two weeks ago. Been struggling with my own mental health as well. (Normal anxiety/panic person) so seeing your story I totally relate

[@livingwithms]

We’re all here with you 🙏🏻🧡

[@SirSauna]

Right now the doctors think I have MS (under investigation). The only notable symptom I have is numbness in my right hand. And I can say that the fear is bad, in 2 days I will do an MRI of the whole back. The experience is not fun, this video helps alot with my own anxiety. One positive thing for me is that I live in Sweden. And the healthcare system is amazing. Was first diagnosed with Carpaltunnelsyndrome, after it spread to the neck. I kept calling the hospital till they did and MRI of my neck and a neurologist advised my doctor to send me to the emergency so I could get faster scans and tests. Right now I'm hoping I have Lyme disease, most likely not :) (sorry for long comment, helps me cope with it)

[@faiqaahmed8927]

you're just beautiful, giving so much hope and courage to others, keep smiling always

[@SuzieQ7779]

I’m in the process of being diagnosed, starting a month ago. I’m 70 and all the signs I attributed to an auto accident I had in my 20s. I’m so thankful that I didn’t know. Currently, as I’m waiting for the super-slow medical industry to figure it out, I’m eating healthier and the symptoms are less severe.

[@Sedgies]

I’ll be praying for good health with the meds they have now. My poor son has Bells Palsy that has never gone away. He’s 41 and when he gets stressed it gets worse. He’s very self conscious about it. I told him he’s so good looking and has a wife that adores him so he’s good. Lol. True though. Please take good care. ❤

[@janetshoebridge8371]

It's not MS though is it???

[@theSMEXYone]

thankyou so much for sharing your story. it means everything to us (people suffering from something and trying to find answers). seeing you so radiant and telling your story with a positive spin is so calming and reassuring. Thank you from the bottom of my heart.

[@paulamarie43]

You’re amazing !!!! One video and I feel less alone . 59 years of age and they are just figuring this out. I cannot thank you enough. My heart ~ to yours.

[@wheelchairhomestead]

Heat DESTROYS me. Thankfully, I live in Wisconsin where's it's coooold. Hope you feel better. 🧡🧡🧡🧡

[@gouthamreddy2006]

I can’t imagine how your body handled 1000+ mg of steroids. I had 80 mg for few months and it felt horrible. Like real horrible! You are very brave. Hope your health is all ok now.

[@christophersturniolo73]

I wish more people had your outlook and personality.

[@chasetownsend7423]

Been having dizziness, pins and needles in random spots, muscle tightness and spasms, numbness, heat issues, vision changes, breathing issues (mostly from anxiety from my symptoms.) My symptoms are like yours, they come and go, but when they come it's really hard to continue on as normal, it completely disrupts my day. I've had my heart checked, came back normal, blood work, came back normal, and now my doctor has me on anxiety meds, convinced this is all anxiety. I've struggled with anxiety my whole life and NEVER had anything I listed above, other than breathing issues during panic attacks. I want to be referred to a neurologist but my primary care doctors refuses to refer me, saying "we'll try anxiety meds and counseling so we can rule that out." Like dont you think you should rule out the more serious stuff first lady? It's so frustrating because everyone in my life thinks I'm exaggerating or that I'm becoming overly anxious when in reality, I'm having crazy symptoms and I need to be heard. Really hoping to see a neurologist soon!

[@sarahkate717]

I’m sorry Chase, that sounds so frustrating. I would advise to call a neurologist directly explain your symptoms and try to get an appointment without a referral. If you tell the neurology office that long list of symptoms you gave me and say your PCC hasn’t given you a referral they are more likely to take you seriously because they know what those symptoms might entail. If that doesn’t work tell your primary care physician that you need a referral. Don’t ask for one anymore, say “ I feel strongly about the severity of my symptoms, and I am going to see a neurologist in order to rule out a neurological condition because if it is a neurological condition, as you know, early treatment is imperative”. You are in charge of your own medical care of your own body. I’m sorry that you have to put your foot down in when just trying to care for your health but sometimes that might be necessary. I hope you are able to see a neurologist soon and get some answers. Best of luck to you, Chase.

[@Okie343]

Chase, you and Sarah need to have a methylmalonic acid test which will show if you have a low B12 at the tissue level. A B12 blood test won't show if the tissue is low, you need a M acid blood test. My brother had all of those same symptoms and doctors misdiagnosed him. I started doing some research and found out it was a B12 deficiency. His methylmalonic acid was real high. This acid gets elevated due to a low tissue level B12 and over time eats the myelin sheaths from the nerves. Once B12 is restored, the myelin sheaths will repair themselves in 2 years. Injections of B12 may be needed daily for several weeks to restore it to normal. The reason you'll need injections is because you probably have a gene defect where you can't absorb it in your stomach.

[@estherdistefano6997]

@@Okie343 u

[@eyeswideopen7777]

@@Okie343 it's been said ms is an autoimmune disease related to lack of good gut bacteria. I know someone like that, he grew up with malnutrition. I'd say it's a malnutrition issue too.

[@timnoonan2786]

@@Okie343 How is your brother doing now? thanks

[@mahdikhajehim8506]

Thanks for the video. I admire that you can think and talk about MS in a positive way with a lot of strength without getting scared. I myself usually get too scared and even thinking about my worst flareups in the past still freaks me out. Seeing positive people like you help! Stay strong and best wishes for you.

[@Lifewithmelissamonique]

That’s crazy! I’ve had so many of these symptoms for 3 years now and they just said they don’t know. Never got a response of 3 neurologists at the same time. They don’t normally give brown colored ppl such a response. Thanks for the info it was much needed

[@whittscalmingwhispers]

Girl please get checked out I was just diagnosed two weeks ago with MS. And like her I had some of the same symptoms.. mine stemmed from a headache and on and off facial numbness in the right side of my face. Feel free to email me should you want to chat!

[@danagantt4841]

Thank you so much for your testimony. God love you. My sister's and I have the same attitude when we are sick. When we finally get help and Drs know what to do with us. Laughter helps. Crying releases a lot of emotion and that's what we do too. The er Dr and nurse told me I had Ms last Saturday. Lesions on my brain had gotten more white and my gray matter had too. I am going to my neurologist on the 7th to compare my last 2 mris. Oh the ambulance had to come get me last Friday night because I woke up from a nap and I couldn't move my legs or barely movey arms. Now my legs started flailing as did my arms. My husband couldn't hold me up enough because I couldn't feel my feet or legs. I pulled and crawled to the living room and the 2 men took me to the er. Husband wasn't allowed and it was so scary being alone and not able to move. But gonna finish my Prednisone in a few days and hopefully get some more answers next week. Oh been seeing double vision as well.

[@sarahkate717]

Dana, I’m sure that was as terrifying as it sounds. I’m so sorry for what you have been through. I wish the absolute best for you and your husband through this ❤️

[@lorrielerette7230]

Thank you for sharing. I just got my results from an MRI in Truro NS (Canada) yesterday - 2021 08 4th. I had some signs that seemed consistent with mini-strokes. But the patterns they found were consistent with Multiple Sclerosis. I was shocked as no one in my family was previously diagnosed with this condition. I have some follow up testing to be scheduled in Halifax. But my hope will remain strong in the Lord and hoping for the best. Keep the joyful smile.

[@sarahkate717]

I wish the best for you, Lorrie 💕

[@alliegcat]

I’ve been watching a lot of these stories about how people felt before they were diagnosed. I have my brain MRI on Friday and watching this makes me feel less crazy because I don’t have people around me telling me to go to the hospital, but I know that things have been different for a while and after not working for a month, some symptoms won’t subside. Watching you try to collect yourself emotionally it’s a thing I do moment to moment and just watching that gave me some confirmation that I’m not just an emotional person, it takes over. I’m hoping to be able to walk normal again at some point and enjoy activities like I used to. One of the first incidents I remember is my leg logging at the top of the hike and I had to get carried down to the bottom because I couldn’t walk. Thank you for this

[@hannah-marievillalobos1735]

I going through the same thing right now, I have to schedule an MRI soon

[@saberallitasneem]

I have been falling a lot recently and hitting my head so hard that my head swells to double its size and I have had numerous MRI done where I am told about having multiple lesions all over the brain and now I have severe memory problems Saba

[@antoniacuero9489]

You're a happy person, and take it a easy way.

[@syhi7971]

Its so disturbing that medical exams are so incomplete and the symptoms just get worse. After going to two different Ophthalmologists, one working in a special ER Unit for Eyes, i was send home and noone had a clue. My left eye was completly non functional, no vision at all. After two other visits to doctors i finaly got the first treatment with corticosteriods, 2000mg. Now, one year later im mostly fine but have mild symptoms here and there, mostly orbital eye pain, exhaustion and the Uhthoff Phenomenon is weird too.

[@ashokpatel8338]

Brilliant video. You may have been SCARED BUT TO ME AND HUNDREDS OF PEOPLE YOU WERE VERY BRAVE. To try and cope with what you are going through is unbelievable. Because there's ONLY YOU WHO KNOWS. GOOD LUCK, and keep moving forwards

[@MelindaMeyer-qo6bh]

Watching this as a dental student going through possible MS diagnosis. Thank you

[@raindancer3330]

I see the difference between left side of your face. I'm having wierd symptoms, right eye and face feel numb off an on, just taking it day by day. My cousin does have MS. I've learned to chill more and not freak out. Frankly I tired and I'm like, God this is your hands, I've got things to do while I'm still able to. I have good and bad days. In my next physical I will have them test me for MS. I hope you are well.

[@stonz42]

I was diagnosed in 2021 at age 35 after 16 years of mild obscure symptoms. I also suffered a lot of anxiety during that time which has gone away since I began receiving treatments. My attack prior to diagnosis left me with permanent significant vision loss in one eye which led to many tests and a spinal tap. I’ve been getting infusions for over a year now and have been mostly symptom free but I do have a number of old brain and spinal lesions.

[@sinceresplash6932]

Hi Sarah, trust me your story mirrors about 75% of my testimony. My story started when i too was in college....

[@crystalpeters7924]

It's nice to see you tell your story so positively! Also, your hair is gorgeous and i want it

[@allisonhoskins615]

Thank you for your video, I have numbness on the left side of my face, a little on the right and my left eye doesn’t fully shut. I have had SOB, I get numbness and tingling in my fingers off and on, forgetfulness and brain fog, fatigue. I went to the eye doctor and whatever is going on has affected my vision normal vision and peripheral. I’m getting a referral to a neurologist to see what’s going on. All this information helps thank you.

[@salomeurena1838]

Thank you so much for sharing your story Sarah. I was just diagnosed a week ago after having numbness in my feet for over a year.

[@sarahkate717]

I wish you the best, Salome.

[@KoalaBeer.]

Same I see neurologist in 2 weeks doctor can’t figure it out. Can I ask what your numbness feels like feet? . Sensory ? I also had absent sensory nerves from a nerve test done month ago lower leg . What other symptoms happen? I keep thinking it’s my back I guess I’ll find out

[@savannahtropix615]

What a brave lady - thanx 4 sharing ur difficult journey with us & may God Bless You with His Healing Hands❤

[@DawnOrganics]

Such a great video Sarah, minus the paralysis. I have experienced all the symptoms in this video. It's been a struggle to get a full MRI or doctors to make me seriously because MS isn't as common in males. I am due for a full scan in a few weeks. This has been a great watch, Subbed 🙏🙏🙏🙏

[@writerssuave]

I have first stage MS and the main thing I hate is having pins and needles in my right arm. I end up having less sleep in the night.

[@BernardAsagai]

Thank you very much for your video, currently getting my PhD and everything is on hold because of this sentence. I really don't know what to do! Talk to your doctor, recommend you trying to get into a clinical trial.

[@jbaker3031]

It is interesting that a lot of long covid sufferers have a lot of the same symptoms. Thanks for sharing.

[@grettalemabouchou6779]

Yes....I am going through flares post COVID.

[@SevenCostanza]

No such thing as long covid. Just hypo hypocondriacts, who claim they have ten different conditions. People love attention and sympathy

[@lisabrandt8942]

You’re amazing! So sweet, positive and bubbly! Thank you so much for sharing! 🤗🤗

[@marnismith6211]

Very eloquent and beautiful young lady. I admire your courage and resilience.

[@ishouldbesleeping1354]

Thank you. thank you. THANK YOU. I need to just have a little cry now. It’s a lot to take in. Thank you for sharing. I needed this video.

[@hardfeelings5534]

Just got diagnosed with MS- I don’t know what will happen in the future as I just turned 21 and I have the majority of my life ahead of me. My first attack was 1.5 month ago and it was scary. I couldn’t feel the left side of my body and the numbness was even effecting the back of my head and I couldn’t walk without my left leg giving up or wobbling as I go. Then my MR showed lesions around my brain so my doctor recommended me to stay at the hospital for more testings and blood works etc. My 4 day hospital stay for the testings and again an MRI with contrast injection was mentally draining and the lumbar puncture procedure was also very hard and painful as I couldn’t relax and the doctor had to enter the needle 3 times so that they could extract the fluid. I hope my mental health doesn’t plummet but I doubt it as I have been diagnosed with depression as well.

[@idraculaa]

I’m with you. I also explained to a family member today the “loss of my limbs in space” sensation. . Or lack there of, maybe? Hmm 🤔

[@nidhisindhwani9871]

Plz help me

[@esheikafontenette6934]

NEW MS DX AS OF JUNE 2023……MY SYMPTOMS ALSO STARTED IN 2020, BUT OF COARSE I OVERLOOKED THEM BECAUSE I WAS A NURSE IN COLLEGE IN ATTEMPTS TO ELEVATE MY CAREER….THIS VIDEO IS SO RELATABLE….THANKS FOR THE SHARE❤

[@ashmitasharma719]

WHat were your symptoms? I have been dealing with neurological symptoms from beginning of 2020 and I am exhaustes by now

[@jrturner9879]

Thank you so much for sharing. I am currently going through everything you went through. I really appreciate your video

[@JadeMarsh-yu9ox]

Hi. I've just seen your video. Your very brave bless you. Keep going, stay strong and dont give up. Stress is one of the worst things for MS its hindered me a lot and keeping active is a good thing it really is. Long story but stress and not being active it really does hinder MS it has mine anyway.... but I'm aware it's a snowflake disease so we're all different as to how MS effects us. I was diagnosed in 2019 and You've inspired me greatly. Thank you.

[@ATL_Transparency_News]

I lost my job house and everything else because I was a lazy liar. Nothing but a junkie. Doctors said I was depressed. Never took drugs or drank. MS fatigue is something isn't it. For healthy guys it means your just lazy even when your blind in one of your eyes and can't feel your legs its all in your head. I can't believe how much I lost everything. Barely have anything now. But atleast I have a DX and MRI that shows the damage so the liar thing got quite but. Sed u medrol

[@nhukpires]

you are very strong! Being able to deal with something so scary in such a brave way is impressive!

[@jahouser6273]

Thank you for sharing your story. My mother was diagnosed at the age of 20. It helps to understand how this affects patients and limits their stamina. I hope you are able to live out your dreams for the future.

[@kiyan4242]

Your smile and your pretty eyes made me calm. I just find out that i got ms a few hours ago...i am a phd student and donno if i can continue my education or not. I hope you are better now.

[@livingwithms]

Great video! Thank you for sharing your experience. We’re all here with you 🧡

[@Nathan-vn5tg]

This girl is so cute. Best of luck on your journey. I have some of these symptoms and I’m quite worried at the moment.

[@leaveittolefty]

it is so .....can't think of a word to describe making you wait a YEAR to see a neurologist. it is similar where i live . really, at this point why bother? so good you got sorted !

[@monica77aguilera]

The way you tell your story with humor is the best to me cause I’m the same way. I’m having some “weird” symptoms too that I keep ignoring. My feet are going numb more & staying that way but I’m like nah I was just sitting on them or something 😂 I have weird vibrations & a drumming in my ear that I call the booyikah drum 😂. Anywho I wish you the best & keep that humor cause it really helps the spirit ❤

[@saulzuve]

Thanks for sharing. I had the exact same situation with a misdiagnosis of Bell’s palsy. The right side of my face was paralysed for about 5 weeks. Had numbness with my legs and bladder issues just like you described. I feel like so many people with MS and a KZbin channel just describe fatigue and numbness, and it’s a misrepresentation of what this disease can do. Again, thanks for sharing. Good luck with everything.

[@rostycosy]

Very brave...be proud of yourself. From the UK came across this video 📸 out of some symptoms.

[@AH-yf5pz]

I’m having a lot of symptoms of MS. My hands and feet are also numb and a bunch of other symptoms. I almost fainted on the highway trying to drive myself to the hospital. I got there and they made me wait so long that I had to go home. They didn’t take me seriously at all. I have to go back tomorrow 😢.

[@HighFiveFriend]

Hope you are well! Lyme tickbourne disease will look like MS as well. Might consider as you are looking for solutions.

[@briansilva4165]

Also get an Ana test. Could be lupus. Lupus has similar symptoms also.

[@Smoresthecat-t4r]

Thank you so much for your video . I’m not so scared now .

[@beeandbloomhomestead]

Could you be any sweeter??

[@shannonpenneman7955]

I was diagnosed last week with MS and still trying to process everything. Thank you for posting this video and bringing some light to this dark time. May I ask if you are on medication and if so, which one? We are just in the process of starting all the test to get qualify for the right medication.

[@sabiinself2322]

Check Terry Whals

[@maybememory1]

I have to say: MS was nowhere on my radar. It wasn’t until an (ongoing) episode of what we think is optic neuritis happened, from my second opinion doctor. I have all these weird symptoms that I’ve been attributing to medication side effects, that very well could be either. It’s crazy how widespread the symptoms can get, whether I end up having it or not

[@khadijahameedaldeen9614]

I am a neurologist working in Saudi Arabia. If this lady was referred to me I would see her in a couple of days. Her symptoms are clear indication for MRI. I would have organised the scan in another couple of days. Once I had seen the scan I would admit her to the hospital. I then would organise more tests including brain fluid analysis by taking sample from the lower back. In summary it will take less than a week from her presentation to the diagnosis and initial treatment with steroids. Then she will need a long term treatment with drugs that deal with immune system, we call disease modefying treatment.

[@KoalaBeer.]

You sound good.. is there any clear symptom that tells you? Yes or no?. I see neuro 2 weeks time .do they do MRI first visits . I have numbness feet and absent sensory nerves when did nerve conduction. But doctor says idiopathic can’t find cause no diabeties

[@namitparmar6663]

Hi my name is namit parmar My mri shows i have ms but i have no symptoms .. i just had a headache and bit of giddiness my neurologist suggested with mri and it suggested a like ms followed by various csf,periketry,blood test all came normal! I am bit anxious of what it could have been! The doc which i have first met said you diagnosed with ms bot other nuero said you are a suspect not a confirmed one.. Please suggest what should i do

[@neemasharma1851]

Same here namita

[@neemasharma1851]

​@@namitparmar6663same my dr.said to me.

[@ValeryThamm]

@@namitparmar6663hi Namita, I’m sorry you’re going through this. Please go get a third opinion and make sure you advocate for yourself and write down symptoms in case you may forget when you’re in the spot. Dont let the difference in opinion discourage you. You’re worth it. (People on these sites may have good advice but they are not trained medical professionals in most cases, so they cannot give you medical advice. Take care and be safe)

[@stevend8785]

I call it the “Two Minute Warning”. For me the time between awareness of needing to go to the bathroom and being ready to burst is 120 seconds. Two clock minutes, not two football minutes like normal people.

[@siobhanrose1680]

I am currently afraid I have MS. Have yet to get diagnosed, and am attempting to seek an MRI. Cat scans were seemingly normal. Also scared it could be something worse, but am landing on MS, because that it the easier thing to deal with in my mind. Anyway, that is not why I am writing this comment, I am writing to say, you are adorable. Beautiful in fact, but I just have to say, the gap in your teeth is beautiful and so endearing. You are so cute, and beautiful.

[@FloKarlos-dj7nb]

Hey Just wanted to ask if you have your diagnosis or an explanation for the symptoms

[@siobhanrose1680]

@@FloKarlos-dj7nb hi, thanks for asking. No, I don’t have a diagnosis, I ended up getting a referral to do an extensive MRI, but I have not yet gone to have it done. I am still having symptoms, but they are not as bad so long as I don’t exercise. If I exercise they get really flared up. I am still investigating though, I am now at a point where I believe my symptoms may be mould/mold related, and I just had my blood looked at by a naturopath who is also a biochemist, and we discovered a few things that suggest mould too, I also have candida in my bloodstream, and my immune system is turnt up, so is my stress receptors. So, trying to eliminate candida now, and then investigate further regarding the mould.

[@paulclaerhout6997]

I put my multiple autoimmune issues into remission using a restricted diet and vitamin D therapy, similar to the Dr. Terry Wahls protocol. I recommend looking up Dr Wahls and trying it out. I've been in complete remission for several years now.

[@chris7388]

Thank you! This was so helpful! I am on a very similar journey and your upbeat attitude has put me at ease.

[@modest_meghan]

i love your personality, thanks for sharing! i’m going through the diagnosis process now & it’s hard to reconcile.

[@sarahkate717]

I hope everything has worked out for you 💕

[@CC-yl8ot]

COVID is causing neurological problems in ALOT of people. This is not coincidental. My daughter has been diagnosed with epilepsy. She wasn't on medications, didn't drink, smoke, or do any drugs. She is having other symptoms of movement disorders. She has been waiting months to get into a clinic.

[@SarahSarah-nu8ce]

*covid vaccine

[@Truerealism747]

​@@SarahSarah-nu8cecorrect especially in hypomobility folks

[@HalfBlindPlans]

Thank you for sharing your experience. While I don't have MS, I do have experience with difficulty getting a diagnosis and chronic health issues.

[@Truerealism747]

Fybromyalgia?

[@HalfBlindPlans]

@@Truerealism747 Nope! A few different & unrelated things, including eye disease.🏆

[@stevebarlow1959]

You are an inspiration. I'm so sorry you are having to go through all this but you will help so many...including me. So grateful!

[@chewb5873]

Hey, my name is Devin and I’m sure you’re very busy, but you have time to talk sometime? I was just diagnosed with MS and I’m freaking out. My story is very similar to yours. Everything you said is almost exactly what I went through verbatim. I just need someone to talk to. My family has been great, but no one else really cares because it’s not cancer or terminal so I feel like no one around me besides my family takes MS seriously. I know you’re busy with dental school (you might be done now) but if I can talk to someone with MS that would be great. Thank you Sarah

[@sarahkate717]

Email me! [e-mail]

[@lesleys515]

You articulated your experience well and with honesty. I encourage you to look up on youtube an MS specialist who runs an MS clinic in Ohio. He gives clear and understandable info and advice about this condition and is very caring. He is also aware of the latest treatments worldwide. I wish you the best.

[@ericstewart9742]

Please link us to his KZbin channel 😊

[@keeshawhite4992]

Hi. Can you please share the drs info in Ohio?

[@keeshawhite4992]

@@ericstewart9742hi were you able to find any info on the dr in Ohio? I just reached out to the Lesley to ask her to share.

[@ognjenpanic]

Thank you for sharing your story Sarah. I wish you all the best in future battles, be strong💪

[@matthewpadilla9825]

I really feel you! You are so brave. Thanks for sharing your story. I love your vibe!

[@lubicalutz6821]

So brave. Thank you for sharing your story. I hope you are doing well, given the circumstances.

[@mtaylor766]

Your story sounds identical to mine but two and a bit years on I am yet to get a diagnosis. Thank you for the brilliant video, so helpful

[@Sedgies]

You need to fight for yourself. ❤

[@MinnyMann]

what a stressful time t be diagnosed. you got this!💪🏻

[@danielatherton1631]

Omg. I had Bell's Palsy and 5 years later (last year) I went blind in one eye. Had an MRI and had optic neuritis *drum roll* because of extensive MS. Eye is better now, I'm on Tysabri and Gabapentin and I've quit smoking. Life is better but I've had the opposite problem with potty time for most of my life and it's getting worse.

[@danielatherton1631]

Oh and I've had anxiety and depression since I was about 8. Finally went to a good therapist in 2019 and got diagnosed with Dyspraxia. Was told then I should get an MRI cos it could have been MS but I did not. DO IT! GET MRI!

[@crystalroberts6172]

Thank you for your video, I have a lot of the same symptoms and my doctor is ordering a MRI next week.

[@anniezion]

Somehow this came up in my feed (did not search for MS or anything similar) but have to just say, what an incredibly charming and likeable woman you seem to be! Will definitely watch yr other vloggs, I have a friend with MS and could for sure learn from you, to be at more understanding for her🌸