Multiple Sclerosis Vlog: Spasticity and MS

[@JourneybyDrSaharHayat]

Having high protein diet worked wonders for my spasticity ...

[@Linda-5980]

I enjoyed this video.Thank you. Years ago I was given Baclafin.I was never given this medication the video that you describe.I appreciate this video too.I lived in Ohio NW. Near the Indiana border. We moved West because no or very little humidity was there. I have no air conditioner and at age 69 with Chronic progessive MS the weather in this state is horrible. Since age 40 I had very little back pain,at 50 it was bad, but at 60+ I can barely walk to the end of the block. I can stand to pay for something in the store,yet I cannot stand more than 5 minutes because the lower back pain us horrible. The last time I saw a Neurologist it was in Lima, Ohio I believe he was from Saudi Arabia He seemed to be a good neurologist but If I was back in Ohio I would have drove to see you for my MS. Now,Iam in a small town.The local hospital is not the best. Here I cannot get the medication that helped me. The hospitals in a big city thaje forever to get there. No one doctors ir nurses do not know as our MS and I cannot get proper medicine or therapy. Doctor,what could I do. ?

[@donnamoore8479]

Heat and a fever makes me spastic as well.

[@Jerusalem_Warrior]

Stretches: Chair exercise as part of your lifestyle. Also: DISH OUT THE LDN!!! Harmless, inexpensive and good for a night's sleep!! Absolute game changer. 👌 👌 ‼️

[@genee3005]

I’m sorry if this is a stupid question. What does ldn stand for?

[@patmoore7278]

@@genee3005 I think if I’m not mistaken, it’s Low Dose Naltrexone

[@magzab]

I cannot get a doctor to prescribe it. I’ve tried for years I was on it for one year and it did wonders for my sleeping I was able to remember my dreams again. 3 mg was good for me.

[@trilbywye3944]

I managed to get some on line and got movement back in my hand. My dr wont prescribe it and now the online company has disappeared.😢

[@onefabknitternz]

@@magzabI can’t get it prescribed either

[@pokervibe1]

Like I always say, I just love you, Dr. B. You made me smile again. I like those bicep muscles you have there, sir ;(). (I know that was just a video edit but it’s cute. I love it. I always call you a dork but to me that’s a compliment. It just puts a smile on my face watching your videos and I’m learning about my condition to boot you’re the best. Thank u for all that u do for US!!! Ty!

[@timrandleman9522]

Dx 1986 million thanks doctor Aaron.

[@dougtagg9162]

Thank you for the video on spasticity. Baclofen twice a day keeps in check. More stretching needed with coffee in hand from Lyndhurst.

[@AaronBosterMD]

Glad it was helpful!

[@loriohl914]

I was told how awesome and informative you are and they are correct. I'm still waiting for MS diagnoses. Brain Lesions and symptoms are pointing to a diagnoses. My neurologist is sending me for a second opinion sure wish I could come to you. I'm keeping a journal of my symptoms. Just feel like I'm losing my mind on this waiting game.

[@elizabethgrizo9956]

My body just hates a lot of medicine so I ask for low doses. I do not take Baclofen I take Tinazadine instead. Also spasticity makes someone feel like their legs are blocks of wood, so tiring ☹️

[@marilynlvsnails]

I do this every morning & night & during the day ... thank u Dr for confirming my own at home therapy .. 🔥😉

[@marieandresen4060]

Always a pleasure! I’m on Bac 3x’s a day, 30mg each time, & I’ve been thinking it’s not as effective as it was compared to how it was in the beginning. Now at least, I have a clue to why, Thanks, 😮😊❤

[@AngieMoe]

This is my BIGGEST issue and my limbs refuse to bend sometimes.

[@tawnystair4215]

Thank you for these videos- I am waiting to see a neurologist- 7 month wait out here. My doctor and other specialist I have seen have got me all the test. Will need. We are pretty sure it’s MS. You videos are a Godsend. I had massive spasm and spacicity. My GP prescribed Gabipentan and it really help. Low dose- just 200 mg

[@brendanjobe6895]

Dr. Boster, I wanted to know your opinion on this. I had a severe electrolyte imbalance, a heat stroke, and seizure(s) almost 4 years ago. They thoroughly checked my brain at the hospital to make sure everything was okay, and everything seemed normal. Ever since then, I have had some degree of extreme heat intolerance and I develop muscle twitches deep into the summer time (the past 2 summers on twitches and all summers since on heat intolerance). I twitch and itch from head to toe. Literally from my head, neck, and face to my feet. All of these symptoms died down last year after we hit fall weather. I had an EMG and NCV done and all results came back normal. I have hyperhidrosis and sweat very excessively as well. I also know my worrying doesn’t help my cause on this either.

[@sharonramsey2243]

I considered the baclofen pump but I couldn't find a doctor to fill the pump regularly.

[@DetroitGoldie]

Your explanation of how Baclofen works is extremely impressive. I finally understand how it works. Thank you so much for this.

[@AaronBosterMD]

You're very welcome!

[@genee3005]

I came here to say the same thing! When I was told how much to take a day or how much they would like to move me up to per day I panicked and asked if there was anything else we can do because in my mind all I see is more pills and the high dosing and it freaked me out. This gives me more of a peace of mind for when I actually do take it. I also felt the same about the gabapentin even though I’m only on 200 mg because I thought it was some thing that you just take when needed I didn’t realize that was some thing that needed to build up in the system as well.

[@rx6389]

🔥🔥🌄🔥🔥 Thank you for all your help, care, and empathy. You don’t get paid for your help and advice with money on KZbin, but you are rich with all of our gratitude and love.

[@Linda-5980]

I agree with this doctor. He is respected by me and he is very caring to us with MS. ALL of the videos I watch here on Dr.Boster's are informative and he seems so easy to talk too.I have not met this Dr but a I can tell he is a very good doctor.I like your post here.😊

[@jane5839]

Thank you so much Dr. Boster 🇨🇦👍🏼😉💙

[@Katie-vy5rd]

Thank you! Have been Looking forward to this topic.

[@AaronBosterMD]

Glad it was helpful!

[@nazilakhademi3754]

Thank you for all the information 🙏

[@ladydi8449]

Thank you. I need to search your vids for hypermobility as I have that in some muscles and spacicity in others.

[@AngieMoe]

Do you have a video like this highlighting the use of Tizanidine?

[@sharonmccrosky3628]

I’m scheduled for Baclofen pump trial. Taking the maximum dose of baclofen plus Zanaflex and 500 mg Keppra. Spasticity in all limbs that is very painful and disabling. Can’t walk and very difficult to control my arms. That said is it possible that I can walk again and control arms . Looking forward to being free from this painful spasticity.

[@leonaschaffer9198]

I’ve had an intrathecal pump for several years. I’m at about 132mcg/day. It is the best decision I ever made!! The commitment is real. When the clinic gets the delivery to refill my pump everything is time sensitive because of the medication. Also, after an MRI I have to go to the clinic for them to make sure the pump turned back on - it shuts off during the MRI. As for the dosage, go slowly!! I speak from experience. I ramped up way too quickly after I got the pump and at one point my legs had zero tone and were almost purely decorative. But now I’m good and the onus is on me to strengthen and stretch - science can only do so much.

[@DontUBaDiva]

Thank you! For all you do!

[@LNE.]

Very helpful thank you.. I have noticed magnesium makes me feel better without any other medication. Keep up the good work!

[@Katie-vy5rd]

I took magnesium last night and slept much more soundly.

[@TheOriginalSOOTY]

I use magnesium gel ,to rub on my legs works a treat

[@desiredecove5815]

This was a great education you gave us in spasticity. The Who-what- where- when - why and how we get spasms was understandable and the explanation of how the meds work- stretches and suggestions- the cherry on top of the dessert. I have spasticity and take Tizanadine- plus I stretch a few times a day. It’s a constant battle but one that can be won. ❤️💪🏻 #SharingisCaring ❤️

[@desiredecove5815]

10 minute mark - Baclofen pump #sharingiscaring

[@juliepurvis1438]

Thank you so much for your informative videos! Honestly, I can't thank you enough! I've reached out to my own neurologist a week ago with new symptoms of tightened feet, ankle, and leg muscles, yet to hear back from them 😢 I so appreciate your information🔥🔥🔥🔥🔥🔥🔥

[@DoctorGretchenHawley]

Such a challenging symptom in MS! Thank you for sharing another great video!

[@harrybowlby1293]

Denda

[@candyduncan1261]

Does the liquid baclofen make you as sleepy as the pills?

[@WORRO]

Big thumbs up video!

[@AaronBosterMD]

Big thanks

[@barbarastrong447]

This is really helpful. I have been doing all this as part of my effort to exercise routine while I have been working to lose weight. And it makes me feel so much better. I have not been formally diagnosed with MS, though I seem to have a heck of a lot of these symptoms (not to mention mutiple autoimmune conditions, CD, DH, migraines, epilepsy, etc etc etc.). But all the things you recommend are things I have been doing to reclaim my health. And they all seem to help. I get my MRI in mid January, but whether of not they diagnose MS as the cause of my multiple symptoms, a heck if a lot of these things are really helpful. Thank you.

[@jeanpetrillo6038]

Excellent video with clear explanation of layers of management! Super helpful! Thank you!

[@LivingLifeSlower]

I think you are the only person that directly contributed to an improvement in my life.

[@lisaleem9593]

Cold air triggers spasticity in my limbs. Cold car seats cause my back spasms.

[@raineynight]

Hi , Can you talk about types of movement disorders from MS?

[@JoJo-xz5rb]

Thankyou ❤

[@lemonpeelangelfish]

Thank you Dr Boster- awesome explanation and fantastic tips! 🔥🔥🔥🔥🔥

[@AaronBosterMD]

Glad it was helpful!

[@nursekorky9032]

you told me on our video visit this morning this video was coming out soon. I was so excited to see it pop up ..thank you Dr B ..much appreciated

[@EZ-bu7ir]

Thanks for a great descriptive video

[@AaronBosterMD]

Glad it was helpful!

[@Nancy-dz1vo]

You are great! Thank you for the great help

[@metalsomemother3021]

What about if you can no longer do those stretches demonstrated on your video?

[@Anabel30100]

Spasticity has been kicking my butt specially my legs the pain is unbearable

[@animalsmakemehappy1951]

no chance of getting on the floor lol. i get up and do a full body stretch. the back of my leg calve is so stiff i walk like i am in concrete. i cant get it through my care company that i cant just sit in bed once i am awake i need to get up and move and stretch otherwise the pain in my legs is way worse. they still leave me in bed and come late. so i just have to try and get up myself with a stiff body and move. everyday i try and walk a little in my home i wont give up. i have PPMS. i am 72. had MS probably since 2000, but not diagnosed until 2016.

[@hackett1181]

I really like your trial idea for a baclafan pump!!

[@tweetscotchy1093]

Sometimes I feel like the Tin Man in need of oil. I’ll definitely try stretching more often!

[@annconforti9294]

Thank you! ❤

[@SmileyTheAxolotl]

Thank you for this video! Learned a lot about spasticity!

[@ratulziauddinhassan3977]

For the spasms nowadays cant lift my legs while walking. Can't walk in the street, use stairs :(

[@scmassa]

I’m in winter now. Not nearly as cold as Ohio, but it giving me tremors, especially in the morning, shaving with a blade (I need to get an electric shaver, even if it doesn’t give me as clean a shave); electric toothbrush). I have been wondering if it my disease progressing, which it always will (until a new DMT is in the market) or is worse because of the cold. Ps I’m effecting by heat too. Maybe I just need to be in a certain temperature range (18-23).

[@dr.froghopper6711]

Only stretch 3 times a day? I’m stretching throughout the day because I’m already Frankenstein’s monster. I get tight in less than 15 minutes. Cramps get beat with Tizanidine when nothing else is working.

[@desiredecove5815]

I’m constantly in yoga wear as I’ll break into stretching 🙆‍♀️ throughout the day. Glad I’m not alone Yea Tizanadine helps me as well. Rock on

[@andrewlydeamore169]

I'm on 40mg Baclofen 3 time's a day but it doesn't seem to be working, my neurologist registra said there's other medications I can try but didn't say what they are.

[@MaryMary-of2um]

What causing heaviness in head chest then legs to move .Love your videos

[@lindaking9147]

Mine seems to come on from too much movement.. Lower back and hip.

[@darrinburnette6916]

In order for me to stretch I need a specific therapist there to help me stretch because i'm in a wheelchair and if I get on the floor I have to call 911 2 pick ,me up off the floor

[@kevinhorne194]

Yes, it does STINK. Seems like I am always dealing with some part of my body that won’t move or won’t stop moving, Baclophen helps, but it does make me drowsy. Ha - not drowsy - zombie like. I’ve found myself sometimes taking baclophen and modafinil at the same time in hopes to stave off being so tired. That feels a little dysfunctional. The pump has always felt so “extreme.” Kind of like a pacemaker or something. I guess it is something to think about. I wish spasticity would just go away. People look at me funny when I sit down and my left leg stays sticking straight out. After a few minutes gravity seems to help me bend at the knee. Honestly - people don’t talk about it much - but not being able to move like you or your partner wants can really mess up intimacy. I suspect it’s a big issue but it doesn’t get discussed. A frank conversation about “can you move like you want to?” With your doc might help people open up more. It seems we focus on and address ED - but if you can’t move that is another problem. Thanks for the video. Definitely valuable info. It seems a lot of people don’t think it’s treatable.

[@amerigo37]

We tried Baclofen but it made me weaker and walking worse. I heard its a muscle relaxer which for my PPMS is not a good thing.

[@aniajagoda3482]

Hello! Great channel! I have a question, is fasciculation a symptom of MS? can there be fasciculations due to spasticity?

[@danielhernandez-fo3mj]

super informaive expecully learning there are difent movement disorders that act like spastisaty .... spastisay has been my first symptoms started in my back at 14 never left made it hard to stretch my back out when standing up but at 22 it mved to the rest of my body as a constant constriction that gets worse after being physical like power walking or hiking or even just doing my dishes apon stopping the stiffness aka tin man syndrome becomes so unbearable I see tramadol to help combat the pain and makes it so I can push through the stiffness .... most the time as recently I had a bad moment of a spastic gait where as I walked my legs wouldn't move right and I would walk funny in a sorta shaky motion but it was when I went to lift my leg and when my leg would hithe floor was very painful and weird lol I dient kwo strokes could also cause spastisaty as that's what my ms mimics I was on a barderline with ichema and ms for a while only reosn they gave me the ms diagnosis was a black dot came in my eye for 3 days and they saw growth of a lisons into my corpus collusom not connected to a stroke well she also stated it as reaching the brian stem as I said beofe .... still grate video my PT also tells me to get up and move and not sit to long I try to walk a lot to keep me fro losing streght in myleg ....since ei was using a cain fr a min last july lol once ageb grate video

[@someonesomewhere1100]

Do you have any videos about MS and pregnancy?

[@AaronBosterMD]

yep.kzbin.info/www/bejne/o2qriXmCqpeUZ68

[@haseozenithmaru1186]

No TV I guess

[@BethLintott]

but what if you are heat sensitive too?

[@mikeshanermusic]

Could two really painful bad teeth be considered a noxious stimulus? Feels like it.

[@AaronBosterMD]

yes absolutely

[@chaderikataylor5503]

Thanks Dr Boster! Can heat and stress cause this? I spent several hours outside yesterday but in the shade (and yet somehow got sunburned) and at the end of the day my hand suddenly went into a claw like position and it was terribly painful. Ever since then, including now I can’t fully open my hand and I definitely can’t grasp anything strongly. I took Tizanidine 2mg last night before bed but woke up and it’s still happening, but not as bad. I hate taking that medication because I feel tired like I’m hung over the next day. So, my two questions are: my spasticity is usually in my left leg and foot but here I am with my left hand doing what it’s doing. Does the hand thing sound like spasticity as well? And would Baclofen be beneficial? Thanks! Your videos are so helpful!

[@akcreamhorn]

Another super video from Dr B I’m loving the new vlog delivery. Spasticity sucks. My contribution to discussion. Just as well we have you to inform us all. Best wishes, and thank you… Alex

[@Sharla1213]

How can you determine if the spasticity is helpful or harmful?

[@monikagupta7586]

I have noticed getting rid of gluten helps. Could that be right?

[@Sierravernee87]

Thanks for your videos! How can I contact you personally?

[@AaronBosterMD]

call the Boster Center for MS at 614-304-3444 to request a consultation. Also visit us online at BosterMS.com

[@Sierravernee87]

@@AaronBosterMD Thanks I will 😊

[@jimmcconnell7328]

Hi doctor. Could you tell me what causes the shoulder muscles to tighten and twist the head to the right side? When it’s bad it can pull my left side downward as well. Is this muscle weakness or a spasm? And should I be seeing my doctor about this. Thank you.

[@edwardsashnic]

What cause a thumb to shake when bent at an angle is this considered spasticity or tremor

[@giadianne3680]

Do you have a video on lesions on the brain vs lesions on the spinal cord. I only have lesions on the brain. What's the difference on what to expect?

[@DuckyJoJo1]

What are your thoughts of tizanidine versus baclofen? You did a great job explaining baclofen but I'm not sure how tizanidine competes with it. Please and thank you

[@Earthoceanfire435]

I’m allergic to baclofen. Can I take GABA will it help?

[@105C09]

Boy Howdy, does it stink, Doctor!

[@erenjaeger2191]

Hello I think I have progressive MS and heart symptoms and diabetes, how to manage the heart condition. When I go out, it goes up all the way to 160 bpm. Is there any drug for or a form a of remission where the the heart symptoms can go away?

[@grinch4567]

Although I don’t get spasms, I get zingers: any thoughts on those, and how to manage them?

[@amnesia1124]

Sometimes I feel my spine spazzing. It feels like it's getting tight and then it's letting go it's getting tight and letting go. What can I do for that? It is very painful. Besides I have my spine throbbing many times. I don't know what to do? Do you have any suggestions? I am on Tizanidine. I take 4 mg once at night. If I need more I can ask for more they will either give me 2 mg or they can give me 4 mg. I don't like to take too much because it makes me very sleepy and tired. I am in a wheelchair now. Things are very hard for me to do now. I do as much stretching as I can, but I can't move my legs. I do some stretching but it seems not to be enough.

[@sherritice3203]

In MS, how quickly can spasticy come and go? I feel like from one day to the next (or even from morning vs afternoon) the mobility of my fingers is constanty shifting from full range (with some pain) to not being able to straighten my finger with shooting pains in the muscles in my hands. Some days I can't fully straighten one leg, some days everything is normal and some days it's the opposite leg. I don't have a diagnosis yet (I am VERY frustrated by how long every step takes... wait a month for this appointment, another month for that specialist), so I am not sure if MS is what I have. So far, all my blood work is coming back normal, but MS doesn't have to have wonky blood work, right?

[@moboticusmaximus7320]

I was diagnosed with MS three weeks ago and I am just starting to figure this all out. Among a lot of the, what I now know to be, symptoms I am also dealing with myoclonus. I had an EEG which showed no seizure activity. Would the myoclonus fall under the category of MS spasticity then?

[@emilybrockman6375]

Currently dealing with similar things. At first a neurologist in the hospital thought I was having myoclonic seizures. I have an EEG next week. After seeing my MS specialist, he said he believes I am experiencing paroxysmal tonic spams. I’ve been taking keppra and baclofen the last month.

[@abehummel1909]

Do you offer virtual appointments?

[@Katie-vy5rd]

I would call his office

[@andymartin7994]

How can I get my legs better I have ppms multiple sclerosis all together 3 years please help me out

[@harrybowlby1293]

🔥🔥🔥🔥🔥$$$$$$$$$$$

[@malapoyo]

Spasticity issues are like having a very slow seizure of your body that you are fully awake and coherant for. It's lovely.😒

[@darrinburnette6916]

All the muscle relaxation meds make me puke

[@nikkiuk]

I think I need some focal Botox treatment on some areas of my face. I wonder if insurance would cover that? 😆