Multiple System Atrophy Q&A with Dr. Vik Khurana - Multiple System Atrophy Awareness Month 2022

[@leobates8783]

I’m 49 Canadian. Sign me up for any studies you need. I’ve been fighting for seven years already and very slow degeneration. MSA-C

[@damonenkiller]

Der Leon, I'm from Switzerland and got the last August the MSA-C diagnocies. Bilod preassure, Speech Problems, weak Memory , ....... what ist a slow progressing in your case?

[@shellyruble559]

Where can I find doctors with experience with MSA-C? My husband is 7 years into this with no solid diagnosis and we need help.

[@teresabaker-carl9668]

When the term “failure to thrive” is applied to an MSA patient, what is the doctor meaning in terms of the development of the disease?

[@PrincessGodBotherer]

Drr Khurana was speaking from Australia. What was he here for? Was there a relevent conference held here?

[@teresabaker-carl9668]

At what point does one need a wheelchair; what determines when one has reached that point?

[@karensmaizys3240]

The. Long.road. Hope

[@dinorabianchi9488]

Where in Pembroke Pines Florida would I find a msa group

[@teresabaker-carl9668]

Is pneumonia common in MSA?

[@MegaMusicMuse]

Is MSA rare? Canada has the highest rates of Mutilple Sclerosis (MS). One parent with MS the other with MSA. They look EXACTLY the same. Is this a spirochete chronic Lyme disease? Is this checked post-mortem?

[@leobates8783]

Unfortunately they confirm diagnosis during autopsy. Im 49 in northern Alberta Canada 🇨🇦

[@babylegs1968]

Leo Bates, how is the care in Alberta? I’m in Toronto. How long have you had MSA? 🇨🇦

[@carlitguy]

I am in central Alberta and after 12 years and 6 neurologists I just got my diagnosis of MSA. I cried tears of joy when I saw the session of Dr Vik Khurana because EXACTLY described my journey of the last 12 years and a Parkinson tremour in my left arm.. I knew there had to be more as I have had falls a bladder issue and I totally failed with Leva Carb having zero affect.

[@nonahammon1098]

@@babylegs1968l

[@nonahammon1098]

@@carlitguy wasting?