My 17 Year Old Needs A Lung Transplant

[@lindad1195]

I haven’t watched in awhile and I’m blown away with how much the little ones have progressed with their speech and communication! That’s awesome!

[@OurLANDingCrew8]

I know, I am only gone for days here and there and I feel they've changed and grown SO much!

[@Lily-qz3ms]

Me too!

[@ginger1860]

Please take care of yourself! You are the living example of burning the candle at both ends. Without you, everyone would be at a major loss. Prayers to Lonnie, you, and your whole family! 🙏🙏🙏🙏🙏

[@gabriellexjean]

i agree ❤️

[@catalinaortoljo2821]

Does the father help a lot?

[@doodlebug5105]

Gosh I can’t imagine people saying they don’t believe you that’s so horrible. I’m so sorry on behalf of those jerks.

[@Danaareed]

My heart just broke for you going through this! Prayers for continued healing!

[@Victoria-fw9xn]

You are a supermom…. You are such a kind loving awesome mother…. Things will be better keep being the awesome mom you are…

[@sofiasousapires]

My heart sank when I saw the news! Always in my thoughts! Good to see the other kiddos missed them!

[@angelaruiz5323]

Stephanie, I admire your strength . You are a wonderful blessing, just a great person inside and out. Wonderful family. Thank You for the update . I hope he comes home soon. 😊

[@teddysarah8961]

Liam and Penelope are doing so well with their speech!! Sending you all big hugs and hoping for good news soon! You are a strong team with another online team cheering you on xxx

[@amysettle85]

We love y'all and even though we are only "fans" we are here for you. Prayers to Lonnie and the whole family.

[@oceanstaiga5928]

As someone who had lived with below 50% lung function at the same age as Lonnie Jr and struggled with “just” that a lot but was lucky enough to recover full function over the years… I can only imagine the struggle for him and your whole family. These are some rough years and it will always stick with you I’m sure (it has impacted my adult life in many ways even being recovered now). Take care of yourself the best you can, I’m keep you in my thoughts for sure.

[@esthers9140]

How you can go through so much and still retain what's happening to reiterate it is amazing. So sorry your family is going through so much. Your in my prayers.

[@BhappyD]

From my own experience with being the one in a similar position to Lonnie, it’s honestly pretty amazing what your brain is capable of retaining in such extreme circumstances. That’s even more true when it involves a parent with a sick child. The brain just kind of takes over and retains the most significant information necessary to make sense of what is happening. At least in my own experience though, the downside is that is you start forgetting a lot of other more “normal” pieces of information relating to regular everyday life. Your body kind of just goes into crisis mode, holding onto every piece of information that is pertinent towards immediate survival, and putting the rest on the back burner. Same things happen with the physical body surviving through the extreme stress, extreme lack of sleep, and lack of nutrition. You’re just in survival mode, and the body and mind somehow find a way to pull you together enough to get to the other side.

[@aliciakillen1940]

What I don’t believe is the gall of some people to say they “ don’t believe the story!” Like WHAT, procedures have complications all the time and you have been very clear and concise from the beginning as to the timeline of events. Some people honestly get a high or joy from being ugly and hateful and negative. Please don’t give them one second of your thoughts.

[@lisapate8509]

Thank you for sharing how Lonnie Jr is doing . Praying for him and all your family!

[@nereidgreen6653]

Wow. I’m so sorry everything went left so fast. I remember your boy was sick but could never imagine it has come to this. Wishing you strength, courage and love.

[@carriebowlen3785]

I love you too Lex! I love being a member of your LANDing Crew!

[@stillMimi123]

I'm Truly very sorry this has happened. Always thinking about you guys . This will work out, he'll get what he needs! I have faith for it.

[@denissesanchez7213]

I’ve followed you since your early videos and learned so much, I’m also a mom with a 3yr old autistic boy, I have nothing but such high respect for you and how you handle your big and beautiful family blessings and recovery for your son

[@jp911]

Hugs to you mama as you are standing so strong. All my prayers.💜🙏

[@loragorn]

Lonnie Jr, lots of prayers being sent to you from Connecticut! ❤ Keep fighting, hope to see you home soon. Lots of strength and positive energy for you Steph.

[@CWengrovius1420]

I’m praying for ur older kid to feel better soon & keep your family in prayer as well.

[@kristybooth7852]

So sorry Lonnie is going through this....poor guy ,,,I feel awful for him..biggest hugs to u... Penelope is beautiful

[@Football_edits_mufc]

He is a true hero

[@amandaj4954]

All of your kids have grown up so much! Always keeping your family in my thoughts

[@mariajaniegoulet7653]

I admire your courage. Prayers for Loni , you and your family 🙏🏼

[@doodlebug5105]

All of your children have such an infectious twinkle in their eyes. The world is better because of your family. ❤️ Rooting for swift transplant and recovery, can’t what to see what path Lonnie Jr chooses for his life; it’s going to be meaningful and generous for sure.

[@Jojo-gg6jc]

My thoughts and prayers are with you and Lonnie, my nephew is going through something similar, he was healthy 15 year old ran cross country and last summer, he started to having breathing issues, he's now at Laurie Children's in Chicago, he's seeing the pulmonologist tomorrow for another follow up test, he's currently on 3 inhalers and medicine. It came on so quickly. I hope they figure it out soon.🙏💙🙏

[@michellejones4934]

Prayers. It is great he has a Mother who is an awesome advocate for him! This is so tragic.

[@jennp7]

Sending much love and hugs to all of you ❤🤗 Prayers for Lonnie 🙏🏻❤️

[@debbielopez6593]

Prayers for your precious son and for you and the family. Lonnie jr is a very strong and amazing young man. Blessings to you sweetheart.

[@archanadas6726]

Stay strong . Your an amazing mom . I admire the strength from within you that keeps you going .

[@coupontherapy2635]

God bless you guys and the person and their family that will be the miracle you all need . I'm praying for everyone involved .

[@AndreaS-mf5dq]

My good friend from high school needed a bilateral lung transplant in his early 20s. He is still with us and turning 40 soon. Sending love and strength.

[@brendad940]

My granddaughter lost both her kidneys at 8 and didn't get one until her bio dad donated one at age 9. She is 17 now and a junior in high school. Her mom, my daughter in law has recently been diagnosed with a rare auto immune disease that causes her tongue and throat to swell and we can't even find a doctor who specializes in it and have had an awful time even getting enough of her life saving meds. She has had to be intubated several times now and there is only one hospital in the area that HAS the medication to save her. It has been a nightmare. I am so sorry your family is going through this. You guys and your son are in my prayers. Sending love from Wilsonville Oregon

[@CanadianWhatever]

Hereditary angioedema? That is so rare!!

[@brendad940]

@Canadian Whatever it's actually non hereditary HAE C1Q something. Yes super rare.

[@teresafisher6732]

She is completely telling you what is going on to help others

[@TheLinixD]

I feel so much with you 🫶🏼 My sister had a routine surgery last April and everything was well until she had a pulmonary embolism two days later. She was on the ICU for ten days before we had to say goodbye to her. Never in my life would I have thought that such a tragedy would ever strike my family.

[@helenbennett4391]

I'm so sorry for you and your family, on the sad loss of your sister. Sending my condolences to you all 💙

[@Carolineisthebest]

I’m so sorry for the loss of your sister ❤️

[@JeepGirl45]

I’m so sorry he is going through this. It’s crazy to me that people would question if it’s for real. That’s honestly very sickening. Like you don’t already have so much to deal with it.

[@kaydaherrera]

As a nursing student, I think you do a really great job of explaining the pathophysiology of his condition in really easy to understand terms. How insane that this all started from a wisdom tooth extraction?! It is surreal to realize that you're the statistic. I felt that way when one of my kiddos was diagnosed with T1D last fall. I was curious if Lonnie Jr. has a T1D because you have mentioned he takes insulin a couple of times. Another thing you touched on briefly is that it's not lost on you, that the cost of your child's survival is at the expense of someone else's. I think that would make a great video, if/when y'all feel like talking about it. I hope the medications he's on start to improve his condition and I really appreciate the willingness to share his story because it's educational and it's worth telling.

[@OurLANDingCrew8]

He has steroid-induced diabetes so the theory is once he's off the daily doses, he will be able to get off of insulin, and THANK YOU!

[@ReineDeLaSeine14]

@@OurLANDingCrew8 Yeah Steph, you explained everything perfectly

[@emmaplate4371]

My husband received the liver Transplant. I am so glad you document

[@gabriellexjean]

its very nice to see your other children doing well since i know that these last couple months haven’t been so easy for you 🤍 especially your little ones who need the extra support. i pray that lonnie is able to come out of all of this and at least get back to normal life soon. its so hard to watch and not wish i knew you to give you a big hug mama 🤍 sending you so much love 🫶🏻

[@blessedbabe8318]

You are stronger than you know ! Your children are blessed to have you as their parent ! I am sure you feel like at times you are living a bad dream ! My husband has been recently diagnosed with a chronic debilitating condition and it has been a roller coaster of emotions ! I am praying now that you and your family will be blessed with a miracle ! Your story needs to be told someone needs to hear it !

[@karenselogic7742]

Stephanie I’m so sorry your son and your family is going through that. I understand had bad it can be at times. My niece has the same thing. But hers keeps making her miscarry . March 2 she just listed her baby girl from that horrible thing. Prayers always for your family. Your a great mother. Wish my mother was like you. You’re amazing. Praying meds start to heal his lungs. So much love coming your way for you and your family.

[@newday2]

They have all gotten so big! Sending love and prayers !

[@maritoh.6710]

Be strong Lonnie! 💪🏽💪🏽💪🏽 we're here for you!

[@elizabethb3769]

You are all in my thoughts and prayers. It is exciting to see the progress the Littles have made ❤️

[@eleni7546]

Penelope is so huge oh my God! You've got beautiful children. Praying for Lonnie

[@carefree6412]

What an amazing mom you are!

[@kellimurphy755]

You are living in an absolute nightmare and I am so glad the rest of your babies are happy and smiling, so that you can at least have a little bit of peace in your heart that they are safe while you are caring for and being with Lonnie Jr. He definitely needs his mama right now and I am so glad you are able to be with him. I pray that you are able to get the funds that you need through videos and go fund me to keep y’all afloat while he is in the hospital and I pray you find the answers you desperately need whether it’s a set of beautiful healthy lungs gifted by an angel or his lungs heal and medicines just suddenly take affect. He needs a miracle now and that’s what I’m praying for. Love all of you.

[@saml4004]

I’m so sorry you’re going through this. I applaud your courage to document this, I can only imagine how scary this has been for you. To anyone who says “I don’t believe it”, I am going to say: sit down and shut up…this is a very personal journey and story and, honestly, I have NO idea why anyone would lie about something like this. The littles have grown so much and I’m BLOWN AWAY by how much they have progressed in what feels like such a short period of time! Hang in there, you and your family are in my thoughts and I’m sending loving and healing energy your way.

[@OurLANDingCrew8]

I am kind of scared to document this process but I am also worried that I will regret it if I don't.

[@meganrunner]

I’m so sorry your family is going through so much especially Lonnie. ❤you’re in my prayers for sure

[@elizabethhanson9420]

Penelope is so beautiful! Good Job Liam! I feel so sorry for you, many prayers for all of you and Lonnie. It is all shocking. So stunned!

[@katenickels617]

I am so sorry you are going through all this. I also have a son with an autoimmune disease and other diseases. I totally understand your feeling that this cannot be real life.

[@kristinlemons1430]

What a very challenging time this has to be for you, Stephanie. Sending you a big hug and lots of supportive prayers.

[@louise8752]

Sending you and Lonnie Jr. lots of love and best wishes from Massachusetts!!

[@groovygrace2433]

Sending your family love and healing energy. Would love to see a video about organ donation!

[@thee_hash_slinging_slasher]

Praying for your family and Lonnie Jr. This is such a whirlwind of a situation. It all started by getting his wisdom teeth out. Things like this make you remember not to take anything in life for granted it can all change so fast...

[@tinawhite5310]

You both are in my prayers stay strong Lonnie you've got this we love you all

[@robylove9190]

Sending love and healing energy for Lonnie and all of you 💖

[@sapphosmuse1243]

I’m so sad for you guys. I wish I could give you a hug. You look like you need one.

[@teresafisher6732]

I was not able to share what happened to my child at the time it happened even though it might of helped others I was not in control of my emotions but this woman has been threw so much and she still wants to share and help others it’s amazing so don’t attack her she’s dealing with her babies illness to try and help others

[@caylarose6658]

Praying for you, your son and whole family 🩷 It must be so scary as a mother to go threw this... my son got dental surgery last year and boy I was so torn apart when he was sedated. I can't even imagine what your going threw. And your son.. I can't imagine the pain, or feeling of breathing with new lungs. May God bless you and your family as you make this journey to health for your boy 🩷

[@JanealJohnson]

My mom got covid in July and ended up with fibrosis of the lungs following. They said if it's long covid it should resolve itself if it's not I could get worse. She's nearly 75. Sigh

[@chochi2215]

There are going to be people out there who watch your vlog who are going to need to hear your testimony and going to be inspired by your story and most importantly there are other people who I am sure who have been through a similar journey and give you the support and love you need. I am praying for you and your family!

[@jacquicoder7160]

I can't imagine how hard it must be to spend so much time away from your other children. They have grown so much and seem to be doing so well. It would be great if Lonnie Jr could be sent home while waiting for the lung transplant so that your whole family can spend some quality time together. I will be praying for that outcome and for whatever God knows you need each and every day.

[@dreamerqueennotunderthemachine]

Stephanie it is so hard what you're going through, and with being a neurodiverse woman and mother, you're pushing through like a true mama bear but your psyche is protecting you because it must .. I relate with your description of dealing/going through the motions with a very traumatic, serious and scary health situation. I have severe health issues my health including things that are often really debilitating and can be life threatening (connective tissue disorder, mast cell and autoimmune issues, spinal instability etc) and it's rough and scary dealing with this kind of stuff for yourself OR one so close to you, especially your kid, when you are autistic too. I have much empathy for what you, and Lonnie, are going through and i'm so sorry for what you guys have had to be faced with here. Keep fighting, one day at a time, as best you can. If you need to let out some strong emotions go to a private beach and just bawl (I even use a towel, but I'm often too tired to get super upset.) What a 'dynamic' duo, being neurodivergent and dealing with severe health trauma like this.. and when it is happening to your own kid!! Sorry if I ramble too much .. but much empathy for you guys rn .. My sons are 15 and 17 (the 17 year old is autistic, as am I) I shared you fundraiser too. When I get my cheque I'll contribute a little. Hoping with all my might that Lonnie will pull through to the other side of this storm.

[@Danielleb723]

I'm so sorry this is happening to you, Lonnie and your family. I will keep you and Lonnie in my thoughts and prayers and want to send you all positive energy and well wishes. You are an amazing mom. I am an organ donor and I have been for awhile and feel like that would be one of the best gifts you could ever give.

[@gretchen3823]

I will pray that he will get his lung transplant sooner so he will heal and have a better life.

[@ConcreteAngelx3]

I haven’t seen your videos in a while and it just put a huge smile on my face to see your younger kids thriving. They really have made so much progress, it’s amazing! … I am heartbroken to hear this update about Lonnie Jr. and I’m praying for his healing and that he is comfortable and also praying for you that you feel loved and have peace as you wait for Lonnie to be healed. You are seriously super mom. Please take time for yourself 💜

[@shygirly160]

So sorry you all are having to go through all of this prayers to you momma Stephanie and prayers for Lonnie Jr.

[@barbeast13]

I saw the news clip. Praying it will motivate more families to Organ Donation.

[@melaneyhughes4231]

Hugs, love and prayers coming your way.

[@terriehumphries6028]

I definitely believe you. I have been accused of Munch-housing by proxy in the past. My son had lots of surgeries on his head and I had to look for cranial pressure. My son is doing great today. I am so sorry about Lonny Jr. We are praying for him.

[@jessicagault7147]

Been watching you guys for a couple of years now. Always look forward to seeing everyone. My thoughts and prayers are with you.

[@jennyann5405]

My heart goes out to you & your family. I pray that things can get better. I hope Lonnie Jr. doesn't have to wait too long for new lungs. For people that are being mean & saying hurtful things they should stop & think what if it was them.. I truly believe you're helping people & that is such a great thing. :)

[@Yellowlabratory]

I believe every bit. I appreciate you posting this scary time.

[@stressmess3469]

I never knew our organs could get bad that quick .. I’m so sorry .. you guys are in my prayers!!!!!!!! ❤️🙏🏼🙏🏼🙏🏼🙏🏼❤️

[@Kris-ib2xt]

Yes, they can.

[@OurLANDingCrew8]

They can given the right and wrong situation.

[@joditurner7435]

My husband went from being diagnosed with NASH, Cirrhosis from fatty liver to needing a liver transplant and possibly a double lung transplant from March 7th to July 11th. YES, our organs fail quickly.

[@pattyespinoza1217]

My love to you and Lonnie Jr. I have been praying and will continue to do so. 🙏🏼❤️

[@katieashmore3279]

Praying for Lonnie and the whole family 🙏🏻

[@Wildernessadventuresoz]

Holy son of a nutcracker. It’s pretty bad. I know you’re being stoic and strong because it’s better than thinking the unthinkable. I really hope things improve for him and he stays strong for the transplant. Looking after kidney recipients I realise this is a big deal and can be a long and stressful road. I shall never complain and hug my son a little tighter.

[@bethbupp5021]

Sending prayers for Lonnie and you and your family. God bless

[@michellewyles8018]

I pray for him and you all. I am in the same spot with I was just told I needed lung transplant as well 🙏💛

[@pattipaddle6124]

Gosh I have been away from your channel because I was recovering from a car accident, in April it will be one year, I just saw this video and am so sorry to see he is so sick, I pray for him and you all, this is tough when life is already so tough. Praying for stability for him.

[@ingham_editzxxo]

I've been following you for ages. Wow the kids are getting so big! Sending big love to you guys in such a hard time!❤️❤️❤️

[@TanyaWeezy]

You have a beautiful family! Prayers for you all

[@sierramanning9429]

I’m so sorry to hear about what happened to your son one time my friend at sick and had to go to the hospital and I was sad her mom almost lost her daughter but she got better and she was back at school the next day and I was happy that she was better I hope he gets better soon amen to him let him be healthy again and let’s hope he can come back home

[@angiemarquez06]

I hope everything goes well

[@jhamadhu2809]

Penelope is grown so much she’s a sweetheart.

[@martaraquelpaz]

In Portugal you are an organ donor from birth, by default. If you do not wish to be an organ donor you have to register at the National Database of Non Donors. I think this is absolutely great legislation. All good wishes for your family, Steph.

[@OurLANDingCrew8]

I actually thought the other day this should be the default status.

[@YourMom2420-c1i]

So the government dictates your life whilst alive, and after death. That’s a hard pass for me. Most people I know where I live including myself pulled ourselves off the donor list once the government decided who would live and who would die based off a “certain status” over the last 2 years. Being an organ donor SHOULD BE A CHOICE, and picking and choosing who lives and who dies based off that status is beyond disgusting and immoral!

[@truthtriumphant]

@@YourMom2420-c1i Totally agree!! The less government control in our lives, the better!!

[@LolaDelMarCaribe]

That’s wonderful!

[@alexandramoyer8785]

@@YourMom2420-c1i same

[@Kiddly3000]

hugs I hope there is some support groups out there for you they might help you

[@lindad1195]

My prayers are with you and your son and your family! Remember God is with us! Have faith!

[@tiffanijordan45]

We love you guys we are praying with an for you guys God is going to bring him through we love you!!!

[@amandaroselalagos5429]

I keep praying for Lonnie jr & your family ❤ I hope you and Lonnie have been able to be on the same page and working as a team to support each other and the family and most importantly, your son 🥰

[@comocha9277]

I still can't believe that this is all happening to Lonnie Jr...I can't imagine what you're going through, this all must feel like a nightmare you can't wake up from. I also donate to the GoFund me and hope others help as well to ease the stress off you and your family. I am praying for your family so much and thinking about you all

[@riocanieso]

May the Lord heal u and bless u Lonnie. God bless this family.

[@teresanew9247]

Oh Stephanie I'm so sorry that this has come to this but Lonnie Jr is in the right place for his needs at present. I will keep you all in my thoughts. I hope that he can manage at home until a lung becomes available for him. The younger children are so cute. Lonnie is so unlucky that this happened. Stay strong.

[@louisedocherty3577]

Stephanie I’m so sorry you’re going through this. Sending love and positive vibes ❤❤❤

[@randomness051]

Holy shit I just saw you on the news. I feel like you can never catch a break. I don't know how you and your husband do it Stephanie xx

[@lauriesmith561]

Stay strong Lonnie jr.💪💪💪🙏🙏🙏🙏 praying for you!

[@princessash032587]

Praying for you guys and Penelope is so big

[@michellewyles8018]

You are not alone just remember that everyone is with y'all

[@schirinheidaribateni8441]

I hope Lonnie's lungs are going to get better against all odds or otherwise that the transplant goes as smoothly as possible. ❤❤