My Cancer Diagnosis Story: Stage III Classic Hodgkin’s Lymphoma

[@jmnightingale9055]

You are absolutely right about changing health care providers when the situation does not feel right. The first hematologist I went to immediately diagnosed me with MDS, Myelodysplastic Syndrome, without doing anything more than blood work, and he said my MDS was unaggressive and didn't require urgent attention and he told me to come back in six months. That didn't seem right so I switched to a different hematologist who ordered a bone marrow biopsy which showed I had a very aggressive form of leukemia, AML with the MECOM mutation, and that I needed urgent treatment, which I received. Now, over a year later, my prognosis is good, though I have no idea where I'd be if I stuck with my first hematologist.

[@leatinsew2988]

So glad to hear you took matters into your own hands. It amazes me how physicians are so careless with people's lives, I truly don't understand the lack of interest. It's as if they forget it's a human life they're working with & can do so much harm by not being more thorough.

[@janiskirsteins7334]

Thanks Masha!!! You are helping to thousands of people to understand faster and in simply manner what's going on with them. Yours video saving time to find specialists before you have a diagnosis CANCER...

[@corinadaschievici1925]

You're absolutely gorgeous! I'm happy to hear you caught it early.

[@joevlogs1279]

Wow you have beautiful eyes!

[@user-nn4ei3iu3s]

Stunning

[@somewhereinthemidwest9827]

You are such a blessing! I hope that your future is bright and healthy!🙏🏼♥️

[@poonamsharma5732]

Loved your story. I related in many ways. I delayed because I never imagined that I could suffer from multiple myeloma. I never heard it in my life. I am a nutritionist and super healthy when this acute rib pain led to the diagnosis of multiple myeloma

[@laurent2523]

Sending you love and healing Poonam. How are you doing now/are you receiving treatment? X

[@poonamsharma5732]

@@laurent2523 thank you so much. I am recovering well after a stem cell transplant on 2nd September

[@MashaKutie0108]

Sending you well wishes! Hopefully your recovery is going well

[@greensage395]

I am at this point, having endured since 2019 with a myriad of Symptoms, now including this same position on my right side above the collar-bone (3 months). My Dr treated me as a Cold 2-month's following what seemed like the Flu, with Prednisone to Cover-up the itching, Albuterol to try to open my Chest (Tamponade for 3-months), and something to prevent coughing. It didn't help...and then she went with Blood Work that says I am perfectly fine, dismissing my urging that this is Lymphoma, as my body then processed my Brain to catch up and listen, it is talking to me! At this point I am furious, I feel she is not listening and is redirecting diagnostics so as to not know. Truly! All suspicions aside, the entire Medical Industry Lost their friggin' Covid Minds, as everyone was played! She ordered a CT-scan without contrast...and I demanded an appointment following for a Biopsy, but she doesn't want that...she wants to be in control and her Time seems to be endless. I screamed at her over my Symptoms that she is unable to address, and she threw the Referral at me, ...so I placed my Appointments in the manner appropriate for Lymphoma, one before the other, ensuring a more timely position. That damn Witch cancelled my referral and refuses the Biopsy until the CT-Scan is done, regardless of the physical presentations I am showing. She is Blind beyond her own need to be in control, and she is not a Healer, she is a Practitioner...with a Cauldron of Meds to offer up through Pharma, the Potion Makers! I am beside myself, I cannot sleep, my heart is in an uproar with Anxiety to the point I am fearful of having Life shoved out from under me! My heart races, the pain is uncontrollable except the relief a some anti-inflammatories and reduced activities. I am exhausted that my headaches have me seeing Lights..and yet, she is not listening, and not addressing anything...and her "Blood-Work" doesn't work. I am so Sick, and the World was Abused by this System, Killing people, Killing Livelihoods, Killing Common-Sense!

[@somewhereinthemidwest9827]

Where was your itching?

[@greensage395]

@@somewhereinthemidwest9827 I am doing much better, considering my situation. After 5 months, and going through Chemo and several inpatient stays, it seems I forget most of it. I wish I could answer that question, but I cannot remember. Probably a good case of Chemo-Brain, I suppose! Take care!

[@user-rf9kr9qu8s]

Маша, держим кулаки за тебя! И очень правильное дело делаешь сейчас!

[@SidneySmith678]

Thank you for sharing! You are helping so many people! I have multiple swollen left subclavicular left lymph nodes. I just had an ultrasound and the radiologist said they looked benign and it must be due to an infection. I haven’t been sick and I don’t have an infection. She said to watch and if it gets worse then come back. Like your story the lymph node is shrinking a bit now. I am watching closely because this is the same thing that happened to you. If the lymph node starts swelling again, I will go back and insist on a biopsy. Thanks again!!💕

[@TheInstigator1026]

Thank you for including all these details!

[@franciscachesca]

Hi, I am a new follower 😊. Thank you for sharing your story and warning us ❤. I really love the way that you speak, very peacefull and not very fast like most KZbinrs. Sending love ans strenght from The Netherlands❤❤❤

[@MashaKutie0108]

Thank you so much!

[@mistysedillo8954]

Thank you for sharing, your story is so relatable. I am stage 3 melanoma facing my second surgery the 7th! I hope your treatment is going well now! Wishing the best for you❤

[@my-4th-cancer]

good luck to youç

[@my-4th-cancer]

I hope you are all right. Take care

[@lisaschmitz5349]

I think I might have it as well. My story is pretty similar to yours. I changed my physician last week and now I'll have an X-ray of my lung on Wednesday. One of my symptoms is a constant cough and I have lumps on the sides of my neck. I'm scared.

[@MashaKutie0108]

Do not be scared! You will get through it and even if it is the big C - it is curable!

[@adamretschlag4665]

Thankyou for shareing your story ive just been told i have Hodgkin lymphoma and my treatment starts soon, its been a very scary emotional time

[@mamavonn]

Hope all is well! I dont know you but good luck! What were your symptoms?

[@adamretschlag4665]

@@mamavonn swollen lymph node on neck left side currently no other symptoms

[@MashaKutie0108]

If you have any questions about treatment, please feel free to reach out

[@adamretschlag4665]

@@MashaKutie0108 thankyou second chemo due today i have lymphocyte rich classical Hodgkin's lymphoma stage 2A. It's highly favourable for cure👌

[@mamavonn]

@@adamretschlag4665 its crazy how some dont have many symptoms. I had a core bippsy for lumps in my left armpit by a breast center...they said no cancer but I still was referred to oncology. Then the oncologist says his biggest ped peave is drs doing needle biopsies of any kind. Told me I have to have the lump removed totally to say for sure. So i spent 2 months waiting for this core biopsy and now it was worthless. Our system is so broken. The night sweats and weight loss is what the oncologist said is what makes him think it could be. I hope all is well with you! Keep your head up! Thank you for replying!

[@Fredrik7le]

thats some GREEN Eyes 😍

[@Brittoxo]

I get night sweats and have been feeling so sleepy and weak but my blood work is fine I know something is wrong but I’m getting the run around ;( I do have 2 swollen small lymph nodes in my neck and in my armpit i feel so defeated 😢

[@traciemarsh1611]

hi masha i wouldnt say you were finding excuses or yourself when doctors were saying you were ok and results were fine

[@user-hx6nt9ju2i]

I read that you can starve Cancer.Bee products mushrooms and curcuma also hepls .God bless you i wish you all the best

[@djidjine5082]

I’ve had a lymph node on the side of my neck for over 3 yrs but none of my doctors seem concerned. It’s not painful. Pretty much the same size but I’m just worried because I was not born with it

[@my-4th-cancer]

If the node is bigger than 15mm for longer periods of time, you might wanna check that out to rule out cancer. My first cancer was discovered that way. Take care.

[@Simou_drrm]

Thank for sharing if you don’t mind asking how big was your lymph node in cm?

[@clairebear1808]

My PC sucks and I will immediately change my PC!

[@ZlataMikhitan-uu6uo]

здраствуйте я уже без голоса почти 3 года и никто ничего не находит

[@shikha4682]

You are very beautiful..

[@alirezakashani7732]

FNA biopsy showed lymphoma? What was your lymph node size?

[@MashaKutie0108]

I don’t remember the size but it was in my neck, above the clavicle

[@jessm1638]

I’ve recently felt a swollen lymph node above my left clavicle about the size of an almond. Kinda scares me because lymphoma and leukemia run in my family due to my father’s exposure to agent orange in Vietnam. Been getting this aching in my right shoulder blade and on the side of my neck. I’ve decided to wait a month to see if the swelling goes down before I bring it up to primary. But hearing your story and symptoms sounds so familiar. Saying a prayer for you and your recovery. ❤

[@mirawojka]

Why wait?

[@leo0986]

Literally why wait? Just go now

[@jessm1638]

@@mirawojka because I wanted to see if it got bigger, but anyway I have an appointment this coming week with a cardiologist because I was having chest pains too along with high heart rate.

[@mirawojka]

​@@jessm1638around here it takes weeks if not months to get scans and biopsies scheduled. Better to catch it early if it's anything. I wish you well my dear.

[@jessm1638]

@@mirawojka thank you🙂

[@user-kq7ji1os2v]

I'm so excited Dr osuma ,about this whole stuff ,i mean i have been battling with fibrosis for some months now and been running arounds hospitals ,not until i tried using herbs and things changed for good !!

[@abhijitroy2388]

My stge 2 hodgkin lymphoma but treatment r relapse at that autologous stem cell transplant treatment r required

[@anglophils645]

Good luck with your stem cell transplant. I assume that you have already tried the targeted therapy, Adcetris (brentuximab vedotin). Adcetris is a fantastic drug. It completely cured my 86 year old father of Hodgkins lymphoma, and he had NO side effects from the drug. If you have not yet tried Adcetris, I suggest that you do. Then you may not need the stem cell transplant, which is a complicated process.

[@abhijitroy2388]

@@anglophils645 thank uuu 🥰

[@MashaKutie0108]

I am 9 month clear since getting my autologous stem cell transplant

[@NarutowhatappGamer2.0]

Where did you do stem cell transplant and what is the cost pls

[@my-4th-cancer]

I had this 25 years ago after my 2nd cancer. Back in the day one of the first in the country. Was in sterile room for 4 weeks. good luck.

[@galinajoy-mirabilisbridal2555]

❤

[@JJ-vy2rh]

If you get cancer lymphoma is one you want I'm a NHL lymphoma and bowel cancer patient

[@777sunshine7777]

My dr also told me this is the kind of cancer you would want (if you had to choose). I’ve done ABVD, radiation, target therapy, immune therapy and none of them worked for me.

[@laneykane8062]

🙏💖

[@mirawojka]

Did you have a solitary supraclavicle lymph node? I don't understand why it wouldn't be malignant before 2021. "Negative" ultrasound and blood work for lymphoma? That doesn't exist. They can only measure. I will pray for you Masha.

[@mamavonn]

They probably saw an intact hilum and not much if any corticol thickening. Those are the two characteristics of malignancy they look for. But now studies are showing it can benign or malignancy with those characteristics

[@MashaKutie0108]

I was told that if it was biopsied at the time, it probably would not have been Hodgkin’s positive. I was told that lymph nodes can be enlarged but would come back negative.

[@mirawojka]

​@@MashaKutie0108I had two inguinal lymph nodes excised and they came back benign. I also had a core needle biopsy on a cervical lymph node, also benign. Had a multitude of tests and scans and nothing. There were some groundglass nodular opacities on the CT that have gotten smaller. Also had a large mediastinal node that reduced in size. Have had these nodes enlarged around my groin and neck since September. It's like throwing darts at a dart board trying to figure out why. For a while I had all the lymphoma symptoms (night sweats, itchy body, incredible fatigue, fever, weight loss, shortness of breath etc) but most went away. I still have these unexplained calf and facial spasms. No doctor can tell me why. I wish you health.

[@mamavonn]

@@MashaKutie0108 just got told this by oncology. Said the core biopsy I had last week was a waste of time because 9 times out of 10 they miss the cancer. He said practice now should be removal of entire node. I keep saying it but our systemnis so broken and messed up! Thank you again for sharing your story. You brought me some brief comfort and seeing you thrive makes my heart happy even though I don't know you

[@nishailyasmir1854]

I was also diagnosed with hodgkin lymphoma on 22 nov 2023 and my treatment started on 28th of dec. I am so scared and feeling weak and dont know what to do as I am a student. I have to take break from my studies...any tips or suggestions will be appriciated

[@MashaKutie0108]

I am sorry that this is happening to you, but you are strong enough to get through this! Take it a day at a time, but take time off school because chemo does give you brain fog. Focus on yourself, seeing friends, family and just know that each day is a step closer to recovery!

[@lipss84]

Eat healthy no added sugars!

[@thomasranjit7781]

Was it after the Coronaa jab?

[@MashaKutie0108]

Nope! Wasn’t vaxxed when I got sick

[@thomasranjit7781]

@@MashaKutie0108 may God heal you sister, my heart is full of sorrow because of what you are going through 😭😭😭. I will pray for you. God bless 🙏🙏🙏

[@shamsoni]

I have non Hoskins lymphoma all down to 3 covid jab

[@meepk633]

@@shamsoni Great news. I hope your suffering ends quickly.

[@angyangy7968]

Ignorant doctors😢