My Cancer Journey with Adenoid Cystic Carcinoma

This video is about how I found out I had adenoid cystic carcinoma of my salivary gland and my experience. If you have been diagnosed here are some good resources
www.cancersupportcommunity.org/ find a local chapter they have so many amazing programs and support and it's all free, including free counseling and support groups, fitness classes, etc. It is an amazing place.
www.accoi.org they also have a Facebook group which is great as well.
Cancer.net (search adenoid cystic carcinoma)
Kellies krew offers financial assistance for people with Adenoid cystic carcinoma
Thank you for watching my story!

[@alicemoon-star367]

Hi Heather hope you are going well. I watched your video several years ago and found it the best one that talks about adenoid cystic carcinoma. My dear friend has the same acc too. He had a surgery in 2017 to remove the growth, but by 2019 it had grown back, so he had radiotherapy and since then the growth stopped growing (2021 now). He seems happy and healthy, doing well with life

[@debbramcfarland6071]

i was just diagnosed 12/19/17 with ACC and it was in my breast, i had it removed and it did not spread to my lymphnode, i suffer from deression, bipolar 1, anxiety and i have hyperthyroid, i am scared, they did genetic testing and my chances of cancer is extreamly high, i am going to be 55 and i have a daughter 35 at end of life she struggled with breast cancer for several years and my sister 49 also breast cancer just had both her breasts removed oct. 2017 and now my 30 yr old daughter has cancer of the uterus, i am trying to deal with so much at once and right now i feel like nothing is real, i have custody of my 10 yr. old grandson and he is enduring alot during this time, i am alone dont have family near by, i was hurt by watching your video , only because i felt for you, and you seemed so brave, now' i'm crying, but thank you for sharing your story, i hope that one day i am able to do so as well. with all my love Debbra McFarland , Wichita Falls Texas, god bless you honey

[@jayalexander9033]

Jesus!!!! I'm so sorry 😞

[@masterspeech]

God bless you. I'm sorry you had to "join the ACC club." I'm four years post diagnosis of Stage four. Neutron radiation. This year I've had two surgeries because it started growing again. I was strung along by doctors also. Good messages here. ❤️

[@amandamartin8788]

Heather, I too was diagnosed with the same cancer 7/5 and had my surgery 8/3. My doctors opted for me not to have radiation @ this time. When I received my diagnosis, I said " Lord let your will be done". And since then I have left it in his hands. I pray that now you are in remission and back in grad school. Blessings!!!!!

[@lorijod]

May I ask why did your doctors not opt for radiation? I am getting ready for my radiation soon.

[@ruthamaly]

Thank you for sharing your story, Heather. You are so strong and amazing. I was so touched by your story! Stay strong and please know that I am here for you for whatever you need. You're such a beautiful soul!

[@AngelaCancervive]

I was diagnosed with ACC of the soft palate in 2015 while I was pregnant with my daughter. 2 surgeries and 6 weeks of radiation later I am NED. I go in for my MRI results this friday. To see if I am still cancer free. I have also documented my journey.

[@heatherlind725]

yes I saw your videos which inspired me to make mine. When I was diagnosed i had no idea what to expect about anything and seeing someone who went through it was really helpful and reassuring. thank you for sharing!

[@nampijjabarbrah9505]

You were worked upon when pregnant or u first delivered ?

[@horstb29]

Thank you Heather, I just had my ACC Tumor removed and now I'm entering the phase of radiation. Your video was very educational to me, and I'm sure to many others, on what to expect during the radiation phase. God Bless

[@pranaynagarikar2089]

Hey Heather, Thank you so much for your valuable experience, I solute you for how you fought with your disease but i hope that my aunt would get this courage and ability to fight this cancer like you. Well you have cleared my so many doubts, I will prefer the best treatment for her, Thanks...

[@808dotter]

Dear Heather, I could hear and feel your nervousness in your video, and I am so empathetic for. Your post is ME except my pain began my right ear in early 2016. This January 2017, I was also diagnosed with ACC, and I have been overwhelmed and in-n-out of tears. I also feel nerve tingling in my salivary glands on the right side. My prayers are with you! Much Aloha from Hawaii.

[@aleksandrawolak8413]

Hi Kay, How are you doing? I am facing the same diagnosis. Any way I can contact you?

[@Shubham_68276]

hii, how r u doing now ? any updates@@aleksandrawolak8413

[@devotts]

Hi Heather, thank you for your video. I have recently had my submandibular gland removed as I also have ACC. My story so far is very similar to the start of yours and have been recommended to have radiotherapy. Your story will help me make an informed decision about it and your strength to get through what you have inspires me. Thank you xx

[@Shubham_68276]

hii , how r u doing now?

[@lesliegolwitzer7497]

I hope you are doing well today and things have improved. Thank you for sharing. ACC diagnosed May 2022 Scheduled for surgery end of June. 2022. I am overwhelmed with the diagnosis of ACC. Has turned my life upside down but doing my best everyday- waiting on more information after the surgery to decide what is next.

[@BrittneyGrace]

Listening to your story breaks my heart. You will forever be in my heart, held close. Please know you are loved, beautiful, and strong. I am inspired by you.

[@sey-unicabydoris5031]

Eres una mujer increíble y aunque estamos lejos te llevo en el corazón compañera!!!!!!

[@lauraschmitzer9629]

Hi Heather, Just came across your video about ACC . My mother just began her radiation therapy today. I was wondering if you had any sort of support from family or friends while going through all of your treatments? I hope that you are well on the road to full recovery ; )

[@militaina8599]

Thanks for sharing...I pray that everything will happen as you want. I am just starting don't know yet if I have a benign malignant but trying to get ready mentally for the news that should come in the next day or two. I don't think you can ever be totally ready until you know. Take care and again thank you for sharing.

[@Shubham_68276]

hope u r doing well now ? any updates

[@johnnakas6927]

Thank you

[@poonamkhatri3914]

Hey how are you doing now? Godbless...

[@pornstarlivesmatter3319]

my grandma has this and had nuetron therapy at northern illinois university fermilab alot of people are not told about this way to try to fix it so please anyone look into it.

[@kanmanikannu8825]

How r u sister.... prayers and love from India ❤

[@HollyWilliamswebcandy]

hello, how are you doing with the spot in your chest? i have this also and it metastasized to my sternum and now has spread to my spine and in my liver. i have undergone radiation and the largest tumor is shrinking. have you remained cancer free since this video?

[@startwins9204]

My twin was diagnosed with acc in her eye 7 years ago. We were 9 years old

[@Rockstar69000]

I have this cancer. I Was miss diagnosed several times also finally I got an MRI and they found it and I had 35 shots of radiation one and a half years ago I am still dealing with side effects and depression

[@MiguelVasquezJr]

Hope your well today🙏

[@Rockstar69000]

@@MiguelVasquezJr thanks so much

[@Shubham_68276]

whats ur exact symptoms? how r u doing now @@Rockstar69000

[@Shubham_68276]

@@Rockstar69000 whats ur symptoms exactly if u remember in any case

[@Rockstar69000]

@@Shubham_68276 before I was diagnosed? The right side of my face was feeling numb and my right eye was looking different. Now after radiation I have I end ear problems. Sometimes my ear drains a lot of fluid or feels pressure and my eye is blurry. I also have a damaged thyroid I’ve had to go to the emergency ward because of it

[@gowsika]

thank god we r fine ... I got Adenoid cystic carcinoma of the lacrimal gland ( tear gland ) I suffer from it.. I know how is the pain......

[@venkateshnaidu1530]

Please Goswsika ,I am also Adenoid cystic carcinoma patient I had 3 surgeries and again relapsed.please tell me where did you take treatment And about your experience please it would be helpful .

[@itsbiankababy]

What’s the update 6years later?

[@sandeephansdak314]

...and!...That may be because most of the time and circumstances, they themselves get confused as to what exactly is /are the problem with the "Patient(s)"!....?!.....

[@tymac3306]

I had my wisdom tooth removed last week. My X-ray showed a perfectly round white mass in my lower right jaw. I have had some issues with my salivary glands. My dentist told me he was sending my file to a oral surgeon, and he said he wouldn't sleep well tonight if he didn't. Now I'm nervous. How are you doing now(June 2018) feeling well?

[@jayalexander9033]

Jesus that is really scary...... I have a lump under my jaw on my left side that I'm finally chalking up the courage to go and get it checked after years of putting it off I'm really scared though

[@sandeephansdak314]

....and!....but, most "Doctors" as I have heard and observed, do not tell exactly what is wrong with their "Patients"!....?!....

[@jaytduce]

Hi Heather, I have had ACC since 2013. If you are interested in talking please let me know. Jay

[@aleksandrawolak8413]

Hi, is there anyway I could talk to you about diagnosis? My email is [e-mail]

[@jaytduce]

Email sent from my AOL account.

[@Shubham_68276]

how r u doing now dude?

[@charliemackey-lowe1889]

Oasis of Healing in Mesa AZ

[@maritkristianehauganwick7721]

My Sister is dying of this horrible desase 😔

[@jayalexander9033]

Sorry😞💔

[@Shubham_68276]

hope she is fine now, any updates ? does she is having it in submandibular gland

[@lizanne2504]

Heather. Talk to Jesus every day. Ask him to help you. He has more power than a whole city of people! He will heal you, he will comfort you, you will feel his presence if you just call out to him. He is the best comforter, he not only offers comfort and healing, he offers eternal life too! I will pray for you right now!! Blessings all over you! Amen!

[@Jesus.purple]

lizanne Amen

[@sandeephansdak314]

...and!...I have unique condition called "Vegetarianism"....!...Don't need to be "diagnosed"!....nor "treated"!......😃