My Esophageal Cancer

I was diagnosed with Esophageal cancer. This video was created to give my experiences with this cancer and the treatment process. My hope is that this video will benefit anyone going through this type of cancer or for those that are helping support someone who has this type of cancer

[@laurencebarber4152]

Hi I'm 73 now, back in 2009 I was diagnosed with oesophageal cancer and I went through most of what Jon has been through. After many tests and lots of chemo my oesophagus was removed in early 2010. It has slowed me down somewhat but I still do most of that I want to do. So if you think you have a problem swallowing then DO NOT WASTE TIME, get it checked out. I wish you all the very best.

[@LivegoodCreator]

I had stage 3 esophogeal cancer in 2011, I did chemo and radiation and esophogus removal. I am cancer free and healthy and I workout 5 times a week. I thank MDAnderson and Dr. Walsh for saving my life. The first year was a struggle but I did it and so can you, never lose hope.

[@younomehomie]

+Oliver slow praying for her :)

[@younomehomie]

anytime

[@LivegoodCreator]

It is serious I'm not going to lie, however the chemo stage will be very telling. I had 8 weeks of chemo and my tumor shrunk 70% this is a good sign. By the time I finished radiation I was tumor free but opted for surgery as well. We should talk again email me at [e-mail] I can give you the shot as saving her life but you be prepared for anything.

[@LivegoodCreator]

The apricot doseage should be 1000mg a day. It comes in capsule form, it delivers cyanide to the cancer cell without harming the host.

[@NehaSharma-xp6wy]

Hi,hope you are doing well.. My mom has been diagnosed with the same cancer..Doctor told to do surgery and will remove her esophagus,please advice me how things could be better?

[@robin52164]

I'm so glad I found this. My husband was just diagnosed. He just turned 60. This gives us hope.

[@GhostTownBand2008]

Hey everybody, this is Jon. I am SO very sorry I haven’t provided any kind of update since I posted this video. So here’s the kinda short version. :) I have regular treatments still (see treatment update below). My life is almost back to normal, but I am not officially cancer free (explanation below). But I’m still working a normal schedule, still playing with the band, and still have my hair. ;) My family is doing well and have adjusted to my ongoing treatment schedule. I am pretty thankful for where we are now. ABOUT SURGERY I did not opt for the surgery to remove the cancer from my esophagus (esophagectomy) and effected lymph nodes because it was too dangerous to get to the lymph node in my collar bone AND because I couldn’t bring myself to do it because of the stories and videos of the struggles. MY CONTINUING TREATMENT Because I chose not to ** Every 3 weeks I go to the treatment center for an infusion of Herceptin (30 minute drip). I arrive, the medical staff takes me back, gets my vitals, accesses my port, and draws blood. Then the lab runs a series of tests and then I see my Oncologist after they review my blood test results. ** After my infusion of Herceptin, I pick up a prescription of 35 pills called Capecitabine (Xeloda). And for the next 7 days I take 5 pills a day (3 in the morning, 2 in the evening. The treatment never makes me sick (I feel very normal and no lack of energy).

[@user-gw2zn9qk7g]

Well done Jon ! Stay strong you can beat this cancer, you will beat it !

[@CLARKSIFICATION3057]

Its sounds like your on the road to recovery. I was truely touched by your testimony. I admire your bravery in describing the journey you have been through. Thank you! for sharing. As I listened, there were so many similarities in my journey as well. same age, when diagnosed , same treament plan (same fanny pack, but for 5 days straight, for 4 mos).Only thing is im a female in a male dominated disease. And surgery was not an option for meas well. My tumor was located near my vocal cords, upper 3rds. After 40 radiation treatments, chemo and dialations ending in Oct 2016, im officially in remission. However, my swallowing improved only to the point where i have to blend or puree all my foods. Im not out of the 5 year danger zone until 2021. Just trying to live my life as normal as possible; workout, eat right, sleep, enjoy life, and count all my positives. again, thank you for sharing your story, I will continue to think of you in my prayers. Knowing im not alone in this is comforting, Keep fighting everyone stay strong! treasure every momment, Love Life, and it will Love you back✌

[@nnpatel44]

GhostTownBand2008 , wish you a very speedy recovery and lots of prayers for you and family. i am 33 years old female, having pain in the leftside of chest/ throat area while i swallow food. It feels like lot of pressure towards my heart while swallowing. I had gerd for over 10 years. I never had heart burn but i am constantly feeling like i need to clear my throat and hoarseness in my voice. My doctor send me home with proton pump inhibitors treatment for 2 months. I have started taking medicine but still feeling the same way when I swallow. Did u had any of the symptoms? I am very scared right now. My doctor doesn’t want to do endoscopy. I am afraid that waiting longer will not be good if i have cancer. But right now I don’t know. I am not able to understand that without doing any scan/ endoscopy, we will not know. 6 months ago also i went to my doctor for acid reflux, headache and cough feeling in my throat but they said it’s allergies. I hope it’s not too late to get proper diagnosis. We would like to know how r u doing? Please reply. Thank you

[@deepaknaidu5]

@@CLARKSIFICATION3057 How are you doing now? I hope you are doing good

[@crazymeee]

Please keep us updated 🙏🙏🙏

[@rje2545]

I had esophageal cancer in 2000. The first surgery failed and I ended up with multiple pneunomia and had several operations to save my life. I lost my stomach and what was left of the esophagus. I could not eat, drink, talk and move. I was airlifted to St. Louis U hospital. They restored me to health and eventually made me a new esophagus with my own body parts. I spent 8 months in the hospital. I did not need chemo nor radiation nor any meds. Now it is almost 2020. I had no symptons and cancer was found by routine exam. If you have any problems or suspicions get help. Wonders happen every day.

[@meriembtl5653]

😿 God bless you, they told my dad that surgery won't work, we are at the bottom of depression 😢

[@arymhansie]

Glad that you are okay!

[@bhuwanbhatia7845]

@RJE glad to hear about you👍 My farher has been detected with Adeno Carcinoma around 2months back. They say that it has not spread to other parts and has grown to 2nd stage in the lower esophagus.. He has been advised to undergo 4 rounds of Chemo before the surgery. We have already undergone 3 rounds. Soon to start the 4th round. Is there anything we are missing or some other option we can seek?

[@35.pratibha.badiger18]

@@bhuwanbhatia7845 same situation happening with my father . How is your father now . We did one chemo still 3 remaining .

[@daybyday0731]

What kind of routine exam ,if you do not mind me asking?? Did your primary doctor find it or a gastro dr?? My esr rate is pretty high but that is because the Dr. Believes I have arthritis but according to google I mimic so many autoimmune disorders....Thank god you are okay ☺️🙏

[@christineb.1043]

I hope you are well, John. Thank you so much for posting this!! Sending you, your family, friends and health care workers love.

[@simonstacey9093]

Thank you for sharing your story, it has been a really great help to me.

[@sewsewsewist785]

Wow, what great news! So happy for u and your family!

[@t.wil.9646]

I had chemo, radiation, and surgery for esophageal cancer last year. It was stage T2b. So far the scans do not show cancer anywhere else. Getting over esophgectomy surgery is hard and I am still having trouble eating but i am still alive. Anyone being diagnosed now with esophageal cancer i want to say DONT give up. You can do this!😀

[@13Grneyez]

I’m so happy the cancer didn’t advance, I hope you’re doing great🙏🏼☺️

[@dorothybutler648]

Prayers for you. I hope you are now cancer free. I am a 62 yr old female, newly diagnosed with stage 3 esophageal cancer. Lucky for me it is local. I will be starting chemo and radiation in the next week or two then surgery. God bless

[@dianepeker]

Thank you for this important and moving video❤️

[@rsykesjr]

Jon I pray that you are continuing to do well with your recovery and thank you for taking the time to share your story on this video. A young man in my community has just been diagnosed with esophageal cancer at age 36. Your story offers people like him hope and encouragement. Thank you again and God bless you.

[@pepperanne5927]

thank you so much for sharing, I pray you are now cancer free.

[@jennylynn6862]

I'm 27 and mother of two children. just found out I have throat cancer. I been having swallowing problems since I was in 6th grade. But I'm my early 20's I started losing weight and couldn't eat. I worry about my children if something was to happen to me. I pray you get better.

[@iq-ray6653]

Jenny lynn you ok now ?

[@louismeddevera4595]

are you okay now?

[@deanwinchester7649]

I hope you still with your kids hun❤️

[@beckyweaver5981]

Jenny lynn Are u better now? Did u smoke?

[@Allienal]

Are you there still

[@alexanderg1935]

Thank you for the video, really hope you're okay and feeling better.

[@elsakristian5713]

Thank you for the wonderful video, many hugs.

[@AjaySabharwal1]

Thanks Jon for sharing your brave story and I am sure it will help many to wage a fight. God bless you and your family.

[@anth1945]

God bless you. I am having one more round of chemo. Then a PET SCAN. Thank you for this.

[@Theclubmanone]

I'm just in the first part of figuring out what is needed for my esophageal cancer, and this really helped me and surgery may be in my immediate future so I will be checking back and thank you for sharing your experience, and wishing you only the best outcome.

[@nickywilks7928]

I hope you are still ok John.

[@MegglesEST1983]

He is doing great

[@nickywilks7928]

@@MegglesEST1983 great to hear. Thank you.

[@cherryapple10]

Thank you so much for sharing your story. Our family are going though a very similar situation. Hope you're well xxx

[@nicholaswilliamobrien2451]

Thank you so much for this video.

[@anth1945]

I am in this fight at 43 years old. Thank you for this .

[@sheryfhabib4060]

Hey man u still with us

[@Allienal]

You still there man

[@rhettablevins7853]

my dad was diagnosed recently, we are so worried and really confused still. thanks for your video.

[@DaveSeavy]

I've just been diagnosed, and I thank you for this video. We're waiting for the final path report to know how advanced it is.

[@louismeddevera4595]

hmmm how are you now Sir?

[@meriembtl5653]

... 😿

[@daybyday0731]

Dave are you okay???!!! 🙏

[@daybyday0731]

@@meriembtl5653 😩

[@kamaljitjassar3123]

Thankyou for your information on this and my husband on stage 4.

[@grandmabenny2283]

God bless you just going to find out what my next step is always going strong thank you so much for sharing god be with you and your family 🙏🏻💚

[@vezokholuvenyo4984]

Is he still alive?

[@TomMarkz]

Hope your doing alright. Stay strong.

[@cherrycain6425]

God bless you. I was diagnosed with Stage 2 Esophageal cancer in August of 2014. I had a thumb sized tumor where my esophagus connects to my stomach. I had chemo and radiation until December of 2014. Then in March of 2015 I went through an 8 hour surgery to repair my esophagus and stomach, which were worn out from all the years of trying to work. I had been diagnosed with a hiatal hernia back in 1980 when I was 12 years old. We chose at that time not to have surgery because of having to go back every once in a while to have my stomach dilated. My stomach is about the size of a half dollar or alittle bigger. I had the chest port and a feeding tube for months. I am happy to report that I have been cancer free since March of 2015. But, I still suffer from fatigue. On top of the cancer I started going through Menopause. I take potassium for the fatigue and various medications for anxiety and depression. I still follow up with my family doctor and my oncologist. My family doctor tells his student doctors that I’m his walking miracle. The only thing that truly bothers me is that I have to watch how much and when I eat because I suffer from my food backing up and going into my lungs.

[@aplainjaneproduction8285]

I am so glad for you that you are now cancer free! I have a question - did they connect your hernia to the cancer at all? I have one too (6 years older than you) and terrible acid reflux and heartburn for many years now. Getting an endoscopy tomorrow.

[@cherrycain6425]

@@aplainjaneproduction8285 They really didn’t say. But, they did tell me if I hadn’t stopped smoking the year before that it would have been twice as bad.

[@aplainjaneproduction8285]

@@cherrycain6425 yes, I have heard that smoking can cause it, too. They found heme in my stomach that they biopsied but haven't heard anything yet.

[@daybyday0731]

Cherry praise God...I will soon find out if I have it...my esr rate is double what it should be but that is because I have rheumatoid arthritis...but I have pituary gland issues... question: before you started menopause ,back when you were going through it, did you sweat for no reason?? I move from my bed and do light cleaning and I'm drenched...just curious...So happy you are okay ☺️❤️

[@cherrycain6425]

@@daybyday0731 I did sweat a lot. It was cold and my ex would have a heater going and I had a fan on me. I would fan the covers back and forth all night. I was miserable.

[@margaretsroka1608]

My father passed away from this less than two months ago. In the time he was diagnosed, and how fast everything progressed, I never really understood, and mostly focused on the awful stories. Listening to you talk, I heard and saw a little bit of my father. Thank you for that. I hope you're doing well.

[@geo745don]

sorry about your dad, how long did your dad live after diagnosis

[@margaretsroka1608]

geo745don 11 months

[@chrisrousseau1984]

I have had gerd fot 14 years. recently I started passing blood in stool and vomiting occurred with blood a couple of times. upper GI stated he couldn't see anything cancerous but has severe red inflamed esophagus, stomach and small intestines with bleeding. long story short I am still having issues with passing blood and sensitive stomach. acid has been getting lungs, throat and sinuses and causes constant clearing of throat and some hoarseness. I am a veteran so I requested a second opinion. first dr seen a few months ago was a private medicare doctor. Thank you for sharing your story. god bless you and your loved ones. prayers that you beat this. ❤

[@yensyher8048]

Chris Rousseau did you ever find out what it was ?

[@torontokat54]

My 36 year old son just had an esophagectomy done in May. It was an 8 hour surgery where they also removed 28 lymph nodes. He is having a really hard time emotionally, physically and psychologically. I am heartbroken for him. He is so young as you were when diagnosed and didn't meet any of the criteria of the usual patient with esophageal cancer, with the exception that he has been suffering with acid reflux for years. He has never been overweight, doesn't drink and doesn't smoke and lives a very healthy and active lifestyle. Now he is continually fatigued and breaks down easily. He has a girlfriend but has never been married and does not have children. He is my youngest child of 5 children and his siblings have been very supportive. Your story is encouraging and your spirit is comforting. Thank you for sharing!

[@yensyher8048]

torontokat54 how many years did he have reflux for? And was he ever treating it

[@oliviaonyi5139]

@@yensyher8048 I need same answer, because I'm have same problem acid reflux for 1year and nothing is working for me

[@oliviaonyi5139]

@@yensyher8048 I'm really very sacred,😭 please do you know any treatment please

[@yensyher8048]

@@oliviaonyi5139 I take pantropazole

[@oliviaonyi5139]

@@yensyher8048 I took it too but didn't work for me

[@njsongwriter]

My wife's sister was diagnosed with this about three months ago. She was put on a strict modified keto diet with no dairy, no sugar etc. She has lost close to 70 pounds and her swollen lymph nodes have shrunk. She recently added ozone treatment to her protocol. No chemo. No radiation. No surgery.

[@13Grneyez]

how is she doing now? I hope great.🙏🏼

[@Myworldmymind908]

Wow AMAZING testimony ! How is she now ??

[@efernandez8144]

How is your wife’s sister??

[@luketalks8086]

God bless with great health ahead

[@BuiltUponARock1]

I don't typically respond to youtube posts but my father was diagnosed with esophageal cancer on November 25, 2015 (two days before my birthday). Surgery is not an option. They have decided to commence chemo and radiation therapy. If there is a silver lining here we were advised it is stage 2 (b) and localized. Initial reports suggest lymph nodes have not been affected and no signs of spreading. Has a heart attack patient 8 years ago (double by-pass) they are taking all factors in to consideration. I appreciate your candid sharing of your experience. Thank you.

[@deborahgrasso301]

My husband was diagnosed in June 2016 with stage 4 Adenocarcinoma of the esophagus along with lymph node infected. Surgery was not on the agenda however after chemo and radiation the tumor has shrunk from 15.6 to 1.4 and now surgery is going to take place. Your story is exactly how my husbands went down like looking in a mirror.

[@meriembtl5653]

How is he now?

[@daybyday0731]

@@meriembtl5653 let's pray Deborah's husband is doing well...looks like we both struggle when we see there are no updates 😟

[@santhoshlg]

God bless you. Take my hat off to you!

[@davidhrinzjr6820]

Thanks John my wife was just diagnosed stage 4 thanks for vid

[@louismeddevera4595]

what happened to her now?

[@deepaknaidu5]

Hi Sir, is she doing well now?

[@ManiKanta-jp5vl]

Reply sir

[@flamethrowercandle2354]

Sorry.

[@daybyday0731]

David is she okay?? 🙏❤️

[@afrozakhanam9684]

My mom passed away because of this cancer,she couldn't eat more than one year not even drink water.last year 2june she' passed away..I'm praying u will be all right

[@ginawhittaker2585]

My mom has been having trouble swallowing and has had hoarseness for 6 months. The doctors kept telling her she had allergies but they did nothing for her. Recently I took her for a swallow test and the doctor said she was aspirating her food and drink but they don’t know why so I have to take her for more test. Were you also hoarse or just having trouble swallowing?

[@saadiasalmi5445]

Thank you for posting this, that give me hope...i was diagnosed with same in novembre 2021 my fist symptoms hars swollen food... now i juste finish chemotherapy and radiation 10 days ago il feel very sick this week waiting for my surgery with doctor attorki at prespertarian hospital hope everything be good....hope you good.

[@sumboocasper360]

I developed barrotts esophagus and had the Nissan Procedure yrs ago. There were pre cancerous cells in the esophagus.

[@michaelbryant7618]

Hi Jon. Can you let us know how things are going?

[@Xena-xp7ly]

Did you also cut out sugar from your diet?

[@humanity941]

i get regular check ups as i have bad reflux and gerd i keep on top of it

[@phillydo4764]

thank you for sharing. My mom is diagnosed esophagus cancer. We lose our dad 6 months a goes and we worry that my mom can not handle chemo due to her age 61.

[@meriembtl5653]

How is she now?

[@undercoverbrotherpro2a282]

I have Barrett’s esophagus I just had a biopsy 3 months ago the dr seen a suspicious area but the test came back inconclusive so now I’m scheduled for my second biopsy in a couple weeks fingers crossed 🤞. Thank u for ur video.

[@rl8087]

What were your symtomps ?

[@undercoverbrotherpro2a282]

@@rl8087 difficulty swallowing and acid reflux

[@yfa6244]

What was the outcome?

[@TheSjh196]

You have any updates?

[@patyc2149]

John, are you oK?? is been 2 years since this video and no news from you, please let us know :(

[@daybyday0731]

I hope he is ok 😟🙏❤️

[@sharonjenkins1959]

My youngest brother was just diagnosed with stage IV esophagus cancer. It’s been a blow to the family. I pray that everyone is getting better. I would like to know what happened to John since his video. I’m thankful you all are sharing your stories.

[@sweetscience1]

Prayers for your brother. There is hope. Looking at his band's fb profile, John appears to be a long time survivor!

[@Sophia-pg9td]

How is he going to make this video and don’t give any updates 😢

[@hamhead8650]

I love you man

[@tilyhere3770]

pray for me. l have hiatus hernia with gerd and gastroduodenitis

[@danielryan9076]

Will do. God bless.

[@PinkPanther70]

I had my hiatus hernia fixed. It's called a nissan fundoplication procedure. Some people have problems swallowing afterwards, so be sure to find a good surgeon if you opt for surgery. I don't take any PPI's anymore. Taking these drugs long term have side effects like dementia and not taking anything increases the risk for cancer. Good luck to you.

[@Aliali817]

May God bless you with health.

[@cherrycain6425]

Please keep a check on it. I let mine go for years and ended up with Stage 2 Esophageal cancer. Been cancer free for 6 years now.

[@daybyday0731]

Lord I pray for health and healing ❤️🙏 Keep us posted...God bless you!!

[@semperfi-1918]

My grandfather passed away in 2020 from esophageal cancer. By the time he got things figured out he couldnt eat from thanks giving to march the next year. And i do have permanent gerd. I just was found barrets esophagus as well as a node in my colon. Im also iron deficiency anemia. Hopefully this comes back clean.

[@zackcam26]

What doctor advised about Barrett?

[@joshuajohnston8452]

Hope you are doing well now sir !

[@Emmet72]

I was diagnosed w Barretts 2 years ago. thankfully no changes as of yet. I know that can change. it's all pretty scary.

[@giselleperaza5918]

Bob Emmet I heard of a treatment for barrett's where they freeze off the spots and the tissue that grows back is healthy and normal. I don't remember what it's called but maybe you might want to look into it.

[@daybyday0731]

@racism.blogger.com ❤️🙏I hope so..😟

[@zackcam26]

@@giselleperaza5918 I had done cryo to freeze the tissue. But now traped into lifelong discomfort. Don’t know why it is like this?

[@landon.cunningham]

Are you still with us Ghost Town?

[@Sarah33Kaufman]

Thank you for this video. Would you please give us an update about how are you doing? God bless your heart for putting this video out. My fiancé has esophageal cancer and I’m trying to find out more about it. Even with in weeks of chemo and radiation he still not able to eat and I’m very concerned.

[@daybyday0731]

Elaine how is he doing? I pray he is doing great!! 🙏

[@jacobsjungle5676]

RIP john

[@phalailes3350]

Did you have diverticulitis?

[@kkdoc7864]

Phala Iles That is in the lower left colon around sigmoid, not anywhere near esophagus and not related at all

[@jameshilton9255]

How are you right now... God bless you.

[@angiek7614]

my husband is now going through exactly the same thing...how did the surgery go?

[@daybyday0731]

Angie how is he doing?!

[@kristenfuller9168]

Im scared my boyfriend may have this because today he felt food stuck in his throat last night he choked on meat 😔 in felt like sense yesterday 😔 feeling scared 😢 feeling worried and scared

[@kristenfuller9168]

@Busty Blonde Beach Bunny oh his appment on the 29th of July of we he said there gonna put a camera down his throat to find out whats going on cuz he had food feeling stuck in his throat it seems fine now cuz doc give him strong pills that really helped he still has that appment still its better to be safe then sorry cuz you never know what he could of had and cancer is scary it grows fast. I looked up esophageal cancer on Google and had readed the throat feeling with food stuck in throat and that what boyfriend had so i got scared and started crying almost

[@area859]

@@kristenfuller9168 how did things go

[@kristenfuller9168]

@@area859 he good. No cancer. But cancer still sucks and so hard to get rid of

[@yensyher8048]

Kristen Fuller wat did he have?

[@daybyday0731]

@@kristenfuller9168 Wow..praise God!! Did they say what it was??

[@bluebonnet6524]

2:33 May 4 2023 interesting and helpful

[@chadwick283]

❤️❤️❤️🙏🙏🙏

[@melissavidal2600]

😪

[@ventureelect]

Sure the hell is a bomb.

[@smcfall2]

I have no one...

[@Oma788]

I’m so sorry ❤