My Eyeballs 

Hello! For those who do not know, i have a genetic condition known as Leber’s Congenital Amuarosis (LCA). This vlog shows my trip to the Children’s Hospital Of Philadelphia (CHOP) when I do a clinical trial follow-up as I am apart of a gene therapy clinical trial known as Luxturna.
We ask that you please like and subscribe!
Videographer: Nomi Maqbool
Editor: Nomi Maqbool
Starring: Nomi Maqbool, Brandt Parlanti, Dr. Gean Bennet, and Dr. Albert Maguire
Please note: These videos ARE NOT made for children. Additionally, everyone in these videos have given there consent to be in the videos.
Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted.
"Fair Use" guidelines: www.copyright.gov/fls/fl102.html

[@CookingWithTheCarrolls]

So great meeting you Nomi 😊 Thanks for taking us along for the trip

[@celestialoutbreak4016]

How many times have you broke a phone? 😔😢 3:26