my journey with tikosyn dofetilide

Рет қаралды 2,430

Күн бұрын

hospital stay and first 5 doses of tikosyn. after 10 years of afib i tried 2 cardio versions and an catheter ablasion and lots of meds but still couldn’t stay out of afib
so now i’m trying tikosyn. i was afraid to take it but my doctor said it was my best hope. and this is my journey

Пікірлер: 35

@JmPizzle1 Жыл бұрын

Keeping you in prayer for sure!

@cookingwiththeword5300 10 ай бұрын

thank you so much

@loz911 Сағат бұрын

YOU HAVE TO BE IN THE HOSPITAL TO BE STARTED ON IT. MY HUSBAND WAS DOING OK UNTIL THE THIRD DAY AND THEN THE TORSADES DE POINTES HAPPENED AND HE GAD TO BE TAKEN OFF OF IT.

@daylight4455 4 ай бұрын

I been suffering with AFib since 2020, I just had Open heart surgery on July 1, 2024 for Subaortic Stenosis,also Aortic Valve Stenosis!! I went back to the hospital due me going into AFib again for the 3rd time since surgery. The last time I went into the hospital was July 13, 2024, the put me on Dofetilite 250mg, it was to strong and I was having shortness of breath really bad, they lowered the dose to 125mg and monitor for five doses and I didn't go into AFib,so they released me today July 18, 2024 . I got home today and started having AFib,but it stopped thank God. I took my night dose,but I'm so nervous, because the can't do an EKG since I'm home. Please pray for me and I will definitely keep you in prayer as well. Thanks so much for sharing your story with us. God bless you and everyone connected to you.

@cookingwiththeword5300 3 ай бұрын

this has been the best thing ive done

@qfdforme 11 ай бұрын

Was on Tikosyn since 2016. Worked great until I missed 3 days in row. Afib came back. I am back in the hospital this week for another reboot of Tikosyn. Blood INR (I.e., blood thickness) wasn’t thin enough and it took a day to get it that fixed. First dose of Tikosyn was 9PM yesterday. Still in AFIB (but better) at 2AM as I write this. Tomorrow is TBD next steps to adjust Tikosyn dose. It took me three days to dial in Tikosyn the first time.

@cookingwiththeword5300 11 ай бұрын

pray everything works out for you

@jhaslock 5 ай бұрын

Glad the meds are working for you. I too have had afib for about 10 years. Had 3 ablations and have been on the same meds for years. A couple years ago I was going through, what felt like, non stop afib issues. Seemed like I was in ER ever couple months. On a road trip I was admitted to hospital in a rural part of Illinois. The cardiologist came in a said to me "how long are you going to be a fat ass?" Now this blew me away at many levels but it did get me thinking. Is he right is my weight part of the problem? How can I lose weight without being able to do cardio without going into afib as a result? After about 6 months of diet changes which included giving up most carbs I started to drop the weight without exercise. I gave up potatoes, bread and fried foods. I went from 225 lbs and 24% body fat to 165 lbs and 16% body fat. It really helped me get control of my body and life. I just wanted to share this with you and hope the best for you in your journey.

@cookingwiththeword5300 5 ай бұрын

thank you so much i hope you continue to stay healthy

@timothysimons9615 7 ай бұрын

You and I seem to have had a very similar journey. In my case, I have had 7 cardioversions, 2 catheter ablations, a thoracic convergent ablation and mapping and have been on serveral meds including Sotolol. My sotolol drug load was almost identical to your Tikosyn load! I was doing so well about a year and a half after my convergent procedure that my cardiology team thought I should stop the Sotolol. After being off it for about 4 months afib raised it's ugly head again! So I will be admitted this coming Tuesday, April 9th and will load back on the Sotolol. I wish I could have remained off of it because like Tikosyn, it is a dangerous medicine. But we would not have known if we had not tried. I hope your journey with afib is done and that you can remain out of it. Blessings!

@cookingwiththeword5300 6 ай бұрын

i really hope it’s goes good. please keep us updated

@Appalachain_Movies 4 ай бұрын

Im glad it helps. You even look better .Younger.

@joeysheremeta4771 8 ай бұрын

Thank you for this video. I also struggle with Afib and I am going in for tikosyn in a few days so I am researching as much as I can.

@cookingwiththeword5300 8 ай бұрын

Glad it was helpful!

@cookingwiththeword5300 8 ай бұрын

i am still doing good with it. i hope the best for you

@yankeeuk1 Жыл бұрын

Great video, appreciate it. I'm 57 year old man, I've had afib 30 years. I'm in the hospital now. I'll be taking my 2nd dose tikosyn in 2 hours. Still abit nervous. Glad it's worked out for you!

@cookingwiththeword5300 11 ай бұрын

hope everything works out. i’m still doing good

@yankeeuk1 11 ай бұрын

I came off tikosyn, made me very bad. I had a second ablation, and now feeling great!

@garygnip4480 7 ай бұрын

Thanks for sharing your experience. I am going in on April 18 for the same procedure due to a-fib and tachycardia. Glad you ae feeling better.

@cookingwiththeword5300 6 ай бұрын

You can do it!

@ldydi00008 2 ай бұрын

I went on Tikosyn on the third floor this month. I’m in normal rythm

@ken-NC 10 ай бұрын

Congratulations. I’m on it also and having good results

@cookingwiththeword5300 8 ай бұрын

its a game changer for sure

@gondwanalon 6 ай бұрын

Thanks Mike!

@cookingwiththeword5300 6 ай бұрын

you are welcome

@ldydi00008 3 ай бұрын

How are you doing after all this time. I’m suppose to go in Sept to try the Tykosen.

@cookingwiththeword5300 3 ай бұрын

im doing really good i havent had a problem since

@DashRiprock-m3b 11 ай бұрын

Suppose to go in for this procedure in Jan 2024. I couldn't see due to camera close-up but did you have tubes running into your arm or just the sticky pads on your torso for the EKGs? Also, my doctor said I'll still have to take my blood thinner med (Eloquis). Bummer cause when you hit the donut hole on Medicare, it costs some bucks. Hope everything is still working out for you!

@cookingwiththeword5300 11 ай бұрын

just the ekg stuff and iv on my hand for emergency

@cookingwiththeword5300 11 ай бұрын

so far so good

@DashRiprock-m3b 11 ай бұрын

Sounds good,@@cookingwiththeword5300. I've been in permanent A-fib for a long while so my doctor says this could be a three part procedure. #1 is the tikosyn, then ablation if needed then cardioversion if more assistance needed on those two. Reckon we'll see one way or the other.