My Leukaemia Symptoms | Patient | Doctor | Leukaemia | Cancer

Here I share the details of my own cancer diagnosis and what symptoms I experienced. I also discuss some of the more common cancer symptoms that are known to occur with leukaemia.
Let me know down below what your symptoms were!!
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[@jenniferp6545]

I was diagnosed with leukemia and am a doctor. My overt symptoms were bruising, lethargy and fatigue (had to nap every afternoon), mid day headaches with light headedness, seeing stars, and could not think. The leukemia resulted in lack of oxygenated blood supply to my head. My original oncologist said it was not related. But it knew it was. One year later and with treatment that has cleared up. 11 more months of chemo to go! Good luck to you!

[@JMuneyBag]

I feel all of this

[@kacperiscool]

My daughter, 6 years old, was diagnosed with AML four weeks ago. Her symptoms were high temperature that didn't go down after paracetamol , pain in her neck (swollen lymph nodes ), no appetite. After first doctors appointment she was sent home and been told its a viral infection. I spoke to a doctor every day for four days, hearing the same thing. On the fifth day I took her to A&E , demanded blood test. Next day we knew it was leukemia. She supposed to start her second cyckle of chemo tomorrow, but its to ill to get it. Unfortunately first cycle and adenovirus in her blood plus mucositis caused swelling in her upper airways, followed by pneumonia. For last two weeks she needed support of a ventilator and finally getting better. I forgot to add , that while being sedated and taken to a theater to have her Hickman line put in, she suffered a cardiac arrest. That happened during first cycle of chemo. I really hope that one day i will see her talk about this terrible experience, the way you do. Anna

[@AK-zw3yz]

Oh! I am so happy for u. I am an elder sister. I have a younger sister. She has some weird symptoms. Idk what doest it mean. 1) light headed 2) tired & weakness 3) coughs and flu 4) nose bleed 1 time (gum bleeds) just a little bit 5) today she has a unbearable pain on her teeth,ear & arms. But I said my mom about it & she doesn’t care about it. She wanted to say I am much hypochondriac. Basically I am so much obsessed with my sister. Maybe I love her a lot

[@ushaanand2450]

How is your daughter same symptoms my28 year old only son died due to lukemia aml Chemotherepy 2 nd cycle we lost our son due to infection before this discese he was very healthy no any bad habits how he got this discese we lost our only son last year till today we parents suffering lot without our son

[@bohochic2459]

I am so sorry for all that your precious daughter has endured. My heart breaks for you and with you. You are an amazing Mom! You never gave up and made sure your daughter finally got the tests and help that she not only needed, yet deserved! Those doctors should be ashamed of themselves! I hope they were made aware of how reckless and downright careless they were with your daughter's life. Thank goodness for you! I am holding you, your daughter, and your family in my thoughts, heart, and prayers. Sending heartfelt healing hugs, blessings, and loads of love. 🦋👼🕯✨️🙏💙

[@desiertoscacti5388]

I hope your daughter heals soon and later in her life be able to share her own experience, being strong and restored!

[@denniscortes9048]

How is your daughter now? I hope she is doing better. Much love to your family.

[@brianvolpe3242]

I was just diagnosed with MDS about two weeks ago, I had many symptoms for months but chopped it up to working to hard until I started getting really dizzy a lot, sharp pains in my legs and joints, heart palpitations, muscle spasms in random places, tired all the time, persistent ear infection. All’s I know is I’ll need a bone marrow transplant but have yet to speak with cancer specialists. Health care system in the US is very expensive and extremely slow!! I’m glad I’ve found your very informative videos… thank you!!

[@TylerBlah]

All my strength to you Brian in these next stages 💪 Hope my videos can help you with any questions or concerns you have, and always feel free to pop by 👌👍

[@brianvolpe3242]

@@TylerBlah I’m finding the best medicine is HOPE and your journey has definitely administered some to me free of charge!! Keep up the good fight my friend, your an angel that walks among us!!

[@howphancy]

Did you happen to have radiation before your diagnosis? My paternal grandfather had MDS caused by radiation. But if that isn't the only case then I wonder if that might be what I have. My maternal grandmother died from Polycythemia Vera, so I'm concerned I'm susceptible to blood cancers from both sides of my family.

[@Unknown21312]

Your symptoms sound like mine. I haven’t had blood work done yet, but the symptoms are getting annoying to deal with. Fatigue I take so many naps.

[@andrewgarcia7405]

I began having flu-like symptoms and severe night sweats at night. Went to the doctor and was told it was a cold. The sickness persisted for another week then was told I had to get a blood test done. WBC was high, later that day I was diagnosed with cancer. A week later it was ALL. Went through chemo, and took desatinib and went into remission 6 months later. Cancer came back 3 weeks later after going into remission. So now I’m scheduled for a TBI with a BMT next month. I’m just heartbroken, seeing your videos really gives me hope, thank you.

[@TylerBlah]

Hey Andrew, sorry to hear you've been through all of this. Its extremely difficult, no other way to put it. Have you had the BMT yet ? All my strength to you for this recovery! Im glad the videos gave you hope, I am always here to chat and support in what way I can!

[@bohochic2459]

Andrew Garcia - Hoping that you are as well as possible. Checking in to see how you are. Sending heartfelt healing hugs. 🦋👼🕯✨️🙏💙

[@andrewgarcia7405]

@@TylerBlah I did have my BMT. 10 months out and feeling great! So thankful for the wonderful hospital staff and God.

[@andrewgarcia7405]

@@bohochic2459 thank you 🙏🏽❤️

[@BrigittaDehvalaeiMogyoro]

Stay positive! ALL survivor here 🙋🏼‍♀️ Hope you have ur family and important people by you side. Hoping the best for your journey and get well soon! You will see life from a different positive persective you beat it, you will be the strongest person 💪🏼

[@barbaraaschwingelswihart572]

In 1955. Drs noticited. Just a little anemia. I became ill with flu like symptoms, and eventually went to dr and collapsed in office. Leukemia was suggested since I was 3 pints low on blood. A distant relative called and have dr chick my spleen ,which was the size of a football. Naturally surgery. They called it hemolytic anemia. I developed graves. And now I developed bruised recently. Fatigue and intermittent shortness of breath. Everyone is considering the graves. I’m am a young 73 year old . Over the passed 15 years though routine imaging little by little they be an to noticed an auxiliary spleen Don’t know if this is possibly causing some recurrent symptoms. I’m so tired and my synthroid keeps being reduced. Sorry I forgot, I have epilepsy too since 10 years old. Just wanted to share with a complicated case. Just to give you a chuckle. I’ve had a stroke cabg tia. And have a family with Charcot. BUT I Don’t HAVE IT YET! Lol. Must tell you , I not going anywhere, They just can’t keep me down lol. Hope you do well and good luck with your career. 😊

[@jennmcg4068]

Thank you for sharing all your videos of your journey with AML! I’ve always loved learning about different diseases and listening to patient stories! Since I work in healthcare, I’m always learning and trying to understand disease and the human body! I was recently diagnosed with Rheumatoid Arthritis with pain and swelling in multiple joints! So of course I’m learning all that I can on that subject! Currently watching Vikings! And waiting patiently for Season 6 of Peaky Blinders to begin!

[@TylerBlah]

Great shows!!!

[@Sammy-il1qf]

I was so anaemic! I looked grey and was exhausted & dizzy. Red blood count was 38. Drs were amazed I was still standing. Also, swollen lymph nodes in armpits. From onset of symptoms to diagnosis (ALL) to starting chemo was 11 days. I had 6 bags of blood before starting chemo. Chemo, radiotherapy, bone marrow transplant and 12 years later I am still here.

[@AGN-dt2dj]

Same, my red blood cells where like 45, I couldn’t stand up without basically passing out, at the later stages right before diagnosis I couldn’t even really get out of bed, if it wasn’t for the ridiculously low RBC, I would have had virtually no symptoms because all of my symptoms where due to severe anaemia.

[@Sammy-il1qf]

@@AGN-dt2dj Yeah, I felt the exact same! I wouldn't have gotten out of bed but for the fact I had to pick up my child from school. I had to sit on the floor, couldn't stand outside the classroom (she was 5). The reason more people don't die from leukaemia is that the bad symptoms come on so quickly & are so debilitating that people have to seek help from a dr because they literally cannot function. How are you doing now?

[@TylerBlah]

Wow Sammy thanks for sharing. I’m sorry to hear about your initial symptoms, that would have been awful to have gone through. I am so happy you are doing better, and 12 years wow wow wow !! Amazing to hear 😊

[@Sammy-il1qf]

@@TylerBlah Thank you! I am in Brisbane. We need so much more attention given to going on a bone marrow donor list here in Australia. My donor came from Germany... they are some of the biggest donors. Glad you're doing well. Also, my regular Dr dismissed me initially as having a virus, due to my age (30's), even though he knew what my pallor usually looked like!. It was a second Dr I went to who ordered blood tests. 2 days, 6 bags of blood & one biopsy later I was starting chemo.

[@AGN-dt2dj]

@@Sammy-il1qf I’m doing well, thanks for asking, I was only 19 at the time of diagnosis and took the chemo only route, I still have 1 and a half years until I fully complete treatment currently on maintenance, fingers crossed I don’t have to deal with a relapse in the future.

[@cherisequeen7330]

My husband was diagnosed with AML 04/29/21. He was experiencing fatigue for 2 weeks, loss of appetite, and a few days prior to diagnosis SOB, and very high fevers. The fevers only presented at night with night sweats. Went to the ER 3 times and they believed he had Covid or another adult virus. He just got his BMT Sept. 3rd and he’s doing so well.

[@TylerBlah]

That is amazing to hear that he is doing so well now :)

[@cherisequeen7330]

Aww thank you day +51

[@vinays4757]

Hello queen how is husband my 29 year old son died four months before due to aml after diognose immediatly went to chemo treatment and he was very healthy before diognosed within two months we lost our son he was our only son Usualy aftee chemo only bmt they do your husband how old he is

[@brinecharlie228]

I have all the same symptoms, the doctor thinks it is AML but it could be CML Typ 2 has already been ruled out,! Just got a full blood cont done,, waiting for the results, Me I had a lot of chemicall exposure as a young person, Agent Orange,, Garlon,! From what I I feel is the likely cause of my leukaemia,! Good luck with your remission mate,!

[@jesspuke]

I was diagnosed with ALL in February 2021. Prior to my diagnosis I was at the peak of my health at the age of 31. I was able to bench 250lbs and quite fit!... But, I started to feel quite tired and my energy began to deplete. I am a workaholic so I just assumed my symptoms were from burnout from working excessive overtime. They energy became more and more depleted over a couple week period. It got to the point where I was standing in line at the registry office and i nearly fainted just by standing. I started noticing dots appear on my skin. But i thought it was from sun exposure. After the registy office, I went home and laid down on the floor. Stretched out. Then I did a pushup of the floor to stand up and I noticed something in my eye. I panicked and thought it was a parasite! But after I calmed, i realized it was blood inside my eye but in my vision. I had also been having issue with a bloody nose. I went to emerge the following day at a small clinic. Drs took my blood. Without telling me why, they packed me into an ambulance and brought me to the University of Alberta. There they did more blood tests... then they told me the possibility of luekemia... the following day I did a bone marrow biopsy... and within a couple days I was diagnosed with ALL.. My life changed so quickly..... The blood results indicated that I had 0 platelets

[@awnjulyeet6731]

0 platelets OMG..

[@ushaanand2450]

How are you my 28 year old only son died due to lukemia aml Chemotherepy 2 nd cycle we lost our son died due to infection

[@awnjulyeet6731]

@@ushaanand2450 I am so sorry! I pray for you and your family for strength to get through!

[@heide-raquelfuss5580]

😢

[@ruthfoss8463]

I was diagnosed with CML almost three yrs ago. It was found through a CBC my PCP ordered as routine. My WBC was really high. From there I went to an Oncologist, had a bone marrow biopsy which gave the diagnosis. My biggest struggle is fatigue.

[@mdrahamatullahmd4574]

Today i am 58. Some nine months ago, i suddenly started to feel fever. The fever lasted for 15 days. Moreover, i noticed something fishy on both side of my neck, armpit and below abdomen. The intensity of fever was very disturbing. I was very much perplexed and disturbed. I was completely lost. Finding no alternative, i met one neurologist of good repute. Narrated him the detail that was happening with me. After overall investigation and corporal checks up, he sent blood sample of mine for clinical finding. After a week, the clinical report confirmed that there was cancer in my body but it was not clear where and how old it was. Being fed up, i went to homi bhabha cancer hospital varanasi, where after various checks namely pet ct scan, it was ascertained that i was a patient of chronic lymphocytic leukemia. The attending oncologist directed me to undergo chemotherapy and kept me admitted there for two weeks. Thereafter, eventually, i was released from the hospital with the advice to continue with tablet ibrutinib daily. Thanks God i am going on well and everything is alright with me.

[@leoinsf]

Amazingly, I feel like I don't have anything wrong, other than a bit of heavy breathing and constant tiredness! By the way, I am 87 years old!

[@traceyhateley3925]

My husband lost his life to ML...he was 38. Only symptom he had was sore throats/ bleeding gums. RIP David. 17th April is your 15 th anniversary, the kids love and miss you xxxx

[@bobross38]

Sorry for your loss 😔

[@bobross38]

Sorry for your loss 😔

[@carolwalmsley3362]

Sorry to hear about this I will send you a loving prayer for you all ❤️

[@bohochic2459]

Tracey - my heartfelt condolences to you and your family for the passing of your husband. I am so sorry for all that you have endured. Holding you and your family in my thoughts, heart, and prayers. 🦋👼🕯✨️🙏💙

[@desiertoscacti5388]

I'm so sorry for the loss of your husband! So young. I hope time heals the wound of his loss. I lost my cousin at the age of only 28 years old. His symptoms were fatigue and bleeding gums too. It was actually his dentist that sent him to have a blood test, since when he visited the dentist he understood that something was seriously wrong when my cousin's gums wouldn't stop haemmorhaging.

[@starvingartist535]

My symptoms were major inflammation of the joints and back. Simple tasks like getting out of bed and walking were extremely painful. Only several emergency room trips later and my first bone marrow biopsy a month and a half after my first bout of leukemia symptoms it was confirmed. I had ALL. It was shocking to find out because I hadn't had any of the most common symptoms of it...

[@TylerBlah]

Yes, that really would have been shocking. But the worse part, is how difficult those symptoms were, like getting out of bed and walking causing pain, that would have been really hard. Sorry it took so long, but glad to hear there was an answer in the end.

[@starvingartist535]

@@TylerBlah Yeah, fortunately, once I was transferred to an out of town hospital, the initial protocol with steroids and dasatinib got me to remission pretty quickly. One symptom I forgot to mention is easy bruising...

[@chrispeters5194]

Hi did you have inflammation in joints or just pain ? Also did you experience the chills ? Thanks

[@tjsgateway7757]

All of my symptoms were completely explainable. Fatigue and abnormally long illnesses were there but it was the end of the school year and I was a teacher. It wasn't until I went on vacay and had to go to the ER for a completely unrelated issue that it was discovered through bloodwork. I had the ER doc straight tell me that he was looking at the bloodwork of someone with leukemia. 6 wks and 3 hospitals later, I finally got to go home. I had induction in the state I was diagnosed in. Went on vacation....came back with leukemia.

[@ushaanand2450]

My 28 year old only son died due to lukemia aml before diognose he was very healthy how he got this after diognose immediately went to Chemotherepy but within 2 months we lost our only son lot of infection

[@josephdubiel7129]

I am watching the Boston Bruins playing the Vancouver Canucks in Canada. Peace and good health my friends.

[@JaworekPlay]

Hi, I haven't been diagnosed yet, been to doctors last week and he ordered a blood test. I have those skin spots that look like blood, itchy legs and pale that thing with eye. Every now and then I test to see if I bruise by slapping my stomach and seeing if it bruises next day. My blood test is on 4th of October 2024, just over a week after my sons (14th) bday and week before mine. I'll be honest I am scared and cry very often with this in my head. I am hopeful that this is not C and that is just stress from losing my job few months ago. However I can't ignore the fact that I have started having naps in the afternoon and sometimes I get pains in my bones. Headaches don't really happen. I have my fingers, toes and hair on my legs crossed this is all just coincidence. Comments really helped me today, seeing how many people are saying that after treatment they are back to be free of C. Thank you for your video, I was a bit sceptic if I could find one about this. It helped a lot. I wish you all good luck! Love you all

[@marymary20]

My husband just noticed he was short of breath after doing things that never made him short of breath before. He was winded going up 7 steps. His gums were also swollen and sore.

[@genenebruwer6862]

I don't really watch much TV but I'm sitting up, taking note of your channel. We just lost a very well-known, -much loved Afrikaans singer, Theuns Jordaan to Leukemia. Theuns died at age 50 and his passing leave many in tremendous pain and grief. So I'm trying to find out what happened to Theuns. What I realise now is that Leukemia was detected too late in his case.

[@joykiser6673]

Loved House too. Right now I’m into the paranormal. Loved your video. 🥰

[@TylerBlah]

Oh Paranormal, is it on a streaming platform?

[@sarahpalin9400]

Great presentation-thank you

[@barbhelle5481]

I am not watching anything on TV right now. I watched AGT earlier. My mother had leukemia. Hers was CML I believe. My hemoglobin was down to 5.8 a year ago and the Dr thinks it was due to my RA. Thank you for sharing.

[@TylerBlah]

Thanks for sharing Barb 👍😊

[@wengjan126]

Watching from the Phils. Ha ha House is also a favorite. I’m 62 yo, female. I am just about to consult a hematologist. These are some of what I am experiencing atm. Always fatigued, lingering cold, bruising all over my body, muscle/bone soreness and of late, difficulty in breathing.

[@TylerBlah]

All my strength to you and I hope you find a solution.

[@Christynmaine]

A doctor who goes home and watches doctor shows?! No favorite here but I did enjoy binging Painkiller recently. Not sure what’s causing my anemia found incidentally while screening for back surgery. Also have polychromasia so it’s test after test right now. During a PET scan some pulmonary granulomas lit up so off I go from hematologist to pulmonologist. Not sure what they’ll find and not looking forward to a bone marrow biopsy and/or lung biopsy (ouch!) as suggested. But it’s good that there are so many treatment options for these cancers.

[@starvingartist535]

Not sure if it's my favorite, but I've been watching Peaky Blinders (2013) lately. It's pretty epic though.

[@TylerBlah]

I watched an episode of that, and I must agree. Epic is an apt description :P

[@rickmetcalfjr]

My WBC is 1.7 RBC 3.5 Platelets 64 Lethargic, Bone and Joint Pain, excessive night sweats, bloody gums, blood in stool. Amongst a Miriam of other issues. Waiting for the results of the FISH tests

[@swayzy762]

I've had a lot of blood tests. Looking like Hemalytic Anemia but the official test result won't come until a few more days. If it isn't, we have to start considering blood cancer / bone marrow disorders. If it is, it's quite severe. I've taken a hell of a downward spiral in the last 6 months, especially last 3, and especially the last 2 weeks. :/ Not to be melodramatic but sometimes I feel so ill I'm scared if I go to sleep I won't wake back up. Red blood cells are absolutely genociding... Billiruben levels nearly at 7 per most recent blood test. Was 5.7 the prior day. No typo....

[@ushaanand2450]

How are you my 28 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy but within 2 months we lost our only son

[@darkcrystal86]

In July, I collapsed at work. An ambulance took me to hospital. Blood tests revealed that I had very low red blood cells (down to 6). I was topped up with three units of blood. Later bone marrow biopsy confirmed AML. Strange thing, before the collapse, I had no specific symptoms. I was not unusually tired or anything. What I had noticed was a tightness and cramping in my feet and calves when I walked quickly , made worse if you were carrying a heavy bag like groceries. I had also noticed some bruising on my thighs and knees. About 3 weeks before diagnosis, I developed a sinus-like infection in my nose. Mucous flowed during the day, but crusted up at night completely blocking nostrils. Because of this I mouth-breathed at night which resulted in a distressingly dry mouth and throat. This dry throat persisted, making it painful to swallow. Even though I have had antibiotics, I still have that sore throat. I have never had fevers, but do feel the cold, partly because I am losing weight. I am a 64 year old female who had already suffered from a gynaecological cancer with its chemo & radiation treatment two years before. Doctors think that the treatment may have triggered AML. My prognosis was not good. I am not suitable for intensive chemo or stem cell transplant. They are going to try a less intense chemo regime, which may slow it down, but not cure. However specialist thinks that my body may not even tolerate a full course of this. I am praying for a miracle, because my future looks bleak.

[@swayzy762]

@darkcrystal86 I am so sorry. Unfortunately, cancer is one of those things that once your body faces once, the likelihood of it recurring seems to increase a lot - anecdotally speaking. An old friend battled brain cancer and went between remission and recurrence numerous times before it finally won the battle after about 5 or 6 years. Cancer is disgusting and death becomes very scary when it begins looking imminent. Always opt for numerous opinions when it comes to treatment options for stuff like this.. Seeking treatment options at universities can be beneficial when prognosis looks really bad because they may have experimental procedures that may be less ideal for one person that may benefit most from conventional treatment but be more ideal for someone who won't benefit from existing, proven methods due to situations like yours. I truly wish you the best.

[@AC-ri2xr]

I just found your videos. I’ve had a WBC of 14.0 for the last year. My absolute lymphocytes count is 5580, I’m very anemic and I have a hard lump on the back of my neck. I finally got a referral to an hematologist/oncologist. I hope it’s nothing serious

[@TylerBlah]

Hey AC. Sorry to hear you're going through symptoms like this. Seeing a haematologist is always so important with symptoms like this and I am happy to hear that you have been able to get the referral.

[@brycee0]

Any update?

[@GenelleSmay]

I don't watch TV much. I have lots of old movies ànd I read on my Kindle. I wish you well😊

[@jmnightingale9055]

I was diagnosed from a bone marrow biopsy with AML with the MECOM mutation. I was completely asymptomatic but low platelets from the blood work of an annual physical led to referral to a hematologist, the biopsy, and then referral to a hospital that specializes in cancer care (MD Anderson). I had a stem cell transplant in August of last year and my biopsies since then have been clear, though I have several more to go until I reach the 5-year mark. I actually have one upcoming this next week at my 10-month mark.

[@TylerBlah]

Thank you for sharing 🙏

[@cathylaycock5598]

Hi. Hope you're in remission. Pretty scary stuff! My remaining sibling, my brother who is 2 years older than me. He has Leukemia and was tested for mutant gene DDX41. He gave me a family letter from BC Cancer Society in Burnaby BC so i could get test for this mutant gene. I was tested for about 76 genes. I tested positive for DD41 and another gene from Central Nervous System was changing. This 2nd one can cause tumors to show up anywhere in the body and apparently most are benign. I dont fully understand the Leukemia gene. Would you be able to explain t? Thank you in advance. I dont watch TV. I do watch British shows on Prime tv and Tubi on my iPad. On Tubi, ive been watching "Helicopter Heroes" in Yorkshire. 😊💗🇨🇦

[@alexandragrace8164]

Like Tyler, I have been referred to haematology at RPA. My doctors think i have blood cancer - I have low platelets and neutrophils; night sweats; enlarged lymph nodes without infection; extreme exhaustion; weight loss; petechiae; etc.

[@macpduff2119]

Massive bleeding and bruising after a sinus surgery 2023. 2021 needing 4pints of blood after surgery for compound leg fracture. I was diagnosed June 2023 with CMML (two M's), a rare leukemia caused by damaged DNA. Yes, I felt tired, but otherwise felt healthy

[@BeeApple-sr3db]

I'm finally going to see my doctor end of September. I have almost every symptom.

[@tarun3154]

Alive?

[@JaworekPlay]

Sending strength

[@graeme011]

My symptoms included muscle cramps, constant fatigue, palor, and unexplained bruises.

[@TylerBlah]

Thanks for sharing that Graeme, those would have been difficult symptoms for sure

[@indaymemeh2426]

I loss my weight and my basopil is high which is white blood cells, i have chills every night, i dont have fever and im sweating even there is an Ac,

[@SarahCSarah]

I don’t watch tv that much but I read a lot , I’m reading Hopscotch by Julio Cortázar .

[@DM-xx8zm]

Ive been pretty tired, weak, had light headaches and pain in my knees and elbow joints for over a month now. I was extremely scared of this possibly being leukaemia and had a blood test - the GP described the results as ‘normal’ and i want to know if this rules leukaemia out or should i continue to worry?

[@r.hariharan2293]

Same problem

[@TylerBlah]

Always best to keep following up with your doctor, and if you are concerned, you can always get a second opinion from a different doctor

[@jessicanasuti9952]

I think I may have Lukemia and I told my Dr and he laughed at me apparently there is nothing wrong but I have so many symptoms and I can't get anyone to listen.

[@petermines3575]

Ok, I don't watch TV as I call it the brainwashing box, I use KZbin to research my condition. And also I am a creator for KZbin. So that's why I am here, I have diagnoses already and need further understanding, thank you. And great to be a Aussie.

[@TylerBlah]

Thanks Peter, glad it’s helpful 😊

[@artsmodelstation9396]

Q: I was diagnosed w/ LGL Leukemia using flow meter but no bone marrow done recommended by hematologist. Do you think I should push for a bone marrow ? My symptoms are fatigue and night sweats occasionally. Other than my lymphocytes high, my blood work is normal.

[@princessheavenly]

Plus my blood platelets are high and they go low too and my white cells disappear like before and I've had amenic for years white blood cells disappear too in my blood work

[@RanjitKumar-rh8zf]

What you advised about cure rate as a doctor who diagnosed pre Ball at age 14y (m) with tp53 positive?

[@UuU1001.]

Thanks for doing this video, this video definitely clarifies the original diagnosis video you made. When you say low platelets, how low were your platelets (if you don’t mind sharing)? Also if you and your physicians were not as proactive, how fast would the disease have progressed? I believe inv 16 is excellent prognosis, so in light of that would it have progressed more slowly than other subtypes?

[@TylerBlah]

Thanks, I am glad it was able to clarify the original video! I'd have to follow up on how low they were, but it was well within the clinical guidelines for what is referred to as a low platelet count. And whilst Inversion 16 is a good prognosis form. The acute in AML, means that regardless of the type, it is extremely quick to progress. So I can only imagine how quickly I would have downturned and progressed poorly if they weren't as active. After being diagnosed, I was treated 3 days after, so very important to act as fast as you can in the acute conditions.

[@UuU1001.]

@@TylerBlah Thanks for the response Tyler!These videos and documentation is really informative and inspiring. Been seeing a hematologist for consistently borderline low platelets and white counts pushing nearly a year now, they go up and down, but always remain in the low end. I’ve had low end of normal for 5 years. But only within the last year did I worry when seeing it dip below the range and requested a hematologist referral. Historically did your bloods take a sudden dip (have you taken yearly blood draws before your diagnosis)? My hematologist doesn’t want to do anything further but monitor. Was a peripheral smear done and blasts seen for you? My hematologist did a smear and did not see, therefore does not want to do a bone marrow biopsy. I’m sorry if I’m asking so many questions, but having bouts of panic and calm due to this unknown health is pretty tiring. If I’m asking too many personal questions, I will I understand if you cannot divulge. Regardless I really appreciate all you do and wish you health and success!

[@BlueCheeseAnimation]

Have you ever been diagnosed with dengue before the leukemia Im quite overwhelmed about this

[@dancingdaze]

May I ask how low your platelets were?

[@princessheavenly]

I have symptoms fevers night Sweat and white blood platelets were high but they did drop down to 350 but is rising up again bone pain but I haven't been told I have it too and I'm uncle had the same symptoms like bone pain all over us body but I hope soon I find out thou plus I had amenia too I agree I don't feel like eating sometimes too brusies too for no reason

[@SimonVannelli]

bone pain, night sweats, low platelets, weight loss

[@michaelangelica9981]

ASIP rewatching it

[@TylerBlah]

What does ASIP stand for ? :D

[@MTASHUNKAB]

I have all these symptoms..feel like im slowly dying

[@dorothybeischer7668]

I need advice please I’m truly struggling and Scared I’ve been diagnosed PV and my doctor won’t do anything trying to find a doctors but fixing to lose my health coverage so I don’t know what to do. I have no support system whatsoever. I’m a single mom and I’m scared, not scared of dying. I’m scared of leaving my loved ones behind with no warning my doctor refuses to give me any treatment which is draining. My blood is the only thing I’m aware of and never been explained anything just told diagnosis any tips on help support groups anything I live in Florida

[@TheCambra]

We're not doctors

[@Gratitude420]

Are you completely free from leukemia ??

[@indayoung4569]

My husband’s was having insomnia and night sweats by Jul, His WBC was high (18)on September, he lost 6lbs he started seeing a black spot, the retina specialist said it was stress related, by December he was having legs pain( blood clot)by February he ended at ER due to chest pain. He got Dx AML😢 he had BMT son August 1st.

[@JeanettePrinsl00]

I don't know if someone will be able to teply I saw this video just now and need advise, I always have the flu these last months before it was only when I go out then I get flu now I constantly have the flu night sweets, and weird enough Extremely bad migraines but only at one side not my whole head I do sometimes feel like I want to faint, I also get sugar cravings I am bot in the mood for food constant sore throat watery nose body itching the bruising is alot I am not gonna lie I actually started bruising purple smal dots where my neck is and my body gets buises and my body get tiny red spots where I itch I see there wil be a tyoe of rash I fall asleep at work there is days my lungs burn but the weirdest thing is i have normale white cells and then suddenly they are abbcent there is no white cells,red cells is mostly high I don't really know what to look for in the blood results I have been feeling soo week I had to go for a neurobian injection and it really helped me feel better for about a view days now everything all over I am really not sure what is wrong but my mother mentioned leukemia I had anemia as a child when I walk not alot or to less but walk there will be bruising around my ancles the bruusing is everywhere I also have alot of burning pain in my neck in the middle and the pain in my back and oh lets not forget the worst pain under my ribcage on the left side I get the worst pain but the migraines is starting to really bring me down and the flu cold I dont knkw whag it is I also have alot of pain I somethimes cry during night in my neck whole body I am just tired of feeling this way I thought its in my head but it is not going away only gettun worse I am a single mother I try my best to do everything work feed the kid look after then I have them on a medical aid I took myself off so we can survive years ago I remembet i do remember around 2013 my ANA was low positive 1:80 said its lupus because my dad had lupus but My lupus tests are normal I can't test to see if it might be leukaemia if anyone can maybe tell me what to look out for in blood tests or whag to test but I feel like I am living just for the children at this stage so theh can start their lives but they are so young still I cant let them go stay with their abusive father please if anyone has advise

[@Christynmaine]

You should see a doctor and get a complete blood count. Bring someone with you when you talk to the doctor and take notes. Best of luck.

[@anantgautam2485]

House MD it is doc

[@tracyfowler850]

Time Oct 13 2023 my daughter had ALL she died may 2013 she was 19. My train wreck was devastating. There is no cure and if you have this you will die there r no new miracle drugs.

[@orion9k]

I think I got it, but I also think that it comes to dominate in winter seasons and wears off again in summer. Also ive managed to keep it some what in check with high doses c vitamins. Ive had my blood tests done and my white blood cells are bellow the normal value range, also ive been having weird breathing issues, as if im not always getting enough oxygen. Ive had weird ichy skin, weird skin color changes, from pale to yellow ish and a few times i spotted bruises on my legs that i couldnt remember how i got. Also random weird bleeds in my mouth and*sometimes so tired i be sleeping 16-18 hours straight. Also pain in my spleen area when ever symptoms become worse.. Doctors have been annoying, saying its all up in my head, so im on my own with this.

[@orion9k]

Oh and swollen lymph notes on my left side of neck ☝️

[@orion9k]

@@SakshiSinghO811 ive been checked many times, doctors are absolutely clueless in Denmark. If I was rich I would probably be cured by now. I did get an xray and they said i had early stage emphysema but from the qualify of this healthcare, i dont know what to believe, for all i know, it could be mold infection that makes a pocket in my lungs when i empty the lungs, they havent actually checked my lungs further with a probe of some sort, their methodology is from the 90s if you ask me🤷‍♂️ Ive done exstensive research on traditional medicine and experimenting, and the breathing issues when ever they begin, has been going away pretty fast from inhaling steam from black nigella oil mixed with water, and im taking like a whole bunch of other supplements to keep my health as optimal as possible 🤙

[@michaelvincentd.logrono4404]

Bro i was scared so much

[@salomeverwey6277]

Blue bloods

[@stevenhensman2541]

One in you turn that poxy music off

[@lesleyo350]

Reacher!

[@andreaherrera4219]

I have a fever 🥵

[@lusiondalpadado2092]

Was diagnosed with ETP-ALL. Went to the hospital because I was feeling anemic and lost a lot of my strength. Before that I had night sweats, headaches that felt like my head was beating. Ended up having a hgb count of 32. Was then rushed into therapy. awaiting a bmt as of now and in remission!

[@bereniceesquivel7076]

One beloved friend died to leukemia this march, i wish her symptoms were diagnosed sooner, she had all the anemia ones for years and just thought she had a bad inmune system and thats it. Now I can't stop thinking about the times she struggled to catch her breath when hanging out, she never stopped being the more lively girl despite everything, I really miss her.

[@ivke32]

Hey Tyler, nice and informative video. For me the only real symptom was that I got yellow. Then after the first blood test and examination by a hematologist I was sent to do a bone marrow test. If there wasn't for my wife who pushed me to get my blood tests, who knows when would I get diagnosed. Currently watching The Wire in the hospital, great show 🙂

[@beatletat]

It's been a shock how quickly my health as gone down hill since August. I was diagnosed on Friday with Leukemia. My symptoms lately have been chronic back ache, sweating and constantly feeling hot, out of breath, blurred vision, very itchy legs. Constant sugar cravings, fatigue and feeling tired

[@scpjoaquin]

Sending you lot of strength for your recovery

[@brinecharlie228]

Me to mate ,,

[@leonardmulrooney3806]

You described a bunch of things I’ve been dealing with that my doctor said were unrelated to my CLL.

[@grouchosays]

Terribly sorry to hear this. Good luck to you.

[@leoladi4486]

I have all of these things I'm worried.. Also I'm sorry your going through this I

[@RosieRoserules]

my twin sister was diagnosed with AML the first of July and 2 weeks later she was dead of complications of brain bleeding because of low platelets from chemotherapy. I'm heartbroken forever and now I keep thinking perhaps I have leukemia but she had no symptoms and I have no symptoms

[@sharonthomson3366]

I have recently been diagnosed with AML July 22. I went for months struggling with shortness of breath along with athema. I had a chronic cough which distracted my health professional from the elephant in the room. I had already lost 7 kilos and could not walk up the slightest incline. Another month passed, I changed doctors she ordered urgent blood work. In order to fast track the system, she sent me directly to emergency as she thought I may have been bleeding internally. I have been in hospital since it's been a week. I start chemo shortly. I'm 68 yrs was very active prior.

[@mauricio59107]

I hope you are doing better ❤️🙏

[@funwithnoorandkabeer5605]

Hi, hope u r doing good! Last month I have been diagnosed with cancer (Aml) and also had the same symptoms. Just one request dont w8 for chemo treatment, consult your doctor and start the chemo treatment immediately.

[@ntertainme9615]

What about low blood count and low platelets? How many transfusion did you get?

[@TANISHAAhmad-u9w]

Are there any type of symptoms

[@sharonthomson3366]

It’s now 2024. My blasts back then were 70pc. I went into remission quickly. I’m completely fine now. There can be life after, I just went skiing in Japan.

[@meme42000]

my youngest cousin was diagnosed with leukemia in 2013 (she wasn’t any older than like 5 or 6 I think) and it was really hard watching my aunt and her family go through that - weirdly enough, we were learning about different cancers in school for our science unit (taking symptoms of fake patients and trying yo form a diagnosis in our assigned groups). She’s been in remission for quite awhile, but I am now experiencing 90% of the most common symptoms for over a week now. I had blood work done today, and even though my mother tends to stress over the little things, I haven’t seen her worry like this in a long time. I’m 22, and I lay here in bed at 5am crossing my fingers that everything is fine and it’s just some shitty virus I need to wait-out. Still, it’s hard.

[@bohochic2459]

Meg M - May I ask how you are doing since your comment from 3 weeks ago? 🦋👼🕯✨️🙏💙

[@swayzy762]

Update

[@heide-raquelfuss5580]

Are you ok?😢

[@JaworekPlay]

So sorry to hear you're going through this. Sending strength

[@user-dv8ns8yu5i]

No favourite TV show currently, but you have helped me through the past 12mths with my best friend who had his BMT in January. I'm struggling with the aftercare as here in the UK there isn't much support for carers or aftercare support for patients. You have been a HUGE support and we both thank you. Lots of love from myself Janine and Steve. Xxxx

[@TylerBlah]

I am so happy to hear that I've been helpful for you. It means a lot to read that, thank you :) All my strength to your friend with their BMT and recovery! It can be difficult for carers for sure !

[@giadaar2004]

I was diagnosed with LLA PH+ one week ago. Still have to start the treatment. Went to the hospital after my blood results showed I hade 140.000 white blood cells. I don’t know what will happen in the future, I hope I’ll live. Updates: It's October 27, 2023 so a few weeks later. I have started an experimental treatment that I will have to do until December 21st. I avoided chemotherapy. Then I'll probably have to do a BMT anyway. I hope everything goes well…

[@FamilyMayorga-Morales]

How are you doing

[@bordercollie1255]

Please keep us posted. Sending you healing energy.

[@giadaar2004]

@@bordercollie1255 HI! Thank you for this message. It means a lot to know that there are people who care about what I'm going through. ❤️ Updates: It's March 31, 2024 and I'm currently on the same treatment I started in October. It worked, but in February (when I had to have the transplant) there was still minimal residual disease so they tried to eliminate it with blinatumomab. It didn't work so I'll have the transplant in a few weeks. Luckily my sister is 100% compatible. However, It scares me so much that I have to do TBI (total body irradiation) and chemo before the transplant. I hope I can live a normal life after all this and never look back

[@mistyskye4180]

Wishing you fast healing and recovery

[@SimpleKowalski]

I’m sorry that you got this too. I was 29 when I was diagnosed with CML. In over a month ,non stopping flu symptoms, I lost 15 lb, No appetite at all, headaches and pulsing vessels around my head everyday, sweating at night, I barely even walked and happy now that I alive. Thank You for sharing your story.

[@ushaanand2450]

How are you what is the age now my 29 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy 2 months hospital but we lost our son due to infection

[@desiertoscacti5388]

@@ushaanand2450 I'm sorry for the loss of your dear son. Sending healing thoughts.

[@hint908]

​​@@ushaanand2450 i have a friend whom now i lose his contact after he informed that had blood cancer. He told me he wouldnt be around for a long time when he is hospitalized. But im really afraid that we will lose contact forever.

[@avarcine]

My WBC, platelets, and lymphs have been high for 5 years. I have my first hematology appointment Wednesday and I'm pretty nervous. Fingers crossed.

[@ushaanand2450]

How are you

[@TheCambra]

If they were that high for that many years you should probably see a different doctor

[@emiliab5916]

My mom was diagnosed with aml flt3-itd At June 2022. Her ‘only symptoms’ was long infection. she got remission after one round of chemo and targeted treatment. In 7th October she got BMT. So far so good. Your story helped me after my mom transplant. 5 years ago in May 2017 I donated my bone marrow to women in my mom age (know I had opportunities to meet her… she is doing fine) Thank you for your videos. Greetings from Poland and the USA.

[@TylerBlah]

I am happy to hear this could help you and your mum. And I am even more happy to hear you were able to donate and help others too ! 😊

[@Zeynep57881]

Hi Emilla, I learned a weeek ago my dad going through leukemia. And some crazy reason I can’t be a donor.that what doctors keeps saying but when I look at google. Google saying I can… very confusing. Anyway either way I will be a donor for someone because now I understand how important is being donor. I wish I understood that before going through this experience. I hope you experience will be lesson for others so they don’t have to go through pain to understand how important is being donor. Thank you sharing your life force with that beautiful lady🙏🏻💚 Blessings to you and your mum and everyone 💚🙏🏻

[@emiliab5916]

@@Zeynep57881 Hi,doctors usually says kids cannot be donor because they usually carry only 50 % more less gen from each parent… it’s really small chance you would be matching. There is some condition that could eliminate potential donor. I am sending prayers for your dad and I hope your dad will find matching donor. I am back home and my mom is getting better in Poland ( she is off medication and so far she is doing good) I am sending greetings and prayers from the USA FOR YOUR DAD, You an your family 🙏

[@Gretla]

​@@TylerBlahUK o

[@drjjloveman]

I was so tired and out of breath doing everyday tasks like letting the dog out. I was also sore everywhere. Also had an infected bug bite so I thought it must be Lyme's disease and went to the doctor. Got a CBC and all my blood counts were half of the standard range and severely low b12. Next thing I knew I was traveling 4 hours to the nearest cancer hospital diagnosed with Acute Myeloid luekemia. Went into remission two months ago.

[@Yukinoodles]

Ahh this makes me wonder. Saw my GP about 2 years ago and had a low white blood cell count and other abnormal results. I’m 23 female btw. She referred me to a hematologist where again I had a low white blood cell count and other abnormal results but he couldn’t find the problem! Eventually my white blood cells went back to normal I don’t think I could have blood cancer though because that must mean my white blood cells would be high instead. I still feel so exhausted, chest pain, short of breath (I don’t think I am actually short of breath I just feel like that), I get joint/ bone pain, headaches and other stuff. I just feel off! I had a FISH analysis CLL and it came back positive for deletion of 13q14 which made me panic but he retested and it came back negative so must of been a false positive. Anyway I see my hematologist again in January! Hopefully it’s nothing bad and just my anemia! (I think anemia might just have similar symptoms).

[@Yukinoodles]

Other symptoms I get are: itchy skin and when I get a cut or something I tend to bleed a lot and heal slowly. I hope these are just all symptoms of anemia. I’ve gotten iron infusions and I think it made me feel a little better but not 100%. Another reason I don’t think I have a blood disease is because I do bruise but not badly. I work with dogs so I usually will find bruises but nothing insane like I’ve seen blood cancer patients have. Also if my FISH analysis came back positive that once but then negative that next time I hope that would mean I’m negative. Sorry for venting lol.

[@SarahCSarah]

I have Lupus and you definitely sound like me 😐

[@ushaanand2450]

@@Yukinoodles how are you

[@Carlos-wz7vm]

No favorite show at the moment. It was suits a few months ago. Thank you for making such informative video. I'm a Clinical Laboratory scientist

[@marvinmacalintal1154]

My wife (49) was diagnosed with AML Feb 2023 here in NZ. Her first symptoms were cough and fever for a month. Doctors couldn’t rule out what issues was after all the tests they’ve made. After a month of further testing they said she has Leukaemia.2 weeks later doctor added that the first symptom was caused by TB. She just finished her Bone Marrow transplant and responded well in the medication. Keeping optimistic that after all she’s been through everything will turn out well.

[@JesusHernandez-gb9ic]

Blessings!

[@patriciacopling7908]

Just watched a video of your bone marrow transplant.. it was a good video... I had stem cell transplant back in 2014 after being diagnosed with multiple myeloma ( age 56) .. I'm now almost 10 years since diagnosed & 9 years stem cell transplant... With no further chemo after to this date ... My myeloma does return and as to date I'm now going through all the scans & yesterday bone marrow biopsy ( oh it hurts 😅) but I can do this all again ..I have been offered another transplant as I had a good response from the initial one... I hope you are continuing a good quality of life 🎉... It's a shit life for some but I love life & cruising & dancing even now at almost 67 ...🥂. . God bless

[@TylerBlah]

Thank you so much for sharing 🙏

[@lucasdog1]

At the age of 58 I went in for a routine physical with no symptoms. Dr. ran a CBC and metabolic panel. The results came back suspiciously good. The Dr. said he has been treating patients my age for years and hadnt seen results so nice. On the chance that there was a fluke, or something not run right. he wanted to re-test in 3 months. The re-testing showed an elevated white count of 140. One bone marrow biopsy later and I was diagnosed with CML. The oral chemo knocked me down for a while, but everything is now under control. Dont skip your regular physicals.

[@TylerBlah]

Great advice 😊

[@honeyj6131]

I am from Sydney Aus. I was Dia with ALL and AML and had Bone Marrow transplant. I had fever, put on weight out of the blue, bruises, tiredness, content bleeding so I had to go Ed nearly every night or day. My fav show is to many to list. 😊

[@navidakbar1880]

SALAM BROTHER HOW R U I HAD cml in 2011 Bone marrow biopsy BHUT difficult Navid 🇵🇰🇵🇰🇵🇰

[@rosanneperricone8060]

My mom was diagnosed with AML on a Wednesday afternoon. She was gone by the wee hours of Saturday morning. She had a red halo in her vision- eye doctor said her arteries were bleeding behind her eyes! They set her up for a cauterization a few days s after her appointment. She had severe bleeding from her hemorrhoids. She did not say a word until the day she was put in the hospital. She was so out of breath she could barely walk at all. Her gums were bleeding and her bottom tooth fell out, so dad took her to the dentist. Dad had an appointment with their PCP and decided to bring mom along, she fought him, but he made her go. The PCP took one look at her and sent her to the ER for blood work. As they were taking her blood, she collapsed. They admitted her and did a blood transfusion. The IV line caused a 7” purple bruise that was horrific. Blood tests revealed her counts were a mess. A Bone Marrow Test was performed and the next day we got the news. Her Blasts were up to 80% on the day before she passed. There was no hope at all. Mom was 83 and dad took her to the dentist, the eye doctor and the PCP. But he never told any of them about all her symptoms combined. I was in NC, they were in NY with my 2 sisters. The day they admitted mom, my daughter was getting surgery. I flew to NY the following morning. We buried mom on that Monday. Shocking does not even come close to it! Cancer is a thief! You don’t recover from that happening in 3 days! Just awful 😢

[@hallienguyen9357]

Wow my rheumatologist was also the one to order a CBC. My symptoms were fatigue dizzy, and brusing. The CBC showed that my blast cells and WBC was high. He referred me to a hem/onc ASAP and I was diagnosed with ALL

[@JaworekPlay]

Sorry to hear that, sending strength

[@mappyman8271]

I was diagnosed with Iron deficiency after going to the doctor with what I thought I was having a hear attack as I could not breath and felt pain in the heart and could not walk far. I had to have blood transfusion. When it continues I went private and they did a scan and noticed enlarge lymph nodes. With a biopsy my symptoms were due to CLL.

[@WeezerPort]

Absolutely, HOUSE is one of my favorite shows too!

[@ed5421]

Seven years ago, I was initially diagnosed with CMML (chronic myelomonocytic leukemia, 18% blasts) then subsequently AMML (acute 26% blasts, 100,000). My symptoms were a pain in my lower left back near my kidney because I had kidney stones due too the high blast count. Treatment was decitabine for 6 mo, then bone marrow transplant with my sister as my donor. I had very few complications, very mild gvhd. In my case the emotional and mental challenges were worse than the leukemia.

[@ushaanand2450]

How are you what is your age my 28 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy but 2 months hospital we lost our son due to infection

[@ed5421]

I am sorry that your son did not survive his leukemia. I'm aware of a woman in my city who was in her mid-thirties and was diagnosed with leukemia and died two days. She had a husband and two small children. This disease is cruel. At the time of diagnosis, treatment, and transplant, I was 65. I am the best case scenario, was cured in 2015 and am now seven years post transplant.

[@ushaanand2450]

@@ed5421 happy to hear you sir you survive this. My son also very postive and hopefull he will survive but unfortunately we lost our only very intelligent talented kid he was unmarried. Parents we are very scared about our feature we were no other children

[@potatotrash8320]

Very informative, thanks a lot. My current favorite TV show is Romantic Doctor.

[@raymondbatisai4654]

Hi my name is Raymond Batisai My nephew Denzel Mavhunga is 8 years old .He now has relapse after only 3 months .We are looking for help for stem cell transplant We are looking funds to find the process in Zimbabwe where we come from there are no resources .Please help

[@Keno9846]

Beforehand over several months weight loss. Passing pallor at one stage. Enlarged spleen. Diagnosed wirh CLL. "Stable, mild lymphocytosis and thrombocytopenia". Watch and wait under GP care. No treatment so far. No other obvious symptoms so far. Still exercising with brisk walking and home section maintenance. As a nerd, reasonably fit and still strong at 82 years young. No longer have a TV - fed up with its social engineering and woke rubbish.

[@lazitazen6882]

Thank you so much for your clear video! You're awesome 💗

[@TylerBlah]

I am so happy you enjoyed it 😊

[@orscrub3161]

my husband has been fighting multiple myeloma since 2009. this year it progressed into secondary plasma cell leukemia. i have tried and tried searching for information on the internet, there’s nothing to VERY little out there. please can you help or at least let me know where i can find information. thank you!

[@TylerBlah]

The internet should have good sources. Including WebMD, BMJ, or NEJM, or UpToDate for patients. Alternatively you could also find a medical textbook that could have it. But your hospital should be able to provide information booklets too 😊

[@raja1baja1]

Hi am 29 and have been diagnosed with CML PH+ 5 months back. One my first symptom was I noticed was night sweats followed by weight loss. Though i was having other symptoms like loss of appetite weakness and constant light fevers but I never thought it in a that way. Allhumdulillah was diagnosed randomly when i went for my pre employment medical examination with WBC over 198000.

[@alisonmercieca1465]

House is brilliant. I’m here to learn more about AML as our family friend has just been diagnosed. We’re on the hunt for her perfect stem cell match. Fingers crossed x

[@TylerBlah]

All my best to your friend 👌👌

[@BoitumeloRamela]

My partner was diagnosed with leakiumia on 18July 2023 he had symptoms of back pain,flue and bleeding nose for few days than he died.He never new that he had keakiuma all these years.

[@tomreddy9984]

It looks like I didn’t save them. Bottom line, diagnosed with CML 4 months ago. Started on Sprycel and got pancreatitis. Waited 6 weeks and then started with Gleevic. The Gleevic really works great and my results looks great. Unfortunately, I just can’t tolerate the side effects. I quit the Gleevic three weeks ago and am trying to get a consult with Dana Farber in Boston. I know a BMT is a ordeal. Months it appears. But I feel like I can deal with that versus the continuous feeling of bone pain, nausea, headaches and fatigue I feel on the med. Unlike you, fortunately, I have CMT and not acute like you had. I will not return to Gleevic or another oral med. for me, it’s a BMT or nothing. I know I sound crazy and like a defeatist but I can’t deal with being sick every day for the rest of my life. I can psychologically deal with a rough year but not a chronic feeling of crap the rest of my life. What do you think my odds are that Dana Farber would be willing to do a BMT on me? Thank you so much. Your videos are super inspiring. I found them tonight and really feel hopeful. I hope you are well. Thanks, Tom Reddy, RI, USA

[@allionatiolism9238]

God bless you with strength and good health 🎉

[@TylerBlah]

Thank you 🙏😊

[@tomreddy9984]

Hi I just sent a long comment but I cannot see it. My name is Tom from Providence, RI USA I am 60 and recently diagnosed with CML and am losing my mind. Did you happen to get a rather lengthy story from me tonight explaining my woes? Lol. Thanks. Your videos are great

[@vaness987]

My sister is passing through swolling on some of her body parts like the knees the ankles, the eye surrounding and any parts that has got hurt If anything wound her, she bleed for almost a week She's also goes through a lot of pain from the bruses for even a week. There was a time when her head had swollen so soft and the doctor said that it was the blood that was log in so they couldn't do anything and it was down on its own. So now the doctors she might be having leukemia or sickle cell. So please can you help?

[@AK-zw3yz]

Oh! I am so happy for u. I am an elder sister. I have a younger sister. She has some weird symptoms. Idk what doest it mean. 1) light headed 2) tired & weakness 3) coughs and flu 4) nose bleed 1 time (gum bleeds) just a little bit 5) today she has a unbearable pain on her teeth,ear & arms. But I said my mom about it & she doesn’t care about it. She wanted to say I am much hypochondriac. Basically I am so much obsessed with my sister. Maybe I love her a lot