My Life Expectancy

I talk about my life expectancy with cystic fibrosis.
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[@mortmort97]

She is dying yet her optimism and happiness and hope is higher than so many people... So much respect for her

[@no.1appastan]

+Devoti the PUN

[@courtneycrewse3605]

+Mala Warfame Perro Is she really did?

[@courtneycrewse3605]

+Courtney “CeCe” Crewse **dead

[@lizzy11200]

+Courtney “CeCe” Crewse she isn't dead

[@Fien334]

it is a way of coping

[@daphneakpotu5852]

she has such a beautiful spirit she has more life than most of us ungrateful teens bless her

[@robynsmith6974]

Daphne Akpotu Exactly!

[@W23177]

"I'm dying much faster than other people, Haha" she's so positive It brings me so much joy

[@Opuskrokus]

I think you should stick around for a while longer, since your being here makes the world a better place.

[@arctatos]

I totally agree !

[@mattigan16]

Same.

[@yanisamadera153]

I agree! You're such a light Claire! 😀

[@rebeccastein6770]

She can't choose when she I s going to die

[@willboggs3475]

+Rebecca Blue Really????

[@quintocerita936]

how can a person be this beautiful?

[@zuheirsublaban4595]

You are a true force of nature Im a medical student Im gonna work my ass off to try and fight this disease

[@sparklelikeaghost]

I just found your channel by accident ... You're so positive and I feel so bad that someone like you will be taken from this world sooner than you should... How do you stay so positive??? Jeez :(

[@freddykrueger5503]

We're all dying. Life is like melting snow.

[@Kaizer3rd]

+P mox ya hahaha +Clarity project you are an amazing and gorgeous girl keep taking care of yourself.

[@nerotoxin8587]

Deep

[@amorrison1996]

so deep you can hear adelle rolling in it

[@marynmegquier6945]

life is a pathway to death

[@scottrichter341]

+Freddy Krueger Wow, how anybody is up voting this or thinking its deep is beyond me. You literally told a person who is constantly being told she is going to die in a year or two that "yeah, we're all gonna die, no big deal" followed by a stupid banal platitude. T_T

[@ppinkprincess1]

i've never watched someone so cool nd fun nd lively

[@ppinkprincess1]

despite their situation

[@nicolekilgore5877]

She's soooo sweet and just have so much respect for her! I'm in a similar situation and I don't go but maybe one/two weeks before i'm in the hospital for about 10 days. I'm 24 yrs old and try to be positive but I just cant get ahold of myself. I would love to be half of the woman she is and hold that much joy and composure as she does! She's a huge inspiration. God bless her!

[@jpn_119]

my mom has been a nurse at the hospital for sick kids in ontario canada for 35 years. she worked on the respiratory floor (also called 7C) and she looked after a lot of cystic fibrosis patients. Iv'e learned a lot about the illness over the years. I feel for you. but its amazing how open you are about it

[@hayleydollx]

You're an incredibly optimistic and beautifully minded human being. I have so so much respect for you. Good things will come your way, because of the good energy you're putting out to the universe. Much love

[@DarkRuins]

You have such a beautiful soul. The amount of sheer bravery you possess is incredibly admirable. I hope and pray that you will live a long, prosperous life. The world needs more people like you, people who appreciate every moment. God bless you. Xx

[@trinitygarr7647]

I have cystic fibrosis too (delta F508) I feel you ❤ you are a inspiration to me. I love how after doing all these treatments and medicines you still have a sense of humor and laugh. I think it's important to have that even after we have all these meds and stuff to do. Don't ever listen about your life expectancy, cause as long as your fighting as hard as you can, we will make it 💜

[@NobodyMetal]

I actually didn't find this depressing at all, I find your videos to be very life affirming, your positive demeanor is very soothing and I wish you all the best in your "now" life. Have a great day (:

[@madisonpurvis7161]

My best friend has CF, but she got a double lung transplant in 2013 when she was 14 years old. Two years later in the summer of 2015 she was doing great until she got diagnosed with stage 4 lymphoma. After three months in the hospital she kicked cancers ass! She's over a year in remission now! Her PFT's are 98 now too! She just had sinus surgery but that went smoothly. They had to do an exploratory on her brain because she has a brain leak, but there is no doubt in my mind she will be fine. If you want to learn her story, her page on FB is Kenedy's Hope. Love you Claire!

[@chloemcmahonn]

Madison Purvis same my best friend has cf as well x

[@meg4545]

This has helped me to cope with the fact that my dad has a terminal illness that could kill him at any moment so thank you for this video :)

[@jimpemberton]

You're a beautiful girl, Claire. It's true that we all die, and I'm sure it sucks to have to spend your days knowing that yours will be shorter than most and having to spend many of those days with breathing treatments and hospital stays. I did a video for a family I know a few years ago who lost their daughter to cystic fibrosis in her memory on the day she would have graduated high school. You can check my channel for the video about Elizabeth Wall if you like. So it's all perfectly morbid and depressing, but you come off as having a good attitude. I'd say that part of your beauty is your smile. It's a sign of hope, not that we might all continue to live, but that the lives we all have might be spent as well as we can in the midst of a world fraught with peril on every side, perhaps to brighten someone else's day or help someone else feel a little better about a challenge they have. May God richly bless you in the days you have with those you love.

[@jimpemberton]

+Nicholas Scharer I do believe in God. Therefore, it is natural that if I hope for anyone to receive a blessing, that it would come from him. I expressed that desire to Claire here as a heartfelt token of admiration for putting herself out there to produce some videos that help people. I don't know you, but since my belief in God includes believing that we are made in his image, I also desire that he blesses you. I hope that the idea that someone like me sincerely wishes that good things come to you isn't offensive. Even if it is, I still hope that you receive blessings.

[@jimpemberton]

I suppose you don't want me to mean well then. Without a foundation for meaning well, there is no meaning well.

[@jimpemberton]

Additionally, I'm not pushing religion on anyone. It's just who I am. You can't respect that? That's what tolerance is all about, right?

[@WhosFriedChickenIsit]

+Jørgen S Dude just take it as something nice. She's not forcing anything on you lol. You chose to comment on HER COMMENT, knowing that she is very religious lol. Just say, 'have a good day' and be done. If she's wishing well for you it doesn't matter what the both of you believe or don't believe in.

[@dayzofreckoning3154]

+WhosFriedChickenIsit uhhh his name is jim

[@hfcchhrfcfg2041]

this might sound horrible but i feel like her sickness has given a unique and gorgeous perspective that inspires me so much

[@gracenance9679]

As a teenager living with bronchiectasis, and having the doctors be 97% positive you have CF as well, this channel is amazing. I try on a daily basis to normalize my state, and the oxygen I have to use. It seems like people are afraid of talking to you, and asking you questions, and to ask you how your day is. I hate it when strangers walk away as soon as I cough, in fear I may be "sick". I try to explain oxygen tanks, and nebs, and therapy vests, and my seven inhalers to my peers at the best of my ability. This channel says everything I think, and more. I live in the constant thought of " I might not wake up tomorrow" and " I want a piñata at my funeral" and these videos explain it all. Thank you.

[@EmilyPetersenHomemaking]

My high school did a huge fundraiser every year for CF. It's rewarding to think we may have helped pay for treatments so you can be with us as long as possible. 😀 God bless!

[@phibs25k51]

I respect you so much! So much love from Germany! I love you and your positivity and I will never forget you!

[@lauraeblanco]

That poster with chakra points ❤️ (sorry for bad English)

[@nicolewilson7290]

I adore you. I got extreamly ill when I was 14 and almost died. Since then I've had chronic illnesses. Your outlook on how your life even if it is going to end sooner then it should is amazing. I had a kidney transplant and every year I get scared that I'm going to get sick again, go on dialysis and then have to have another's kidney transplant. I know it will happen eventually but not knowing when kills me. I will be watching all your videos and trying to learn a thing or two from you. Through the years of being sick I've met many children with CF.Good luck and I hope your treatments are going well!

[@GeekyC]

Shit ... I'm such an ungrateful person ... I'm so scared of death even though I have plenty of time and I'm always held back by my anxiety and PTSD and here is this amazing badass girl who doesn't have that. Fuck I feel stupid. I love your attitude your bloody soothe my anxiety amazingly!! Your a star sweet heart ( and no this isn't that oh I feel sorry for you comment because you don't need that ❤️) I just wish I could hug you and say your so bloody brave to talk about this and still smile ❤️ wish I was more confident like you ❤️ love ya sweet heart keep smiling !! Your laugh is contagious 😂😂❤️❤️❤️

[@wallacesousuke1433]

Geeky_ Carlys I have social anxiety, I know how u feel

[@itzcyanni123able]

the key is God...you will be poured with all of his peace. beautiful soul😊💜

[@tillydeno6647]

My childhood friend Kayla had Cystic Fibrosis. She died when her lungs collapsed. She was a Champion Junior Dragster and such a daddy's girl. She was such a beautiful person. They buried her in her racing uniform, and her casket was lined with a checkered flag. It was beautiful.

[@animalloveremily2207]

Awww I feel so bad for her. But she handles it like a champ!!!!

[@saxxyoboe]

Man, she's so authentic. She just says what she feels without care or worry.

[@christion949]

I totally feel for you on this, my grandmother had 11 kids in her time, and 9 of them had CF, this was back in like 50s/60s i believe and so they only lived for about 3-5 years at most, the 2 that survived were my mom and uncle, this destroyed my grandmother as she was always scared to grow attached to her children because there was a possibility they would die, even after being told they didnt have CF she still found it hard to attach herself to them. Im so glad that now we live in a time where kids born with cystic fibrosis can live relatively long lives as compared to back then and be happy with it. Im happy that you accept yourself and make the best with the life that you have, spreading happiness and sunshine as much as you can! I have so much respect for you! If I ever have children with CF(Which is a possibility as my mom is a carrier for it and i might be, never tested) I will be glad knowing they could turn out to live a happy life like yourself! Best of luck!

[@kaylaaubry8177]

Ilysm Claire! I have CF too, I'm getting a lung transplant soon

[@immensepig]

take care I hope you feel better

[@Xonndy]

I think you are one of the bravest , most settled in reality person I have ever seen, I can´t explain to you how much I admire you.

[@MrDan798]

You're beautiful Claire... In every way that a person can be beautiful

[@ShaniTheBurningTree]

So beautiful and inspirational. I was just diagnosed with a chronic illness about three weeks ago and it's tough but I know what I'm fighting against. Your good spirit is one to model after :)

[@lovelyxskinny]

the good thing is many years ago, babies born with cystic fibrosis didnt reach to see their third birthday but now the average person with cystic fibrosis lives to 38, some even live to 50+. so at least if someone was going to be born with it, they were born in a time where life expectancy is decent.

[@wallacesousuke1433]

lovelyxskinny I'd rather die as a baby... Life sucks, more so when health is not ok

[@bieberlvr123]

I'm new to your account and you've been gone for months :(

[@udlauchstmacshauchny2521]

She's more active on her instagram. :)

[@Dani1998elle]

Christina Benavides Woah, It sounded like you meant gone, like gone gone

[@TheMindlessGurls1]

I got scared when u said that

[@sublimedoll4066]

M Hector she hasn't posted on anything in a while kinda freaking me out

[@katemullins1359]

Christina Benavides wait she's dead?

[@noadoru5059]

I'm just some random no one but this made me breakdown and cry. You seem like a really beautiful person and I admire your strength and positivity in the face of something that would almost certainly break me. I wish you all the best.

[@alanilagoa8407]

I have Crohn's diseases and have been so depressed lately honestly you are so inspiring and happy and just lovely thank you for being a ray of sunshine in this sad world.

[@kendallbeverly595]

is she okay? she hasn't posted in a while and i'm kinda worried

[@ariannam.9593]

Same!

[@SAK556]

She has retweeted/posted on twitter this week. Think she is in the hospital

[@kendallbeverly595]

+SAK556 really? what's her twitter?

[@SAK556]

80 bev After reading yours (and others) concern I looked in the description for her other forms of social media. Her twitter is in the description along with the others.

[@hannahodell2814]

+SAK556 is she ok?

[@christinahodges2615]

my 2 cousins passed away from c.f. they were under ten and passed within a few years of eachother.. sisters.. you are so strong to keep going every day... your a Amazing keep fighting every day... :) :)

[@mishels]

You are so lovable and despite talking about how you are not an adult yet, you are very much more mature than a lot of people I know in their 30's... :)

[@Mixedfairydust]

I love her because although she knows she's sick she still is so bubbly. Her voice is a ray of sunshine❤😍

[@ravigopinathan2835]

its so amazing that she says all this with a smile and jokes and actually is accepting of her condition:)

[@_juliarenae_7547]

the legacy you will leave behind when you leave us will be truly amazing. i love you endlessly.

[@ash_0.292]

believe me u r so so so positive that u r gonna survive very long ......every one including me r praying for u .......xoxo luv u

[@zakzoghbi]

You are awesome

[@darthbert42]

Thank you for this. It helps put suicidal thoughts into perspective.

[@whatgrindsmygears8700]

damn girl. keep on fighting. I don't know you but you are a light and so not depressing. it's beautiful and so are you

[@-Weemo-]

the fact that you can still stay so positive is so inspirational. you seem just so full of life and it makes me happy but also makes me a lil sad. live life to the fullest, enjoy it 😊

[@lindafukuyu5767]

Good for you .. I like your positive thinking .. We all should learn from your life experience. Thanks for sharing it to all of us. You're such an inspiration!

[@WrecklessEating]

[@valerie80yearsago90]

[@hawk4294]

[@theghostofkinglear]

[@mikaela8995]

You have such an inspiring presence, i cannot believe how bright and bubbly your personality is. I'm your age and I cannot believe how ungrateful and unappreciative I am. I love the way you approach life! you have definitely opened my eyes and made me realise and appreciate how lucky I am and how beautiful life is. Lots of love, You beautiful ray of sunshine🌻🌻

[@hyperdrivegamer7189]

Your video helps me even though I Have no illness but I do have anxiety and depression so seeing you so brave helps me live in the moment.

[@robertoaccomando9022]

You don't deserve this! Your an amazing person and your so inspiring and positive. I hope you live as long as you want

[@louibeans]

Commenting to tell you that I think you are amazing. Not because of how you're dealing with your illness (that's pretty impressive, too) but just your character, your sense of humour, your honesty and directness. All that makes me feel drawn to your personality. I bet IRL, you're an awesome and fun person to be around. With ups and downs like everyone else but I just enjoy hearing someone talk so openly and honestly about the difficult things in life. Just wanted you to know that. I hope you have a good deal of more time to just be able to be you a little while longer. All the best from Berlin, Germany :*

[@chh1058]

i want to touch base on a comment one of the viewers left below about being on a vegan diet and how animal by products can increase mucous buildup. I don't know if you've heard of Dr. Sebi but he talked about how certain foods and what we consume can contribute to mucous buildup. I hope your condition improves love and I hope nothing but the best for you. Sending you positive vibes. 💕 You have such a beautiful soul btw☺️

[@queencelestyna]

Being a CF carrier is one of the reasons I"m hesitant to have children. I don't feel like I'd be a very responsible world citizen if I passed on those genes to another human being (even if they didn't have the disease themselves). I really appreciate your honesty and openness with sharing your story.

[@Hana-lu6dl]

I am so sorry you have to go through that. You are such a beautiful, mysterious, wonderful and amazing person. Your intelligence and outlook is so honest and you can see the positivity in your eyes is inspiring.

[@davidh7302]

OMG, you are AWESOME with a capital AWE!! Never met anyone dying of optimism before. It fits you so well!

[@vixendais9988]

At least you're not all sad and depressed. Cause you would've made me sad and depressed lol. Hope you live till 30 😊

[@marrisaevans4905]

she looks like dani off cimorelli

[@Photosynthesislove]

Can you make a video about your favorite books.

[@shesACE]

+Photosynthesislove She made a video of that a couple weeks after she made this video if you haven't seen it!

[@jetnut89]

You got me so down. Even just watching videos of a person you begin to connect with them and relate to them. And in a case like this someone as wonderful as you, you hate to see something happen to them but you know the inevitable is going to come. At the same time you wish there is something that could be done to make them all better. How I wish there was a cure...

[@shellyortiz1977]

i have no words your courage and zest for life is mind blowing.i pray youll be ok and u get streght day by day so youll be hear in this life with the people who love you......

[@justin5573]

The 8 people who disliked... Why

[@jerichom11x]

+Savstin Streams Shes looking for attention. Everyone dies, boo hoo

[@nme2197]

+Savstin Streams I could get hit by a bus, give me attention and money. Every breath you take someone dies my cat died my dog died shit dies. I'm sure it sucks having the disease though, death will be her freedom.

[@caroninchen]

+Turtle oh wow..so so sensitive of you

[@jerichom11x]

***** What difference does it make? Once you're dead then it doesn't matter.

[@LSD_93]

+NmE * Edgy teenager alert. Surprised you haven't started barking on about how evil religion is.

[@bellasavone9647]

I can tell you are such a special soul. I just discovered your channel now & my heart is so deeply touched on a whole new level after watching how strong your mindset is. You already taught me so much about what a powerful tool your mind is.. Whenever I am struggling next, I will definitely be keeping you in mind. I am so sorry for your inconveniences in your life, clearly you don't deserve. My thoughts & prayers will forever be with you & your family. Please get better.

[@andiangel9084]

She causes me incredible happiness and good vibes every time I watch her videos, she does not deserve this at all but I am so glad that she chooses to share her little slice of life with us. I wish her the best in everything she does. Thank you angel x

[@autyyxo]

Just wanted to come and read the real comments before every comment becomes "I'm here from Shane Dawson".

[@cuddlingteddybears]

same

[@Sylphadora]

Claire, you're such an inspiration! ❤️ You live life at its fullest. Regardless of how long or short your life is going to be, it will be richer than most people's lives. I am older than you but I've never enjoyed life as much as you do, and so many people look up to you! You're a pro at life! 💪🏻

[@burntrazor]

she sees the more positive side on things and i never really do see any positive sides on a daily basis... i love her so much.

[@TeaganBAllen]

I'd be so depressed if I knew I was dying rapidly. I have so much respect for you

[@ElvisJonesII]

Gosh... you are amazing. My second grade best friend had CF. She ended up passing away at around 15 and you remind me so much of her. It's crazy

[@axmeee]

Who else came here from Shane's vid?????

[@myagoose2]

this girl is incredible

[@canpakclub1172]

hi you r the bravest girl i have ever seen.I'll pray for u.u'll get well soon

[@finnieboi3303]

You're such a great person

[@Kashley14]

When i was a kid (i dont kniw if im spelling it right) i had bronhidious and i had to get a lot of breathing treatments and everthing

[@kimiaranjbar4916]

I am so inspired by you. This video honestly teaches us to be more aware of other people's problems and being grateful

[@leahtopping4249]

the way you speak to the camera is soo natural and soo refreshing, I love it!! I could sit and watch you all day! I came across this video and now I'm going to binge watch all your videos haha! you are very inspiring and I will you all the best wishes in the world! xx

[@gabrielreyes4334]

I want to marry her ❤

[@TheMrQuepe]

+Gabriel Reyes woah

[@beauty_1717]

sooo cute of youu

[@Radio6future]

that's not creepy at all

[@nme2197]

+Gabriel Reyes Not a bad idea if she has money or cool stuff.

[@quinsey9211]

+Gabriel Reyes Not if I do first. *buys tickets to Alaska for the honeymoon*

[@matthewsarantapoulos3911]

You are so strong and inspirational chick!!! Thank you for making me stop and think about how much I complain about frivolous petty things that just aren't the end of the world at all. You are amazing much love from me and my family!!!

[@alanagee6043]

It's helpful bc I'm terrified myself. Having a disease sucks. But this type of progression I couldn't imagine. She's beautiful and hilarious. I think we all need a dose of clarity

[@billkillernic]

I was watching that video while smoking a cigarette .... I hate myself

[@valerief1231]

Bill Killernic please stop smoking. Please. Please. Please. My mom died at 52yrs old from suffocating to death then 7 weeks later...my dad from congestive heart failure. Chief cause of death for both was smoking. It is on their death certificates. Dad was 54. They were both remarried, so it wasn't that he was grieving for mom. It was the damage of smoking. Even cutting back some doesn't help. The good news is there are other forms of nicotine to help you. YOU can do it. Don't switch to vaping though, it can cause "popcorn" lung, where there are lesions all over the exterior of your lungs. There are tons of websites, support groups on FB etc. you will be so proud of yourself!

[@theroshawnshow3373]

Valerie Foster telling your life story aint gonna stop him or her. Its an ADDICTION. You have to get special help or you have to have the guts to stop even though you are addicted. Please stop isnt gonna help. My mom has copd from smoking and im not telling my life story. She actually has the guts to quit even though shes addicted....you have to find that power in urself to quit....not just "plz quit m8"....

[@IThinkItsForYou]

I love you. You're a ray of sunshine on this Earth. I get so sad that you're dying faster than the rest of us because you're this world is a better place for you being in it.

[@HaleyMary]

Wow, you are such an inspiration! Sometimes I feel down on life because of not having enough hours at work, but at least I have my health. You've shown that it's important to live each day to the fullest because no-one knows how long they have on this Earth in this lifetime. It's true that people live more in 20 years or so than a full human lifespan of 75 to 80 years.

[@ExtremBHB]

Clair I've watched almost all of your videos and I've got to say you are one of the most amazing human spirits I have ever seen! Your energy and your outlook on life are truly amazing! Watching your videos helped me deal with my own health issues and my outlook on them, although they are no where as serious as yours and not terminal. I'm sure so many people have told you this already but, your videos and speeches are truly inspirational. I wish you all the strength and happiness in the world but it looks like you already have that covered and are a strong independent smart and funny person!

[@msixeeya]

Hey just found you here. I'm so glad your still alive. I love your videos. You make me smile and feel and have hope . You are very inspiring thank you for sharing your life journey without and making all the difficult topics so filled with joy and positive energy . Sending a hug.

[@LauraScottBell]

You are so pretty. Thanks for sharing your story, darling! ♡

[@jmm639]

she's adorable and gorgeous and positive and mature.

[@LexiSaysRawrBaha]

you're so freaking cute. i don't want you to die. your positive attitude and love is what's keeping you so strong ♥️

[@MsBecs85]

oh dear! what to say? ! I wish you all the strength in the world to fight you battles. I wish you the most amazing life, whatever long that is, and when you go, go out with a blow. may it be as meaningful as your living, if that makes sense...

[@Brooke52528]

What a positive girl!! She has a great outlook like Mary from The Frey life x

[@oscaremoralesp28]

The search history is what gets me the most, that's terrifying..

[@HamiltonIsLife]

God bless your happiness. I feel bad for complaining as a relatively healthy person. God bless. you have such joy

[@yand3r378]

her personality is amazing.. so much respect

[@m4cykat]

I realllyy hope they find a cure to make you live until your an adult. I love you so much and you are so strong and it will make me so happy to know that your okay.

[@caridesha645]

If I were dying, no way I would be so happy. God Bless sister.

[@allyson5938]

We will all pray for u because you are an angle from heaven and a mericle🙏. Fight as hard as u can I know u will make it.😊✝️⛪

[@amystephens8758]

Ilove her. She spreads light always even though it's on such a horrible topic like death. So thank you honestly it makes us feel better about where we are going. X

[@5dfeminine]

I am so amazed by your courage and positivity! You are an incredible person.