My life with ME/CFS: To know there are others. What that means to me! 12 of May ME Awareness day.

12 of May ME Awareness day.
There are others.. Dont wish anyone to suffer but it is good to know that they know what you are going thru and can lift you up when you're down. Where you dont need to explain yourself.
My Life with ME/CFS (and fluid art if i am able to). The daily struggle with fatigue, pain, brainfog, PEM and anxiety. I raise awareness as this is also very simular to long covid
NOTE: if i am able i will also share creation and teaching of acrylic pouring

[@givmarcham7915]

Feeling heavy all the time like moving through treacle or mud for example

[@givmarcham7915]

Yes I agree, I've been to shops and saw my friend today I just got back, I'm bit warn out already, but I know tomorrow I'm going to feel like lead, I feel like lead everyday I get up in the morning, just getting out of bed can put you back to bed... This is the thing it can be even breathing and your just too warn out to do anything, the ME CFS clinic called me today actually it was nice to hear they've got a plan for me, I also need to get to the mental health services for a autism diagnosis so then I can't get the correct health plan for my ME CFS bcoz they both overlap eachother, but yes it can literally take anything physically or mentally stimulation can be too much aswell I can end up back in bed with everything shut and blocked out the lights, it all to often for people like us.... In fact the guy at my clinic even told me my undiagnosed autism can be a result of ME CFS bcoz my body my brain can't take anymore stress yknow that'd is it now my body's mind it's had enough now

[@jpwall]

Hi there. I was wondering if you are aware of any link between ME/CFS and the Gardacil Vaxs. I was diagnosed with ME/CFS and Fibromyalgia after these vaxes. Not saying it's linked, but I'm just trying to find out.

[@aflutteroffeminineconfusio1986]

Ironically I too was diagnosed with fibryomyalgia after my second pfizer jab...the aches and pains and flu like symptoms post jab just never went away ...I personally think fibro was there as was CFS and had been for years but this simply triggered an exacerbation of the more physical symptoms..I have another friend with exactly the same story which I only discovered less than a week ago ....proving it though is a harder matter ,but I'm living this hell and I know my body ...everything changed after that needle even my GP won't let me have the booster even though it can't be proven ...not that I ever planned on it mind 😌

[@PouringArtExperience]

No sorry i am not.

[@PouringArtExperience]

My symtoms worsend after the jab for 3 month on neurological level and unfortunately i know of people who had some more severe setback after the v.

[@jpwall]

Thank you both for responding. I appreciate your points of view. I did want to share that I've had remission of symptoms at times, mainly the pain. I'm starting to feel slightly less exhausted as well. I was told there's no cure, but I kept trying things anyway. I wanted to die before, but now I'm doing much better. Unfortunately, I still have to recover mentally from it and also somewhat energy-wise. Do you know if it's true about those little organelles that make energy, are they the cause of ME/CFS? Apparently we inherit them from our Mothers. Trying to remember what they're called. Or it could be from a virus. I was told I can't donate blood because they think some of this might be from viruses. Not sure if they meant fibromyalgia or ME/CFS.

[@givmarcham7915]

I can't spell correct either I am sorry I feel like led the metal led