My Lupus Story part 1

Hey Yall!
May is lupus awareness month, while the month is ending, I still wanted to share my story. I was diagnosed in 2009 and it took time to get the final word on what all my symptoms were from.
I hope hearing my lupus story is helpful to other lupus survivors. I look forward to sharing next parts that include how I learned my lupus type, managing my lupus, and lupus survivors summer must haves. fighting the wolf isn't easy, but connecting with a community and support group is essential. I wish there was as many lupies sharing their stories years ago when I was diagnosed.
Drop me a line below and let me know what else you would like to know as a person living with lupus.
Thanks for watching!
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PROVERBS 23:7
ROMANS 8:28

[@chazemululu7185]

Its so depressing especially when no one around you understands. I feel so sad

[@TheOfficialBiancaMedia]

I know the feeling.

[@Rangoli2020]

@jessica powers Hi how are you now....are you following herbal meds still or any diet..can you please let us know

[@gunnarstetson7346]

Pro trick : you can watch movies at flixzone. Me and my gf have been using it for watching loads of movies lately.

[@gregorydaniel9068]

@Gunnar Stetson Definitely, have been using flixzone} for months myself :D

[@aviancag8716]

Thanks for sharing your story. I was diagnosed in the hospital while being treated for pancreatitis. My lupus effects my pancreas and brain . The body aches are unbearable and fatigue is non stop. My brain is always in a fog . Lupus has changed my life. I’m a completely different person .its harder for me because I don’t have much family support

[@HelenDiazOfficial]

Please look into raw foodism and Doctor Gerson. Most of my symptoms have gone with a high raw diet. And I was in alot of pain prior. x

[@gregmiller9437]

Thank you for sharing your experiences. Someone in my life that I care deeply for was diagnosed just a few months back. I am not even certain they have it narrowed down yet to which type. I hope your videos will help me understand and assist her in this journey.

[@kaseyrowden5962]

Thank you so much for sharing your story. I have an appointment with a rheumatologist in three months. I've been having similar symptoms since March. It's been quite the battle and I'm hoping to get answers by next year. Your video gives me hope, thank you again💕

[@JeanetteMoser]

Thank you for sharing you story! I was diagnosed last year, and it is interesting hearing how this impacts different people in different ways. That is so great to hear that you have such a great support system, that is so key.

[@TheOfficialBiancaMedia]

Jeanette Moser thank you for watching

[@nikkiholmes3351]

Lupus is very brutal on the body. I was diagnosed 4 yrs ago. Let me just say this...I feel your pain. Everyday I’m in pain, no energy or nothing just pain. Each day is a challenge! Thank you for sharing your video beautiful. Keep the faith and keep fighting!!! Pray there’s a cure one day!!! God bless!!!

[@TheOfficialBiancaMedia]

Nikki Holmes thank you for watching. I appreciate it. Yes we serve a God who is a healer.

[@sehrishramzansehrishramzan2899]

same

[@sehrishramzansehrishramzan2899]

help mi

[@sanaatouzani3085]

Me too and I am so scared ! My ANA came positive and I don’t know what to do or how to continue raise my 10 year old daughter and I’m a single mom .

[@thencb41]

Thank you for this. I’m currently in the hospital and diagnosed in the last three weeks. Lupus is completely new to me and this is the first video I’ve seen that I identify with and helped me. I’m definitely subscribing to your channel and I am pulling for you in the battle with Lupus. Thank you so much for this.

[@TheOfficialBiancaMedia]

THANK YOU FOR WATCHING!

[@2koda1]

Looking forward to the upcoming parts.

[@prettyboiquick]

Wow it is crazy to hear your story especially being that everything you went through I just went through the week before Thanksgiving. Your symptoms, all the pain, and even how long you stayed in the hospital. I was diagnosed the day before Thanksgiving with Lupus and I am trying to find ways to handle it. I truly appreciate you sharing your experience and to see that someone went the same thing I went through. I am praying as well as subscribing to your channel.Stay blessed and Thank you!!!

[@TheOfficialBiancaMedia]

The Power 3 Podcast thank you for watching. Sending you positive vibes. Stay encouraged.

[@gregoryaydelotte9862]

Thanks for sharing your story. My daughter was diagnosed with Lupus several years ago and your video helps me wrap my arms around the disease. Knowledge is power and listening to you and others who share their life experiences will help me ask more questions and provide greater assistance for my daughter. Your vlog has increased my awareness and I'm looking forward to your next upload. Thanks

[@TheOfficialBiancaMedia]

Wow thanks for watching. That means a lot.

[@allison688]

I’m 12 almost 13 and I have all of these symptoms and I was born with the blood marker for lupus and this video really helped me thank you💜

[@TheOfficialBiancaMedia]

allison ballard aww thanks for watching chica!! Stay strong!

[@KickinItWithShun]

Thanks so much for sharing your story...praying for you. I can relate to much of your journey as far as physical symptoms n the emotional feelings; I was diagnosed with Rheumatoid Arithitis earlier this year n I’m still trying to process everything...sharing your story n being transparent is helping so many; Thank you; Sending prayers n hugs your way...🦋💜🦋💜🙏🏾

[@TheOfficialBiancaMedia]

Karen P thank you for watching.

[@adventuresinperiland7964]

I was diagnosed with tumid lupus between two and three years ago now and when I was diagnosed I found your video but I haven’t been able to watch it until now because I’m only starting to be able to process and except it, it has changed my lifestyle my diet and my greatest fear. Thank you so much for telling your story At this point I don’t think I would have the courage you do to share your story

[@elseochoa]

Thank you so much for sharing your story. I’ve been feeling the same with my lupus journey. Now I’m looking for a reheumatologist. Thanks to your video lol I know is not in my head. Especially the part when said you couldn’t walk. That happens to me all the time.

[@livingword5751]

Great testimony! I was truly Blessed.

[@jackiekelley3006]

Thank you so much for your video. I have been suffers from fatigue and joint pain for years. Now I have the butterfly rash hair loss and other symptoms so they testing me for Lupus. I am scared so I appreciate this so much

[@ladonnam.797]

I just listened to your video, thanks for sharing. I myself has lupus, just found out 2 or 3 weeks ago. Your video is so helpful, thank you!

[@TheOfficialBiancaMedia]

Glad it was helpful!

[@janicepagano9200]

God Bless you! Sending love & prayers from New Jersey! Thank you for sharing your story! You’re a beautiful young lady! Wish you the very best!

[@TheOfficialBiancaMedia]

Janice Pagano thank you for watching

[@janicepagano9200]

@jessica powers God Bless you 🙏 and thank you for sharing this period of your life with us!

[@LifeofToy]

Thank you so much for this video as someone else mentioned this is the wonderful thing about KZbin is that some people really put some videos out there that are so helpful for others who are struggling with the same problems me too I have been diagnosed with lupus about four and a half years ago yet I still don't know much about lupus when I was first diagnosed with lupus it barely affected me it gave me the butterfly rashes and I had a sensitivity to Sun and I would always remain cold after seeing this video you seem so knowledgeable about lupus it makes me also want to do my research thanks girl

[@TheOfficialBiancaMedia]

Latoya Peeler thanks for watching! Let me know what other videos you would like to see.

[@charlaitippett1547]

I’m here to learn for my my little cousin💚 Thank you!!

[@Rctracey]

hey thank you for share just got diagnosed 3 months ago and still don't know how to deal with it but thank you for sharing your story.

[@chunlee8291]

Thank you for your story! As someone who is going through something similar, I need some comfort that there are other people that are going through this. Been relying on my family but it's so scary.

[@TheOfficialBiancaMedia]

You aren’t alone. Lots of ppl on this journey.

[@cynthiamaua]

Thanks for sharing your story ❤it's really helpful as I battle with other SLE symptoms

[@nyreeclark7276]

I just received my diagnosis. I have my 1st official Dr visit since my labs on 2/12. This has been an rollercoaster of feelings. I'm so sick of the joint and muscle pains.

[@hapamamarocks]

Wow! I appreciate you sharing your story. I believe I was sick for a long time before I could get any help! It’s frustrating, you think your going crazy, am I just getting old and this is what it’s like or is something really wrong. After over a year it took took get diagnosed with SLE Lupus, fibromyalgia and carpel tunnel, it was almost a relief that there was a reason I wasn’t feeling good and it wasn’t me being lazy. I still don’t have a good rhythm yet. As I was just diagnosed, my pain is still there and some days I can’t get out of bed but I am hopeful. Again, thanks for sharing!

[@TheOfficialBiancaMedia]

Stacey Ferguson thanks for watching. Glad you have clarity now. Take it day by day. Don’t forget to celebrate the small wins!!!

[@annamcduffie4889]

My sister has been diagnosed with Lupus and I am researching ways that I can help her manage the symptoms . Ironically today is May 31st , 2020 and I am watching this video. Thank you so much for sharing your knowledge and your story!!

[@angelsbutterflies6293]

@Marian Cook Give up don't insult our intelligence. You're full of crap get out of here. Fake fake fake money scam

[@kyrieteleison3009]

You are most adorable! Thank you for sharing your story!!!

[@TheOfficialBiancaMedia]

Thank you for watching!

[@ravenseals2994]

I have scleroderma and I ignored the symptoms as well until one day I got to work in 2013 and passed out because my bp was so high both of these diseases are horrible and they are sooooooo similar I pray one day they can find a cure and thanks for sharing your story❤

[@TheOfficialBiancaMedia]

Thank you for watching! We gotta pay attention to the signs. We only get one body!

[@priscillapatten6229]

I haven't even googled this yet... I have appt for neurologist but my research is all symptoms of ms, fibromyalgia, lupus... & i HAVE HEART ISSUES. I KNOW I have heart issues but something more too. I'll research this. My poor future neurologist is in for a LONG APPOINTMENT

[@jones2277]

I love your makeup, girl! You look beautiful!

[@gingersnapjeepgirl5388]

Hello! Yours is the 5th video I have watched since I got home from the doctor today, but the first I have commented on. I just have to tell you how incredibly well spoken and beautiful you are!!! I can't wait to check out your other videos! Ha! (I was told today that my doctor suspects Lupus and/or RA.. or possibly MS. And, so it begins.)

[@TheOfficialBiancaMedia]

Thank you for watching

[@justlivelovelaughfrugally]

How are you any updates? I go see a rheumatologist today.

[@moh5796]

That Tin man " I need some oil" metaphor is the truth lol. Made me laugh. I know that pain.😣

[@katrecemiller8325]

2 years ago I was diagnosed with lupus and I was very active at the time but it came to a screeching halt. I’ve been on Benlysta infusion for some time now and no improvement. Seeing videos and post on KZbin on how Dr. Aloha uses his Holistic Herbal Remedy to cure people permanently, This encouraged me and brought me much knowledge so as to contact him which I did. He guided me and prepared the Herbal Remedy for me which I received through DHL delivery service. Just within a week of using this product I tested Negative to lupus the pains stopped. Gained more hair and the rashes on my skin where all cleared up. Kindly contact Dr Aloha through his Email: [e-mail] or Call/Text:[phone] if you need help.

[@airamcruz4548]

I can totally relate to being the tin man.

[@daphneteno]

When you said the prednisone had you like the incredible HULK you brought me back to 2014 when they infused me to treat it more "aggressively". Now I know I have to tell my story, I've been praying and seeing your video just confirmed it.. God Bless You😘

[@TheOfficialBiancaMedia]

Daphne T thank you for watching

[@AyyRalphy]

You are so gorgeous and charismatic!! I was laughing through with the ambulance thing! 🤣 I got a friend going through this right now. Yesterday at the gym i noticed her face was red and just working out she felt a burning sensation like coals. It scared me. And today she texted me saying her face was so stiff that she couldnt smile or open her eyes. Her blood results came back abnormal so...yeah :/! Praying for her and you too lovely! 😊

[@TheAlfakitty]

You are so beautiful. Thank you so much for sharing. It's helping me!

[@TheOfficialBiancaMedia]

Lara Farnham thanks for watching!!

[@latishabell4164]

Thanks for sharing. I had so many of the same symptoms before being diagnosed and avoided the doctors, no insurance and fear then i began passing out the weight loss ( omg i looked like death) but i was placed with an excellent RA doctor who is amazed i am not in dire pain or can function as i do. Thank God

[@TheOfficialBiancaMedia]

latisha bell wow. Thank goodness!!!

[@cookietood3496]

I two also have lupus same year everything this is a hard thing to except in life specially u never had it or in your family thank God for my friends and family and kids

[@TheOfficialBiancaMedia]

Cookie Tood yes. Such a surprise and a very hard pill to swallow at first. 😔

[@charminbruner4314]

Thanks for sharing your story. Lupis is a struggle everyday. Everybody does say you look okay. But don't feel okay. Haveing a painful lupus day

[@TheOfficialBiancaMedia]

Charmin Bruner thank you for watching. Sending positive vibes your way. 💜

[@russellloveland1214]

I have aching, rushing on my abdominal, brain fog issues many others. Recently also diagnosed with temporal seizures now on meds for that. Have Functional neurological disorder. Also had MRI done found a spot on my lung waiting to see oncologist to have biopsy of that. Keep strong everyone. I wish this on no one.

[@jamie8842]

I was diagnosed with Lupus nephritis in 2018 with 17 years so it was really hard for me but before my diagnosis the doctors thought it is cancer🤷🏼‍♀️ I feel with you and wish you the best!

[@TheOfficialBiancaMedia]

Thank you for watching. I couldn't imagine being a managing this is as a teenager. I wish you the best. Stay strong.

[@hayaashi00]

Hey! I was diagnosed with lupus nephritis 3 months ago and I really wanted someone to talk with who has the same conditions like me if you don't mind!

[@ohemmabri3551]

I was diagnosed at the same age and felt so alone. I had no symptoms but they seen it through my urine, and continued to do more tests and found out it was it.

[@danilobolvito4720]

Nice to hear, really

[@renieldiaz8811]

Thank you for sharing your story.

[@TheOfficialBiancaMedia]

Reniel Diaz thanks for watching

[@JosephMBlack10]

S/o Doc!! 🤫😉 Thanks for not saying her name. Glad you're looking well. Proud of you ALWAYS. 🙏🏾💜

[@cassandravick6327]

Thanks for sharing , after three years I'm still trying to get all the take all this in .

[@TheOfficialBiancaMedia]

Cassandra Vick it takes time. Have you joined a support group or participated in a lupus walk?

[@cassandravick6327]

Yes I'm in the purple wings , thank so much sweetie , stay well 💝💝😘

[@ericamiller3585]

Preach!!! 99% of the symptoms plus ANA labs are like 1:2156.... awaiting the final results of AVISA 5 more days.... I'm a nurse and pretty much quite sure.... kicking my own butt for ignoring the symptoms while caring for everyone else... but God.... thanks for sharing- "tin man" were my exact words!!!!!

[@ToshaRaeNailed]

Your story sounds so much like mine. I have SLE. In the beginning I just thought this was what getting older feels like. 😆 I had just turned 30

[@TheOfficialBiancaMedia]

margo81172 thank you for watching.

[@ColoradoCG]

Mine hit to at 30

[@octaviajohnson9908]

Thank you for sharing your story..

[@davebraho7145]

Hi there I wanted to say I give you a lot of credit for posting this video it's amazing to see the strength and courage and positivity you have your an amazing person live your life to the fullest never give up on your hopes and dreams and no matter how hard life can seem sometimes just always remember God gave you this life because your strong enough to live it I hope you have many more blessed days to come your way you have definetly inspired me and others a lot 🤗♥️📿🙏🏻💪🎗

[@davebraho7145]

@Marian Cook I love this reply keep up the positive energy luv live everyday to the fullest God bless you 🙏🏻🙏🏻💪🏼🎗

[@buttaflyantics8618]

Great video! Thank you for sharing your journey with the world💜 Your skin is amazing!! What do you use if you don’t mind me asking??

[@TheOfficialBiancaMedia]

Thanks for watching. I like Ole Henrickens products, but I'm always changing.

[@Sober_sol]

Thank you sharing this video.. just got diagnosed in June .. Having a difficult time

[@angelsbutterflies6293]

@Marian Cook Get out of here!!

[@cookietood3496]

God bless every person who dealing with this even Michael Jackson had lupus u try to keep a strong mind and a good feeling on life and yourself

[@TheOfficialBiancaMedia]

Cookie Tood gotta stay positive.

[@russellloveland1214]

I Had two strokes lupus showed in my labs because clots caused my strokes. Im cold alot. Aches pains. Spike fever out of the blue. Fatigued every day. Major weight loss in short time period. Severely sweat. Many other issues. I dont wish this on anyone. My white red platlet count is low. Waiting to see a hemotologist for recommended treatment. Im a mess. Your blogs help me keep them coming

[@TheOfficialBiancaMedia]

Thank you for watching. I hope they figure everything out. Not knowing is the worst.

[@irishchick5528]

Russell Loveland I also have lupus SLE, but I have a question on what you said....they found in your blood work you had a stroke. Is it possible to have a stroke and not know it and it would show in your blood work. My doctor always ask me if I ever suffered a stroke, I feel like why does she ask me that. Thank you in advance.

[@russellloveland1214]

@@irishchick5528 sorry ct scan showed stroke, heart attack in blood work would show tropoinin level would show if u had heart attack. In my case my blood is thick due to it thinks theres an infection in my body when i dont so my immine system attack my body. Telling blood to thicken which causes the clots which caused the two strokes i had. Luckly when i went to my brain i didn't hemorige or anorism

[@russellloveland1214]

@@irishchick5528 theres a test that can test how your blood clots when they teated mine the test failed or was positive meaning i had a blood disease where my blood clots to easy in the test its called the lupus anticoagulant test i tested positive. Hope this explains it better. I just also was told by my doc the lab notified her i tested positive for rheumotoid arthritis so this explained why my body is inflamed.

[@russellloveland1214]

@@irishchick5528 im thinking why your doc is asking is shes wonsering if u may have the blood disease i have. The clotting problem that can cause strokes.

[@ericamorkunas5236]

Thanks for your story. It's so nice to know I'm not alone☹️😉

[@TheOfficialBiancaMedia]

Thanks for watching.

[@HelenDiazOfficial]

Your never alone, us Lupies together! x

[@LupusPositiveLife]

Hi there .. hope you are doing good ...soft hugs 🤗

[@karenwillis3816]

I was diagnosed on November 19, 1999. I had all of the same symptoms and today somehow your video popped up. I have lupus nephritis also and I’m on a host of meds. for just about everything still. My lupus still isn’t well controlled. I was good for 1 week, I went into remission, and now I’m still very, very sick. God is an awesome God though.

[@awkwarditaliangirl8419]

I was diagnosed with lupus 5 years ago & it’s so strange because it took a year and a half to figure out what the hell was wrong with me. After being to about 1001 specialists, as a last resort, I was FINALLY referred to a rheumatologist... and when she saw me she told me my levels were sky high, and that they must have been high for awhile. I don’t understand how none of these other specialists didn’t notice something was massively imbalanced in my body?! Now I have permanent joint, bone, and organ damage

[@TheOfficialBiancaMedia]

Thanks for watching. Ugh that is so frustrating to hear. Boils my blood that this happened to you, but you are still here, keep fighting.

[@kristieashley5966]

I been hurting for bout a year as well I find out if I have lupus in 2 weeks I'm so nerves... How are you doing today???

[@sarahsahidjuan9107]

Sorry to hear that my dear,,,god bless you always😘😘😘😘😘😘

[@TheOfficialBiancaMedia]

Thank you for watching.

[@joannajohnson2669]

You Look BEAUTIFUL !!! BTW!!❤❤❤❤IM About to be diagnosed with it

[@jolisablount8658]

this helped me so much

[@TheOfficialBiancaMedia]

Thanks for watching

[@tiakato633]

It tries to take control over you. Takes YOU away from YOU.. It's not a friend... not at all. For a second there it made me feel like a monster. An ugly LAZY monster. And you try and fight it. You try and you try and you try. But it takes a part of you. It transforms you into this other person. I feel like I can now love my family more, being grateful it's me and not them.

[@TheOfficialBiancaMedia]

Tia Kato so true! Thank you for watching. Stay encouraged.

[@hayesAlexa]

you are beautiful,with a great spirit God bless you

[@TheOfficialBiancaMedia]

hayes Alexa2014 thank you for watching!

[@1thinkboss]

Im so sorry to hear this. I also think i have it i started having seizures last year n January when i have my menstrual and im very moody and aggravated.

[@TheOfficialBiancaMedia]

Thanks for watching. Be sure to get it checked out! Don't wait!

[@joellealger7604]

You’re so beautiful!! ❤️

[@TheOfficialBiancaMedia]

Thank you

[@oh_sheena2312]

Thank you!

[@TheOfficialBiancaMedia]

Thanks for watching!

[@katherineshaespradley3716]

Thank you

[@keylifenab123]

Damn I think I have it. I am familiar with all these symptoms. Mannn I need to go find out for sure

[@TheOfficialBiancaMedia]

Definitely, see a doctor if you are having issues.

[@thekidd5585]

I’m getting tested for lupus. They suspected ms but the tests came back negative thank god. Two of my aunts have lupus so now they suspect that. I have a lot of tbeclassic symptoms such as joint pain and rashes. :/ thanks for making this video, I hope you’re doing well! 💕❤️

[@TheOfficialBiancaMedia]

J D thanks for watching. I hope they can figure it all out.

[@lilliantrevino6940]

Omg I Finally found someone with Lupus. I was Just diagnosed 2 month's ago

[@TheOfficialBiancaMedia]

Lillian Trevino stay encouraged. Thanks for watching. Let me know what other videos you want to see

[@NatG97]

Wow you are so pretty!

[@TheOfficialBiancaMedia]

Thank yo.

[@Nurse_LoLo_Plant_Life]

Look up Dr. Brooke Goldner, MD @goodbyelupus, she's a great educator on treating/reversing autoimmune diseases! Best to you! ❤

[@TheOfficialBiancaMedia]

Will do, thanks for watching.

[@anusuaray4361]

@@TheOfficialBiancaMedia where s part 2 m waiting cause my cousin is diagnosed with lupus and she very much depressed and demotivated. I want to motivate her.

[@ug3883]

Please look for dr Brooke Goldberg she has a book goodbye lupus and a KZbin channel... you can reverse your lupus

[@reneebarnes1957]

Highly recommend Dr. Brooke Goldner @ goodbyelupus! Her green smoothies are game changers!!

[@keylifenab123]

Thanks for sharing

[@TheOfficialBiancaMedia]

Thanks for watching!

[@alissagonzales1524]

Nice to listen to

[@elaineporter9341]

Thank you ‼️‼️‼️

[@priscillapatten6229]

Idk if I have lupus, ms, fibromyalgia... But something is wrong with me! Thank you for sharing!

[@sensoryzoo8293]

Same here, but I just have a feeling it's most likely lupus for me. As it came up a few years ago somehow in blood work but they ignored it at the time

[@priscillapatten6229]

@@sensoryzoo8293 saw Dr yesterday & finally going to see neurologist but have to wait... However, it's a start! I don't want to be sick but if I am (& I'm definitely not well) I'd be better off having a name & diagnosis for my illness & hopefully feel much better with treatment & lead the best life I possibly can. Wish you the best!

[@priscillapatten6229]

And Dr's can really suck about diagnosis 😟

[@sensoryzoo8293]

@@priscillapatten6229 thank you. I wish you luck too.

[@more2me100]

Have you figured it out? I just started my journey of finding a diagnosis.

[@downtownswingin]

My name is Bianca, too. I also suffer from Lupus/SLE/Lupus Nephritis. I was diagnosed when I was 17.

[@TheOfficialBiancaMedia]

bbonifacio20 oh wow. Bianca is the best name ever isn’t it!!! 😁

[@downtownswingin]

TheOfficialBiancaMedia Haha yup for sure!! ✌️👍

[@justjanable]

My neighbor, my friend passed away last Tuesday from lupus complications. She had many syptoms...rash, joint pains, and them low white cell count. She had to avoid the sun. She had it very bad. She develop infections.

[@TheOfficialBiancaMedia]

Jan Gibson wow. My heart breaks. We gotta find a cure!

[@justjanable]

@@TheOfficialBiancaMedia It is very sad as my heart is breaking because I never did such research on lupus. I found out that she was in the sun two days before she got very sick. Please take good care of yourself sister.

[@dare-er7sw]

How old was she?

[@kiranbhatthal9414]

Jan Gibson I have lupus and I don’t know anything about It :,( scared

[@justjanable]

@@dare-er7sw she was about 35yrs. Sorry for late reply. I hope all is well.

[@Sumer3]

Hi! Thank you so much for posting this! I have lot of your symptoms! I was wondering what made ER to see a doctor Was your ANA positive at the time or when you did get diagnosed ? I’m wondering cause my ANA was negative but lots of my blood work show inflammation. I had a ER tell me the same thing and he thinks it can be lupus to see the rheumatologist

[@sugabear440]

Thanks for this Video, I am going through the same thing The pain, sweats, joints locking up extremely fatigued rash from the sun I’m currently going through testing my Docs are leaning towards RA but I think it’s Lupus I may need to get a second opinion

[@TheOfficialBiancaMedia]

Thanks for watching. Yes, always get a second opinion.

[@ToshaRaeNailed]

There are so many parts to the lupus story... I was diagnosed in 2011.

[@judyb8018]

I got down to 100lbs before I got diagnosed with Lupus and Sjogrens by the right doctor. Never give up.

[@PolinaZavolzhskih]

You are such a beauty! Thanks a lot for sharing your story. I was wondering what meds do you take now and how often you experience flare ups? Also, is sunbathing okay for you? Please, let me know 💕

[@TheOfficialBiancaMedia]

Hey chica! Thanks for watching! My flares aren't as bad as they use to be. I probably have a flare two or three times a year and I can feel it coming on. As far as my lupus specific medicine I take plaquanil, my other meds are for other things. Sunbathing, I'd be very cautious. When I"m at the pool or beach I have to make sure there is an umbrella or some place to retreat to out of the sun. I love the summer, but the sun is more draining on me that it use to be. So just air on the side of caution when it comes to the sun.

[@ACole-to3ij]

Been having some weird symptoms was in the ER with low wbc they never tested me for lupus .

[@russellloveland1214]

I felt like charlie brown too when they told me.

[@TheOfficialBiancaMedia]

It was so unreal.

[@milahmeyamii]

God bless you 🙏🏾❤️

[@TheOfficialBiancaMedia]

Thanks for watching.

[@houzhead6588]

I dealt with your initial symptoms as a child. Deep in the bone ache till i was in fetus form rocking. Had one incident in high school where my elbow swelled up pretty bad but that was in the late 80s early 90s. They just put it in a sling and excused me from gym till it went down. Was healthy and active as an adult. Had my second child at age 35 and my body went ballistic. Waking with hands and feet swoll like baseball mitts hurt to open and close hands. Over an hour to get out of bed and still hurting. Every joint just hurt. While pregnant I stayed in flipflops and socks at work. After I had my son I was still flared...exhausted, toes locking up in joint running bk n forth to ER.. just out of sorts. Been to 4 Rheumys and test show ANA positive but titer not high enough to diagnose. Sedimentation etc reflects my swelling but this rheumy diagnosed me with sero-negative rheumatoid arthritis. Prior to meds I also had hives. Diagnoses as a child w eczema. Hair fell out but recovered with zetar shampoo. Dont know. Dont want lupus...dont want to be sick but it's very apparent. Trying to stick with this rheumy bc I know they need time to figure things out but it's been 7 yrs w her. Last 4 yrs neurological issues as well. Unstable gait, memory bad, tremors, and migraines w/trimmings. Listen to your bodies guys. I want to seek Nother doctor but with all the meds I'm on it seems like things are masked and side effects from meds etc. Dont know what to do. Thanks for your story and God Bless!

[@houzhead6588]

@jessica powers thanks so much

[@justlakayvia6810]

I have Lupus as well and I’m just starting this Channel 🥰

[@TheOfficialBiancaMedia]

Yay congrats! Our stories much be told. Best of luck!

[@yunassecretrapcareer6106]

I was diagnosed this month with Lupus. The Dr was very unprofessional. She put me on meds while I had only joint pain, after side effects(9days) she took me off of the meds. Causing my first HORRIBLE flare. That was 2 weeks ago. I and just getting a tad better but I was suffering man. When I called to leave a message for an emergency appt she never called me back! 5 days later I had to call her after hours and get a message back. Her front office people are worse! I will be place on hold for 20 min then hung up on. Or I’ll call n get a machine saying the dr isn’t taking calls. It’s the worst. I have three babies but 1 is over the age of 18. All I keep thinking about is them. When I was told it’s like they told me I was dying. I’m new to all this and don’t know what to do. 😩 i get short winded just getting up to use the restroom. Which freaks me out (🙋🏻‍♀️ anxiety person ) . I wanna know if that ever goes away? Can ppl with lupus really enjoy life ?

[@TheOfficialBiancaMedia]

Thank you for watching. Stay encourage. You will make it through. Document everything and be sure to file a complaint with the hospital or even the health department. Find another doctor if you need to. You will make it through.

[@yunassecretrapcareer6106]

I woke up today unable to move by body. My heart pumps so fast trying to help me that I feel like passing out. I’ve been to the ER 5 times and the Drs won’t admit me because and I quote “don’t have non emergency beds”. Idk what to do anymore. I went to go get a CT scan yesterday n my heart was pumping so fast that it pumped the medicine too fast before they could take the CT of my heart. My family doesn’t get it. They say it’s anxiety making me feel like not moving. It’s anxiety that causes all of this.

[@samantadallas5393]

Hey just seeing this I just had labs done my sed rate was high, positive ANA, I have been having the same symptoms waiting to see my doctor again

[@TheOfficialBiancaMedia]

Samantha Dallas thanks for watching.

[@LYANN1510]

My doctor just called me yesterday and told me my a.n.a is positive. Now i have to see a rheumatologistist soon. My joints hurt and my hair is falling out. Im so depressed i dont know much about lupus. Im so scared!

[@bnholman39]

stay encourage....you will be ok. Ask the doctors as many questions as possible if you don't understand something. take lots of notes, keep a journal of how you feel, what you eat, and physical activity, and your mental state. you will overcome this.

[@marycook957]

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[@fightforfreedom21]

Hi, do you tested also for EBV? bcs there is some correlations in papers studies between EBV being the cause of pathogenesis of SLE (lupus)

[@Namgyalma]

I was diagnosed lupus 1 and half year back. I'm having a lot of skin problems these days. What should I do ? I have no idea. Although the medication are treating my pain but not my skin problems.

[@wasanawijesuriya2709]

I also Lupus patient for 10 years.

[@TheOfficialBiancaMedia]

Thanks for watching!

[@charissaaquino9063]

Mine started that i have mild carpal tunnel syndrome..At this point i am still not officially diagnosed that i have lupus but my ANA titer test was positive 1:40 speckled... i’m still going through a lot of test... seeing 4 doctors including my rheumatologist... going through this is so stressful..at times i woke up and i feel so tired, muscles and joints aching

[@TheOfficialBiancaMedia]

Charissa Aquino thanks for watching. Ugh i totally understand your pain. Keep track of everything. That helps the doctors make a decision. Stay in tune with you body and what you eat.

[@ThePixxel007]

I have the same issue with my fingers getting stuck. I have positive anti smiths and and anti rnp antibodies, amp positive, vitamin d deficiency. I’ve got so many of the symptoms and my rheumatologist is telling me my vitiligo is causing the anti smith and rnp antibodies to be positive. I can not find that to be true. I’m constantly bed ridden with fatigue and on a bad day sometimes I have no energy to even stand or walk. I physically feel like I can’t. Not sure if I should just be patient with my doctor who is evasive when I try to ask her what she thinks. Don’t know if I should wait it out with her or see another rheumatologist.

[@orrissiaedwards8402]

just found out about a week ago .. N it all started with my kidneys n swollen feet

[@rebeccarice2650]

I just turned 22 years old. This is my second round of blood work and my ANA test was positive. She said this means i have a high chance of having Lupus. My primary doctor is referring me to a Rheumatologist.I started feeling sick February 20th. I actually got mis diagnosed with mono and thought thats what i had for 2 months. The pain, nausea and fatigue is absolutely horrible. Im hoping to have a complete diagnosis soon so I can finish up my senior year of college in the fall. Thank you for inspiring and sharing your story.

[@skyeliu2002]

what song is it in ur intro? the piano song is rly nice :)

[@tonioagnat4019]

Thank you for this video i know what i to do now to my girlfriend because she has a lupus too i feel so sad that i saw her struggling for that illness. I hope you do well now godbless to you

[@TheOfficialBiancaMedia]

antonio agustin give her all the love you can. Keep her encouraged.

[@Solowar15]

Bro....I'm in the same boat. I'm talking to this girl now who I'm really falling for and she has lupus. God fearing woman and I'm the same. I wanted to see how serious it is cause God forbid I dont wanna lose her no time soon. But she seems full of energy and really into me. We love talking about the bible and God's love and she used to be so isolated to herself but around me she is like full of energy and life and I love that about her. Bro thank you for this comment. I want to be extremely supportive to my maybe new girlfriend and maybe wife in the future. And to any others guys out there that maybe have a female partner with lupus we need to support our women and encourage each other. God bless you all in Jeus mighty. Also a special thanks to the owner of this channel and video. God bless you! 🙏

[@mahogenynewton4776]

I have lupus I find out in 2017

[@pineapplezz865]

I wish you healing and health. You are gorgeous what the name of the blusher you used ,thank you .

[@TheOfficialBiancaMedia]

abid alharbi thanks for watching. I think it was one by Fenty.

[@markeezecobin6707]

I’ve been having some symptoms I have rashes , I’m also having issues with my kidneys I’ve had protein in my urine also having a lot of joint pain and low white blood cells just seem like it veryhard to detect

[@TheOfficialBiancaMedia]

Thanks for watching. Yes, it takes a while for doctors to pin point it. It can be fustrating.

[@Awekoakai]

I’ve also had protein in my urine and been diagnosed with lupus nephritis. Had rashes, been on multiple Meds, developed bilateral hip avascular necrosis - had hip surgery...the whole 9 yards. Now my wbc is 1.6 started prednisone again etc but scared to start cellcept. Anyone have advice on cellcept?

[@justpeaceful9841]

@@TheOfficialBiancaMedia I did blood test for 4 yrs straight before it came out positive. But I knew that there was a strong possibility I had lupus because I did my research on the internet and matched the symptoms. Living with it from 1999

[@liagonzalez6778]

Thank you so so much you know its hard with this illnesses I suffer from FIBROMYALGIA and its the most horrible painful condition that I would not wish to my worst enemy, every bone and muscles constantly hurts, In my whole body i get bruises and its painful and beyond debilitating that is why is called musculoskeletal decease so I feel for you cause its not funny.