My POTS Diagnosis. Story time!

  Рет қаралды 504

Lexy BB

Lexy BB

Күн бұрын

Пікірлер: 15
@theiconicBriar
@theiconicBriar 4 ай бұрын
girl, your so pretty ❤
@christinawentzel9624
@christinawentzel9624 5 ай бұрын
Trying to get my daughter diagnosed with something right now. We’ve been on this journey for 6 years and they still haven’t found answers, but has a lot of the same symptoms including dizziness, fatigue, increase heart rate and blood pressure for long periods of time. She’s seen ENT, cardiologist, and psychologist so far and all say she is fine. Heart monitor was only over a weekend so they didn’t catch anything. The only thing that happened was she got dizzy during her exam while going from laying down to sitting.
@lexybb2061
@lexybb2061 5 ай бұрын
It takes a long time! I’ve seen some people not find out they have an autoimmune disease for years! You can always try ordering her own test instead of relying on a doctor like I did! I also get tremors which was is a symptom I forgot to mention. Best of luck! 🥰
@mrsks5399
@mrsks5399 5 ай бұрын
Does her heart rate increase by at least 30 points from sitting to standing? Does her blood pressure change from sitting/laying to standing? I've been to all of those doctors too and they gave me the run around. Found an awesome POTS/EDS Doctor and he knew exactly what to look for and what was going on. Salt and lots of water help somewhat but still not enough to where I don't need my propranolol. Good luck!
@christinawentzel9624
@christinawentzel9624 5 ай бұрын
@@mrsks5399 This I don’t know. It’s information that is relayed from her school nurse when I have to pick her up from an episode. The last time the nurse had said that my daughter had been in her office a while probably 30-45 minutes and her heart rate was still 130’s while laying down.
@theiconicBriar
@theiconicBriar 4 ай бұрын
lexy, you should make more sims4 videos, the tut was absolutely amazing, u deserve more subs and views :3 ❤
@lexybb2061
@lexybb2061 4 ай бұрын
@@theiconicBriar awe thank you I appreciate it, and I have definitely considered it I am just unsure where to start lol
@theiconicBriar
@theiconicBriar 4 ай бұрын
@@lexybb2061 lol, yw, i have that same problem, idk what story lines to do and stuff, now i got all packs and stuff, but i still dont know what story to do, i'm jst looking for ideas lol
@Stella88Iris
@Stella88Iris 5 ай бұрын
I somehow found you today through a sims video and I saw this video. My husband sounds a lot like you. He also has Graves’ disease and was once on the same meds. Now he is having similar symptoms that you describe (dizzy spells, headaches, new intolerance to summer heat, fatigue, foggy mind, heart palpitations, heart pain, incredible anxiety). I suspect it’s Pots but I just heard of this condition. Hoping to find a doctor that understands.
@lexybb2061
@lexybb2061 5 ай бұрын
Awe especially rare to have pots as a man, so might be hard to find a doctor willing to diagnose it! I wish you and your husband the best!!! All autoimmune diseases suck!
@JLR-so3zc
@JLR-so3zc 5 ай бұрын
Do you have any other socials to connect with you on?
@benrhodes534
@benrhodes534 6 ай бұрын
Your story is very interesting. I have watch a few streams and now I'm intrigued to get to learn more. Imo women look better with no make-up.
@benrhodes534
@benrhodes534 6 ай бұрын
For me music always helps check out "Pressure" by Rare of Breed. He is one of my fav
@benrhodes534
@benrhodes534 6 ай бұрын
Sorry wrong song try "for me" by rare of breed
@lexybb2061
@lexybb2061 5 ай бұрын
I appreciate your support 🥰
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