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An introduction to my medical history and spinal CSF leak and arachnoiditis diagnosis. These illnesses were triggered by a ladder fall in January 2015 0:18 as well as probable biological disposition. I was originally diagnosed with a concussion/ post-concussion syndrome 0:30. This video also includes footage and photos from my February 2021 acute arachnoiditis flare 2:38 which was reversed by a 5 day treatment with IV Steroid Methylprednisolone 500mg a day bag 4:29. (I always also take 20mg Omeprazole to protect my stomach from steroids & anti-inflammatories.)
I now have two written appointment follow-up letters from two UK Midlands NHS Senior Neurologists from two separate hospitals (one more local and one where my spinal CSF leak specialist team are) confirming the radiologically supported diagnosis of arachnoiditis.
Please note: Suggestive features of arachnoiditis can now be seen on my earliest MRI's in March 2015 1:46 prior to me having ANY spinal procedures. It may well have been caused by one of my bone spurs 1:57 in my thoracic spinal canal piercing the dura from the fall and did not result directly from medical procedures. Although they could flare it over time. I do also have Tarlov cyst/s in my sacral spine and many meningeal diverticula in my thoracic and cervical spine. (This video talks more about other radiological finding • DAY 12 OF STEROID & AN... ).
My last spinal procedure was in September 2017 CT Myelogram (caused a seizure as I talk about in my day 1 steroid taper video: • DAY 1 OF STEROID & ANT... ) then an epidural blood patch (no.4) a week later.
Please also note: It is very risky to do diagnostic lumbar punctures on patients with suspected spinal CSF leaks or arachnoiditis. It can make them worse & they may have a connective tissue disorder which means they struggle to heal. Also only 40% of people with an active leak will show low pressure (1-6) anyway. SEE: journals.lww.c... spinalcsfleak.... & spinalcsfleak....
To view my whole video diary please see my KZbin channel: / @beckyhillblog
To view my year update (6 months after this flare, one year after diagnosis) then see this video: • MY ARACHNOIDITIS UPDAT...
Or flare video playlist: • DAY 2 ARACHNOIDITIS & ...
Or IV Steroid treatment and recovery playlist: • DAY 1 IV STEROID TREAT...
Or oral steroid & anti-inflammatory taper recovery playlist: • DAY 1 OF STEROID & ANT...
Read more about my story at: beckyhillblog....
Twitter: Beckyhill3
PLEASE SHARE WIDELY IN ANY CONTEXT: This is a FULLY PUBLIC educational video project & can be shared with anyone in any setting or platform with my full permission. My only desire is to raise awareness of these desperately awful conditions & how to treat them.
#Arachnoiditis #Adhesivearachnoiditis #SpinalCsfLeak #CSFleak #PostConcussionSyndrome #TarlovCysts
UK CSF LEAK CHARITY: www.csfleak.info/
US CSF LEAK CHARITY: spinalcsfleak....
SPINAL CSF LEAKS: Clinical Presentation, Investigation Findings, and Treatment Outcomes of Spontaneous Intracranial Hypotension Syndrome (NHNN authors): jamanetwork.co...
ARACHNOIDITIS: ‘Arachnoiditis - Taming the Most Painful Pain’ Dr Forest Tennant video
• Arachnoiditis-Taming t...
ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete) www.practicalp...
IV STEROID TREATMENT: A medical paper supporting the use of steroids in treating early stage arachnoiditis and in the prevention of further adhesive arachnoiditis: Immunotherapies in chronic adhesive arachnoiditis - A case series and literature review www.sciencedir... And another case where IV methlyprednisolone was successfully used: Idiopathic Arachnoiditis of the Cauda Equina: A Case Report from Tanzania www.karger.com...