My Vedolizumab / Entyvio Infusion Day VLOG (2018)

  Рет қаралды 2,919

It's a Hard Crohn's Life

It's a Hard Crohn's Life

Күн бұрын

Пікірлер: 20
@joec2442
@joec2442 5 жыл бұрын
Just talked to my doctor about this, his recommendation, glad to see your videos as they help with this unknown I’m facing
@alexf800
@alexf800 5 жыл бұрын
Somehow I hesitate to go on biologics ..... injecting pharma poison in my opinion. I know it “works” but remicade was a “miracle” drug too at one time ... I really hope this drug does not fail in the long run. Thanks for sharing and I do wish the best for everyone but we need to be observant of these heavy duty meds.
@Gefjon37
@Gefjon37 6 жыл бұрын
TFS! Starting my first dose November 8th, was very nervous but this video put my mind at total ease!!💕💕💕
@ItsaHardCrohnsLife
@ItsaHardCrohnsLife 6 жыл бұрын
Hello Holly!, aww im so pleased it has helped you, if you need me on the day just message me on here or Instagram and i will do my best to help also 😘💜 x good luck for the 8th xx
@chellie7887
@chellie7887 6 жыл бұрын
Hi☺ It's wish there was more of these videos when I first started getting infusions, because it was so scary at first, and it took 2 hours for the inflimib one and then you had to stay another 2 hours after it was a long day. But now having entivo it went so fast, and wasn't as daunting. So I know that this will help others too, because I think it is easier to see it, than trying to explain it. So thank you again 💜xxx
@ItsaHardCrohnsLife
@ItsaHardCrohnsLife 6 жыл бұрын
Michelle Chase ahh thankyou!, very true so much easier if it doesn’t take up the whole day xxx
@ItsaHardCrohnsLife
@ItsaHardCrohnsLife 6 жыл бұрын
Michelle Chase hiya Michelle I think it may be your infusion day today, if so I hope your as brave as last time and it’s all good! . Let me no 😀xx
@n.r.s5534
@n.r.s5534 6 жыл бұрын
This treatment is totally different by the way what you talking about id infliximab which is an infusion immunosuppressant, this is called VEDOLIZUMAB Its a monoclonal anti bodys The drug you are taking (infliximab) has very serious and dangerous side effects, this hasnt got a serious life threatening side effects like infliximab
@SallyBoebally
@SallyBoebally 6 жыл бұрын
This was great :) well done for filming in public - I always feel so awkward! X
@ItsaHardCrohnsLife
@ItsaHardCrohnsLife 6 жыл бұрын
Sally Boebally ahh thankyou, luckily it wasn’t as busy as usual or it mite have been a different story 😂 xxx
@Gefjon37
@Gefjon37 6 жыл бұрын
My start date has changed to mid December, between the crohn's pain and my nerves I just want to get this started!!! At this point I'm not worried about the side effects anymore, hoping this will manage my Crohn's!!
@ItsaHardCrohnsLife
@ItsaHardCrohnsLife 6 жыл бұрын
I completely no what you mean, i remember getting to the point you just want to get that first one over and done with, but im hoping it will for you also 🤞🤞
@allan210015
@allan210015 Ай бұрын
Has anybody had any head twitching spasms develop from these medications? Or any uncontrollable movement?
@chellie7887
@chellie7887 6 жыл бұрын
Hi☺ Just watched your video, thank you for that. Its so helpful. I wish you the best xxxx
@ItsaHardCrohnsLife
@ItsaHardCrohnsLife 6 жыл бұрын
Michelle Chase it was annoying they wouldn’t let me film but to be fair there’s nothing much else to see, I thought seeing how quick and simple it looks will help put peoples mind at rest 😘 xxx
@AbdulsalamKsa
@AbdulsalamKsa 5 жыл бұрын
I took two doses , I feel better but still 8 times a day going to rest room :( When the medicine start working with you?
@ItsaHardCrohnsLife
@ItsaHardCrohnsLife 5 жыл бұрын
If you have seen an improvement in some way thats a step in the right direction for sure!, it is a slow working med ,give it time but i was in remission after my 5th infusion i wiukd say xxx
@n.r.s5534
@n.r.s5534 6 жыл бұрын
Tried to look for your Instagram page couldnt find, could you please send me the link thanks
@majidalghamdi7
@majidalghamdi7 5 жыл бұрын
Have you suffered any side affects with this medicine ?
@badromenful
@badromenful 5 жыл бұрын
I'm very thankful for it ,I get the same infusion , I don't feel sick or tired and I don't make a big deal about it either it's just an infusion , it helps me lead a normal life and be able to work thankfully I get insurance that will cover it or I would be fucked
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