Myasthenia Gravis - First Choice Neurology - Dr. Jennifer Buczyner

[@shannonk.harper4606]

This helped me a lot. A neurologist recently recognized the muscular differences in my face, weakness, problems looking up, tiredness, and breathing issues. I saw 10 doctors who told me there was nothing medically wrong with me, including my PCP. Even after passing out and going to the ER in an ambulance. I am now awaiting blood tests and trying to stay out of the ER in the meantime. Hoping for the ability to remove my thymus, if possible. Thank you for your guidance and your passion for helping others. I can’t wait to be me again.

[@paulasanz9600]

Hello there did you had the Thymectomy? Mine was performed a couple of days ago ✨🙏💫 Hope you are doing well

[@shannonk.harper4606]

@@paulasanz9600 Not yet! I was diagnosed with MG and am almost in remission now: they think it was brought on by covid, the vaccine, or both. But they want to remove my thymus and I probably will next year.

[@shannonk.harper4606]

This helped me a lot. A neurologist recently recognized the muscular differences in my face, weakness, problems looking up, tiredness, and breathing issues. I saw 10 doctors who told me there was nothing medically wrong with me, including my PCP. Even after passing out and going to the ER in an ambulance. The last time in the ER I had paralysis. They told me it was all in my head and I cried because I was so mad at myself. I am now awaiting blood tests and trying to stay out of the ER in the meantime. Hoping for the ability to remove my thymus, if possible. Thank you for your guidance and your passion for helping others. I can’t wait to be me again.

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@jorher61]

Very comprehensive presentation. My daughter has MG now 6 yrs (17yo to 24 now) . Both her parents are registered nurses and drained and 😔 , I can’t imagine how non health care family and people with MG feel. My daughter is now on her 2nd hospitalization this year and it’s extra tough because of COVID (risk and unable to have visitors)

[@JannGray]

This helped me so much...I've just been diagnosed with MG...and need lots of education...tell your colleagues that a communications professor/educator said you did fantabulous! I do better with knowledge...and you helped me understand what I'm dealing with...thank you so much! I'm headed to check out your migraine video!👏👏👏👏👏

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@debbievalentine5909]

Thank you so much for this presentation. I feel I have this. Had eyelid surgery few years ago and my lids are droopy again and feel heavy in the afternoon. I have right side facial paralysis I’m so fatigued, can barely walk up stairs, get out of breath, can’t get out of a chair without pushing up with arms. I’ve blamed all this on fibromyalgia.

[@ameegrant6055]

Hope you already got tested for MG. The Ophthalmologist should have tested you for MG before performing the Eyelid surgery. Ask your MD to perform the blood test. Wish you the best.

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@elvisedimo5694]

Thanks for letting us know about MG especially Drugs that aggravate the situation. As we speak I even took Magnesium Citrate this morning! I used to take Cipro/ Levo as a result of some other infections.

[@DebbieWestCoon]

Thank you so much for sharing this! Now I can be more understanding for my dear friend who has MG.

[@paulasanz9600]

Great video Had my Thymectomy September 28th I’m having high hopes ✨✨ Mainly OMG On Pyridostigmine only My surgeon was the best ✨🙏💫 My neurologist not as good as you are Thank you 😊

[@clareprichard9215]

Wish you were my doctor. .

[@neilfairbrother3847]

Thank you so much for such a comprehensive overview. Helped me a lot. By the way you are very beautiful. Blessings Neil

[@bettystanford9595]

My eye dr said something was wrong after I had a stroke my left eye lid was closed I was thinking from my stroke . So he sent me to a specialist she thinks I have MG I had a mri and Mra and blood work now she knows it was not caused by the stroke . I have vertigo sometimes I have a head injury at age 8 that was major . On my mri it looks like I should be a vegetable . I have raised 5 children and 2 foster boys I’m a grandmother of 28 and 19 great grandchildren. People usually think I’m in my late 50s early 60 . Thank you for posting

[@carmencalderon9715]

I have a friend that was diagnosed with MG she is getting a traqueotomia to help her breath, also have a weak neck. She is in Puerto Rico

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@jennamejia6668]

Hello Dr. Jennifer! I just watched your video and how i wish i live there to visit your clinic, im from Philippines my name is Jenna. Ive been suffering from Muscle weakness and have difficulty walking since September 2019 until now. Been experiencing Numbness,tingling,pain in both legs, been walking using a walker and this sickness is giving me a hard time for how many months now. Dont know if this is Myasthenia or GBS or MS, cant go to hospital because of COVID19.. im just seeking for answers and i hope i can get the right diagnosis soon when i have the chance to visit the hospital for a checkup. This is a helpful video ive watched. More power to you!

[@donitaparmley8298]

I was diagnosed with MG in the early 1970’s.

[@veravero5715]

Donita Thankyou for the hope Which meds are you on? And diet?

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@Heidelbery]

Hello. Please what´s the kind of medicine that those two dogs have been given.

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@lori5946]

I live in Florida. I am a travel nurse. I have celiacs and hashimotos. Over the last three years I have double vision, light sensitivity. I have had trouble swallowing and weakness. I thought it was thyroid issues. My eye lid droops a little, double vision and make driving challenging. I have not been tested for MG as of yet because I can't take prednisone it causes me to get manic and have psychosis. I don't like taking medications but my vision is not good.

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@BernadetteDevlin-l6w]

It very nice seeing this as my neurologist thinks I my have MG I’ve droopy eyelids bad swallowing I’ve now have to go to a respiratory dr as my breath is very bad u get very short of breath.. I also had a muscle biopsy done but haven’t got results yet Do you think this is MG

[@Ann-sf6od]

Does MG often involve tremors?

[@veravero5715]

Thank you so much for good info, What was the drug on photo 19:40min?

[@bernadettedevlin2331]

Hi I’m from Ireland my symptoms started by my eyelid not opening in the morning ,

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@veravero5715]

please let me know who is the doctor in Sarasota FL 25 minute lady tried to tell? Thank you. And is it safe to take quercetin, since quinine is not recommended? Thank you.

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@kayt9576]

Very informative. Thank yo..

[@MommaBearsCorner]

thanks for sharing... YOU WON! lol great clear presentation

[@kayt9576]

Any suggestions for a MG Doctor in Jacksonville Fl. Seronegitive musk. I dont have a Neuroligiat and also in heart failure, Im 62 years.Female?

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@helenokezie1614]

Dr. What can I do to cure this Ocular Myasthenia gravis

[@starcorpvncj]

No cure for MG. Medication helps with the symptoms.

[@Ann-sf6od]

Does MG ever go into remission?

[@williamryan9195]

yes.

[@starcorpvncj]

If you are lucky. But the remission can end, even after years, and return worse. I wish you good luck.

[@melindapridgen1815]

I have all the symptoms and they just gave me a blood test would you believe I have MG

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@abdulawalkhokon3098]

I am MG patient my problem 10 years my problem you suggestion

[@davidwright2316]

I have MG, drop eyelid. Hard time chewing

[@starcorpvncj]

That's how it usually starts.

[@laurascholz7334]

I am the 3rd generation that presents like MG. Slurred speech, staggering like a drunk, choking on food or liquids. Double vision. Everyone says that there is nothing wrong with me. My mother and grandmother were told it might be a form of cerebellum atrophy. I am 76, and live alone, I fall every day. I have had two home invasions. I feel very venerable. I have seen two neurologist, one specialized in epilepsy, the other in sleep disorders. They both said I am fine. (They don't believed me, as it doesn't happen all the time). One neurologist won't see me, because the mri, doesn't show anything. It is worse when I am tired. All the Mri 's are good. I live on big island hawaii. What blood test should I have? If it comes back negative, what then? Help.

[@williamryan9195]

MG usually presents in young women and older men. Your age probably points to it not being MG . The test is for antibodies /cell count. Expensive but will show if it's truly MG.

[@heatherr1141]

It doesn’t look like your responding to anyone but I will leave a message and hopefully you will see it. My family Dr suspected MG so I was sent to neuromuscular Nuerologist and she did all the tests and bloodwork and I had a positive EMG for non irritable myopathy, I did ice test at home and it opened my eye 3 different times. All other tests she did was negative.should the ice test and the EMG be enough to diagnose me seronegative MG? She will not and don’t believe I have it now but she did let me try Mestinon and it’s o lay been a couple days I’m not real sure it is helping or not. I kinda feel like I can exercise better but it is not opening my eye. She said even if the Mestinon works she won’t diagnose me it she said it doesn’t mean you have it , it just means we found a medicine that helps you. I heard different from you and many others. Anyway I’m not sure the Mestinon is working yet or not. So all I can do is give it time to try it and see what happens. If it helps and she still doesn’t diagnose I will need and hopefully see someone else that will because I believe if it works a person has MG. I have all the symptoms! Also she was checking me for myopathy or myositis and I do have rashes that are just like the ones with DM so that was in my differential. She did a muscle biopsy and it was normal so she says that I don’t have any of them and the EMG don’t mean anything now! I don’t believe that to be true. For one she did not even do a MRI before or anytime to check for muscle inflammatory and could have missed it in the biopsy because DM is patchy and spotty! She doesn’t think so even though there is information saying so! Anyway I believe I could still have MG that explains muscle weakness and a lot of things and I think I might have Hypermyopathic DM and that why I had positive EMG results but not muscle biopsy! That explains all my symptoms and completely makes sense. I think she should do an MRI before quitting on me! She won’t and I’m very sick and she was mean to me about it! She didn’t like that I was trying to understand the diseases to help myself because I’ve been sick for over 16 years and no explanation. She is mad and I think she thinks because I know about the disease I’m just saying I have these symptoms to make it look more like it! That is how she made me feel and said it not healthy to keep doing this because she said I don’t have it and I just didn’t get all my questions answered! If I did I might believe her. But I’m still left with questions. Especially since I am well read and I know enough to know that some doctors would have diagnosed me based on these tests with both MG and Hypermyopathic DM . I wish I could see you , you seem so nice and caring to how horrible a lot of these symptoms are and very smart and know more than the dr I seen. Sad thing is she is Johns Hopkins and supposedly specialist with MG. I thought for sure she would be better than this in all aspects of this. She don’t even answer my messages sometimes and tells me she has a lot of patients and don’t have time and I don’t think she should be making me feel like that. I traveled 8 hours round trip and I trusted her and thought she would have treated me way better! I’m very disappointed and don’t know where to turn now! What do you think about all this.

[@janeklota1144]

Glory to god for healing me from lupus through doctor Eseigbes herbal supplements on KZbin channel . Thanks doctor for your kind gesture sir..

[@heatherr1141]

Update I saw aRheumatologist have Dermatomyositis and probable MG and being treated with Azathioprine Mestinon and just started IVIG. I am doing so much better I thought I was going to die and now I don’t. That I finding a hood dr and one who appreciates my research to learn my symptoms!

[@heatherr1141]

Where did my comment go

[@bernadettedevlin2331]

Are you allowed to drive

[@starcorpvncj]

Yes

[@ambrid5837]

awful presentation

[@mariaflores-yd1lt]

I had been told in a crisis that maybe I had myasthenia, but blood test came negative, but besides epilepcy, now my blood test came positive for Sjogren ssa, but I see some of my syntoms in crisis more lije myasthenia and stosis, if blood test is negative, will be any posability og myasthenia, I'm also in Neorology group in Miami with Dr Dalia Lorenzo at the moment , before dr Ramirez Calderon neuro, but cery happy with Dr Dalia Lorenzo, but now I have an appointment with a Reumatology dr, I apreciate your asnwer on myastinia, thank you