Interpreting MGUS/Smoldering Myeloma Labs- What To Know and When To Take Action

Recorded on January 12th as part of the MGUS/Smoldering Myeloma Chapter in the Myeloma Crowd Community by HealthTree Program with Marilú Nájera and Arturo Hurtado.
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[@smileyme2345]

Hello I could cry this was so very informative! I was diagnosed last June with MGUS and sediment rate high first time now. Things off but m protein not present. I have peripheral neuropathy. Lessons in my brain. The answers are finally coming!!

[@HealthTreeForMyeloma]

Glad you found it helpful! We are here to support you as much as we can with this information.

[@nathangolden1963]

MGUS asymptomatic? I was diagnosed with MGUS last year and have had excruciating bone pain for the past 4 years. I will be going for a 2nd opinion at another hospital as I keep hearing that I shouldn't be having this much pain, weight loss, nausea, etc.

[@thisthatandthose]

I have mgus ankylosing spondylitis, bone pain,nerve pain. I also suffer primary lymphedema. I think they are all connected. Isn't lymph fluid plasma really??

[@samnangthim6949]

Would have been nice if, instead of just saying it's important to understand your labs, he gave the parameters to be able to do this example. Hemoglobin

[@ritafiero8973]

Excellent! Thank you

[@HealthTreeForMyeloma]

We're glad you found this helpful!

[@betzib8021]

My ratio says 1.98....how does that relate to the ratio of 100 that you mentioned

[@cynthiastandley5742]

If MGUS has no symptoms, what is sudden significant weight loss classified as?

[@philipf.jacobus2332]

Thanks

[@ZoImgoingtowin]

THANKS, this vid has helped a lot!

[@leaveittolefty]

i have rising kappa light chains and K/L ratio. what number is consider " too high take action " for these? can't find info

[@HealthTreeForMyeloma]

You can call/text our Patient Experience Team at [phone] or email [e-mail] to get an answer to your important question :)

[@HealthTreeForMyeloma]

Hello, thank you for reaching out to us! Depending on your precursor condition (MGUS or SMM) we need to check for different thresholds. For SMM a Serum M-protein ≥3 g/dL, or urine M-protein ≥ 500 mg/dl or clonal bone marrow plasma cells 10-60% WITH absence of myeloma-defining events (SLiM CRAB) means you are still under that condition and have not developed myeloma. For MGUS, Serum M-protein < 3 g/dL,

[@vnvela8613]

I need to find a myeloma specialist???

[@RobertBarton-m4c]

Eleanora Wall

[@JoshuaPerry-z4b]

Ron Causeway

[@MaryGresham-b9q]

Marks Village

[@jessejeffers]

What damage do the kids have from a Vietnam vet from area 69 and 70

[@HealthTreeForMyeloma]

Agent Orange has been linked to Multiple Myeloma. Talk to a myeloma specialist in your area to learn more if you feel like you have the symptoms.

[@iloveshaakah]

Excellent ❤

[@HealthTreeForMyeloma]

We are glad you found this helpful!