Myositis Journey E01

First installment of my life with Myositis.
Backstory, and what's led me to almost be at the point where I have a diagnosis.
Hopefully the first of many episodes documenting my return to full health. :)
Leave a comment, ask a question, or give me some advice :)
The book I've read about nutrition: The Deflame Diet: DeFlame your diet, body, and mind
by Amazon.com
Learn more: www.amazon.com...

[@rebeccamcdermid1420]

Thank you for sharing your journey to diagnosis, Kevin! Be well 🥰

[@wanderingmusic38]

Thank you! Working hard at getting better am I!

[@irisleung939]

Hi Kevin, greeting from a body of Christ! Will pray for you and walk with your journey. God be with you!

[@wanderingmusic38]

Thanks so much

[@jameslu3530]

Hey Kevin! I didn't know about this rough journey you're on. I'll definitely be keeping you in my prayers, for the wisdom of your doctors and that your health improve! Just remember that whatever you're going through, as you persevere in the Holy Spirit, God will make His glory in your journey! Thank you for sharing such a personal part of your life!

[@wanderingmusic38]

Thanks James. Really appreciate your encouragement!

[@arnicolini]

Kevin. Sorry to hear about you going through this. You have my thoughts and prayers for a speedy recovery. Hopefully your body will treat it like One Punch Man and knock it out with one shot! :) Have not seen you in awhile but I am not far, if you every need anything please don't hesitate to ask. Tony

[@KarrissaOwens]

hey Kevin. my blood test for ck is 1,166 and im starting to feel like i have myositis. thank you for telling your story.

[@wanderingmusic38]

Hang in there!

[@sarahsychen]

Hey Kevin~thank you for making this video. I really appreciate finding out about what you are going through. It sounds like there is a dependable treatment plan in the near future. I am so glad to hear that. I look forward to the subsequent videos of your journey. You will be in my prayer. :)

[@wanderingmusic38]

Thanks Sarah! I look forward to the next videos too! It's been really a big blessing so far. Which wasn't exactly what I was expecting. Though how would I know what to expect. I've never done anything like this before :)

[@paulojustinianookubo]

Hello sir, I hope you are doing well. My question is did you have any type of muscle skeletal pain? like real pain all over?

[@wanderingmusic38]

No pain for me due to myositis. Only pain on the few occasions where I fell. (Fall injury pain) And the one instance of severe ankle pain for a weekend that is still a mystery.

[@user-sv2cb2mx6m]

Hey what myositis do you have?

[@paintersqueen]

Yes, I too would like to knew which myositis you have because my husband has DM.

[@user-sv2cb2mx6m]

@@paintersqueen my wife got JDM(child type of myositis) and I am worried about children will they have that disease,because autoimmune can be hereditary especially if both of parents has autoimmune diseases

[@wanderingmusic38]

I have tested positive for the SRP antibody, which gave me necrotizing myositis diagnosis

[@MrStealYourBiatch]

Hello brother. I'm a 25 year old male with necrotizing myositis. I was diagnosed 7.5 years ago. No treatment is helping me over the years. Is there any new treatments that you've been on?

[@wanderingmusic38]

@@MrStealYourBiatch Hi there. Wow, 25yrs old, that's rough. What works for me is combination of IVIG and Rituximab (I think. It's early yet, but this combination seems promising for me)

[@ScienceInMedicine]

Thank you! Did ivig helped in your case?

[@wanderingmusic38]

IVIG alone helped me be mostly stable but i would still get weaker every few months.