Narcolepsy

Hey just a video summing up my day and experiences in general living with Narcolepsy. I didn't plan on crying by the way, also I really really hate talking in front of the camera but I had to because this is important to me. (I'm okay now by the way, I literately went upstairs and made this as soon as I got home)
Find out more about Narcolepsy: www.narcolepsy.org.uk
Instrumentals used:
Turning pages - Sleeping at last
A thousand years - Christina Perri
Update 15.11.16
Thank you for all your views and comments. Means alot, sorry for not responding, I don't use this channel much.
I didn't end up doing the zip wire challenge because it was expensive and I was a coward. But raised some money for Narcolepsy UK for doing nothing.
Update 23.09.20
Hi thanks for all the views once again. I have uploaded a monologue about my narcolepsy on this channel if you could check it out, that would mean a lot. This channel is mainly for my music, but Narcolepsy is always a subject I will talk about and mention in my music. Enjoy your day. xx

[@SeanAdkins93]

Hope you're staying strong! It's always interesting to hear others stories. I was diagnosed when I was at work lifting furniture and had cataplexy. I fell and busted my head open on a truck, then was rushed to the ER where I talked about my sleep habits and whatnot. I've been having these attacks for years but I always thought I was just fainting because I had kind of a bad diet. Feeling much better now that I am able to control it, but there's still somewhat of a struggle for me. Stay strong though, you aren't alone!

[@dpalacios7894]

Thank you for sharing a very personal story. My 16yr old daughter was recently diagnosed and it’s been hard for her as well. Thank you 🙏🏻

[@CarolNaylor]

Awww sweetie I know how you are feeling and you are so brave and courageous for sharing this on here to promote awareness x I know how it is to be so frustrated to get that flood of emotion when you actually think what the illness has taken away and how hard it makes each day and how people are so dumb n ignorant about Narcolepsy STILL. I still don't think my family have a clue or have ever taken the time to actually read about Narcolepsy in detail...:( I'm just Carol the sleepy one, that stay indoors, they don't think why I have become this way cos it's easier to cope with being all alone than being around people who don't have a clue or don't even care to ask :( I think you are so brave for what you are doing so never lose that sparkle :) I have had Narcolepsy n Cataplexy n etc etc for 7 years now. If you ever wanna chat hit me up on facebook Carol Naylor or inbox me on youtube and I'll give you my email or mob number. Keep smiling I know it's tough but I heard somewhere that God only gives his toughest battles to his strongest soldiers. Peace, Love n Happiness xxxxxxxxxxxxx

[@MissPetalFace]

Didn't realise people still watched this. Really so sweet. I avoided watching this video for years (since I cry in it!). At the time I uploaded this, I was only diagnosed a year before and was still coming to terms with the reality of a long term condition. This is mainly a music channel now, but will post anything narcolepsy related if it is relevant in the future. I still write about my experiences on my Tumblr from time to time: sleepingbeaut-zzzz.tumblr.com So yeah thanks for the likes and views!! (I didn't end up doing a zipwire challenge, maybe one day I won't wuss out of it!!) ♥️♥️♥️♥️

[@20Neurological12]

I loved your video its nice to see that there is other young people out there with narcolepsy posting videos about it I have narcolepsy aswell x

[@TheDoblin14]

Need more people doing this on KZbin. I literally fall asleep on the bus 90% of my journeys, it's a nightmare :') no pun intended.

[@joshuac9378]

My heart breaks for you...don't give up and you aren't alone! Fellow narcoleptic here. You're a sweet beautiful young woman! Much love sent your way!

[@jennifergorrell2028]

i hear you i am 34 yrs old and i have narcolepsy with cataplexy i know how hard it is i am a mother of 2 boys takes a lot out of you . you just need to stay strong and a smile on your face .

[@AndreaTahiti2014]

You are absolutely beautiful!! Go make the most of this challenge you've given yourself. People will learn! YOU are NOT alone!!

[@MissPetalFace]

Thank you very much and I hope so. :') x

[@ZijnShayatanica]

I'm currently in the process of getting diagnosed with narcolepsy... Recently, it's been really hard because I just got my first job & sleeping is interfering with my ability to work, then the stress is making me even more prone to sleeping & my body/mind kind of "freezing". Before, I used to just lie about sleeping during the day. It was easy to because I spent most of my time alone -- who cares if I was napping a lot? But I can't avoid it now... Ironically, napping in public has never been a huge issue for me. If I'm on the bus, in a waiting room, a restaurant, at the mall? I'll just take a nap when I need to. But it's harder to admit it to people close to me. It's harder because I actually CARE if they judge me. A stranger can call me lazy or think I'm on tons of pills or something, whatever... But for my boyfriend or best friends to think that I just need to "get it under control" [as if it were that simple], it's frustrating. Thank you for making this video -- IDK if I have it but I'm fairly certain because everything here rings so true to me. I hope you're doing a bit better on accepting your condition these days.

[@megano.1169]

I know EXACTLY how you feel sister!! The part where you talked about ppl thinking ur lying... Yeah- my jobs, my bf's, my family & friends... They've all thought that at some point....even after I've shown them proof from my doctor!! :-! How asinine of them, seriously! Right now I'm filing disability for that, along with my rare autoimmune disease (and my back problems because I have no cartilage between half my ribs & my spine)....and yet I don't know if I'll even GET disability or not... Isn't that insane?! Hang in there sister.... things DO get better!! You just have to believe in it and give it some time.... You're AMAZING!!!!!! 😁👊😃👍😂

[@michaelbooker2722]

hi, im sorry you have narcolepsy, i have it too and cataplexy, im 50 year old male,i like to cry, i find it a good realese for stress,allways feal better after a good cry.i find it better not to try and fight the sleep attacks, just go with them,regardless of the sitiuation.at the end of the day you have no choice ,you cant fight it.you will never change the publics attitude,its because they dont have an understanding of it.i have conntact with many people who have narcolepy,and find it really helpfull to chat about it ,get in contact with a narcolepsy charity they will help.and of course getting the right meds. i wish you all the luck in the future. and hey keep you chin up, and if it gets you real down(it did with me) make sure you tell someone.peace from mick ireland

[@ebaarm1]

Well Done Miss Petal face on having the courage to make this youtube clip. It made me cry to watch also but more so because I`m proud of your effects to raise awareness and I understand your pain. A heart felt vent that I hope your friends start to accept. There will always be the assholes that make fun of everyone..I just feel sorry for those guys. Good Luck with yours plans in raising awareness. I have no doubt you will do great xx

[@MissPetalFace]

Thank you for watching and that means a lot!! Sorry I made your cry. :) xxx

[@elainearmstrong7594]

@@MissPetalFace just watched this again 4 years later. I am going to share it to my narcolepsy group. Thanks again x

[@juniorturcios3275]

My name is Junior, I’m 19 yrs old. I don’t even know where to start. I tear every time I think about. I’ve also, lost hope, happiness, and faith in me. Life was a struggle since the day I was born and being misdiagnosed of conversion disorder to a couple years later narcolepsy. I feel like not living and rather be dead, but I can’t do that to my family especially my mom. She is the only reason why I am still here today. #WHYME

[@MissPetalFace]

Hi Junior, you may feel lost now but you're not alone. No your mum wouldn't want you to leave so soon would she? You are not your illness. Channel how you feel into something you love, whether it's art, singing or writing. Even if you don't think it's any good, as long as you can express yourself that way, it's for your eyes only. Narcolepsy is something you just have to work round, it's not the end of the world, although it may feel like it. The right people will understand and having something like narcolepsy makes you realise who your real friends are. I have a narcolepsy Tumblr called Sleepingbeaut-zzzz . That's how I dealt with being diagnosed and even spoke to others. I hope this has helped a little. Take care and all the best. 💓

[@kevindobson3701]

I'm here for you

[@BeatriceFlowers]

I have always sat at the back of the bus in the corner (when possible) because I am so embarrassed about how I might appear to other people and terrified of this sort of thing happening. I have got better at dealing with it over the years. I don't let it bother me quite as much as I used to. I also got pretty good at hiding it and disguising it. The worst is being on a plane and not getting a window seat. I spend the entire flight trying not to twitch violently and whack the people next to me. Luckily, I am fairly used to feeling like a total freak. Unfortunately yes, this is how it is for us and it doesn't really get better, you just get better at it. I consider myself an expert in doing things in my sleep ;) Screw what other people think and don't beat yourself about it hon. Love yourself, no matter how tired and wibbly. I know it often feels like you are alone in this, but you aren't. There is a community of narcoleptics who are amazing people with all sorts of stories to tell. I haven't met anyone else with it in person (apart from once, around ten years ago) but when things get tough, you can turn to them and share things and that's great. There was no internet when I first developed Narcolepsy (yep ... ouch ...I was born in 1980) so I was completely alone for many years. We are lucky that we are able to connect and support each other now. Take care from a fellow sleepyhead ;)

[@MissPetalFace]

Beatrice Flowers thank you. Narcolepsy adds an interesting twist to our lives. Thank you for your comment. Sorry for the late reply.😊

[@BeatriceFlowers]

MissPetalFace haha no worries dear. I am late for almost everything including replying to messages ;)

[@SuperAbc113]

I know how you feel I have put with this all my life and its getting worse I used to get bullied so much in school

[@SuperAbc113]

This is like me someones talking to me then all of sudden I fall asleep not knowing that my parents are talking to me but i'm so half asleep that idk what they said sometimes I fall down and I hallucinate, have terrible nightmares etc narcolepsy is horrible but at least i'm going to the sleep doctor tomorrow

[@daud8472]

You are amazing mate. Check out Dee Daud on Facebook and add me as a friend, and then join my 'Narcolepsy Friends' group where there are nearly 1000 people there with narcolepsy from all over the world. You are not alone :)

[@jerrodfine4881]

Hey now that your older, I wanted to encourage considering a new awareness video. I'd love to hear your views compared to this video.

[@Aspartamebraintumor]

Do you have vivid lucid (dreams or any dreams for that matter) during a narcoleptic spell?

[@MissPetalFace]

Well when I take naps I do, but when I feel sleepy in public my eyes just feel heavy and I struggle to concentrate on what's going on around me.

[@arizaliit]

many people fall asleep in public busses. i do not see why that is funny.