Natalie's Story - Late diagnosis of Hip Dysplasia

Hip Dysplasia is usually diagnosed by an experienced physician using the combination of symptoms, hip examination, and x-ray findings.
It is estimated that adult patients with hip dysplasia may see more than three healthcare providers and have symptoms for five years before a correct diagnosis is made.

[@patientzero5685]

Thank you for sharing your story. Thank you also for telling us that you have had success with surgery. My THR is 3 months away. I can’t wait.

[@dangough4898]

Very best wishes to you! A wonderful paediatrician checked and noticed my son’s dysplasia just after birth. When just 6 weeks he went from a pavlic harness to surgery and a hip spica from ankle to chest. He’s now an active 18yrs with a taekwondo black belt! Fantastic surgeon and test system that needs to be applauded and fully publicised. STEPS helped two novice parents take care of our precious boy, THANK YOU.

[@andthenwhat2966]

What an inspiring story, whilst my grandson is eight, his issue needs the earliest diagnosis possible, we are seeing a consultant shortly. So pleased that you posted the positive outcome for your son

[@andthenwhat2966]

After a few years my grandson has eventually been referred to an orthopedic consultant. I trust you are doing well and thank you for posting your story. This has made us more determined to find the cause of his problem, many thanks.

[@loreenphillips5998]

I am 68 years old. I was diagnosed at age 60 after I had five previous back surgeries! I was going through my PT after my last back surgery when I learned I had bilateral hip dysplasia. I've been walking with a walker ever since. The specialist I saw at Emory Hospital in Atlanta told me to lose enough weight for the surgery. My left hip is worse. Well, after five years of trying every diet, trying to exercise with limiited mobility, I still can't lose enough weight. I did some recent reading & see now ortho surgeons seem to find that obese people have an increased success rate at hip replacements! I"m hoping I can find one of those surgeons!

[@HFTLH]

I was diagnosed in my late 20's after I noticed my knees and hips didn't look even and my gait seemed a little off, and I thought I might have a leg length discrepancy. The dr. figured out right away that something was wrong, did xray and said you have hip dysplasia. But no recommendation as to treatment. I guess I was lucky that I got an immediate diagnosis. I'm 39 now and I still don't have much pain, but I want to start exercising more after being quite sedentary as a former truck driver, and I don't want to injure myself.

[@basmach131]

I've been diagnosed with hip dysplasia since the age of 5 yrs old I haven't had any pain untill now even when I walk I feel pain at my hips and now I'm 16yrs old may God help us I feel so weak that every move I do hurt 😔

[@BUTCHxSpectre]

i’ve been diagnosed for about a year now and i’m still on the waiting list to speak with a surgeon i’m 19 and have high pain hip dysplasia and retroversion too

[@jodielea1964]

I am 20 years old and I have just been diagnosed with severe bilateral hip dysplasia

[@lucasmoratoaraujo8433]

Go see a gait pattern specialist. Changing the way you walk maybe can solve a great deal of your pain issues. Good luck!

[@angelicasysnila5476]

What were your symptoms

[@citrusacid7214]

I have hip dysplasia myself and I’ve been visiting doctors since late 2016 but found out in 2020. I went to a more, expensive kind of hospital? More like in the city, the doctor even was a celebrity from a famous show in Poland from TV. (TVN)

[@cindyg-]

I am 58 and now using a walker. I was diagnosed with osteoarthritis in my early 30's. Went to see an Ortho surgeon yesterday and he will be performing a full hip replacement on me. He said it is due to hip dysplasia. I do have arthritis however the hip dysplasia if left untreated will lead to arthritis in the hip. Had I been properly diagnosed 10 years ago with my first hip X-rays I may not be undergoing a full hip replacement surgery. I hope he can save my left hip.

[@patientzero5685]

I know it has been a while. How are you?

[@lilyspringer1948]

This is suck such a amazing story I also have hip dysplasia and no doctors knew what it was I went to specialist and I have done PT because I couldn’t walk I thought I have tried everything until someone recommended a specialist in Detroit mi and then I went to Detroit and He figured out that I had hip dysphasia it was such a relief to know what it was and to this day I am still on this journey to get the surgery your story is incredible god bless you 🙃

[@MtbEMS]

How was your surgery? Update?

[@lilyspringer1948]

@@MtbEMS well actually my surgery is March 4, so next week Monday I’m really nervous but stories like this help calm my nerves. Thank you for asking.🫶

[@MtbEMS]

@@lilyspringer1948 ah ok. Best wishes and hope to hear back in the near future with positive results. Greetings 👋🙏🏼

[@lilyspringer1948]

@@MtbEMS aww thank you so much for the support I really appreciate it 🫶

[@emmamorley2020]

I have a realy rare case of hip dysplasia and my mum use to work for steps.

[@animequeen5624]

I have that where I'm missing something in my back since birth n I get hip pain back pain n all over pain n I have one leg longer than the other

[@repechepe]

same for me

[@animequeen5624]

@@repechepe some days r better than others for me

[@repechepe]

@@animequeen5624 Check out the correct position of the coccyx while sitting down, its actually helping a lot for me. After engage on the glutes to try to reposition them. The idea is to stretch the lower back a lot, you can train this this while sitting or laying down and later on standing. If you train your glutes hard enough and your lower abs to correct posture maybe you have hope.

[@ohemaa_ages3175]

@@repechepe please how would you know the correct position to sit

[@RicardoGarcia-mg2vi]

@@ohemaa_ages3175 watch the video "why sitting hurts" he explains quite well. If you have too much hyperlordosis you have to counter this while sitting. Not make it worse. Sit on low chairs under your knees. Your ribs must never be completely open, instead you should pull them down and breathe correctly using your diaphragm. If you are tighter on the right side, maybe you should tilt your shoulders slightly to counter this.

[@bronwynsuddes]

I have hip dysplasia and cmt and I am on so much that it is stupid, I don't know what to do. As the pain is so bad sometimes I don't want to get out 9f be at all, does anyone have advice on what I should do, what doctors I should see ?

[@francesjaquez6192]

You should see an orthopedic surgeon and pain management dr. Most likely they will recommend hip replacement and physical therapy.

[@anaflores4383]

You need to see an orthopedic that specializes on hips, probably physical therapy will be recommended but I do get pain medication from my Dr because the orthopedic would not prescribe it for you.

[@caleb3248]

I have hip dysplasia in both hips and have had surgeries on both. You need to see an orthopedic dr and talk to them about surgery options.

[@gorgeouskb7979]

Can you tell more details about this surgery , is it painful ? And how much time need to healing?

[@gorgeouskb7979]

@@caleb3248 ?

[@TDRFORUM]

I have hip dysplasia and have bone cut next week

[@lucasmoratoaraujo8433]

I did that. I my case, the pain got worst and worst after it. But, as i said in another comment, the only thing that got me better was changing my gait pattern. If for some reason you didn't got better yet, go see a gait pattern specialist. Maube it can help you!

[@elite2153]

@@lucasmoratoaraujo8433Your pain got worst after the operation? How did you treat it?

[@theresalobban2142]

@@elite2153I'm curious to know as well.