National Chapter Vision Webinar | Clinical Trials - December 7, 2024

[@Teetcbp]

Thank you for all you do. Rp patient and have been all over the world. Desperation to find something and cure everyone else ❤

[@melaniefurniss815]

I have been a part if clinical trials. It is a time commitment as it should be.

[@abbeybeach961]

Thank you ! 🙏🏼

[@ilyassbouamama2136]

Do you have rp? I was recently diagnosed myself

[@Justin-ds5iy]

Love how they have comments hidden immediately that might be considered controversial. Those of us living with blindness should be brought into the conversation.

[@melaniefurniss815]

Thank you all for continuing to try and find a cure. I was diagnosed in 1993 with RP. I was in my early 30's. I am now 67 still praying for a cure. I had my DNA tested about 8 years ago. I put it on the FBlindness. I still do not understand the results. It was done at Emory in Ga.

[@ej.74]

I have retinitis pigmentosa. I was diagnosed in mid twenty seventeen

[@TexasRox]

Content starts here: 48:57

[@ds_market]

Thanks

[@1125-k8r]

Thank you very grateful

[@arisnelymedina3524]

Hello, since I am with the retinol tracker, may I please have the website that I need to check for available clinical trials for myself. I seem to have a rare retinitis Pigmentosa with nystagmus. And, I would like to see if there is anything available for me I was not at the webinar, but, I did see it on KZbin after I received the email yesterday I did hear all the testimonies and, I really wish that I can get things done like that between my mom and I we have searched everywhere every state just to find some kind of treatment for myself we have gone to florida, massachusetts, pencil banana, and here in New york. We have also seeing those clinical trials where people say that you need to pay for them and I automatically say no because why would I need to pay for something that's supposed to treat me it's a clinical trial not a actual Pres but, if you can please send me something anything that can help

[@BillKalbaugh]

When will I be able to receive this stem cell treatment' I have light perception only in my left eye and less than 5% in my right 20/40 vision.

[@lisawilson3289]

I have retinitis pigmentosa also known as RP sure would like to see a cure one day for it. It’s so aggravating having to lie on people to help with daily things in life.😅