New treatments promise sickle cell 'cure' for all ages

[@justineabwooli8216]

I can't wait to receive the cure of sickle cell disease, my son is going through pain. Glory be to God 🙏

[@azucarnegra9550]

Make sure that you get him on LGLUTAMINE aka ENDARI ,,,ASAP!!! THE INSURANCE Will continue with a doctor's prescription but recently I've even found it on Amazon! !!! There is no taste or side effects & I hate that I didn't have a doctor that cared enough about me to give it to me from childhood, but when you think about it - there's no money in a cure only treatment. Some physicians know that this will help the blood flow & can cut crisis episode's by half & in some poeple more. I speak from personal experience & will be turning 40 this month. Give your child beet juice as well. There are also big crystals that are shelf-stable and when mixed in apple juice are tasteless there is a brand made in Germany that is sold on Amazon as well as health food stores and it helps to oxygenate the blood try those two things right away with or without the doctor's consent and you will see the difference in your child. Do not allow the doctor is to constantly give your child blood transfusions that come with terrible side effects including an iron overload that can later damage your child's organs. The beet juice enriches and oxygenates the blood and taken twice daily has cut my need for transfusions by more than 1/2 !!! God bless.

[@matrisjoe3354]

This will be the best thing I will believe ever happened , I have a baby diagnosed to be a sickle cell patient and ever since I lost my happiness as a man and as a father I really wish a cure is made a also made available to every part of the world.

[@domingasmiguel7851]

@@matrisjoe3354 put HRE ON MUICLE IT WILL HELP HER

[@clarycluade666]

I can't imagine the pain. Nobody understand how I feel

[@clarycluade666]

Until I meant the BABA ifa

[@uncool777girl3]

My ex partner received bone marrow from his sister when they were still young and he has no sicle cell disease for more than 20 years now...he is one of the first children in the UK to get this treatment and to be successful aswell

[@mumba8997]

Please tell me more

[@Michelleeloghosa]

Please expanciate and leave contact 🙏

[@wakandavibranium5053]

He still still has the HbSS gene, so must still pay attention to who he partners with because his future children would still be at risk. He just is free of complications associated with SCD.

[@wread12]

“It is sad that a disease that has been around for 100 years in the medical field has only 2 FDA approved medications” ... deep words. It is an embarrassment truly!

[@wread12]

The Colour Green You are right!

[@candylipstee1]

I’m so very proud to have her as my doctor this is her life and she really cares about you!

[@I_am_mercysandra]

Please how can I contact her

[@tashienajames2889]

Yes how do you contact her

[@frimpongbright8572]

@@tashienajames2889 yes i will love to contact her too pls help

[@kendraclark8837]

Where is she?

[@katoulove7972]

How can i contact her please 🙏🙏🙏

[@nikkibankhead6759]

I love Dr. Ify she used to be my children’s hematologist in Atlanta ❤

[@IHappyChicken]

So much insight and knowledge for this women. She's so amazing! I cannot wait to attend her seminar.

[@domingasmiguel7851]

IHappyChicken I know her she used to be my daughter doctor Atlanta the children hospital she is smart now she the head of hospital in North Carolina very good doctors and inspiration to me I remember her

[@lovefromyemi5155]

@@domingasmiguel7851 is there anyway I can contact you I have sickle cell myself and I am a film maker and would love to speak to this lady for a film we are working on in the UK... PLEASE!

[@lovefromyemi5155]

Where is this seminar going to be.... @ihappychicken

[@domingasmiguel7851]

@@lovefromyemi5155 call the children healthcare of Atlanta the egleston they have 3 hospitals you will call the egleston ask to talk Aflack on the sickle clinic tell them you need to contact dr efh or you can just google the sickle cell children hospital in North Carolina or south I don’t remember much she’s also a scientist you can find her easily she’s probably on association of black scientists efhi her name pronounce like the letter f with I

[@JeremyCovington.]

I’ve never heard of these 2 fda drugs I’m curious? I remember when the bone marrow transplant was announced. I was in high school and I asked my pediatrician about it and she said I was too old and that that would be too careful to go through. I’ve been living with this for 35 years now experimenting with my diet and exercise and drink a gallon of water a day. I’m glad to see this is progressing.

[@JeremyCovington.]

rainiero Acosta Yeah, I’m 35 I heard the same thing. I drink a gallon and a Half of water a day vitamins beneficial bacteria plant base protein shakes with sea moss omegas and the gym 5 to 7 days.

[@ahmadsuperlifestc3039]

From the treatment with stem cell therapy joined me here ttps://chat.whatsapp.com/GuNgYEraQlqEj5FvTEe1sy

[@rainieroacosta7096]

Jeremy Covington yes me too..i also looked up Patrick delves..i take the vitamins and minerals he prescribes..it’s been very helpful

[@chionyebuogwuya]

@@rainieroacosta7096 please can you share the vitamins and minerals he prescribed

[@rainieroacosta7096]

Chibuogwu mirian these are the vitamins : zinc, b12 (liquid form) , vitamin E, Vitamin C buffered, B complex , B6, ginseng,goji berries,

[@angelbetukumesu9273]

Thanks for this ideas i have 2 children with sickle cell we pray everyday four children to find the cure it so painful at crises time Thanks for your empathy God give you more knowledge

[@indiee4971]

Keep this thing going help these people going through this. I don’t have the disease but I don’t want people going through this. Please man I’m hoping this real for people going through this.😫😫❤️❤️❤️ I’m crying in rl

[@kerrykaylovely328]

I'm from Jamaica an the doctors here don't know alot about sickle cell I know more as bout my sickness more than them

[@devinodlum3492]

Kerryann Dickenson same for me I’m from Antigua and doctors be googling sickle cell infront of me

[@ahmadsuperlifestc3039]

For the treatment of sickle cell diseases with stem cell therapy joined me here and is curative ttps://chat.whatsapp.com/GuNgYEraQlqEj5FvTEe1sy

[@rainieroacosta7096]

Look up Patrick delves

[@segohillarymfolwe3071]

Am so sorry you go through that it's sad. My fiance is living with scd in Botswana (Africa) and he knows more about it than the doctors here.

[@billybluecheese3960]

Wow omg that’s crazy and I’m shocked for real I have scd in the u.s and from what I have learned it originated from there and in Africa and so I’m thinking like all the experts on sickle cell are over there and that what information the doctors know about it over-here came from over there and trust me I feel u tho with the doctors because I live in a small county and they be looking lost to when i get sick then I’m force to travel a ways to get to some doctors that do know about it

[@joycerusunda4371]

I can't wait for the treatment to come to Africa

[@RohitThakur-xj6xl]

Is this available in Ghana

[@kerrykaylovely328]

I would give an to not feel pain for a day a this time i am in the hospital in. In pain for about two week an four days With a acute chest syndrome an pain allover my body I'm on KZbin every day searching for any thing new about sickle cell I'm so glad to here this even I never get the chance to get this treatment I know others will

[@roxanneramsay5350]

New medication oxbryta

[@namukwayaflorence3403]

Try to use eucalyptus dry leaves cook after you can make them powder and use them like tea leaves

[@anthonyabioye1771]

kzbin.info/www/bejne/ap2xgYWmZ7KAq7s I have been practising this steps for over 10 years now, it lowers my numbers of chest and joint pains by 50%. I'm a Nigerian and I am 30 years old. I feel like it's an unending experience too, but don't give up.

[@uncool777girl3]

I wish you get the right treatment and live life pain free

[@rainieroacosta7096]

I definitely feel the same way..I pray that your health is better..hopefully one day soon there will be a cure..we need more doctors of our ethnicity who understand what we go through in order to help us..

[@JanetAmo-ci2oe]

Please how much does it cost

[@archanajambhulkar3559]

What is the treatment

[@Tranquiboss123]

Marrow bone transplant

[@lovemorechanda15]

Hw do I get more information about this update and smart idea to save lives of people .

[@ahmadsuperlifestc3039]

For the treatment of sickle cell diseases and is curative with stem cell therapy joined me here ttps://chat.whatsapp.com/GuNgYEraQlqEj5FvTEe1sy

[@crm3913]

Please contact the doctors at UAB and Brookwood Hospitals about your studies and therapies so that Sickle Cell Patients here can receive better care..., especially for males with Sickle Cell suffering from years of severe priapism....I am contacting you from Birmingham, Alabama, USA .

[@anionyinyeloveth333]

I can't wait to see my brother get cured please

[@rachelthespiritskeeper8730]

This should also be offered to sickle cell trait patients as we have crisis and medical issues due to the trait as well.

[@mimirosenwaonye55]

Thank you so much for hearing this from you God bless you please ma I need your help my name is Rosemary I'm from Nigeria base in Nigeria

[@tysquest4319]

My family has the trait and where going thru the same symptoms as the disease 😕, today I just realized what I been going thru, I have some ideas, if you like we can help one another, please reach out

[@edithamondi79]

Hello

[@tonymuhammad54]

I would like to know about it. A friend of mine has it...and I don't like seeing the pain.

[@oluwadamilolajohnson2645]

Pls pls I'm begging u, I would like to know, my sister is always in pains and it's hard for me, pls help me.

[@shavellemcfarlane9800]

please how can i contact to cure my sickcell disease

[@tysquest4319]

What about using breath work to push the oxygen needed in the cells naturally, has it been tried and tested, this is what I meant when I said I might be able to help, meditation 🧘‍♂️

[@rvernet2016]

Where can we get more information about the cures.

[@randallsimmons5771]

@@favsmanartistryandinterior8925 thank you for that insight my daughter has it

[@randallsimmons5771]

@@favsmanartistryandinterior8925 it was a herbal pill he took

[@evangelistjjkuburatuikhe879]

@@favsmanartistryandinterior8925 hi

[@ojobabatopejames9145]

@@favsmanartistryandinterior8925 are you sure about this because I have been seeing your post everywhere, I think the dr should be the one going everywhere to prove his hand work

[@derrickbuah3047]

@@randallsimmons5771 what the name of the herbal please

[@ukaaeruchalu7739]

What permanent cure & solution do you have for leg ulcer

[@I_am_mercysandra]

Does anyone know how we can contact this woman please

[@KaranKumar-jk1qr]

Hey did you get cured? I've too that disease plz contact me

[@victorialamon4854]

The Cost determines who can afford .

[@manojkumarmandal4564]

What about madam thalasemia

[@jacelinesanches1956]

Bone marrow transplant

[@nakayizaneema2264]

My son is 1 year and 4 months with sickle cell disease. Am in Uganda, how can I get access to you please. Please I really need your help.

[@ADINNUESTHER]

Pls we need there doctor in Nigeria

[@prakashpinku2812]

Not only Africa, it also prevalent in India.

[@1benarmour]

Greece and Italy...different strains.

[@Kingphelom]

We really need help. My families matter to me so much . Am even scared to make more babies.

[@jacelinesanches1956]

Did you go for electrophoresis of hemoglobin dear, you and your husband? It very important because if both of have hemoglobin S probably your kid can have hemoglobin SS that is what sickle cells patients have.

[@JoanNabbowa]

But can't this come in our Uganda

[@felixonyeka6762]

Please my daughter is suffering with sickel cell what can I do. She's four years and five months now

[@vivianajaere6672]

Faforon is a stem cell herbal product It helps Reach out

[@omowunmiquadri5306]

Is this cure available in Nigeria

[@JoanNabbowa]

For those who can at least afford half of the payments in Uganda

[@vivianonyin2042]

My son is 7yeara old sickle cell patient how can he be cured. (Nigeria)

[@yellowgir3215]

Dr sebi was the only cureeeeeee

[@lindaezeigbo3426]

How please? Can u share?

[@kendraclark8837]

I hope that there is a cure soon my son is 23 and has no hope for a cure!! He deals with this disease every day and deal with pain which he is confronted with pharmacies and ER not wanted to prescribe is prescription. He is sick and they would make him feel like he should just deal with it. He suffers so badly and it’s makes me so sad. Hopefully something is done soon because it’s now 2021 and still no cure in U.S. without having a bone marrow which everyone doesn’t qualify to receive. Please if anyone knows more please inform me because I am just frustrated. He needs the help

[@lorelei23]

He needs to change his diet and take supplements. Please have him research about holistic methods. I have SS and since changing my diet I haven't had a crisis. Also look any other stressors in his life. Stress makes illness worse. Heal your whole body, emotional and physical.

[@mankaamarivon6618]

@@lorelei23 could you please help me with the diet type?

[@lorelei23]

@@mankaamarivon6618 For me I feel best when I cut out all processed foods and refined sugar. I eat mostly plant based with meat or fish on occasion. That's just what worked for me personally. Also I cook most of my meals at home. Most restaurants use seed oils when they prepare food, which is inflammatory. I would stick to avocado oil for cooking and maybe olive oil for dressing. Hope that helps.

[@wread12]

I want to be a candidate for gene therapy

[@kerrykaylovely328]

I would want to be one too

[@CaseNdPoint]

How do I get the cure can someone please email mail me