Newly diagnosed with MS: MS symptoms

Meet Cara and Christina. The two friends were diagnosed with MS at the beginning of the year. In a new series of videos, they chat about their recent diagnosis. In this video, Cara and Christina talk about the symptoms they experience.
Recently diagnosed with MS? We are here for you. Find our information here: www.mstrust.org.uk/about-ms/n...

[@PrincessPineapple92]

Thank you ladies for this 💕 I just found out I have this .. I've been having symptoms for over a year. I pray we all get through this 🙏💕

[@jeffreygingold831]

The MS Trust has a wealth of reliable information about MS. While all of the information may not be relevant to you now, it can be reassuring to scan through their web site and become familiar with its content. Take it all slowly and stay strong, Jeffrey

[@lovelyblackcat66]

Hey everyone, I was diagnosed today and I had a feeling it was indeed MS. So I'm a little disappointed but hopefully there's a silver lining.

[@writerssuave]

I found out 5 days ago

[@mishaalzk6033]

@@writerssuavewhat were your symptoms

[@Dan_The_Nerd]

I had been diagnosed in January this year. Thank you for your video and information. Much love stay strong.

[@mylesgray3470]

I’ve started having MS symptoms after living in Seattle Washington. I’ve noticed that a huge share of MS you tubers are in the U.K. I really really believe the wet dark climate is a primary cause although I don’t know why. The statistics show huge MS prevalence in Seattle. I need to leave this place before it gets worse. I suspect it’s related to chronic mold exposure.

[@solomonbowens8931]

I was diagnosed with mutiple sclerosis in 2002 first Episode or experience my vision left for what my family said almost 2weeks Just take advantage of the situation from the beginning get on meds an research information ur not alone biggest challenge of mylife

[@camilarincon507]

🥺🥺 that's exactly how I feel and I still don't know what's wrong with my body.

[@realdealnealdks5275]

Me too man.

[@ikillzombies9975]

Thank you for the video... i have numbness in the right leg and my right hand,, it feels like burning pain/ numbless it feels so weard,, and the Tiredness is crazy and my left eye hurts i am waiting for blood test tobe done I grew up with pains in my legs i used to cry myself to sleep alot of times the doctors said. it was growing pains. now i am 28 years old and they are finely starting to listen to me... now i have the long wait of waiting for a blood test tobe done then wait for the Results,, after that waiting for to see a neurologist

[@AmberlyKay]

Hello I have MS too ...

[@andredemers69]

Oh, so many symptoms I have as well...no diagnosis yet. The tingling for me is more like internal vibrations more and more for the last 4 months (had a subtle vibration for 6 years)gaining ground in my body...it can go from subtle under 1 foot to the whole body including chest, abdomen, back in top of every limb... any of you have had it? I don't have numbness, rarely, but tiredness, need a kick in the butt to get out of bed, clumsiness, brain farts all the time and loss of balance once in a while. Don't have the energy I used to have (was working 12 hours a day). Symptoms are ups and downs; some day I feel fine, most of the days I have the symptoms but they are getting more and more intense. I'm afraid it could be MS. 😞

[@mstrust]

The symptoms you mention are things that can be seen in MS, though that is not the only possible cause. We can't tell here if you might have MS or not, though it would be reasonable to ask about this when you talk to doctors. There's some info for people concerned they might have MS at pulse.ly/2herkgs854 Your profile suggests that you may be in France. The MS Trust is a UK charity and we don't know how health services work in other countries. For a better idea of support in France, it may be worth contacting La Ligue Française contre la Sclérose en Plaques - pulse.ly/wyox0o4755

[@Cgeese]

I was prescribed amantidine gagging and Tourette’s. My Doctor to stop the gagging now I have tingling everywhere I also feel like really cold

[@lillyrocks2011]

Hopefully pharmaceuticals companies invest muuuuch more to know the cause of the autoimmune conditions and hopefully with a cure or at least better treatments for each autoimmune disease. 🙏🏼 And yes,a cure someday 🙏🏼

[@mstrust]

We're all hoping for that moment too. Wishing you all the best 💙

[@shireenramnarain4005]

I never heard of ms n i had symptoms for yrs ....i noticed double vision in 2010 n was hospitalized for tests Nothing much was found according to doc But in 2020 my son took me to a prof of neurology n he did tests n he diagnosed ms n saw previous mri records....there were lesions on spine n brain Now symptoms r worse n meds will never cure but stop further damage Sooo its important to go for a second opinion although it costs money

[@sc7244]

I have some tingling in my feet and hands. Seems to come and go, it’s super weird. It just came back months after not having it. Almost like tingly/somewhat burning sensation. I dunno what to do, I’m scared it’s MS.

[@mstrust]

This is clearly something that is bothering you, so it's worth talking to your GP/family doctor about what might be causing it and what you can do to help. While altered sensations can be a symptom of MS, this is not the only cause and there may be other explanations.

[@chicfromthesticks8900]

Did you get any severe body and joint pain to the point of not being able to move?

[@mstrust]

You might find our pain page useful to look at: pulse.ly/r7prpb4oxt When you are fatigued you may find that your pain gets worse and reduces your ability to do your normal activities. You can read more about fatigue and how it can be managed here: pulse.ly/o44i6kqxs3 Flora, MS Trust Enquiry Service 0800 032 3839 / [e-mail]

[@willoubooby]

Ms sucks I also have ms was diagnosed at 24 28 on Monday I have all them symptoms or have had and over active bladder which also sucks 😕

[@bravehearticus]

I'm having an MRI scan on Tuesday to see if I have this

[@mstrust]

Thank you for sharing with us Naomi. If you need any support, please do get in contact with us. Our friendly enquiry service & helpline can help if you have any questions about MRIs and other parts of the process. pulse.ly/vrjuvievk1

[@heartspacerelaxations6924]

I have other autoimmune conditions like psoriasis, rheumatism. I’m 50, had trauma. Now I’m having numb hands, balance issues, feel clumsy, drop things, feel odd muscle tension, and mild fatigue. Feel like I want to walk in lines, sideways, odd awkward like I’m not so sure of where I am in relative to my environment. And awkward eating, like I’m old. Memory issues, brain fog… how to get diagnosed, is there a definitive test?

[@mstrust]

The diagnosis of MS is a clinical decision by a neurologist. There isn't a definitive test, though there are tests that can give the neurologist evidence to make their decision. Part of the diagnostic process is also about identifying what isn't causing symptoms. There is a degree of overlap between different autoimmune and neurological conditions, and some tests may be done not to identify MS but to rule out other potential causes. There's more on how MS is diagnosed at pulse.ly/2yp35pbqoq The first step in the process is to talk to your GP. While they can't diagnose MS themselves, they can refer you to a relevant specialist. If you are in the UK, we would suggest asking to be referred to someone at a hospital with MS specialist services. These are shown on the map at pulse.ly/ods9c49cea Hope this helps

[@heartspacerelaxations6924]

@@mstrust many thanks

[@heartspacerelaxations6924]

Has anyone had good results with AIP diet? Plus obviously moderate exercise , optimising, Vit D, and other hormones, sunlight, earthing, optimise gut bacteria etc. ??

[@mstrust]

We have no direct experience of this ourselves, but when trying things of this sort we would suggest keeping a symptom diary. Everyone responds to things differently, and there are plenty of people online with strong opinions for or against different approaches. To check what something does for you, keep a note of the symptoms you experience each day (or several times a day), along with their relative severity (a simple 1 to 5 scale should be fine). Start this a week or so before you try a dietary change, supplement, etc so you have a baseline. Then keep the diary going while you trial the change for a month or so (whatever seems appropriate to give it the chance to have some effect). At the end of the trial, check back through the diary. If things have improved, keep going. If there has been no change, maybe chalk that one up to experience and try something different. This way, regardless of what someone might tell you should or should not happen, you will know what actually does happen to you and you can make your own choice on the best way to go. A little more on symptom diaries at mstrust.org.uk/a-z/diary-symptoms

[@dkasper3267]

Intermittent fasting, vit D, B complex, no gluten, no processed food, no dairy, stretch, and move your body can help symptoms.