Great Info, The World Needs To Be Aware of Your Findings. Thank You All Greatly.
@encephalitisinternationalАй бұрын
Just in case you still need us - we are here for support - support@encephalitis.info
@265dayst5 жыл бұрын
Thank you all so much for this extremely informative and inspirational video and the awareness you are raising to this disease Susannah I figured out I have this disease because of finding your unfortunate story a year ago - Thank you Susanna! I hope to meet you one day !! You are amazing and I am so so happy to see you doing so well ❤️❤️❤️
@encephalitisinternational4 жыл бұрын
Hi Ami, thank you for your thoughtful comment. If you are in need of any support please get in touch with us at support@encephalitis.info, or +44(0)1653699599. Here for you.
@265dayst4 жыл бұрын
The Encephalitis Society Thank you SO much I have had excellent response and info while emailing the ES for help this past weeks ! Thank you SO much for the draft of the FACT Sheet about Anti-NMDA to bring to the doctor ! It has been a life saver and came at a critical time for me- Thank you so much for all of your continued support - God Bless all fighting this with the strength and Grace 🙏🏼❤️❤️❤️🙏🏼❤️🙏🏼
@encephalitisinternational4 жыл бұрын
Thank you for your kind words, Ami. We are here for you, whenever you need us
@kimberleerobinson49519 жыл бұрын
I keep watching this as it is so interesting.
@encephalitisinternationalАй бұрын
Just in case you still need us - we are here for support - support@encephalitis.info
@segundolizardo66674 жыл бұрын
As a general pediatrician that just found this disease in a rural area thanks
@encephalitisinternational4 жыл бұрын
Thank you for letting us know, Segundo! Please do get in touch with us any time you need any information, advice or support for someone affected by encephalitis! You can reach our support team at support@encephalitis.info, or +44(0)1653699599.
@Karlena_Lewin_Studio Жыл бұрын
Thank you so much for this vid my mum is getting a MRI right now and I’m going to tell the docs this sounds the same and she is in full Delerium at mo and we can’t find y
@randolfaquino99983 жыл бұрын
my sister had JE a couple of.years ago.and now.she has episodes of stupor, limbs a bit.rigid and seometimes shaking she had anxiety before having JE but now she has short attacks that settles down quickly. She is able.to talk clearly at some point and then suddenly zones out. she is taking anxiety pills. Could this be NMDA or just the normal episodes after JE.
@lindseymarshall48303 жыл бұрын
My family deserted me because of this illness
@lindseymarshall48303 жыл бұрын
My husband divoced me and told my daughter I was a psychopath
@encephalitisinternational3 жыл бұрын
We are so sorry to hear this Lindsey. You are not alone - we are here for you. Please do not hesitate to get in touch with our friendly support team at support@encephalitis.info, or +44(0)1653699599 for some support.