No Filter - Meet Gisela, a patient with a rare kidney disease

[@jennyh9670]

Thank you for sharing. I have IGA and am in stage 4 kidney failure. It seems to be getting worse by the day. It helps to see someone who's gone through it. I wish there was more I could do.

[@shaymz]

I am also iga patient 😢

[@Dorvita]

Hi thank you for sharing this video. I have Fibrillary Glomerulonephritis another type of rare kidney disease. It is very difficult trying to explain to family and friends how you feel but having something like this video to share with them really makes the process much easier so again thank you. Wishing everyone all the very best who are currently suffering from kidney problems. All the best for this amazing chanel too. x Much love and respect from Scotland x

[@anngath-kidneydiseasewithp9524]

Thank you for sharing. I was diagnosed in 2016. my kidneys failed In 2021. I'm waiting for a transplant. I've done 3 social media campaigns alot of people came forward and hoping it will lead to a transplant soon. hope you are well.

[@M00159]

How are you doing now? Has a donor materialized for you? Is that the best way to try and find a donor? Through social media? Mainly FB? Are people willing? Even strangers? Hope you’re doing ok and a donor comes through for you if it hasn’t already happened. Blessings🙏🏻

[@stephen129]

I have FSGS too. My first transplant lasted 9 months. Then I was on dialysis for two years. I then had a second transplant which lasted two years. This has also just died and now I'm back on dialysis. My doctor has said yes highly likely the FSGS will reoccur in the third kidney. The cycle of transplant then dialysis then transplant will continue for the rest of my life.

[@wenchaowang-pg6xf]

Blessings for you

[@patriciachepkemoi9892]

My baby 2yrs old is diagnosed with fsgs I'm really confused can't tell the pain of the news. Now at the hospital just looking at him asking myself so many questions 'is he going to die!!!?

[@WELSHDESI]

@@patriciachepkemoi9892I wish all the best to your sweet baby & hope he be fine. I am parent of 14 year old son who is recently diagnose with C3G.😢 we are devastated & in shock. 😢 I hope 🤞 everything be fine with you & with sweet baby of yours. ❤️

[@hieupham3386]

@@patriciachepkemoi9892i have fsgs since I was 3. I am currently 34 and my kidneys start degrading slowly. As long you take treatment it will last long time. Hope that help

[@DeepakRajput2000]

Thanks 😭 I am only 23 now

[@realfansforfootball9246]

How you i have also ckd3 nd m also Indian

[@lisatelly2418]

🙏🫂

[@crubgolem4459]

It feels unfair man, I got diagnosed when I was 17 years old and I’m 24 now. Luckily I was able to get on new treatment they developed which delays kidney failure but I can only hope.

[@mebindev1131]

Hi I have iga nephropathy

[@RiyaRiya-th6ig]

How are you now? And where are you from???!