November 2013 - Dr. Latimer, PANDAS: One SIze Does Not Fit All

NE PANS/PANDAS Parent Association Conference November 2013
Dr. Beth Latimer
The Spectrum of PANDAS: One Size Does Not FIt All.

[@tanyajackson5188]

I need this dr in my sons life!!!!!!

[@natalie5672]

Thankful for this video being available to lay people.

[@stephaniebartsch4807]

Thank you so so much! Very helpful and informative in my own autoimmune issues!

[@anjie8570]

Thank you for this video Dr.Latimer. Amazing insights.

[@timetoevolve5519]

at the 40:01 mark I would love to see someone explore possible thiamine deficiency as a trigger. This deficiency affects and lowers immunity and especially the ones she mentions in this video as causes recurrent infections. It was used to treat MS by Dr. Klenner a long time ago for MS cure. Our diet, processed food, diet of mother (teas, tannins, phenols, alcohol, sugar, high calorie malnutrition), environment (mold toxins with thiaminase enzymes, also in raw fish, certain bacteria make this like staph, strep, deslufovibrio makes sulfide which also induces the deficiency, etc.), Vitamin antagonists are in our fortified foods and prenatal vitamins (high doses of B6 an antagonist). PLEASE look into this.

[@kipacha1]

High dose allithiamine in combo with magnesium got my son out of flares without use of anything else. He takes it daily now, and he has been in remission from PANS for 4 years.

[@mgw9562]

I’m researching to see if this is what my adult daughter Dx’d with ASD has. At 3 years she had an onset of Obsessions but not tics she became hyper and sleep issues but there def no tics. These things became observable after a bout of strep. But I don’t rembrr if it was a sudden change so…I am skeptical that she has this. Q: why test the parents for strept? Why so many relapses. ? What happens to those who never diagnosed and become adults with neuropsychological problems? Is it too late for them?

[@annec4019]

excellent!

[@MI-xt4fg]

Dr. Latimer is amazing!!

[@rahc57]

very interesting-could talk and add some information about autoimmune diseases.

[@horselover7216]

Could i have this? I'm bed bound and desperately trying to find out what's wrong. I have ehlers danlos syndrome (eds) and i have had severe back and head pain for years. I'm constantly having to turn over due to back pain. Also my neck got locked in one position and has been stiff ever since. Often i find that my back wants to lay one way and my neck wants me to lay the other. I also have had severe sickness and have had to be taking anti sickness ever since i got d&v. Ive hit my head several times and have had concussion. I have audit and visual hallucinations and eye sight issues. Dizziness. I have had stuff run down my throat causingvit to feel blocked for years. Sudden behavioral issues/ changes. I now can't even sit up or keep my neck up straight. Now i can't sit up without lower back pain and sickness. Agitation. Numbness in hands and legs. Can't feel pain. Sensitive to light. Memory issues. Panic attacks. Can't feel emotions, yet with a flick of a switch, I'm angry or crying. I have no idea why after. Aggression. Anorexia. Depression. Autism. Virtigo. Brain saps. Not responding to pain meds and i can't have morphine as that doesn't work and makes me sick. Nothing works. Normal mri and blood tests testing for antibodies. Frequent infections. Resistant to most antibiotics now. Also i have constant ringing in my ears. Also I've had a really bad ear infection, where i lost my taste buds and sense of smell. I've lost my taste buds now and sense of smell. Also, i had urinary problems growing up and found that as soon as i laughed or bounced on my trampoline, I'd end up going. It was very embarrassing and i had to take this little blue tablet to help (can't remember what it was called) My neurologist has diagnosed me with FND but i disagree! I'm aware that not all my symptoms are relivent, but i thought I'd add everything

[@stephaniebartsch4807]

I hope you can find help! May God be with you as you search! Maybe join the PANDAS FB group or search for another support group, it will help. What she said about Vit. D makes sense, as I have an autoimmune issue too, and Vit. D has really helped. I will pray for you, hang in there!

[@horselover7216]

@@stephaniebartsch4807 thanks. I will think about it. I have joined on my old facebook account though

[@timetoevolve5519]

my son got torticollis as an infant (wry neck) and mobility problems (stopped rolling over, drop foot, body weakness) with a severe thiamine deficiency that no doctor caught, I figured it out, but a little too late. it takes years to recover from the motor damage of this. Check out the documentary Zombie Alligators on Nat. Geo.

[@koalafromtomorrow5656]

I need to find a doctor

[@mgw9562]

They don’t care about school because it is hell for these children!

[@ElTiolclf]

I was diagnosed with PANDAS at the age of 69. Do adults get it too? Does it go away?

[@horselover7216]

Adults do yes. That's what I've heard

[@mgw9562]

You are an adult and you were diagnosed with it so… yes

[@sheep4521]

Psychiatry has a monopoly on the treatment of all mental health issues, with its Antidepressant and Antipsychotics.

[@susanfoley60]

So similar to autoimmune encephalitis, symptom wise

[@horselover7216]

I think so. I thought i had encephalitis but i think i may have pans now as pans is diagnosed without having to have a positive blood test or mri

[@horselover7216]

I think so. I thought i had encephalitis but now i think i have pans as you don't have to have a positive blood test or mri

[@ElTiolclf]

I am George's wife. I posted my diagnosis not Jorge.