Ocular Melanoma Story Share with Jeff Howard

[@peekaboocockatiel6514]

Thank you for this! There is a bad echo, as you know. I was diagnosed in September 2023 and it was already a large tumor. By the time I got to Wills Eye hospital, Oct 19, 2023 it had taken over much of my eye and they had to enucleate my eye. I am doing the same now. I am always bumping into walls and knocking things off counters and making spills. This is why I don’t drive. I’m afraid to hurt someone.

[@trials-2009]

I was diagnosed that month last year too! also got enucleated because the tumour was on the larger size.

[@dianesilverstein6475]

Jeff, i hope and pray you are doing well. I was diagnosed this past June. I had the plaque surgery and Castle/biopsy. In a little over a week i will learn the results. Although i have cried a few times over my diagnosis, I am somehow distant from the reality. I can't articulate it very well, but it's almost like the idea of having cancer is a foreign concept. I hardly think about my having cancer even though i take my drops daily, which I'd think would trigger a reminder I do have cancer! I guess i am maintaining my distance from my melanoma. I wish all of us the very best.❤

[@acureinsight4912]

@@dianesilverstein6475 We have a fb page with amazing support system come over and visit us .

[@acureinsight4912]

@@dianesilverstein6475 A Cure In Sight facebook

[@dianesilverstein6475]

Thank you ​@@acureinsight4912

[@Tir407]

Two days ago I was referred to an ocular oncologist for suspected cancer. Last week I started losing vision. My first diagnosis was stress blindness, and I was referred to a retina specialist. The specialist basically told me a similar thing. You have cancer. While very professional he didn’t seem to have any positive things to say. His assistant tried to be helpful with comments like. Many people still live a full life after treatment. I was basically told that there are two options. Radiation and removal. Currently I am waiting for an appointment with the oncologist up in Portland oregon. Thank you for your story.

[@mattmanning6788]

I choose radiation procedure almost a year ago. I am curious what you choose and how you are doing.

[@Sbjhhv.w]

Go to Dr Francis at memorial sloans and ketttering

[@peekaboocockatiel6514]

I hope everything went well for you. Please

[@CHRISTO-yp6sr]

It's wonderful to see that there is more awareness about this rare cancer! My mother was diagnosed with Metastatic Ocular Melanoma, early in 2017. She unfortunately passed away just over a year and a couple of months later. (Passing date; July 19, 2018)

[@peekaboocockatiel6514]

I am so sorry for your loss. 😢

[@Christian-qu9ml]

American healthcare is disgusting. In Australia this operation would have been free.

[@user-wb2yv7ll9d]

I agree about healthcare in the US, it's disgusting.

[@peekaboocockatiel6514]

I was grateful that I have the American Medicare which is much better than the insurance I had with my company I had retired from. My total was $733.00 for my part. Enucleation saved my life… so far.

[@user-wb2yv7ll9d]

@@peekaboocockatiel6514 Medicatre can get very confusing with all the "parts" and the gaps and the donut hole. I wish they could simplify it.

[@Megan-pm1sc]

Incredible story from Jeff. You hate to see bad things happen to good people. As for the interviewer, it's too bad you didn't notice all the audio feedback. Makes it really hard to listen to you.