Empowering Patients, Advancing Research, and Improving Clinical Care in ME/CFS and Fibromyalgia

[@sheilasingleton7904]

As a RN I have tried to communicate with docs as a professional and as a patient. I’ll keep chipping away at them but it certainly is a battle! In the meantime my husband drives me nine hours to Hunter Hopkins in N. Carolina.

[@avalon7024]

I was a RN for 30 years, I have CHF/ ME for 12 years. I have Fibromyalgia too . This Disease requires staff that actually have this illness. Many ideas you have are contraindicated. This Disease is so debilitating and fragile, as a patient , exercise to bed bound can be a day in the life . Find a test a doctor can use to diagnose otherwise I don't exist.